He aha ka mea e manaʻo ai ke hoʻomaka kāu keiki i ka lāʻau no MS

Anter

• Hōʻuluʻulu manaʻo lapaʻau
• Nā hoʻomaikaʻi kūpono
• Nā hopena ʻē aʻe
• ʻAe, oluolu, a me ke kumukūʻai
• Nā hōʻike loiloi
• ʻO ka lawe lawe ʻana

Ke hoʻomaka kāu keiki i kahi lāʻau hou no ka sclerosis maha (MS), he mea nui e nānā i kou mau maka no nā hōʻailona o ka loli i ko lākou kūlana.

Ma hope o ka hoʻomaka ʻana i kahi lāʻau hou, ʻike paha kāu keiki i ka hoʻomaikaʻi ʻana i ko lākou olakino a me ke olakino. Hoʻolālā paha lākou i nā hopena ʻaoʻao mai ka lāʻau.

E hoʻolōʻihi i kahi manawa e aʻo ai pehea e hoʻomaka ai kahi lāʻau hou i kāu keiki.

Hōʻuluʻulu manaʻo lapaʻau

Ua hoʻomohala ʻia nā ʻano hoʻoponopono hōʻano hou i nā maʻi (DMT) e hoʻolohi i ka holomua o MS.

I kēia manawa, ua ʻae wale ka Food and Drug Administration (FDA) i kekahi o kēia mau ʻano hana no ka hoʻohana ʻana i nā keiki he 10 mau makahiki a ʻoi paha - a ʻaʻohe mea i ʻae ʻia no nā keiki ma lalo o 10.

Eia nō naʻe, hiki i nā kauka ke kuhikuhi i nā DMT i nā keiki ʻōpio me MS. Ua ʻike ʻia kēia hana ma ke ʻano he hoʻohana “off-label”.

Hiki paha i nā kauka lawelawe o kāu keiki ke kuhikuhi i nā lāʻau lapaʻau ʻē aʻe no MS, me hoʻokahi a ʻoi paha o kēia mau mea:

• nā lāʻau lapaʻau ʻē aʻe e hōʻoluʻolu i nā ʻōuli a i ʻole na noʻonoʻo o MS
• rehabilitative therapy e kākoʻo i kāu keiki i ke kino a i ʻole ka noʻonoʻo ʻana i ka hana
• hoʻohana i nā kōkua neʻe a i ʻole nā ​​mea kōkua e kōkua i kāu keiki e hana i nā hana maʻamau
• nā ʻōnaehana stimulate nerve a i ʻole ke ʻoki ʻana e mālama i nā pilikia o ka maʻi puhā
• aʻoaʻo aʻoaʻo psychological e kākoʻo i ke olakino noʻonoʻo o kāu keiki
• loli ka nohona

Inā loli ke ʻano o kāu keiki i kekahi ʻano, e hoʻomaopopo i nā lālā o kā lākou hui olakino.

No ka mālama ʻana i nā hōʻailona hou a pōʻino paha, hiki i kā lākou poʻe lawelawe mālama ola ke paipai i nā hoʻololi i kā lākou hoʻolālā mālama. Paipai paha kā lākou hui olakino i kahi loli inā loaʻa nā lāʻau hou, a i ʻole ua paʻi ʻia kahi noiʻi hou e pili ana i ka palekana a i ʻole ka maikaʻi o nā mālama e kū nei.

Nā hoʻomaikaʻi kūpono

Ma hope o ka hoʻomaka ʻana i kahi lāʻau hou no MS, ʻike paha kāu keiki i ka hoʻomaikaʻi ʻana i ko lākou olakino a i ʻole noʻonoʻo olakino a hana.

Hoʻololi nā pōmaikaʻi kūpono mai kekahi ʻano o ka mālama ʻana i kekahi.

