Hoʻokahi o ka hula male i hoʻonāukiuki i ka honua e hakakā me MS

Ma kā Stephen a me Cassie Winn lā male ma 2016, ua hāʻawi ʻo Stephen a me kona makuahine ʻo Amy i kahi hulahula makuahine / keikikāne maʻamau i kā lākou hoʻokipa ʻana. Akā i ke kiʻi ʻana i kona makuahine, hahau ʻo ia iā ia: ʻO kēia ka manawa mua e hulahula ai ʻo ia me kona makuahine.

Ke kumu? Noho ʻo Winner Winn me nā sclerosis he nui (MS), kahi maʻi autoimmune e pili ana i ka ʻōnaehana puʻuwai waena, a paʻa ʻia i kahi noho huila no 17 mau makahiki. ʻO ka holomua o kā Amy's MS palena palena ʻana i kona hiki ke hana i nā hana maʻamau i koi ʻia i kēlā me kēia lā.

"ʻAʻohe maka maloʻo i loko o ka lumi," wahi a Cassie, ka hunonawahine a Amy. "ʻO kēlā mana kēlā."

Ua hele mai ka male ma kahi manawa hoʻololi no ka ʻohana Winn, nona ʻo Amy a me kāna mau keiki ulu ʻekolu. Ua haʻalele wale ke keiki ʻelua a Amy, ʻo Garrett, i ko lākou home ma Ohio no Nashville, a ʻo kāna kaikamahine ʻo Gracie ke hoʻopau nei i ke kula kiʻekiʻe a hoʻomākaukau hoʻi no ke koleke. Ke haʻalele nei nā keiki i ka pūnana a hoʻomaka i ko lākou ola iho he manawa hopena ia i kēlā me kēia ola o nā mākua, akā koi ʻo Amy i ke kōkua manawa piha, no laila ke ʻano o ka manawa kūpono e ʻimi ai i nā koho.

"He mau hoaaloha ko Amy i hele aku iā ia e kamaʻilio e pili ana i kēia breakthroughs hou i ka stem cell therapy no nā mea maʻi MS, a ua hauʻoli loa ia, no ka mea makemake ʻo ia e hele hou," wahi a Cassie. Eia nō naʻe, aia ka hale hana ma Los Angeles a ʻaʻohe o nā lālā o ka ʻohana i hiki ke uku i ka lāʻau. I kēia manawa o kāna huakaʻi, ua helu ʻo Amy i ka pule a me ka "hana mana" e hōʻike iā ia i ke ala.

Ua hele mai kēlā hana mana ma ke ʻano he lehulehu. He kumu kā ka hūnōna wahine a Amy, ʻo Cassie, i ke kūʻai aku kamepiula, a ua noiʻi ʻo ia i nā paepae crowdfunding ma mua o ka loaʻa ʻana iā YouCaring, ka mea e hāʻawi nei i ka loaʻa kālā ʻana no ka loaʻa kālā a me nā kōkua pilikino.

"ʻAʻole au i haʻi aku iā Amy e hoʻonohonoho ana au," i hōʻoia ai ʻo Cassie. "Ua hoʻonohonoho wau, a haʻi aku iā ia," ʻEā, e hoʻonui mākou iā ʻoe i $ 24,000 a ke hele nei ʻoe i Kaleponi. ' Ua haʻi mākou i nā kauka i nā lā e hiki mai ana mākou i Kaleponi ma mua o kā mākou hōʻiliʻili kālā ʻana, no ka mea, ua hilinaʻi nui mākou iā ia. ʻO ka hula mua a Amy a me Stephen kahi moʻolelo maikaʻi, lana lana ka manaʻo, a pono i ka poʻe e ʻike i ka manaʻolana e like me kēlā. ʻAʻole maopopo iaʻu inā ʻoe i ʻike i ke wikiō a mākou i kaʻana like ai no ka hula a Stephen a me Amy ma kā mākou ʻaoʻao loaʻa kālā? " Nīnau ʻo Cassie, i ka wā o kā mākou nīnauele.

Ua hana wau, a pēlā nō ma luna o 250,000 ʻē aʻe.

