Nā helu ola a me Outlook no Acute Lymphocytic Leukemia (ALL)

Anter

• He aha nā helu ola no ALL?
• I nā keiki
• He aha nā mea e hoʻohuli ai i ka helu ola?
• He aha ka hopena o ka makahiki i ka helu ola?
• He aha ka hopena o KĀʻano āpau i ka helu ola?
• Nā mea kūpono ʻole Chromosomal
• He aha ka hopena o ka pane ʻana i ka pane i ke ola ola?
• He aha ka hopena o ka laha ʻana o KANAKA āpau i ka helu ola.
• He aha ka hopena a WBC i helu ai i ka helu ola?
• Pehea e hiki ai i ke kanaka ke kūpale a ʻimi i ke kākoʻo?
• E noiʻi i ka maʻi
• E kiʻi i kāu hui olakino
• E noʻonoʻo i nā hoʻoponopono kōkua
• E hana i kahi mahele no nā hoaaloha a me nā mea aloha

He aha ka leukemia lymphocytic huʻi (ALL)?

ʻO ka leukemia lymphocytic huikau (ALL) kahi ʻano o ka maʻi ʻaʻai. Hōʻike kēlā me kēia ʻāpana o kona inoa iā ʻoe i kekahi mea e pili ana i ka maʻi ʻaʻai ponoʻī:

• Kūpono. Ke ulu wikiwiki nei ka maʻi ʻaʻai a koi koke i ka ʻike a me ka mālama ʻana. Me ka ʻole o ka lapaʻau ʻana, ʻaʻole hiki i nā hunaola iwi ke oʻo pono, a ʻaʻole lawa ka olakino a me ka momona o ka iwi o ke kanaka. Hoʻololi ʻia ka iwi iwi i ka lymphocytes abnormal e ulu wikiwiki ana.
• Lymphocytic. Hoʻopili ka maʻi ʻaʻai i nā lymphocytes o nā hunaola keokeo o ke kanaka (WBCs). ʻO kekahi huaʻōlelo e hoʻohana ʻia ai ka lymphoblastic.
• Leukemia. ʻO Leukemia kahi maʻi ʻaʻai o nā huna koko.

Aia kekahi mau ʻano ALL. Aia nā helu ola no ALL āpau i ke ʻano o ke kanaka.

ʻO KAHI ka maʻi ʻaʻai nui o nā kamaliʻi, akā he kiʻekiʻe kona e ola ai i nā keiki. ʻOiai ʻaʻole kiʻekiʻe ka nui o ke ola ke ulu ia i nā mākua, ke hoʻomaikaʻi mau nei lākou.

He aha nā helu ola no ALL?

Kuhi ka National Cancer Institute (NCI) i ka poʻe 5,960 e loaʻa ka hōʻailona o ALL ma United States i ka makahiki 2018. Ma kahi o 1,470 poʻe e make i kēia maʻi i ka makahiki 2018.

Hiki i kekahi mau mea ke hoʻoholo i nā helu e ola ai, e like me ka makahiki ma ka diagnose a me ka subtype o ALL.

ʻO ka helu ola ʻelima mau makahiki i ka United States he 68.1 pakeneka, hōʻike ka NCI. Eia nō naʻe, ke hoʻomaikaʻi mau nei kēia mau helu. Mai ka makahiki 1975 a hiki i ka 1976, aia ma lalo o 40 ka pākēneka ke ola o nā makahiki ʻelima no ke ola āpau.

ʻOiai ʻo ka hapanui o ka poʻe i loaʻa ka hōʻailona o KANAKA a pau nā keiki, ʻo ka pākēneka kiʻekiʻe loa o ʻAmelika me ALL i hala i waena o nā makahiki o 65 a me 74.

Ma ka hapanui, ma kahi o 40 pākēneka o nā mākua me ALL i manaʻo ʻia e hoʻōla ʻia i kekahi manawa i ka wā o kā lākou mālama ʻia ʻana, ke koho ʻia ʻo ʻAmelika Hui Pū ʻIa ʻAmelika. Eia nō naʻe, pili kēia mau helu hoʻōla i nā ʻano like ʻole, e like me ka subtype o ALL a me nā makahiki i ka hōʻoia ʻana.

Ua "hoola ʻia" kahi kanaka o KĀLĀ inā loaʻa iā lākou ke kala piha a ʻoi paha. Akā no ka mea aia kahi manawa o ka maʻi ʻaʻai e hoʻi mai ai, ʻaʻole hiki i nā kauka ke ʻōlelo me ka 100 pākēneka maopopo ua hoʻōla ʻia kekahi kanaka. ʻO ka mea nui a lākou e ʻōlelo ai inā paha aia he hōʻailona o ka maʻi ʻaʻai i kēlā manawa.

