Ua hōʻike ʻo Hailey Bieber he maʻi genetic kona i kapa ʻia ʻo Ectrodactyly-Akā he aha ia?

Anter

• He aha ka ectrodactyly?
• He aha ke kumu o ka ectrodactyly?
• Nānā no

E ʻike nā troll pūnaewele i kekahi ala e hiki ai iā lākou ke hōʻino i nā kino o ka poʻe kaulana — ʻo ia kekahi o nā ʻāpana ʻona loa o ka pāpili kaiaulu. ʻO Hailey Bieber, ka mea i wehe mua ʻia e pili ana i ka pili ʻana o ka pāhana kaiapili i kona olakino noʻonoʻo, ua noi ʻo ia i nā trolls Instagram e hoʻōki i ka "ʻala" i kahi ʻāpana o kona helehelena āu e manaʻo ʻole ai e nānā ʻia ma kahi mua: kāna pinkies.

"ʻAe, e komo kāua i ke kamaʻilio pinky.. no ka mea, ua hoʻomāʻewaʻewa wau iaʻu iho e pili ana i kēia no ka manawa pau ʻole no laila hiki iaʻu ke haʻi aku i nā mea ʻē aʻe no ke aha [koʻu mau pinkies] kekee a weliweli," i kākau ai ʻo Bieber i loko o kahi moʻolelo Instagram. hōʻike ʻia i kahi kiʻi o kona ʻalani ʻalalā, ʻae, kekeʻe iki.

Ua hōʻike ʻia ke kumu hoʻohālike i kahi kiʻi i hoʻopau ʻia o kahi ʻaoʻao Wikipedia no kahi kūlana i kapa ʻia ectrodactyly, e like me ka Leka i kēlā me kēia lā. "ʻO wau kēia mea i kapa ʻia he ectrodactyly a kumu ia e nānā i koʻu mau manamana ʻalani i ke ʻano o kā lākou hana," ua kākau ʻo Bieber ma ka ʻaoʻao o ka screenshot Wikipedia, no ka nūhou o UK. "He genetic ia, ua loaʻa iaʻu i koʻu ola holoʻokoʻa. No laila hiki i nā poʻe ke ho'ōki i ka nīnau ʻana mai iaʻu 'wtf hewa me kona mau manamana lima pinky.'" (Related: These Social Media Features Make It Easier to Defend Against Hateful Comments and Encourage Kindness)

He aha ka ectrodactyly?

ʻO Ectrodactyly kahi ʻano o ka hoʻokaʻawale wāwae wāwae / māwae wāwae (SHFM), kahi maʻi genetical "ʻike ʻia e ka piha a hapa paha o ka manamana lima a me nā manamana wāwae paha, i hui pinepine ʻia me nā māwae i nā lima a me nā wāwae," e like me ka National Organization for Rare Nā pilikia (NORD). Hiki i kēia maʻi ke hāʻawi i nā lima a me nā wāwae i kahi hiʻohiʻona "like-kukui", a i kekahi mau hihia, hiki ke hōʻike ʻia ke ʻano o ka webbing ma waena o nā manamana lima a i ʻole nā ​​manamana wāwae (ʻike ʻia ʻo syndactyly), no ka NORD.

ʻOiai ʻo SHFM hiki ke hōʻike i nā ʻano ʻano like ʻole, aia ʻelua ʻano nui. Ua kapa ʻia ka mea mua he ʻano ʻano "lobster claw", kahi i loaʻa ai ka "maʻamau ʻole" o ka manamana waena; ʻO ka "cone-shaped cleft" ma kahi o ka manamana lima e hoʻokaʻawale i ka lima i ʻelua ʻāpana (e like me ka lima e like me ka maʻiuʻi no laila ka inoa), e like me ka NORD. Hana pinepine kēia ʻano SHFM i nā lima ʻelua, a hiki ke hoʻopili i nā wāwae, no ka hui. ʻO Monodactyly, ke ʻano nui ʻē aʻe o SHFM, e pili ana i ka nele o nā manamana lima a pau koe ka pinky, e like me ka NORD.

