ʻO ka maʻi Dercum

Anter

• He aha nā hōʻailona?
• He aha ke kumu?
• Pehea ia ʻike?
• Pehea e mālama ʻia ai?
• Noho me ka maʻi o Dercum

He aha ka maʻi o Dercum?

ʻO ka maʻi o Dercum kahi maʻi laha ʻole i hiki i nā ulu ʻeha o nā momona momona i kapa ʻia lipomas. Kapa ʻia ʻo ia ʻo adiposis dolorosa. Hoʻopili pinepine kēia maʻi i ka kino, nā lima kiʻekiʻe, a me nā wāwae kiʻekiʻe.

Wahi a kahi loiloi i ka, ʻO ka maʻi o Dercum ma kahi o 5 a 30 mau manawa i ʻike pinepine ʻia i nā wahine. ʻO kēia ākea ākea kahi hōʻailona e hoʻomaopopo ʻole ʻia ka maʻi o Dercum. ʻOiai kēia nele o ka ʻike, ʻaʻohe hōʻike e pili ana ka maʻi o Dercum i ka lana o ke ola.

He aha nā hōʻailona?

Hiki ke loli ke ʻano o nā maʻi o Dercum mai kēlā me kēia kanaka. Eia nō naʻe, kokoke i nā poʻe āpau me ka maʻi Dercum i loaʻa i nā lipomas ʻeha e ulu mālie.

Hiki ke loaʻa ka nui o ka lipoma i kēlā me kēia kinikini liʻiliʻi i kahi pūlima kanaka. No kekahi poʻe, like like ka nui o nā lipomas, ʻoiai he nui ka nui o kekahi.

ʻO ka Lipomas e pili ana i ka maʻi o Dercum he mea ʻeha pinepine ke kaomi ʻia, no ka mea ke hoʻokau nei kēlā mau lipomas i ke aʻalolo. No kekahi poʻe, mau ka ʻeha.

ʻO nā ʻōuli ʻē aʻe o ka maʻi o Dercum e komo pū paha:

• loaʻa kaupaona
• pehu e hele mai a hele i nā ʻāpana like ʻole o ke kino, pinepine ka lima
• luhi
• nāwaliwali
• kaumaha
• nā pilikia me ka noʻonoʻo, ka noʻonoʻo, a me ka hoʻomanaʻo paha
• paopao maʻalahi
• ʻoʻoleʻa ma hope o ke kau ʻana i lalo, ke kakahiaka nui hoʻi
• ʻeha poʻo
• ukiuki
• paʻakikī i ka hiamoe
• kōmi puʻuwai wikiwiki
• pokole o ka hanu
• kōpaʻa

He aha ke kumu?

ʻAʻole maopopo i nā kauka nā kumu o ka maʻi o Dercum. I ka hapanui o nā hihia, ʻaʻohe kumu kumu.

Manaʻo kekahi mau kānaka noiʻi e ka maʻi autoimmune paha ia, kahi ʻano e hoʻoili kuhi hewa i kāu ʻōnaehana pale. Manaʻo kekahi he pilikia metabolic pili i ka hiki ʻole ke wāwahi pono i ka momona.

Pehea ia ʻike?

ʻAʻohe pae hoʻohālikelike maʻamau no ka hōʻoia ʻana i ka maʻi o Dercum. Ma ka hakahaka, e nānā paha kāu kauka i ka hoʻopau ʻana i nā kūlana kūpono ʻē aʻe, e like me fibromyalgia a i ʻole lipedema.

E hana i kēia, hiki i kāu kauka ke biopsy i kekahi o kāu lipomas. Pili kēia i ka lawe ʻana i kahi laʻana liʻiliʻi a nānā iā ia ma lalo o kahi microscope. Hiki iā lākou ke hoʻohana i kahi scan CT a i ʻole MRI scan e kōkua iā lākou e hana i kahi kuhi.

Inā kuhi ʻia ʻoe me ka maʻi o Dercum, hiki i kāu kauka ke hoʻokaʻawale iā ia ma muli o ka nui a me kahi o kāu lipomas. Loaʻa kēia mau ʻano hoʻohālikelike:

• nodular: nā lipomas nui, a puni kou mau lima, kua, ʻōpū, a me nā ʻūhā
• diffuse: nā lipomas liʻiliʻi e hoʻolaha ākea
• hui: kahi hui o nā lipomas nui a liʻiliʻi

Pehea e mālama ʻia ai?

ʻAʻohe mea ola no ka maʻi o Dercum. Ma kahi o ka mālama ʻana, kau pinepine ʻia ka mālama ʻana i ka ʻeha me ka hoʻohana ʻana:

• nā mea lawe ʻeha ʻeha
• injections cortisone
• kalipuna modulator
• methotrexate
• infliximab
• alfa interferon
• hemo kaukoki o lipomas
• liposuction
• uila uila
• ʻākehu
• ʻO ka tutupocaine kuko
• lāʻau lapaʻau anti-inflammatory nonsteroidal
• noho olakino me nā papa anti-inflammatory a me ka hoʻoikaika kino haʻahaʻa e like me ka ʻauʻau ʻana a me ka hoʻolōʻihi ʻana

I nā kumu he nui, ʻo ka poʻe me ka maʻi ʻo Dercum ka pōmaikaʻi nui loa mai ka hoʻohui ʻana o kēia mau ʻano hana. E noʻonoʻo e hana me kahi loea hoʻomalu ʻeha e ʻike i ka hui palekana i ʻoi aku ka maikaʻi iā ʻoe.

Noho me ka maʻi o Dercum

Hiki i ka maʻi o Dercum ke paʻakikī e kuhikuhi a mālama. ʻO ka ʻehaʻeha, ʻehaʻeha loa hiki ke alakaʻi i nā pilikia e like me ke kaumaha a me ka hoʻōla.

Inā loaʻa ʻoe i ka maʻi o Dercum, e noʻonoʻo e hana pū me kahi loea hoʻomalu ʻeha a me kahi ʻoihana olakino noʻonoʻo no ke kākoʻo i hoʻohui ʻia. E ʻike paha ʻoe i kahi pūʻulu kākoʻo pūnaewele a i ʻole kanaka no ka poʻe me nā maʻi laha ʻole.