Pehea i kōkua mai ai ka pāpaho iaʻu ma o kaʻu huakaʻi maʻi ʻaʻai

Alone. Hoʻokaʻawale ʻia. Hoʻokahuli ʻia. ʻO kēia mau manaʻo e ʻike paha ka mea i loaʻa i ka maʻi ʻaʻai. ʻO kēia mau manaʻo kekahi no ka makemake ʻana i nā pilina pilikino me nā poʻe ʻē aʻe e hoʻomaopopo i ka mea a lākou e hele nei.

Maopopo iā mākou mai ka Hōʻike Mokuʻāina o ka maʻi ʻaʻai kēlā hapa nui nui loa - {textend 89 pakeneka - huli ka {textend} i ka pūnaewele ma hope o ka ʻike ʻia me ka maʻi ʻaʻai. A ma muli o ka lilo ʻana o ke kanaka maʻamau ma mua o ʻelima mau makahiki o ko lākou ola ma ka pāpaho kaiapuni, maikaʻi e kuhi i kēia poʻe e huli nui nei iā Facebook, Twitter, Instagram, Snapchat, a me YouTube no nā ʻōlelo aʻoaʻo, kākoʻo, a me ka paipai.

Hiki i ka pāpāho kaiaulu ke pahi kaua ʻoi lua, a he nui ka poʻe ʻike he ʻoi aku ka maikaʻi o ke komo ʻana ma mua o ke kōkua ma hope o kahi hanana traumatic.

ʻOiaʻiʻo, ʻaʻole kau palena ʻia ka ola kaiaulu i ka pāpili kaiapili wale nō. Ke hele nei i kahi hui kūkā kamaʻilio maʻi ahonui, e hoʻāʻo nei i kahi papa yoga hou i kou kaiāulu, a i ʻole ke ʻimi ʻana i ke kofe me kahi hoa aloha nāna e mālama pono nā ʻano āpau āpau e noho kaiaulu a loaʻa ka manaʻolana a me ka hoʻoulu manaʻo no ka mea āu e hele nei. ʻO ka mea hope loa, pili ia i ka hoʻopili ʻana - {textend} ʻaʻohe mea inā he pūnaewele a i ʻole he kanaka.

No nā poʻe ʻehā aʻe, ua kuhikuhi ʻia kahi maʻi ʻaʻai e huli i kā lākou mau pūnaewele kaiaulu ma mua o ka haʻalele ʻana iā lākou. E heluhelu i kā lākou mau moʻolelo hoʻouluulu ma lalo nei.

ʻAʻole hiki ke pale ʻia ka loaʻa ʻana o ke kākoʻo ma ka pāpili kaiapili no Stephanie Seban i kona wā i ʻike ʻia ai ma mua o ʻeono mau makahiki i hala.

"Ua hoʻoweliweli maoli ʻo Google a me ka pūnaewele i ka nui," i ʻōlelo ʻo ia. "ʻOiai ua ʻike ʻia wau me ka maʻi ʻaʻai umauma pae 4, ʻo kēlā me kēia hulina e huki i nā moʻolelo maikaʻi ʻole a me nā mea ʻole e pili ana i koʻu ola."

ʻO Facebook a me Instagram nā wahi ʻelua i hiki iā ia ke hele e hoʻohui me nā wahine ʻē aʻe e hele nei i ka huakaʻi like e like me ia. He ala ia e hōʻemi ai i kahi kaʻawale.

"ʻO ka loaʻa ʻana o ke kaiāulu hiki ke hoʻōla loa. Ua hālāwai au i kekahi poʻe kupaianaha i hiki iaʻu ke kāhea aku i mau hoaaloha ma ka pāpili kaiaulu, "i ʻōlelo ʻo ia.

Akā aia kahi hoʻihoʻi i ka hulina kaiapili a Seban: Ua paʻakikī ʻo ia i ka loaʻa ʻana o ke kākoʻo no nā wahine ʻōpio me ka maʻi ʻaʻai pae 4. "ʻAʻole nui ka poʻe e kamaʻilio e pili ana i ka maʻi metastatic pae 4, e waiho wale ʻia e pili ana," i ʻōlelo ʻo ia.

ʻO kēia kāna kumu nui o ka hoʻomaka ʻana i kāna pūnaewele ponoʻī.Ua lilo i kāna nuʻukia e aʻo i nā mea āpau i hiki iā ia e pili ana i ka pale ʻana a me ka mālama ʻana i ka maʻi ʻaʻai, a me ka hāʻawi ʻana i nā kumuwaiwai kōkua i nā ʻōpio makua e pili ana i nā maʻi metastatic.

