ʻO ka hānai ʻana i nā keiki ke loaʻa iā ʻoe ka maʻi HIV: ka mea āu e ʻike ai

Anter

• He papa maʻemaʻe e aʻo ai
• ʻAno ʻole ke kamaʻilio e pili ana i ka moekolohe
• Ke hōʻike ākea nei i kāu kūlana
• He virus wale nō ia
• HIV a me ka hāpai keiki
• Lawe aku

Ma hope o ke aʻo ʻana he maʻi maʻi koʻu i ka makahiki 45, ua hoʻoholo wau i ka mea nāna e haʻi. I ka wā e pili ana i ka hoʻokaʻawale ʻana i kaʻu ʻike me kaʻu mau keiki, ʻike wau he hoʻokahi wale nō kaʻu koho.

I kēlā manawa, 15, 12, a me 8 kaʻu mau keiki, a he hopena kuli maoli kēlā e haʻi iā lākou he maʻi HIV koʻu. Ua maʻi wau ma ka moena no nā pule he nui a ua pīhoihoi mākou āpau e ʻike i ke kumu o koʻu maʻi.

Ma waena o 30 mau minuke o ke kelepona i hoʻololi i koʻu ola, aia ma kaʻu kelepona kaʻu keiki he 15 mau makahiki e ʻimi nei i nā pane. Hoʻomaopopo wau i kāna ʻōlelo ʻana, "Māmā, ʻaʻole ʻoe e make mai kēia." Ua manaʻo wau ua ʻike wau e pili ana i ka maʻi HIV, akā me ka ʻike ʻole ʻia i loko o kou kino e loli nui ai i kou kuanaʻike.

ʻO ka mea kupanaha, ʻo ke ʻano mālie o kaʻu ʻōpio i paʻa ai wau no ka hōʻoluʻolu i kēlā mau manawa mua o ke aʻo ʻana he maʻi maikaʻi wau.

Eia pehea wau i kamaʻilio ai i kaʻu mau keiki e pili ana i kaʻu ʻike, a me ka mea e ʻike ai e pili ana i ka loaʻa ʻana o nā keiki ke loaʻa iā ʻoe ka maʻi HIV.

He papa maʻemaʻe e aʻo ai

I kaʻu kaikamahine he 12 mau makahiki a me kaʻu keiki he 8 mau makahiki, ʻaʻohe mea ʻē aʻe o ka HIV akā ʻekolu mau leka. ʻO ke aʻo ʻana iā lākou me ka ʻole o ka hui o stigma kahi manawa i manaʻo ʻole ʻia, akā he manawa pōmaikaʻi.

Ua wehewehe au he maʻi hoʻomaʻemaʻe ka HIV e hoʻouka nei i nā hunaola maikaʻi i koʻu kino, a e hoʻomaka koke wau e lawe i nā lāʻau e hoʻohuli i kēlā hana. ʻO ka mea maʻamau, ua hoʻohana wau i kahi hoʻohālikelike Pac-Man e kōkua iā lākou e ʻike i ka hana a ka lāʻau me ka virus. ʻO ka hāmama ka mea i hōʻoluʻolu iaʻu i ka ʻike ʻana e hana ana wau i kahi maʻamau maʻamau ke kamaʻilio e pili ana i ka maʻi HIV.

ʻO ka ʻāpana paʻakikī e wehewehe ana i ka loaʻa ʻana o kēia i loko o kona kino e ka makuahine.

ʻAno ʻole ke kamaʻilio e pili ana i ka moekolohe

Ma hope o koʻu hoʻomanaʻo, ua ʻike wau e hāmama nui wau me kaʻu poʻe keiki e hiki mai ana e pili ana i ka moekolohe. Akā he mau keiki kaʻu a hele pololei i ka puka aniani.

ʻAno ʻole ke kamaʻilio e pili ana i ka moekolohe me kāu mau keiki. ʻO ka ʻāpana o kāu e hūnā ai ʻoe ma ke ʻano he makuahine. Ke hiki mai i ko lākou kino, ʻano ʻoluʻolu ʻoe e noʻonoʻo lākou ia iā lākou iho. I kēia manawa, ua alo wau i ka wehewehe ʻana i ka loaʻa ʻana iaʻu o ka maʻi HIV.

No kaʻu mau kaikamahine, ua kaʻanalike wau ua loaʻa wau i ka maʻi HIV ma o ka moekolohe me kahi ipo aloha a haʻalele iā ia i kēlā. Ua ʻike kaʻu keiki na kēlā hoa mai ia, akā ua koho wau e mālama i ka vague "pehea". I loko o nā makahiki ʻehā i hala aku nei, ua lohe ʻo ia i ka mele pili i ka lawe ʻia ʻana o ka maʻi HIV ma muli o kaʻu kākoʻo a ua hoʻohui ʻelua a ʻelua pū kekahi.

Ke hōʻike ākea nei i kāu kūlana

Inā wau i hūnā i koʻu kūlana a loaʻa ʻole ke kākoʻo o kaʻu mau keiki, manaʻo wau ʻaʻole wau e lehulehu e like me aʻu i kēia lā.

He nui ka poʻe e noho nei me ka HIV e pale aku i ka ʻiʻini e kaʻana like i ko lākou ʻike a hōʻemi i ka stigma me kā lākou mau hoaaloha, ʻohana, hoa hana, a i ʻole ma ka pāpili pāʻoihana. Ma muli paha o ka ʻike ʻole o kā lākou keiki a ʻelemakule paha e hoʻomaopopo i ka stigma a noi aku e noho mālie ko lākou mau mākua no ko lākou pono. Koho paha nā mākua e noho pilikino e pale i kā lākou keiki mai nā hopena maikaʻi ʻole o ka stigma.

