Mea Kākau: Janice Evans
Lā O Ka Hana: 24 Iulai 2021
HōʻAno Hou I Ka Lā: 21 Iune 2024
Anonim
Another Chance at a First Breath: Lung Transplant with Cystic Fibrosis | Duke Health
Wikiō: Another Chance at a First Breath: Lung Transplant with Cystic Fibrosis | Duke Health

Anter

He aha ka hopena o ka hou?

Hoʻomaopopo kahi hoʻokolohua hou i ka nui o kaloride, kahi ʻāpana o ka paʻakai, i ka hou. Hoʻohana ʻia ia e hōʻoia i ka cystic fibrosis (CF). Loaʻa i ka poʻe me CF kahi kiʻekiʻe o ka chloride i ko lākou hou.

He maʻi ʻo CF e kumu ai ka kūkulu ʻana o ka mucus i nā ake māmā a me nā mea ʻē aʻe.Hōʻino ia i nā ake māmā a paʻakikī e hanu. Hiki iā ia ke alakaʻi i nā maʻi pinepine a me ka hōʻino kino. He maʻi hoʻoilina ʻo CF, ʻo ia ka mea i hoʻoiho ʻia mai kou mau mākua mai, ma o nā gen.

ʻO nā Genes nā ʻāpana o ka DNA e lawe i ka ʻike e hoʻoholo ai i kāu ʻano kū hoʻokahi, e like me ke kiʻekiʻe a me ke kala o ka maka. He kuleana pū kekahi ʻo Genes no kekahi mau pilikia olakino. I loaʻa i ka cystic fibrosis, pono ʻoe i kahi ʻāpana CF mai kou makuahine a me kou makuakāne. Inā hoʻokahi ka makua i loaʻa ka ʻāpana, ʻaʻole ʻoe e loaʻa i ka maʻi.

Nā inoa ʻē aʻe: hoʻāʻo chloride sweat, test cystic fibrosis sweat, electrolytes sweat

No ke aha ia e hoʻohana ai?

Hoʻohana ʻia kahi hoʻokolohua e ʻike i nā cystic fibrosis.

No ke aha wau e pono ai i kahi hōʻoia hou?

Hiki i kahi hōʻoia o ka hou ke diagnose i ka cystic fibrosis (CF) i ka poʻe o nā makahiki āpau, akā hana mau ʻia i nā pēpē. Pono paha kāu pēpē i kahi hoʻokolohua hou inā ua hoʻāʻo ʻo ia no ka CF ma kahi hoʻokolohua koko hānau hānau maʻamau. Ma ʻAmelika Hui Pū ʻIa, ʻike pinepine ʻia nā pēpē hou no nā ʻano ʻano like ʻole me CF. Hana ʻia ka hapa nui o nā hoʻokolohua hou i ka wā o 2 a 4 mau pule paha nā pēpē.


ʻO kahi keiki makua a makua paha i hōʻike ʻole ʻia no CF e pono paha i kahi cystic fibrosis sweat test inā loaʻa kekahi i ka ʻohana i ka maʻi a / a i ʻole he mau hōʻailona paha o CF. Pākuʻi ʻia kēia mau mea:

  • ʻIli ʻono paʻakai
  • Hewa pinepine
  • ʻO nā maʻi kūpē pinepine, e like me ka niumonia a me ka bronchitis
  • Hī pilikia
  • ʻAʻole e loaʻa ke kaupaona, ʻoiai me ka makemake maikaʻi
  • ʻAihu ʻaila, nui loa
  • I nā keiki hānau hou, ʻaʻohe pahu i hana ʻia ma hope pono o ka hānau ʻana

He aha ka hana i ka wā o ka hoʻowalewale?

Pono kāu mea mālama ola e ʻohiʻohi i kahi laʻana o ka hou no ka hoʻāʻo ʻana. E holo ana ke kaʻina hana holoʻokoʻa ma kahi o hoʻokahi hola a e hoʻopili ʻia paha i kēia mau hana.

  • E kau kahi mea mālama ola i ka pilocarpine, kahi lāʻau e hoʻonā ai i ka sweating, ma kahi wahi liʻiliʻi o ka forearm.
  • E kau kāu mea hāʻawi i kahi uila i kēia wahi.
  • E hoʻouna ʻia kahi au nāwaliwali ma o ka uila. Hoʻokomo kēia kahe i ka lāʻau i loko o ka ʻili. Hoʻokumu paha kēia i kahi kani iki a mehana paha.
  • Ma hope o ka hemo ʻana o ka uila, e hoʻopaʻa kāu mea hāʻawi i kahi ʻāpana o ka pepa kānana a i ʻole ka gauze ma ka forearm e ʻohiʻohi ai i ka hou.
  • E hōʻiliʻili ʻia ka hou no 30 mau minuke.
  • E hoʻouna ʻia ka hou i hōʻiliʻili ʻia i kahi lab no ka hoʻāʻo ʻana.