Kaukaʻi ʻia i kāu ʻano pilikino i loaʻa i kāu keiki:

• Hiki paha iā lākou ke ʻike i nā lapalapa a ʻoi aku paha o ka ʻino, nā exacerbations, a i ʻole nā ​​hoʻi hou ʻana.
• ʻIke paha lākou i ka ʻeha, ka luhi, ka poni, nā ʻāʻī, a me nā ʻoʻoleʻa puʻupuʻu.
• ʻO kā lākou neʻe, ka hoʻonohonoho ʻana, ke kaulike, ka maʻalahi, a me ka ikaika e hoʻomaikaʻi ai paha.
• Heʻuʻuku paha ko lākou mau pilikia me ko lākou ʻōpū a i ʻole ka ʻōpū.
• Maʻalahi paha lākou e noʻonoʻo a hoʻomanaʻo i nā mea.
• E hoʻomaikaʻi paha kā lākou hiki ke kamaʻilio.
• E ʻoi aku paha ka maikaʻi o kā lākou ʻike a lohe paha.
• Hiki paha iā lākou ke noʻonoʻo maikaʻi.

E ʻike paha nā kahu mālama ola o kāu keiki i nā hopena hoʻoikaika i nā loiloi a i ʻole nā ​​hoʻokolohua a lākou e hana ai ma hope o ka hoʻomaka ʻana o kāu keiki i kahi lāʻau hou.

ʻO kahi laʻana, hana paha lākou i ka MRI scans a ʻike ʻole i nā hōʻailona o ka hana maʻi hou.

Ma ka ʻaoʻao ʻē aʻe, hiki nō paha i kahi kūlana o kāu keiki ʻaʻole e nānā a hoʻomaikaʻi maikaʻi paha ma hope o ka hoʻomaka ʻana i kahi lāʻau hou. I kekahi mau hihia, hōʻike paha ka MRI scans a i ʻole nā ​​hoʻokolohua ʻē aʻe ʻaʻole i hoʻomaikaʻi a kūleʻa paha ko lākou kūlana.

Inā ʻaʻole ʻoe māʻona i nā hopena o kahi lāʻau hou, e hōʻike i ka hui olakino o kāu keiki. Hiki iā lākou ke kōkua iā ʻoe e hoʻomaopopo i nā pōmaikaʻi kūpono a me nā makaʻu o ka kū ʻana a hoʻomau ʻana i ka lāʻau. Hiki iā lākou ke kōkua iā ʻoe e aʻo e pili ana i nā lapaʻau ʻē aʻe i loaʻa.

Nā hopena ʻē aʻe

Hiki i nā mālama ʻana no MS ke kumu i nā hopena ʻaoʻao, akahai paha a ʻoi aku paha ke kaumaha.

Hoʻololi nā hopena ʻokoʻa i kekahi ʻano o ka mālama ʻana i kekahi.

ʻO kahi laʻana, nā hopena ʻaoʻao maʻamau o nā DMT he nui e:

• hūwī
• luhi
• nausea
• pāhoehoe
• ʻeha poʻo
• ʻeha ka ʻili
• ʻeha a me ka ʻulaʻula ma ke kahua o ka hoʻopili, no nā DMT i hoʻokomo ʻia

E aʻo hou aʻe ai e pili ana i nā hopena ʻē aʻe o ka lāʻau i kauoha ʻia o kāu keiki, e kamaʻilio me kā lākou hui olakino. Hiki iā lākou ke kōkua iā ʻoe e aʻo pehea e ʻike ai a mālama ai i nā hopena ʻē aʻe.

Inā ʻoe e manaʻo e loaʻa ana i kāu keiki nā hopena ʻaoʻao mai ka mālama ʻana, e hōʻike i kā lākou hui olakino. I kekahi mau hihia, koi paha lākou i nā loli i ka papa hana hoʻomalu a kāu keiki.