I nā keiki

Wahi a ka NCI, aia ka helu ola ʻelima mau makahiki no nā keiki ʻAmelika me ALL āpau. ʻO kēia ka 85 pākēneka o nā ʻAmelika me ka wā ʻōpio ALL e noho ma kahi o ʻelima mau makahiki ma hope o ka loaʻa ʻana o kahi hōʻailona me ka maʻi ʻaʻai.

ʻO nā helu ola no ALL, ʻoi aku no nā keiki, hoʻomau i ka hoʻomaikaʻi i ka manawa ke hoʻomohala ʻia nā ʻano lapaʻau hou.

Manaʻo paha nā kauka he nui i kēia mau keiki e hoʻōla ʻia i ko lākou maʻi ʻaʻai inā lākou i ke kala piha ʻana ma mua o ʻelima mau makahiki. ʻO ke kala ʻana he hōʻemi ʻia nā hōʻailona a me nā ʻōuli o ka maʻi ʻaʻai.

Hiki ke hoʻokaʻawale a hoʻopau ʻia paha ke kala ʻana. I ke kala piha ʻana, ʻaʻohe ou hōʻailona a me nā ʻōuli o ka maʻi ʻaʻai. Hiki i nā mea āpau ke hoʻi mai ma hope o ke kala ʻana, akā hiki ke hoʻomaka hou ka lāʻau ʻana.

Wahi a ka NCI ma waena o nā keiki ʻAmelika me ALL, kahi koho e loaʻa ai ke kala. ʻO ke kala kala ʻana ʻaʻohe o ke keiki hōʻailona a ʻōuli paha o ke ʻano a aia nā helu o ke kele koko i loko o nā palena maʻamau.

He aha nā mea e hoʻohuli ai i ka helu ola?

Hiki i kekahi mau mea ke hoʻopili i ka helu ola o ke kanaka ma hope o ka ʻike ALL, e like me ka makahiki o ke kanaka a i ʻole helu WBC i ka manawa o ke kuhi. Manaʻo nā kauka i kēlā me kēia kumu ke hāʻawi i ka nānā o ke kanaka.

Eia nō naʻe, mea nui e hoʻomanaʻo i kēia kuanaʻike ka manaʻo o ke kauka o ke ola i hāʻawi ʻia i ka ʻike diagnostic i loaʻa iā lākou i kēia manawa.

He aha ka hopena o ka makahiki i ka helu ola?

Wahi a ka NCI, ua ʻike kekahi mau noiʻi ua loaʻa i ka poʻe kahi manawa kūpono e ola ai inā he 35 a ʻoi paha ko lākou mau makahiki i lalo. Ma ka laulaha, ʻo ka poʻe ʻelemākule me ALL e loaʻa ka ʻikeilihune ma mua o ka poʻe ʻōpio.

Manaʻo ʻia ʻo nā keiki ʻoi aku ka makaʻu inā ʻoi aku lākou i ka makahiki 10.

He aha ka hopena o KĀʻano āpau i ka helu ola?

ʻO ka poʻe me nā subtypes pūnaewele, e like me ka pre-B, maʻamau, a i ʻole ma mua o ka mua o B, manaʻo ʻia he ʻoi aku ka maikaʻi o ke ola ma mua o ka poʻe me ka leukemia B-cell (Burkitt) oʻo.

Nā mea kūpono ʻole Chromosomal

Nui nā ʻano ʻokoʻa o KULA āpau. Hiki i nā maʻi ʻōkuhi ke kumu i KĀLĀ ke hana i nā hoʻololi ʻokoʻa i nā chromosome a ke kanaka. ʻO ke kauka i kapa ʻia he pathologist e nānā i nā hunaola maʻi ʻino ma lalo o kahi microscope.

Pili kekahi mau ʻano ʻokoʻa o nā chromosomal abnormalities me kahi nānā ʻilihuna. Pākuʻi ʻia kēia mau mea:

• Ph1-positive t (9; 22) nā mea kūpono ʻole
• Hoʻomaopopo hou ʻia ʻo BCR / ABL i leukemia
• t (4; 11)
• holoi ʻia o chromosome 7
• trisomy 8

Inā hana kāu kauka i kahi hōʻailona ALL, e haʻi lākou iā ʻoe i ke ʻano o nā leukemia i loaʻa iā ʻoe.