“He kū hoʻokahi nā kūlana a me nā ʻike. ʻO kēia ka mea i hoʻoikaika iaʻu e hana i koʻu ola i mea e hāpai ai i ka ʻike no mākou nā mea maʻi MBC a e ʻike i ka poʻe ʻaʻole ka maʻi kanesa o ka umauma i hoʻokahi maʻi e like me nā maʻi āpau. Ua hoʻolōʻihi ʻia kahi manawa naʻu e hoʻopuka ai i kaʻu moʻolelo ma laila no ka mea ʻaʻole au e nānā he 'maʻi,' "i ʻōlelo ʻo ia.

E aʻo hou aʻe e pili ana iā Seban ma Facebook a me Instagram, a me kāna blog.

Ua loaʻa ʻo Dickinson i kāna kaukā maʻi ʻaʻai mua ma kāna lā hānau 19. ʻAʻole kahi mea a kekahi ʻōpio e makemake ai, akā he mea ia a Dickinson i kū ai i mua o ka loaʻa koke ʻana o kahi hōʻailona maʻi ʻaʻai maikaʻi ʻekolu mau lā ma mua.

Ma kahi o ka huli ʻana i loko a me kahi pilikino e pili ana i kāna kuhi, huli ʻo ia i kāna pūnaewele YouTube i makemake ʻia e kau i nā wikiō e pili ana i kāna huakaʻi.

"Makemake au i ka poʻe a pau i ukali iaʻu e ʻike i ke kumu e loaʻa ʻole ai nā wikiō me ke olakino a me ke olakino olakino ma ke kahawai me ke olakino a me ke olakino." "Makemake wau e lilo i laʻana a hāʻawi i ka ʻike i ka poʻe i ka mea e hana inā loaʻa iā lākou ka maʻi ʻaʻai like me aʻu a i ʻole ke hele ʻana i ka chemotherapy like me aʻu."

Ke hāmama nei e pili ana i kāna kanesa testicular kahi neʻe wiwo ʻole. Ma hope o nā mea āpau, ʻo 1 wale nō o nā kāne 263 a pau e hoʻomōhala i kēia ʻano maʻi ʻaʻai i ko lākou wā e ola nei. A ʻo 7 wale nō ka pākēneka o ka poʻe i ʻike ʻia he keiki a ʻōpio paha.

Ua ʻike ʻo Dickinson he mea kōkua ka pāpaho kaiaulu e hoʻonui i ka ʻike e pili ana i ka maʻi, a mālama i kona ʻohana - {textend} kikoʻī kona mau kūpuna - {textend} hōʻano hou ʻia. ʻO ka mea āna i manaʻo ʻole ai ka helu o nā malihini i ninini i ko lākou mau puʻuwai e hōʻike i ke kākoʻo iā ia.

"E hoʻouna mai kekahi iaʻu i nā ʻōlelo hoʻoikaika i ka manawa o kēlā me kēia lā ʻoiai wau e pili ana i ka maʻi ʻaʻai no 6 mau mahina," wahi a Dickinson.

Ma luna o kēia, ua hoʻokele kāna punahele YouTuber a me ka influencer hoʻoikaika kino ma mua o ʻelua a me ka hapalua hola e hui ai me Dickinson i ke kakahiaka o kāna chemotherapy.

Ma ke ʻano he mea pakele o ka maʻi ʻaʻai, e hoʻokau hou nei ʻo Dickinson i kāna kahawai hoʻoikaika kino YouTube a mahalo aku i ka poʻe i kōkua iā ia i kēlā makahiki paʻakikī. E ʻike ʻoe iā ia ma Instagram.

No Cheyann Shaw, he 24 mau hola wale nō ma hope o kāna kuhi maʻi ʻaʻai ovarian nāna e nānā i ka pāpaho kaiaulu no ke kōkua.

"Ua loaʻa iaʻu kahi hoʻoikaika kino liʻiliʻi e pili ana ma ka pāpili kaiaulu, akā ʻike wau he kaua a me kahi huakaʻi e pono ai e palapala," i ʻōlelo ʻo ia.

Ua paʻi ʻo ia i kahi loiloi wikiō e hoʻopaʻa ana i kāna maʻi ʻaʻai a kau ʻia i kāna kahawai YouTube. Mai kēlā wikiō mua ma mua o hoʻokahi makahiki i hala aku nei, ua hoʻomau ʻo Shaw i ka hoʻouka hou ʻana i kāna hoʻomaʻemaʻe chemotherapy a me nā wikiō hoʻouluulu e like me nā ʻōlelo aʻoaʻo no ka noho maikaʻi ʻana, pehea e hana ai i nā hakakā, a me nā ʻenehana hoʻoikaika kino.

"ʻO ke kumu o koʻu huli ʻana i ka pāpili kaiaulu a hoʻololi i kaʻu mau kahawai kaiaulu i nā kahawai e hōʻike nei i kaʻu huakaʻi no ka mea makemake wau e lilo i leo," i ʻōlelo ʻo ia.

Ma waho aʻe o YouTube, ua hoʻohana ʻo Shaw iā Instagram a me Facebook e hoʻohui i nā poʻe ʻē aʻe e hakakā pū nei me ka maʻi ʻaʻai. ʻAʻole i loaʻa iā ia ka laki maikaʻi loa ma kēia mau kahawai.