Inā pilikia kāu keiki i ka hanu ʻana a i ʻole lilo lākou i pane ʻole a i ʻole noʻonoʻo ʻole, e kiʻi i ka lāʻau olakino olakino. Kāhea koke iā 911. ʻIke paha lākou i ka hopena maʻi maʻi i ka lāʻau.

E ʻimi pū kekahi i ka lāʻau lapaʻau inā loaʻa i kāu keiki nā hōʻailona a i ʻole nā ​​hōʻailona o kahi maʻi nui, e like me ke kuni e hele pū me:

• ʻūhā
• ka luaʻi
• pāhoehoe
• hūwī

Hiki i kekahi mau hōʻailona ke hāpai i ka makaʻu o kāu keiki no ka maʻi maʻi.

ʻAe, oluolu, a me ke kumukūʻai

ʻOi aku ka ʻoluʻolu a maʻalahi paha o kekahi mau ʻano lapaʻau iā ʻoe a me kāu keiki ma mua o nā koho ʻē aʻe.

ʻO kahi laʻana, ʻoluʻolu paha kāu keiki a ʻoluʻolu hoʻi e lawe i nā lāʻau o ka waha ma mua o nā lāʻau i hoʻokomo ʻia. A i ʻole ʻike paha i kou ʻohana he wahi kūpono a hoʻokahi paha hola ma mua o kekahi.

ʻOi aku ka maʻalahi o kekahi mau lapaʻau no kou ʻohana e uku ai ma mua o nā mea ʻē aʻe. Inā he ʻinikua olakino ʻoe, uhi paha ia i kekahi mau ʻano lapaʻau a i ʻole nā ​​lawelawe lawelawe olakino akā ʻaʻole kekahi.

Inā he paʻakikī paha ʻoe a i ʻole kāu keiki e pili pono i kā lākou papa hana hoʻomaikaʻi hou, e hōʻike i kā lākou hui olakino. Hiki paha iā lākou ke kaʻana like i nā ʻōlelo aʻoaʻo no ka hoʻomaʻamaʻa ʻana i ka papa hana e hoʻomaʻamaʻa ai, a i ʻole e koi paha i nā loli i ka papa hana hoʻomalu a kāu keiki.

Nā hōʻike loiloi

No ka nānā ʻana i nā hopena o ka mālama ʻana, kauoha paha nā mea mālama ola o kāu keiki i hoʻokahi a ʻoi paha nā hoʻokolohua. ʻO kahi laʻana, kauoha paha lākou:

• Nānā MRI
• hoʻāʻo koko
• hoʻāʻo mimi
• kiaʻi puʻuwai puʻuwai

Kaukaʻi ʻia i kāu mau maʻi i loaʻa i kāu keiki, pono paha i kā lākou hui olakino e kauoha i nā hoʻokolohua ma kahi mau a mau.

E nīnau paha ka hui olakino o kāu keiki iā ʻoe a me kāu keiki i nā nīnau e pili ana i kā lākou mau ʻōuli, ka hana kino a me ka noʻonoʻo, a me nā hopena ʻē aʻe o ka lāʻau.

Hiki i kēia mau hoʻokolohua ukali a me nā loiloi ke kōkua i ka hui olakino o kāu keiki e aʻo pehea e hana nei kā lākou papa hana hoʻoponopono o kēia manawa.

ʻO ka lawe lawe ʻana

Ma hope o kāu keiki e hoʻomaka i kahi lāʻau hou, he manawa paha kāu e ʻike ai i nā hopena.

Inā manaʻo ʻoe ʻaʻole holo ka papa hana hoʻomalu o kāu keiki a i ʻole ke hoʻonāukiuki nei iā lākou, e hoʻomaopopo i kā lākou hui olakino.

I kekahi mau hihia, koi paha lākou i nā loli i ka papa hana hoʻomalu a kāu keiki. He ʻōlelo aʻoaʻo paha kā lākou no ka mālama ʻana i nā hopena a i ʻole nā ​​kumukūʻai o ka mālama ʻana.