Laki nō wau ua ʻike kaʻu mau keiki mai ka wā ʻōpio ʻaʻole ka HIV ma mua o ka 80 a me ka 90. ʻAʻole mākou e pili ana i ka hoʻopaʻi make i kēia lā. ʻO ka maʻi HIV kahi kūlana paʻa mau.

Ma o kaʻu mau pilina me nā ʻōpio ma ke kula aʻu e hana nei, ua ʻike au i ka hapa nui o lākou i ka manaʻo ʻole he aha ka HIV. ʻO ka mea ʻē aʻe, hopohopo nā poʻe ʻōpio he nui e ʻimi i nā ʻōlelo aʻoaʻo ma o kaʻu pāpili kaiaulu e "hopu" lākou iā HIV mai ka honi ʻana a make paha. ʻIke loa, ʻaʻole pololei kēia.

Kanaka kanakolukūmālima mau makahiki o ka stigma paʻakikī e hoʻoluliluli, a ʻaʻole hana mau ka pūnaewele i nā maʻi āpau iā HIV. E aʻo nā kamaliʻi ma o kā lākou mau kula e pili ana i ke ʻano o ka HIV i kēia lā.

Kūpono kā mākou poʻe keiki i ka ʻikepili o kēia manawa e hoʻololi i ke kamaʻilio e pili ana i ka maʻi HIV. Hiki i kēia ke neʻe iā mākou i kahi ala o ka pale a me ka mālama ʻana ma ke ʻano he mea e kinai ai i kēia maʻi.

He virus wale nō ia

Ke ʻōlelo nei he maʻi pulupulu ʻoe, ka maʻi palū, a i ʻole ke anu maʻamau loaʻa ʻole stigma. Hiki iā mākou ke kaʻana maʻalahi i kēia ʻike me ka hopohopo ʻole e pili ana i ka manaʻo a haʻi a haʻi.

Ma ka ʻaoʻao ʻē aʻe, ʻo HIV kekahi o nā mea maʻi e hāpai i ka stigma ʻoi loa - no ka mea hiki ke lawe ʻia ma o ka pili kolohe a i ʻole ka hoʻokaʻawale ʻana i nā nila. Akā me nā lāʻau o kēia lā, kūpono ʻole ka hoʻopili, hoʻopōʻino, a weliweli loa paha.

ʻIke kaʻu mau keiki iā HIV ma ke ʻano he pila aʻu e lawe ai a ʻaʻohe mea ʻē aʻe. Hiki iā lākou ke hoʻoponopono i kā lākou mau hoaaloha ke hala nā mākua o kēlā mau hoaaloha i nā ʻike hewa a hōʻino paha.

I loko o ko mākou hale, mālama mākou i ka māmā a hoʻomākeʻaka e pili ana. E ʻōlelo kaʻu keiki ʻaʻole hiki iaʻu ke palu i kāna ʻaikalima no ka mea ʻaʻole makemake ʻo ia e loaʻa ka maʻi maʻi maʻi iaʻu. A laila ʻakaʻaka mākou, a lālau wau i kāna ʻai kalima.

ʻO ka hoʻomālamalama ʻana i ka lapuwale o kēlā ʻike ko mākou ala o ka hoʻomāʻewaʻewa i ka maʻi maʻi i hiki ʻole ke hoʻomāʻewaʻewa hou mai iaʻu.

HIV a me ka hāpai keiki

ʻO ka mea a ka hapanui o ka poʻe i ʻike ʻole he hiki ke palekana loa i ka loaʻa ʻana o nā keiki ke kūpono ʻoe i ka maʻi HIV. ʻOiai ʻaʻole kēia koʻu ʻike, ʻike wau i ka nui o nā wahine HIV-maikaʻi i loaʻa i nā hāpai hāpai kūleʻa me ka ʻole o nā pilikia.

Ke mālama ʻia a ʻike ʻole ʻole ʻia, hiki i nā wahine ke loaʻa nā hānau ʻōpio palekana a me nā pēpē maikaʻi ʻole HIV-maikaʻi. ʻAʻole maopopo kekahi mau wahine he HIV-maikaʻi a hiki i ka wā e hāpai ai, ʻoiai ʻo kekahi e ʻaʻa i ka maʻi i ka wā hāpai. Inā ke kāne e noho nei me ka maʻi HIV, aia kekahi manawa liʻiliʻi e lawe ʻo ia i ka maʻi i kekahi hoa wahine a i ka hānau hou.

ʻO kēlā me kēia ala, aia wale nō ka hopohopo nui no ka lawe pilikia ʻana ke mālama ʻia.

Lawe aku

Ke hoʻololi nei i ka ʻike o ka honua i ka hoʻomaka ʻana o ka HIV me kēlā me kēia hanauna hou. Inā ʻaʻole mākou e hoʻāʻo e aʻo i kā mākou keiki e pili ana i kēia maʻi, ʻaʻole e pau ka stigma.

He kākoʻo ʻo Jennifer Vaughan a me ka vlogger. No nā mea hou aʻe e pili ana i kāna moʻolelo HIV a me nā vlogs o kēlā me kēia lā e pili ana i kona ola me ka maʻi HIV, hiki iā ʻoe ke hāhai iā ia ma YouTube a me Instagram, a kākoʻo i kāna kākoʻo ma aneʻi.