Hōʻike Hōʻike Hou no Cystic Fibrosis

Anter

• He aha ka hopena o ka hou?
• No ke aha ia e hoʻohana ai?
• No ke aha wau e pono ai i kahi hōʻoia hou?
• He aha ka hana i ka wā o ka hoʻowalewale?
• Pono wau e hana i kekahi mea e hoʻomākaukau ai no ka hoʻāʻo?
• Aia kekahi mau pilikia i ka hoʻāʻo?
• He aha ke ʻano o nā hopena?
• Aia kekahi mea ʻē aʻe e pono iaʻu e ʻike e pili ana i ka hoʻāʻo hou?
• Nā kūmole

He aha ka hopena o ka hou?

Hoʻomaopopo kahi hoʻokolohua hou i ka nui o kaloride, kahi ʻāpana o ka paʻakai, i ka hou. Hoʻohana ʻia ia e hōʻoia i ka cystic fibrosis (CF). Loaʻa i ka poʻe me CF kahi kiʻekiʻe o ka chloride i ko lākou hou.

He maʻi ʻo CF e kumu ai ka kūkulu ʻana o ka mucus i nā ake māmā a me nā mea ʻē aʻe.Hōʻino ia i nā ake māmā a paʻakikī e hanu. Hiki iā ia ke alakaʻi i nā maʻi pinepine a me ka hōʻino kino. He maʻi hoʻoilina ʻo CF, ʻo ia ka mea i hoʻoiho ʻia mai kou mau mākua mai, ma o nā gen.

ʻO nā Genes nā ʻāpana o ka DNA e lawe i ka ʻike e hoʻoholo ai i kāu ʻano kū hoʻokahi, e like me ke kiʻekiʻe a me ke kala o ka maka. He kuleana pū kekahi ʻo Genes no kekahi mau pilikia olakino. I loaʻa i ka cystic fibrosis, pono ʻoe i kahi ʻāpana CF mai kou makuahine a me kou makuakāne. Inā hoʻokahi ka makua i loaʻa ka ʻāpana, ʻaʻole ʻoe e loaʻa i ka maʻi.

Nā inoa ʻē aʻe: hoʻāʻo chloride sweat, test cystic fibrosis sweat, electrolytes sweat

No ke aha ia e hoʻohana ai?

Hoʻohana ʻia kahi hoʻokolohua e ʻike i nā cystic fibrosis.

No ke aha wau e pono ai i kahi hōʻoia hou?

Hiki i kahi hōʻoia o ka hou ke diagnose i ka cystic fibrosis (CF) i ka poʻe o nā makahiki āpau, akā hana mau ʻia i nā pēpē. Pono paha kāu pēpē i kahi hoʻokolohua hou inā ua hoʻāʻo ʻo ia no ka CF ma kahi hoʻokolohua koko hānau hānau maʻamau. Ma ʻAmelika Hui Pū ʻIa, ʻike pinepine ʻia nā pēpē hou no nā ʻano ʻano like ʻole me CF. Hana ʻia ka hapa nui o nā hoʻokolohua hou i ka wā o 2 a 4 mau pule paha nā pēpē.

ʻO kahi keiki makua a makua paha i hōʻike ʻole ʻia no CF e pono paha i kahi cystic fibrosis sweat test inā loaʻa kekahi i ka ʻohana i ka maʻi a / a i ʻole he mau hōʻailona paha o CF. Pākuʻi ʻia kēia mau mea:

• ʻIli ʻono paʻakai
• Hewa pinepine
• ʻO nā maʻi kūpē pinepine, e like me ka niumonia a me ka bronchitis
• Hī pilikia
• ʻAʻole e loaʻa ke kaupaona, ʻoiai me ka makemake maikaʻi
• ʻAihu ʻaila, nui loa
• I nā keiki hānau hou, ʻaʻohe pahu i hana ʻia ma hope pono o ka hānau ʻana

He aha ka hana i ka wā o ka hoʻowalewale?

Pono kāu mea mālama ola e ʻohiʻohi i kahi laʻana o ka hou no ka hoʻāʻo ʻana. E holo ana ke kaʻina hana holoʻokoʻa ma kahi o hoʻokahi hola a e hoʻopili ʻia paha i kēia mau hana.

• E kau kahi mea mālama ola i ka pilocarpine, kahi lāʻau e hoʻonā ai i ka sweating, ma kahi wahi liʻiliʻi o ka forearm.
• E kau kāu mea hāʻawi i kahi uila i kēia wahi.
• E hoʻouna ʻia kahi au nāwaliwali ma o ka uila. Hoʻokomo kēia kahe i ka lāʻau i loko o ka ʻili. Hoʻokumu paha kēia i kahi kani iki a mehana paha.
• Ma hope o ka hemo ʻana o ka uila, e hoʻopaʻa kāu mea hāʻawi i kahi ʻāpana o ka pepa kānana a i ʻole ka gauze ma ka forearm e ʻohiʻohi ai i ka hou.
• E hōʻiliʻili ʻia ka hou no 30 mau minuke.
• E hoʻouna ʻia ka hou i hōʻiliʻili ʻia i kahi lab no ka hoʻāʻo ʻana.

Pono wau e hana i kekahi mea e hoʻomākaukau ai no ka hoʻāʻo?

ʻAʻole pono ʻoe i kahi hoʻomākaukau kūikawā no ka hoʻokolohua hou ʻana i ka hou, akā pono ʻoe e hōʻalo i ka hoʻopili ʻana i nā kalima a i ʻole nā ​​lotion i ka ʻili no 24 mau hola ma mua o ke kaʻina hana.

Aia kekahi mau pilikia i ka hoʻāʻo?

ʻAʻohe mea ʻike ʻia i ka hoʻowalewale. Loaʻa paha i kāu keiki ke kaniʻuhū a i ʻole ka ʻalihi ʻana mai ka uila, akā ʻaʻole pono e ʻeha.

He aha ke ʻano o nā hopena?

Inā hōʻike nā hopena i ke kiʻekiʻe o ka chloride, aia kahi manawa kūpono i loaʻa i kāu keiki ka cystic fibrosis. E kauoha paha kāu mea mālama mālama ola i kahi hoʻokolohua hou hou ʻana i ka hou a me / a i ʻole nā ​​hoʻokolohua ʻē aʻe e hōʻoia a hōʻalo paha i kahi kuhi. Inā he mau nīnau kāu e pili ana i nā hopena o kāu keiki, e kamaʻilio me kāu kauka olakino.

E aʻo hou aʻe e pili ana i nā hoʻokolohua hoʻokolohua, nā pae kuhikuhi, a me ka hoʻomaopopo ʻana i nā hopena.

Aia kekahi mea ʻē aʻe e pono iaʻu e ʻike e pili ana i ka hoʻāʻo hou?

ʻOiai ʻaʻohe lāʻau lapaʻau no ka cystic fibrosis (CF), loaʻa nā lāʻau i kōkua i ka hōʻemi ʻana i nā hōʻailona a hoʻomaikaʻi i ka maikaʻi o ke ola. Inā ua ʻike ʻia kāu keiki me CF, e kamaʻilio pū me kāu kahu mālama ola e pili ana i nā hoʻolālā a me nā mālama e kōkua i ka mālama ʻana i ka maʻi.

Nā kūmole

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ʻAʻole pono e hoʻohana i ka ʻike ma kēia pūnaewele i pani no ka mālama olakino ʻoihana a ʻōlelo aʻoaʻo paha. Kāhea aku i ka mea mālama ola inā he nīnau kāu e pili ana i kou olakino.