He aha ka hopena o ka pane ʻana i ka pane i ke ola ola?

ʻO ka poʻe e pane wikiwiki i nā mālama ʻana no ALL āpau e loaʻa kahi nānā ʻoi aku ka maikaʻi.Ke lōʻihi ka lōʻihi o ke kiʻi ʻana i ke kala ʻana, ʻaʻole maikaʻi ka nānā aku ma mua o ka maikaʻi.

Inā ʻoi aku ka lōʻihi o ka mālama ʻana o kekahi kanaka ma mua o ʻehā mau pule e hele i ke kala, hiki i kēia ke hoʻololi i ko lākou nānā.

He aha ka hopena o ka laha ʻana o KANAKA āpau i ka helu ola.

Hiki i nā mea āpau ke pālahalaha i ka cerebral spinal fluid (CSF) i loko o ke kino. ʻO ka pālahalaha nui aʻe i nā mea pili kokoke, e like me CSF, ʻo ka ʻilihune ka nānā.

He aha ka hopena a WBC i helu ai i ka helu ola?

ʻO ka poʻe me ka helu WBC kiʻekiʻe loa ma ka hōʻoia (ʻoi aku ka kiʻekiʻe ma mua o 50,000 a 100,000) he ʻike maikaʻi ʻole ko lākou.

Pehea e hiki ai i ke kanaka ke kūpale a ʻimi i ke kākoʻo?

ʻO ka lohe ʻana i ke kauka e haʻi iā ʻoe he maʻi ʻaʻai ʻoe ʻaʻole maʻalahi. Eia nō naʻe, hiki ke mālama ʻia nā ʻano he nui o KATOA. ʻOiai ʻoe e ʻalo ʻana i nā lāʻau, nui nā ala o ke kākoʻo i loaʻa e kōkua iā ʻoe ma kēia huakaʻi.

ʻO kekahi o nā hana i hiki iā ʻoe ke hoʻohana ke helu ʻia ma lalo:

E noiʻi i ka maʻi

ʻO ke aʻo hou ʻana mai nā hui i ʻike nui ʻia, hiki ke kōkua iā ʻoe e lilo i ʻike e like me ka hiki e pili ana i kou ʻano a me kāu mālama.

ʻO nā laʻana o nā kumuwaiwai maikaʻi loa:

• Leukemia & Lymphoma ʻAhahui
• ʻAhahui Kanaka ʻAmelika

E kiʻi i kāu hui olakino

Hoʻokomo pinepine ka mālama ʻana i ka maʻi ʻaʻai i kahi hui e hoʻokokoke i kāu mālama. Nui nā wahi maʻi ʻaʻai i loaʻa i nā mea hoʻokele maʻi ʻaʻai e hiki ke hoʻokuʻi iā ʻoe me ka waiwai a me ke kākoʻo.

Hiki i nā ʻoihana olakino he nui ke kākoʻo iā ʻoe a i ʻole kahi mea aloha. Pākuʻi ʻia lākou:

• psychiatrists
• nā limahana kaiaulu
• nā meaʻai
• hoʻomalu ola keiki
• nā luna hoʻokolokolo hihia
• kahunapule

E noʻonoʻo i nā hoʻoponopono kōkua

Hiki i nā kuʻina e hoʻonui i ka hoʻomaha a me ke olakino koʻikoʻi ke kōkua i kāu lāʻau lapaʻau. Hiki i nā laʻana ke hoʻopili i ka massage a me ka acupuncture.

E kamaʻilio mau i kāu kauka ma mua o ka hoʻomaka ʻana i nā hoʻoponopono kōkua e like me nā mea kanu, nā wikamina, a i ʻole nā ​​papaʻai kūikawā.

E hana i kahi mahele no nā hoaaloha a me nā mea aloha

E hālāwai paha ʻoe me nā poʻe he nui e makemake e kōkua a loaʻa paha i nā mea hou e pili ana i kāu hana i loko o kāu mālama ʻana.

Inā wehe ʻoe i ka kaʻana like ʻana i kēia mau mea hou, e noʻonoʻo i nā ʻaoʻao pūnaewele e like me Caring Bridge. No nā hoa makemake e kōkua, aia nā kumuwaiwai e like me Meal Train. ʻAe ʻia nā hoaaloha e kau inoa no ka lawe ʻana i ka papa ʻaina.

He mea nui e hoʻomanaʻo he nui nā hoaaloha, nā lālā o ka ʻohana, a me nā hui e makemake e kōkua iā ʻoe i kāu lapaʻau a me ka hoʻōla ʻia ʻana mai KATOA.