Pehea e ʻike ai i ka cystic fibrosis i ka pēpē a pehea e pono ai ka mālama ʻana

Anter

• Nā ʻōuli o cystic fibrosis
• Pehea e hōʻoia ai i ke kuhi
• Ka mālama ʻana i ka cystic fibrosis
• Nā pilikia i hiki
• Manaʻo ola

ʻO kekahi o nā ala e kānalua inā he cystic fibrosis ka pēpē e nānā inā ʻoi aku ka paʻakai o kāna hou ma mua o ka maʻamau, ʻo kēia no ka mea maʻamau kēia ʻano i kēia maʻi. ʻOiai ʻo ka hou paʻakai ka hōʻike o ka cystic fibrosis, hana ʻia ke kuhi ma o ka hoʻāʻo ʻana o ka heʻe kuʻekuʻe, kahi pono e hana ʻia i ka mahina mua o ke ola. Inā loaʻa kahi hopena maikaʻi, ua hōʻoia ʻia ka hōʻoia e ka hōʻoia o ka hou.

ʻO Cystic fibrosis kahi maʻi hoʻoilina me ka lāʻau ʻole, kahi e hana ai kekahi mau ʻōpū i nā huna ʻokoʻa e hoʻopili nui i nā wahi digestive a me nā hanu. Pili kāna mālama ʻana i ka lāʻau, ka papaʻai, ka hoʻōla kino a, i kekahi mau ʻano, ʻoki kino. Ke piʻi nei ke ola o nā mea maʻi ma muli o ka holomua o ka mālama ʻana a me ke kiʻekiʻe kiʻekiʻe o ka mālama ʻana, me ke kanaka maʻamau i hiki i 40 mau makahiki. E aʻo hou e pili ana i ka cystic fibrosis.

Nā ʻōuli o cystic fibrosis

ʻO ka hōʻailona mua o ka cystic fibrosis ke hiki ʻole i ka pēpē ke hoʻopau i ka meconium, i kūlike i nā ʻāpana mua o ke keiki hānau hou, i ka lā mua a ʻelua paha o ke ola. I kekahi manawa ʻaʻole hiki i ka lāʻau lapaʻau ke hoʻonā i kēia mau noho a pono e hemo ma ke ʻoki. ʻO nā ʻōuli ʻē aʻe e hōʻike ana i nā cystic fibrosis:

• ʻO ka hou paʻakai;
• Mū kūmau mau, hoʻohaunaele i ka meaʻai a me ka hiamoe;
• Phlegm mānoanoa;
• ʻO ka bronchiolitis hou, ʻo ia ka mumū mau o ka bronchi;
• Nā maʻi maʻi hanu e hana hou ʻia, e like me ka niumonia;
• Hanu paʻakikī;
• Māluhiluhi;
• ʻO ka maʻi diarrhea a i ʻole ka constipation koʻikoʻi;
• Ka nele o ka makemake;
• Kinoea;
• ʻO nā noho noho hinuhinu, waihoʻoluʻu keʻokeʻo;
• Loaʻa ka paʻakikī i ke kaumaha a me ka ulu ʻana o ka ulu.

Hoʻomaka kēia mau ʻōuli e hōʻike iā lākou iho i nā pule mua o ke ola a pono i ke keiki ke loaʻa i ka lāʻau kūpono e hōʻalo ai i ka hōʻeha ʻana o ka maʻi. Eia nō naʻe, hiki i ka cystic fibrosis ke akahai a ʻike ʻia nā ʻōuli i ka ʻōpio a i ʻole ke kanaka makua.

Pehea e hōʻoia ai i ke kuhi

Hana ʻia ke kuhi o ka cystic fibrosis ma o ka hoʻāʻo ʻana o ka kuʻekuʻe wāwae, kahi i koi ʻia no nā keiki hānau hou a pono e hana ʻia a hiki i ka mahina mua o ke ola. I nā hihia o nā hopena maikaʻi, hana ʻia ka hoʻokolohua hou e hōʻoia i ka ʻike. I kēia hōʻike, ʻohiʻohi a loiloi ʻia kahi hou liʻiliʻi mai ka pēpē, ʻoiai ke hōʻike nei kekahi mau loli i ka hou i ke kū ʻana o ka cystic fibrosis.

ʻOiai me nā hopena maikaʻi o nā hōʻike 2, hōʻike pinepine ʻia ka hōʻoia o ka hou i mea e ʻike ai i ka ʻike hope loa, a he mea nui ia e nānā i nā ʻōuli i hōʻike ʻia e ka pēpē. ʻO nā keiki ʻoi aku ka nui i nā ʻōuli o ka cystic fibrosis pono e hōʻoia i ka hou e hōʻoia i ka hōʻailona.

Eia hou, he mea nui e hoʻokō i kahi hoʻokolohua kūlohelohe e nānā ai i kahi hoʻololi e pili ana i ka cystic fibrosis i loaʻa i ka pēpē, no ka mea ke hilinaʻi nei i ka hoʻololi ʻana, ʻoi aku ka haʻahaʻa a ʻoi paha o ka holomua o ka maʻi, kahi e hōʻike ai i ke kaila lapaʻau maikaʻi loa e pono ai. ukali ʻia. hoʻokumu ʻia e ka pediatric.

ʻIke i nā maʻi ʻē aʻe i hiki ke ʻike ʻia e ka hoʻāʻo prick heel.

