Iapaau ana no ka ectodermal dysplasia
Anter
ʻAʻole kikoʻī ka mālama ʻana i ka ectodermal dysplasia a ʻaʻohe mea e ola ai kēia maʻi, akā hiki ke hoʻohana ʻia i ka ʻokiʻoki cosmetic e hoʻonā i kekahi o nā hanaʻino i hoʻokumu ʻia e ka maʻi.
Loaʻa i ka Ectodermal dysplasia kahi o nā pilikia hoʻoilina maʻamau i kū i ka pēpē mai ka wā hānau a, e like me kona ʻano, ke kumu o ka loli o ka lauoho, nā kui, nā niho a i ʻole nā gland e hana i ka hou, no ka laʻana.
No ka mea ʻaʻohe lapaʻau kūikawā no ka ectodermal dysplasia, pono e hele pū me ke keiki e ka pediatrician e loiloi i kona ulu ʻana a loiloi i ka pono no ka ʻoki cosmetic e hoʻomaikaʻi i kona manaʻo iā ia iho, no ka laʻana.
Eia hou, he mea nui e nānā i ka mahana o ke kino o ke keiki i kēlā me kēia lā, keu hoʻi i nā hihia kahi i ʻole ka hana ʻana i ka hou, no ka mea, ʻoi aku ka nui o ka makaʻu o ka hoʻomehana wela ma muli o ka hoʻomehana nui o ke kino. E ʻike pehea e ana pono ai i ka mahana.
I nā hihia kahi hemahema o nā niho a i ʻole nā loli ʻē aʻe i ka waha, koi ʻia e nīnau i kahi kauka niho e hana i kahi loiloi piha o ka waha a hoʻomaka i ka lapaʻau kūpono, i hiki ke hoʻopili ʻia me nā ʻoki kino a me nā prostheses niho, e ʻae ai i ke keiki e ʻai maʻamau.
E ana i ka mahana ke wela ka keikiE nīnau i kahi kauka niho e hoʻoponopono i nā loli i ka waha
Nā ʻōuli o ectodermal dysplasia
ʻO nā hōʻailona nui a me nā ʻōuli o ka ectodermal dysplasia e komo pū me:
- ʻO ke kuni hou a i ʻole ka mahana o ke kino ma luna o 37ºC;
- Hypersensitivity i nā wahi wela;
- Malformations i ka waha me nā niho nalowale, ʻoi aku a mamao loa paha ke kaʻawale;
- Lauoho lahilahi a palupalu;
- Nā kui lahilahi a hoʻololi ʻia;
- Ka hana ʻole ʻana o ka hou, kuha, waimaka a me nā wai ʻē aʻe o ke kino;
- ʻIli lahilahi, maloʻo, scaly a me ka ʻili loa.
ʻAʻole like nā hōʻailona a me nā ʻōuli o ka ectodermal dysplasia i nā keiki āpau a, no laila, he mea maʻamau no kekahi o kēia mau ʻōuli e hōʻike.
Nā ʻano o ka ecplodermal dysplasia
ʻO nā ʻano ʻelua o ka ectodermal dysplasia e komo pū ana:
- Anhydrous a i ʻole hypohototic ectodermal dysplasia: hōʻike ʻia e ka hoʻēmi o ka nui o ka lauoho a me ka lauoho, hoʻoliʻiliʻi a i ʻole ka loaʻa ʻole o nā wai o ke kino, e like me ka waimaka, lawai a me ka hou a i ʻole ka loaʻa ʻole o nā niho.
- ʻO ka Hyplotic ectodermal dysplasia: ʻo ka hiʻohiʻona nui ka nele o nā niho, akā naʻe, hiki iā ia ke kumu i nā lehelehe nui, waho, pā ihu a me nā kiko a puni nā maka.
ʻO ka maʻamau, ʻike koke ʻia ka diagnostical o ka ectodermal dysplasia ma hope koke o ka hānau ʻana ma hope o ka nānā ʻana i nā malformations o ka pēpē, eia nō naʻe, i kekahi mau manawa ʻaʻole ʻike ʻia kēia mau loli a no laila, ʻike ʻia ma hope o ka ulu ʻana o ke keiki.