"Ua huli au i Instagram ka hapanui e kiʻi i ka poʻe e hakakā ana i ka maʻi ʻaʻai a ʻike inā he ʻōlelo aʻoaʻo a ʻōlelo aʻoaʻo paha kā lākou, akā i koʻu hele ʻana i Instagram, ʻaʻole hiki iaʻu ke ʻike i ka poʻe makemake e kamaʻilio e pili ana i kā lākou kaua a me nā hakakā, "Ua ʻōlelo ʻo ia.

ʻAʻole naʻe ia i ʻae i kēia e hoʻohaʻahaʻa iā ia. Ua ʻike ʻo ia ua lawa ke kaiāulu āna i kūkulu ai e hoʻomau i kona hele ʻana.

"ʻO ka mālama ʻana iā ʻoe iho i ka ikaika noʻonoʻo ka mea nui e like me kou kino e hakakā kino ana i ka maʻi ʻaʻai," i ʻōlelo ʻo ia. "ʻO ke ʻano o ke 'kaiāulu' i kōkua iaʻu i kaʻu huakaʻi me ka maʻi ʻaʻai no ka mea ʻaʻole wau i manaʻo hoʻokahi. Ua maopopo iaʻu aia kekahi ma waho e hiki ai iaʻu ke huli i ka mea i loaʻa ka ʻike e like me aʻu a hiki ke hāʻawi iaʻu i ka ʻōlelo aʻo. ”

E aʻo hou aʻe e pili ana i kā Shaw ʻike ma Instagram, a nānā i kāna wikiō wikiō ma kāna kahawai YouTube.

Ua hala ma mua o ʻelua mau makahiki ma mua o ka ʻike ʻia ʻana o Jessica DeCrisofaro me ka lymphoma pae 4B Hodgkin. Ua kuhi hewa nā kauka he nui i kāna mau hōʻailona, ​​a kāwele ʻia hoʻi i ka mea āna e ʻike nei ma ke ʻano he allergy a reflux waikawa paha. I ka loaʻa ʻana o kāna hōʻailona, ​​ua hele ʻo ia i ka pūnaewele no nā pane.

"I ka hoʻomaka o kaʻu ʻike, huli koke wau iā Google no nā pane e pili ana i ka hopena o koʻu ola a pehea e hiki ai iaʻu ke hana me ka mea i kēlā manawa me he mea weliweli lā i hāʻawi ʻia iaʻu," i ʻōlelo ʻo ia. "ʻAʻole maikaʻi ia, a ua ʻike wau ʻaʻohe puke alakaʻi maoli i ka maʻi ʻaʻai."

Ua loaʻa iā ia nā pūʻulu Facebook he nui, akā ʻo ka hapa nui o lākou he maikaʻi ʻole, a paʻakikī iā ia e heluhelu i nā pou e pili ana i ka hana ʻole ʻana a i ʻole ka manaʻoʻiʻo ʻole i ka lāʻau. ʻO kēia ka hoʻomaka o ka mea e lilo i kāna huakaʻi hou: Ke kōkua a me ka hoʻoulu ʻana i nā mea maʻi ʻē aʻe ma o kāna blog a me kāna moʻokāki Instagram.

"He mea aloha nui wau i Instagram, no ka mea hiki iā ʻoe ke nānā i ka lepele hash o kāu maʻi ʻaʻai kikoʻī, a loaʻa nā 'hoaaloha maʻi ʻaʻai,'" i ʻōlelo ʻo ia. "Kahaha nui wau i koʻu hui ʻana me kekahi o kaʻu mau hoaaloha pili loa ma Instagram. Ua hele pū mākou āpau i ka hōʻoia a me ka hoʻomaʻamaʻa pū ʻana. "

Ua ʻike ʻo ia ma o kēia mau mea āpau e loaʻa maoli i ke kaiāulu kanesa, no laila ua hoʻoholo ʻo ia e kākau i kāna puke ponoʻī, "Talk Cancer to Me," no nā poʻe ʻē aʻe e hele nei i loko o ka mea i loaʻa iā ia.

"E like me ka makemake o kou ʻohana a me kou mau hoaaloha e kōkua iā ʻoe, ʻaʻole maopopo iā lākou ke ʻano inā ʻaʻole lākou i loko o kou kāmaʻa." "Ua ʻike ke kaiāulu kanesa i nā mea āpau, ka ʻeha, ka pīhoihoi, ka nalo ʻana o ka lauoho, ke nānā nei i ke aniani a ʻaʻole hiki ke ʻike iā ʻoe iho, ka hopohopo, ke kaumaha, ka PTSD ... nā mea āpau."

E heluhelu hou aʻe e pili ana i kā DeCristofaro huakaʻi ma kāna blog a me kāna Instagram.