I ka hoʻokumu ʻana i kā lākou ʻaoʻao YouCaring, ua hoʻouna aku ʻo Cassie i ke kiʻi i nā mākeke nūhou o Ohio, ka mea i hoʻoneʻe ʻia e ka moʻolelo a Amy a ua loaʻa ka wikiō i ka makaʻāina ma nā hōʻike e like me "The Today Show." Ua kōkua kēia i ka hoʻoili kālā a ka ʻohana Winn e hoʻonui ai i $ 24,000 e pono ai i loko o ʻelua wale nō a me ka hapa mau pule.

"He mea nui loa ka ʻike ʻana i nā pane a mākou i loaʻa ai a e ʻike wale i ka poʻe e kākoʻo i kēia wahine a lākou i ʻike ʻole ai," wahi a Cassie. “ʻAʻole maopopo iā lākou ʻo wai ʻo ia ma ke ʻano he kanaka, a pehea ke ʻano o kona ʻohana, a me ke ʻano o kāna kūlana kālā. A ʻae lākou e hāʻawi i hoʻokahi haneli kālā. Iwakālua kālā. Kanalima kālā. Kekahi mea ʻLelo ka poʻe, 'He MS kaʻu, a hāʻawi kēia wikiō iaʻu i ka manaolana e hiki iaʻu ke hulahula me kaʻu keikikāne a i ʻole kaʻu kaikamahine i kā lākou male ma 10 mau makahiki.' A i ʻole, 'Mahalo nui no ka kaʻana ʻana i kēia. Ke pule nei mākou nāu. Paipai nui ia i ka lohe ʻana aia he lāʻau lapaʻau e loaʻa. '”

I loko o ʻehā mau pule, ua hoʻonohonoho ka ʻohana Winn i kā lākou ʻaoʻao YouCaring, ua hōʻiliʻili i nā kālā e pono ai ma ka pūnaewele, ua huakaʻi i Kaleponi, a kōkua iā Amy i kona hoʻomaka ʻana i kahi regimen therapy cell cell 10 lā. A ma hope o kekahi mau mahina o ke kaʻina hana, ʻike ʻo Amy a me kona ʻohana i nā hopena.

"Me he mea lā ua lele-hoʻomaka ʻo ia i ke olakino. A inā he mea, ua hoʻōki ia i ka holomua o ka maʻi, a ua ʻoi aku kona olakino, "i ʻōlelo ʻo Cassie.

I ka hoʻohui ʻana i kāna lāʻau kūleʻa a me ka papaʻai, hoʻoliʻiliʻi maikaʻi, hauʻoli loa ʻo Amy me nā hoʻomaikaʻi mua.

"Ua ʻike wau i ka hoʻonui ʻana o ka mōakāka o nā manaʻo a me ka hoʻomaikaʻi ʻana i kaʻu kamaʻilio ʻana," i haʻi aku ai ʻo Amy ma kāna ʻaoʻao Facebook. "Hoʻonui pū wau i ka ikehu a ʻaʻole wau luhi loa!"

Ma ka huakaʻi a Amy e lawe aku ai iā ia i Nashville e noho kokoke iā Stephen, Cassie, a me Garrett ʻoiai ke hoʻomaka nei i ka hoʻomaʻamaʻa kino hou aʻe. I kēia manawa, "mahalo nui ʻo Amy i nā poʻe āpau i kōkua mai iaʻu mai ka loaʻa ʻana o nā lāʻau ʻana," a noi aku i kāna mau mea kōkua pūnaewele, nā hoaaloha, a me nā ʻohana e "hoʻomau i ka pule no ka hoʻihoʻi piha ʻana o koʻu olakino."

Ke lana nei kona ʻohana a lana ka manaʻo e hula hou me Amy i kekahi lā.

"Pono paha ʻo ia i ke kōkua i ke komo ʻana i ka ʻauʻau i kekahi manawa," wahi a Cassie, "a i ʻole pono paha ʻo ia i ke kōkua e komo i loko a ma waho o kahi moe, akā he kanaka hiki nō ke hana, a he kamaʻilio pū, a he mau hoaaloha, a me ka ʻohana. , a hauʻoli i kona ola. A manaʻoʻiʻo maoli mākou e hele ana ʻo ia. ”

ʻO Michael Kasian kahi hoʻoponopono hiʻohiʻona ma Healthline e kia ana i ka kaʻana like ʻana i nā moʻolelo o nā poʻe ʻē aʻe e noho nei me nā maʻi ʻike ʻole ʻia, ʻoiai ʻo ia e noho nei me Crohn's.