Pehea wau e kūleʻa nei me MS holomua

ʻOiai inā ʻoe e ʻike i ke ʻano o ka PPMS a me nā hopena i kou kino, aia kekahi mau manawa ke manaʻo ʻoe ʻoe wale nō, kaʻawale, a maliʻa paha me ka nui o ka makemake. ʻOiai he paʻakikī kēia ʻano e ʻōlelo i ka mea liʻiliʻi, maʻamau kēia mau manaʻo.

Mai ka hoʻoponopono ʻana i ka hoʻololi ʻana i ka nohona, e piha ana kou ola i nā hoʻoponopono. Akā ʻaʻole ia he manaʻo e hoʻoponopono ʻoe i kou ʻano ma ke ʻano he hoʻokahi kanaka.

Eia nō naʻe, ke ʻike nei pehea e like ai nā mea ʻē aʻe e like me ʻoe i ke kūleʻa ʻana a me ka mālama ʻana i ke ʻano hiki ke kōkua iā ʻoe e kākoʻo i kāu huakaʻi PPMS. E heluhelu i kēia mau ʻōlelo mai ko mākou Living with Multiple Sclerosis Facebook kaiāulu a ʻike i kāu mea e hiki ai ke hana e pale aku iā PPMS.

“E hoʻokau i mua. ('Asilelo maʻalahi, ʻike wau!) ʻAʻole maopopo ka hapa nui o ka poʻe. ʻAʻohe o lākou MS. ”
– ʻO Janice Robson Anspach, e noho nei me MS

"ʻO kaʻoiaʻiʻo, ʻo ke ʻae ke kī i ke kāohi ʻana - {textend} kaukaʻi ʻana i ka hilinaʻi a me ka hoʻomaʻamaʻa ʻana i ka manaʻo maikaʻi a me ka noʻonoʻo ʻana i kahi wā e hiki mai ana kahi hiki ke hoʻihoʻi. Mai haʻalele."
– ʻO Todd Castner, e noho nei me MS

“ʻOi aku ka paʻakikī o kekahi mau lā ma mua o nā mea ʻē aʻe! Aia kekahi mau lā ua nalowale wale wau a makemake paha e hāʻawi a hana ʻia me ia āpau. I kekahi mau lā ʻē aʻe ua ʻeha ka ʻeha, kaumaha, a me ka hiamoe iaʻu. ʻAʻole wau makemake i ka lawe meds. I kekahi manawa makemake wau e haʻalele i ka lawe ʻana iā lākou āpau. A laila hoʻomanaʻo wau i ke kumu o ka hakakā ʻana, ke kumu o ka ʻūlū a hoʻomau ʻana. ”
– ʻO Crystal Vickrey, e noho nei me MS

“E kamaʻilio mau me kekahi e pili ana i kou ʻano. Kōkua kēia wale nō. ”
– ʻO Jeanette Carnot-Iuzzolino, e noho nei me MS

"I kēlā me kēia lā e ala wau a hoʻonohonoho i nā pahuhopu hou a mālama i kēlā me kēia lā, inā ʻeha a ʻoluʻolu paha wau."
– ʻO Cathy Sue, e noho nei me MS