ʻO Narcolepsy
He pilikia ʻōnaehana ʻo Narcolepsy e hoʻomaka ai i ka hiamoe nui a me nā hōʻeha o ka hiamoe o ke ao.
ʻAʻole maopopo ka poʻe loea i ke kumu kūpono o ka narcolepsy. Loaʻa paha ma mua o hoʻokahi kumu.
Nui nā poʻe me ka narcolepsy i kahi pae haʻahaʻa o ka hypocretin (ʻike ʻia ʻo orexin). He kemika kēia i hana ʻia i ka lolo e kōkua iā ʻoe e makaʻala. I kekahi poʻe me ka narcolepsy, heʻuʻuku nā pūnaewele e hana i kēia kemika. Loaʻa paha kēia i kahi hopena autoimmune. ʻO kahi hopena autoimmune ke hele kuhi hewa ka ʻōnaehana pale o ke kino i ka momona o ke kino.
Hiki iā Narcolepsy ke holo i loko o nā ʻohana. Ua loaʻa i nā kānaka noiʻi kekahi mau ʻiʻo e pili ana i ka narcolepsy.
Kū pinepine nā hōʻailona Narcolepsy ma waena o ka makahiki 15 a 30 mau makahiki. Ma lalo nā hōʻailona maʻamau.
KA MAIKAI LOA O KA LA HALE
- Hiki paha iā ʻoe ke koi ikaika e hiamoe, a ukali pinepine ʻia e ka wā hiamoe. ʻAʻole hiki iā ʻoe ke kāohi ke hiamoe ʻoe. Kapa ʻia kēia he hōʻeha hiamoe.
- Hiki ke hala kēia mau kau mai kekona kekona a i kekahi mau minuke.
- Hiki paha iā lākou ma hope o ka ʻai ʻana, ke kamaʻilio pū ʻana me kekahi, a i ʻole nā wā ʻē aʻe.
- ʻO ka pinepine, ala ʻoe me ka hōʻoluʻolu.
- Hiki i nā hoʻouka ke hana ʻoe i ke kaʻa a hana paha i nā hana ʻē aʻe kahi e weliweli ai ka hiamoe ʻana.
CATAPLEXY
- I kēia mau hoʻouka kaua ʻana, ʻaʻole hiki iā ʻoe ke kaohi i kou mau mākala a ʻaʻole hiki ke neʻe. Hiki i nā manaʻo ikaika, e like me ka ʻaka a i ʻole ka huhū, hiki ke hoʻomaka i cataplexy.
- Kū mau ka hoʻouka kaua mai 30 kekona a i 2 mau minuke. Mālama mau ʻoe i ka wā o ka hoʻouka.
- I ka hoʻouka kaua ʻana, hāʻule kou poʻo i mua, hāʻule ka iwi ā, a kīkī paha kou mau kuli.
- I nā hihia koʻikoʻi, hina paha ʻoe a noho paʻa i kahi mau minuke.
HALELENI
- ʻIke a lohe paha ʻoe i nā mea ʻaʻole ma laila, a i ka hiamoe ʻana a i ʻole ke ala ʻana.
- I ka wā o ka hallucination, makaʻu paha ʻoe a i ʻole hoʻouka ʻia.
PARALYSIS MOHE
- ʻO kēia ke hiki ʻole iā ʻoe ke hoʻoneʻe i kou kino ke hoʻomaka ʻoe e hiamoe a i ʻole ʻoe e ala mua.
- Hiki paha i 15 mau minuke.
ʻO ka hapa nui o ka poʻe me narcolepsy e hiamoe ana i ke ao a me ka cataplexy. ʻAʻole nā kānaka āpau i kēia mau ʻōuli. ʻO ka mea kupaianaha, ʻoiai ka luhi loa, ʻaʻole hiamoe maikaʻi ka poʻe me ka narcolepsy i ka pō.
Aia he ʻano nui ʻelua o ka narcolepsy:
- ʻAno 1 pili i ka hiamoe nui o ke ao, cataplexy, a me kahi pae haʻahaʻa o hypocretin.
- ʻO ke ʻano 2 e pili ana i ka hiamoe nui o ke ao, akā ʻaʻohe cataplexy, a me kahi pae maʻamau o ka hypocretin.
E hana ana kāu mea mālama ola i kahi hoʻokolohua kino a nīnau e pili ana i kāu mau hōʻailona.
Loaʻa paha iā ʻoe kahi hoʻokolohua koko e kāpae i nā kūlana ʻē aʻe i hiki ke kumu i nā ʻōuli like. Pākuʻi ʻia kēia mau mea:
- ʻO ka hiamoe ʻole a me nā maʻi hiamoe ʻē aʻe
- Syndrome wāwae hoʻomaha ʻole
- Ka hopu ʻana i nā maʻi
- ʻAlena moe
- Nā maʻi olakino, psychiatric, a i ʻole nā maʻi ʻōnaehana
Loaʻa paha iā ʻoe nā hōʻike ʻē aʻe, e like me:
- ECG (ana i ka hana uila o kou puʻuwai)
- EEG (ana i ka hana uila o kou lolo)
- ʻImi hiamoe (polysomnogram)
- Hōʻike hiamoe moe maha (MSLT). He hōʻike kēia e ʻike ai i ka lōʻihi o kou hiamoe ʻana i ka wā hiamoe o ke ao. ʻO ka poʻe me narcolepsy e hiamoe nui aku nei ma mua o ka poʻe me ke ʻano ʻole.
- ʻO ka hoʻāʻo genetic e nānā no ka moʻokūʻauhau narcolepsy.