ʻAʻole maopopo i ke ʻano o ka SHFM Bieber i ʻōlelo ai iā ia—ʻoiaʻiʻo ua loaʻa iā ia nā manamana 10 āpau ma kona mau lima-akā e like me ka NORD memo, aia kekahi mau "ʻano a me nā hui ʻana o nā deformities" hiki ke hana me SHFM, a me nā kūlana ākea i ke koʻikoʻi. " (E pili pū ana: Ke wāwahi nei kēia ʻano hoʻohālike me kahi maʻi genetic i nā Stereotypes)

He aha ke kumu o ka ectrodactyly?

E like me kā Bieber i ʻōlelo ai i loko o kāna Instagram Stories, ectrodactyly kahi ʻano kūlohelohe, ʻo ia hoʻi ka poʻe i hānau ʻia me ia (ma muli paha o ka hoʻomeheu genetics a i ʻole kahi mutation gen random), e like me ka Genetic and Rare Diseases Information Center (GARD). Hiki i ka SHFM, ma ka laulā, ke hoʻopā like i nā pēpē kāne a me nā pēpē wahine. Ma kahi o hoʻokahi o kēlā me kēia 18,000 hānau hou i hānau ʻia me kekahi ʻano o ke ʻano, ma ka NORD. ʻOiai ʻo SHFM hiki i nā lālā o ka ʻohana like, hiki i ke ʻano ke hōʻike ʻokoʻa i kēlā me kēia kanaka. Ua ʻike ʻia ma muli o "nā hiʻohiʻona kino i ka hānau ʻana" a me nā anomalies skeletal i ʻike ʻia e nā scan X-ray, wahi a ka NORD.

ʻO ka hapa nui, he ola maʻamau ka poʻe me kahi ʻano SHFM, ʻoiai he "paʻakikī paha kekahi i ka hana kino," ma muli o ke koʻikoʻi o kā lākou malformation, e like me ka NORD. Aia kekahi "mau hihia liʻiliʻi loa o SHFM" i hele pū ʻia me ke kuli i kekahi manawa, e like me kahi noi 2015 i paʻi ʻia ma ka CHRISMED Journal of Health and Research.

Ma waho aʻe o Bieber, ʻaʻole nui ka poʻe lehulehu i loaʻa kekahi ʻano SHFM (a i ʻole ka nui o ka poʻe i wehe e pili ana i ka loaʻa ʻana o ke ʻano). ʻO ka heleuma nūhou a me ka mea hōʻike hōʻike hōʻikeʻike, ua hele a lehulehu ʻo Bree Walker me kāna maʻi syndactyly (ʻano e ʻelua a ʻoi aku mau pūnaewele a i ʻole hoʻopili ʻia nā manamana lima) ma hope o nā makahiki he nui o ka hūnā ʻana i kona mau lima i loko o nā mīkina lima ʻelua. Ma hope o ka '80s, ua haʻi ʻo Walker Kanaka Ua hana ʻino ʻia ʻo ia e like me ka nānā ʻana a me ka ʻōlelo ʻole ʻia e nā malihini e pili ana i ke ʻano o kona mau lima a me kona mau wāwae. Ua lilo ʻo Walker i lilo i mea hoʻāla kuleana kīnā no nā mea me nā ʻano like. (E pili ana: Ua hōʻike wale ʻo Jameela Jamil iā ia he Ehlers-Danlos Syndrome)

No ka ʻaoʻao o Bieber, ʻaʻole ʻo ia i wehewehe i ka hopena o ka ectrodactyly i kona ola, ʻaʻole hoʻi ʻo ia i haʻi inā loaʻa iā ia nā hemahema ʻē aʻe ma waho o ke ʻano o kona manamana lima ʻulaʻula.

ʻLelo ʻia, he mea mau ka hoʻomanaʻo ʻana i ka ʻōlelo ʻana i ke kino o haʻi ʻē aʻe, ʻaʻole ʻoluʻolu loa.

Nānā no