Pono wau e hana i kekahi mea e hoʻomākaukau ai no ka hoʻāʻo?

ʻAʻole pono ʻoe i kahi hoʻomākaukau kūikawā no ka hoʻokolohua hou ʻana i ka hou, akā pono ʻoe e hōʻalo i ka hoʻopili ʻana i nā kalima a i ʻole nā ​​lotion i ka ʻili no 24 mau hola ma mua o ke kaʻina hana.


Aia kekahi mau pilikia i ka hoʻāʻo?

ʻAʻohe mea ʻike ʻia i ka hoʻowalewale. Loaʻa paha i kāu keiki ke kaniʻuhū a i ʻole ka ʻalihi ʻana mai ka uila, akā ʻaʻole pono e ʻeha.

He aha ke ʻano o nā hopena?

Inā hōʻike nā hopena i ke kiʻekiʻe o ka chloride, aia kahi manawa kūpono i loaʻa i kāu keiki ka cystic fibrosis. E kauoha paha kāu mea mālama mālama ola i kahi hoʻokolohua hou hou ʻana i ka hou a me / a i ʻole nā ​​hoʻokolohua ʻē aʻe e hōʻoia a hōʻalo paha i kahi kuhi. Inā he mau nīnau kāu e pili ana i nā hopena o kāu keiki, e kamaʻilio me kāu kauka olakino.

E aʻo hou aʻe e pili ana i nā hoʻokolohua hoʻokolohua, nā pae kuhikuhi, a me ka hoʻomaopopo ʻana i nā hopena.

Aia kekahi mea ʻē aʻe e pono iaʻu e ʻike e pili ana i ka hoʻāʻo hou?

ʻOiai ʻaʻohe lāʻau lapaʻau no ka cystic fibrosis (CF), loaʻa nā lāʻau i kōkua i ka hōʻemi ʻana i nā hōʻailona a hoʻomaikaʻi i ka maikaʻi o ke ola. Inā ua ʻike ʻia kāu keiki me CF, e kamaʻilio pū me kāu kahu mālama ola e pili ana i nā hoʻolālā a me nā mālama e kōkua i ka mālama ʻana i ka maʻi.