ʻAʻohe lāʻau lapaʻau no narcolepsy. Eia nō naʻe, hiki i ka mālama ʻana ke kōkua i ke kaohi ʻana i nā ʻōuli.
NA OLELO OLA
Hiki i kekahi mau loli ke kōkua i ka hoʻomaikaʻi ʻana i kou hiamoe i ka pō a me ka hōʻoluʻolu i ka hiamoe o ke ao.
- E hiamoe a ala i ka manawa like i kēlā me kēia lā.
- E mālama i kou keʻena moe e pouli a ma kahi mahana mahana. E ʻoluʻolu e hōʻoluʻolu i kou wahi moe a me nā uluna.
- Hōʻalo i ka caffeine, ʻalekole, a me nā meaʻai kaumaha i mau hola ma mua o ka hiamoe.
- Mai puhi.
- Hana i kahi mea hoʻomaha, e like me ka ʻauʻau mahana a heluhelu paha i kahi puke ma mua o ka hiamoe.
- E kiʻi i ka hoʻoikaika kino i kēlā me kēia lā, hiki ke kōkua iā ʻoe e hiamoe i ka pō. E hoʻolālā pono i kou hoʻolālā ʻana i kekahi mau hola ma mua o ka hiamoe.
Hiki i kēia mau ʻōlelo aʻoaʻo ke kōkua iā ʻoe e hana maikaʻi i ka hana a i nā ʻano kaiaulu.
- E hoʻolālā i nā naps i ka lā ke luhi ʻoe. Kōkua kēia i ka pale ʻana i ka hiamoe o ke ao a hoʻemi i ka helu o nā hōʻeha hiamoe ʻole i hoʻolālā ʻia.
- E haʻi i nā kumu, nā luna hoʻomalu, a me nā hoaaloha e pili ana i kou ʻano. E makemake paha ʻoe e paʻi i nā mea mai ka pūnaewele e pili ana i ka narcolepsy na lākou e heluhelu.
- E kiʻi i ka ʻōlelo aʻoaʻo, inā pono, e kōkua iā ʻoe e kūpale i ke ʻano. Hiki ke kaumaha i ka loaʻa ʻana o ka narcolepsy.
Inā loaʻa iā ʻoe ka narcolepsy, loaʻa paha iā ʻoe nā kapu hoʻokele. Kū'ē nā kapu i kēlā me kēia mokuʻāina.
NA LAAU LAPAAU
- Hiki i nā lāʻau stimulant ke kōkua iā ʻoe e makaʻala i ka lā.
- Hiki i nā lāʻau lapaʻau antidepressant ke kōkua i ka hōʻemi ʻana i nā hanana o ka cataplexy, ka hiamoe o ka hiamoe, a me nā moemoeā.
- Hana maikaʻi ʻo Sodium oxybate (Xyrem) e kaohi i ka cataplexy. Hiki iā ia ke kōkua i ke kaohi i ka hiamoe o ke ao.
Hiki i nā lāʻau ke loaʻa nā hopena ʻaoʻao. E hana pū me kāu mea hāʻawi e ʻike i ka papa hana e kūpono iā ʻoe.
ʻO Narcolepsy kahi kūlana ola.
Mea weliweli paha inā hanana nā hanana i ke kalaiwa ʻana, nā mīkini hana, a i ʻole ke hana ʻana i nā hana like.
Hiki ke kāohi pinepine ʻia ʻo Narcolepsy me ka lāʻau. ʻO ka mālama ʻana i nā maʻi moe ʻē aʻe e hiki ke hoʻomaikaʻi i nā hōʻailona narcolepsy.
ʻO ka hiamoe nui ma muli o ka narcolepsy hiki ke alakaʻi iā:
- Ka pilikia e hana nei ma ka hana
- Ka pilikia ma nā hanana kaiaulu
- Nā ʻeha a me nā pōʻino
- Hiki ke hopena i nā hopena o nā lāʻau i mālama ʻia i ka maʻi
Kāhea i kāu mea hāʻawi inā:
- Loaʻa iā ʻoe nā ʻōuli o ka narcolepsy
- ʻAʻole pane ʻo Narcolepsy i ka lāʻau
- Hoʻokumu ʻoe i nā ʻōuli hou
ʻAʻole hiki iā ʻoe ke pale aku i ka narcolepsy. Hiki i ka mālama ʻana ke hōʻemi i ka helu o nā hoʻouka. Hōʻalo i nā hanana e hoʻonāukiuki i ke ʻano inā ʻaʻa ʻoe i ka hōʻeha o narcolepsy.
Ka maʻi hiamoe o ke ao; ʻO Cataplexy
- ʻO nā hiʻohiʻona hiamoe i ka ʻōpio a me ka ʻelemakule
Chokroverty S, Avidan AY. Hiamoe a me kāna mau maʻi. I: Daroff RB, Jankovic J, Mazziotta JC, Pomeroy SL, eds. ʻO Bradley's Neurology i ka hana lapaʻau. ʻEpekema 7 Piladelapia, PA: Elsevier; 2016: chap 102.
Krahn LE, Hershner S, Loeding LD, et al. ʻAmelika Hui Pū ʻIa o Medicine Medicine. ʻO nā ana kūpono no ka mālama ʻana i nā maʻi me ka narcolepsy. J Clin Moe Med. 2015; 11 (3): 335. PMID: 25700880 www.ncbi.nlm.nih.gov/pubmed/25700880.
Mignot E. Narcolepsy: genetics, immunology, a me pathophysiology. I: Kryger M, Roth T, Dement WC, hua pā. Nā Kumumanaʻo a me ka Hoʻomaʻamaʻa ʻana o ka lāʻau hiamoe. ʻElua huaʻōlelo Piladelapia, PA: Elsevier; 2017: chap 89.