Ka mālama ʻana i ka cystic fibrosis

Pono e hoʻomaka ka hoʻomaʻamaʻa ʻana no ka cystic fibrosis ke hōʻike ʻia ke kuhi, ʻoiai inā ʻaʻohe ʻōuli, ʻoiai nā pahuhopu e hoʻopanee i nā maʻi lolo a pale i ka malnutrisi a me ka ulu o ka ulu.No laila, ʻo ka hoʻohana ʻana i nā lāʻau ʻalopika e hakakā a pale aku i nā maʻi hiki ke hōʻike ʻia e ke kauka, a me ka hoʻohana ʻana i nā lāʻau anti-inflammatory e kōkua ai e hōʻoluʻolu i nā ʻōuli e pili ana i ka mumū o nā akemāmā.

Hōʻike ʻia ʻia nō hoʻi e hoʻohana i nā lāʻau bronchodilator e kōkua i ka hanu ʻana a me ka mucolytic e kōkua i ka hoʻoheheʻe ʻana i ka phlegm a kōkua i ka hoʻopau ʻana. E paipai paha ka pediatrician i ka hoʻohana ʻana o nā huaora A, E K a me D, me ka hoʻohui ʻana i nā enzyme digestive e kōkua ai i ka ʻai ʻana i ka meaʻai.

Hoʻopili ka lāʻau i kekahi mau loea, no ka mea ma waho o ka hoʻohana ʻana i nā lāʻau, ka physiotherapy respiratory, ka mālama ʻana i ka nutritional a me ka psychological, ka oxygen therapy e hoʻomaikaʻi ai i ka hanu ʻana, a i kekahi mau hihia, koi ʻia ka ʻoki ʻana e hoʻomaikaʻi i ka hana o ka hanu a i ʻole ke kanu ʻana o ka maʻi E ʻike pehea e hiki ai i ka meaʻai ke kōkua i ka mālama ʻana i nā cystic fibrosis.

Nā pilikia i hiki

Hoʻokumu ʻo Cystic fibrosis i nā pilikia i loko o nā kino o ke kino, i hiki ke kumu:

• Bronchitis maha, ka mea paʻakikī e kaohi;
• ʻO ka lawa ʻole o Pancreatic, hiki ke alakaʻi i ka malabsorption o ka meaʻai i ʻai ʻia a me ke kino maikaʻi ʻole;
• Diabetes;
• Nā maʻi akepaʻa, e like me ka mumū a me ka cirrhosis;
• Sterility;
• ʻO Distal intestinal obstruction syndrome (DIOS), kahi e paʻa ai ka ʻōpū, e hana ana i ka cramp, ʻeha a me ka pehu ʻana i loko o ka ʻōpū;
• Pōhaku Gall;
• Maʻi iwi, e alakaʻi ana i ka maʻalahi o ka haki iwi;
• Kaʻai pono ʻole.

He paʻakikī kekahi o nā pilikia o ka cystic fibrosis e kaohi, akā ʻo ka hoʻomaʻamaʻa mua ke ala maikaʻi loa e hoʻonui ai i ke ola a makemake i ka ulu pono o ke keiki. Me nā pilikia he nui, hiki i ka poʻe me ka cystic fibrosis ke hele i ke kula a me ka hana.

Manaʻo ola

ʻO ke ola o ka poʻe me ka cystic fibrosis e loli ʻia mai kēlā me kēia kanaka e like me ka hoʻololi ʻana, ka wahine, ka mālama ʻana, ka nui o ka maʻi, ka makahiki i ka diagnose a me ka hanu maʻi, ka digestive a me nā pancreatic. ʻOi aku ka maikaʻi o ka wānana no nā poʻe i mālama ʻole ʻia i ke kūpono, loaʻa kahi lohi hopena a i ʻole ka lawa ʻole o ka pancreatic.

I ka poʻe i ʻike wawe ʻia, ʻoi aku ka maikaʻi ma hope o ka hānau ʻana, hiki i ke kanaka ke hōʻea i 40 mau makahiki, akā no ia mea he mea pono e hoʻokō i ka lāʻau ma ke ala pololei. E ʻike pehea e pono ai ka mālama ʻana i ka cystic fibrosis.

I kēia manawa, ma kahi o 75% o ka poʻe e ukali i ka mālama ʻana i ka cystic fibrosis e like me ka mea i koi ʻia e hiki i ka hopena o ka ʻōpio a ma kahi o 50% i hiki i ke kolu o nā makahiki o ke ola, ʻo 10% wale nō ma mua.

ʻOiai inā ua hana pololei ʻia ka lapaʻau ʻana, paʻakikī ka mea i ʻike ʻia me ka fibrosis cystic e piʻi i 70 mau makahiki, no ka laʻana. ʻO kēia no ka mea me ka mālama pono ʻana, aia ka holomua o ke komo ʻana o nā meaola, nāwaliwali lākou, nāwaliwali a lilo i kā lākou hana i nā makahiki, a ʻo ka hopena, i ka hapanui o nā hihia, i ka hanu ʻole o ka hanu.

Eia kekahi, ʻo nā maʻi e nā microorganism he mea maʻamau ia i ka poʻe me ka cystic fibrosis a me ka mālama mau ʻana me nā antimicrobial hiki i ke kūpikipiki ke pale aku, kahi e hoʻonui hou ai i ke kūlana olakino o ka mea maʻi.