Nā kūmole

  1. ʻAhahui Lū ʻAmelika [Pūnaewele]. ʻO Kikako: ʻAmelika Hui Pū ʻIa ʻAmelika; c2018. ʻIke a me ka mālama ʻana iā Cystic Fibrosis [i ʻōlelo ʻia 2018 Mar 18]; [ma kahi o 4 pale]. Loaʻa mai: http://www.lung.org/lung-health-and-diseases/lung-disease-lookup/cystic-fibrosis/diagnosing-and-treating-cf.html
  2. Cystic Fibrosis Foundation [Pūnaewele]. Bethesda (MD): ʻO Cystic Fibrosis Foundation; About Cystic Fibrosis [helu ʻia 2018 Mar 18]; [ma kahi o 2 pale]. Loaʻa mai: https://www.cff.org/What-is-CF/About-Cystic-Fibrosis
  3. Cystic Fibrosis Foundation [Pūnaewele]. Bethesda (MD): ʻO Cystic Fibrosis Foundation; Hōʻike Hoʻoulu [cited 2018 Mar 18]; [ma kahi o 3 pale]. Loaʻa mai: https://www.cff.org/What-is-CF/Testing/Sweat-Test
  4. ʻO Hinkle J, Cheever K. Brunner & Suddarth's Handbook of Laboratory and Diagnostic Tests. ʻO Ed Ed, Kindle. Piladelapia: Wolters Kluwer Health, Lippincott Williams & Wilkins; c2014. Hōʻike Kaha; p. 473-74.
  5. Johns Hopkins Medicine [Pūnaewele]. ʻO Baltimore: Ke Kulanui ʻo Johns Hopkins; Waihona Puke Ola: Cystic Fibrosis [kuhi ʻia 2018 Mar 18]; [ma kahi o 3 pale]. Loaʻa mai: https://www.hopkinsmedicine.org/healthlibrary/conditions/adult/respiratory_disorder/cystic_fibrosis_85,p01306
  6. Nā Hoʻokolohua Lab ma ka Pūnaewele [Pūnaewele]. Wakinekona D.C .: ʻAmelika Hui Pū ʻIa no ka Chemical Clinical; c2001–2018. Cystic Fibrosis [hōʻano hou 2017 Oct 10; i helu ʻia 2018 Mar 18]; [ma kahi o 2 pale]. Loaʻa mai: https://labtestsonline.org/conditions/cystic-fibrosis
  7. Nā Hoʻokolohua Lab ma ka Pūnaewele [Pūnaewele]. Wakinekona D.C .: ʻAmelika Hui Pū ʻIa no ka Chemical Clinical; c2001–2018. Nānā Hou [hōʻano hou 2018 Mar 18; i helu ʻia 2018 Mar 18]; [ma kahi o 2 pale]. Loaʻa mai: https://labtestsonline.org/screenings/newborns
  8. Nā Hoʻokolohua Lab ma ka Pūnaewele [Pūnaewele]. Wakinekona D.C .: ʻAmelika Hui Pū ʻIa no ka Chemical Clinical; c2001–2018. Hōʻike Hōʻike Hōkū Lua [hōʻano hou ʻia 2018 Mar 18; i helu ʻia 2018 Mar 18]; [ma kahi o 2 pale]. Loaʻa mai: https://labtestsonline.org/tests/sweat-chloride-test
  9. Merck Manual Mea Kūʻai Manuahi [Pūnaewele]. Kenilworth (NJ): Merck & Co. Inc.; c2018. Cystic Fibrosis (CF) [helu ʻia 2018 Mar 18]; [ma kahi o 2 pale]. Loaʻa mai: https://www.merckmanuals.com/home/ Children-s-health-issues/cystic-fibrosis-cf/cystic-fibrosis-cf
  10. National Heart, Lung, and Blood Institute [Pūnaewele]. Bethesda (MD): Ke Keʻena ʻOihana Ola a me nā lawelawe kanaka; Cystic Fibrosis [helu ʻia 2018 Mar 18]; [ma kahi o 3 pale]. Loaʻa mai: https://www.nhlbi.nih.gov/health-topics/cystic-fibrosis
  11. Kulanui o Rochester Medical Center [Pūnaewele]. Rochester (NY): Kulanui o Rochester Medical Center; c2018. Health Encyclopedia: ʻO Cystic Fibrosis Sweat Test [i ʻōlelo ʻia 2018 Mar 18]; [ma kahi o 2 pale]. Loaʻa mai: https://www.urmc.rochester.edu/encyclopedia/content.aspx?contenttypeid=167&contentid;=cystic_fibrosis_sweat
  12. UW Ola [Pūnaewele]. Madison (WI): Ke Kulanui o Wisconsin Nā Haukapila a me nā Mana Haukino; c2018. ʻIkepili olakino: Nā ʻoiaʻiʻo olakino nāu: Hōʻike Pulu Paʻi Pediatric [hoʻohou ʻia 2017 Mei 11; i helu ʻia 2018 Mar 18]; [ma kahi o 3 pale]. Loaʻa mai: https://www.uwhealth.org/healthfact/parenting/5634.html
  13. ʻO ke olakino UW: Ka Halemai Kamaliʻi ʻAmelika ʻAmelika [Pūnaewele]. Madison (WI): Ke Kulanui o Wisconsin Nā Haukapila a me nā Mana Haukino; c2018. ʻO ke olakino kamaliʻi: Cystic Fibrosis [i ʻōlelo ʻia 2018 Mar 18]; [ma kahi o 5 pale]. Loaʻa mai: https://www.uwhealthkids.org/kidshealth/kids/kids-health-problems/heart-lungs/cystic-fibrosis/22267.html
  14. ʻO ke olakino UW: Ka Halemai Kamaliʻi ʻAmelika ʻAmelika [Pūnaewele]. Madison (WI): Ke Kulanui o Wisconsin Nā Haukapila a me nā Mana Haukino; c2018. Ke olakino kamaliʻi: Cystic Fibrosis (CF) Chloride Sweat Test [cited 2018 Mar 18]; [ma kahi o 5 pale]. Loaʻa mai: https://www.uwhealthkids.org/kidshealth/mother/general-health/sick-kids/cystic-fibrosis-(cf)-chloride-sweat-test/24942.html

ʻAʻole pono e hoʻohana i ka ʻike ma kēia pūnaewele i pani no ka mālama olakino ʻoihana a ʻōlelo aʻoaʻo paha. Kāhea aku i ka mea mālama ola inā he nīnau kāu e pili ana i kou olakino.


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