ʻO ka maʻi maʻi maʻi maʻi

Anter

• Hōʻuluʻulu Manaʻo
• He aha ka maʻi maʻi sickle (SCD)?
• He aha ke kumu o ka maʻi maʻi maʻi maʻi (SCD)?
• ʻO wai ka mea e makaʻu i ka maʻi maʻi sickle (SCD)?
• He aha nā hōʻailona o ka maʻi maʻi sickle (SCD)?
• Pehea e ʻike ʻia ai ka maʻi maʻi maʻi maʻi (SCD)?
• He aha nā ʻano lāʻau no ka maʻi maʻi sickle (SCD)?

Hōʻuluʻulu Manaʻo

He aha ka maʻi maʻi sickle (SCD)?

ʻO ka maʻi maʻi maʻi maʻi (SCD) kahi hui o nā maʻi ʻulaʻula i hoʻoilina. Inā loaʻa iā SCD, aia kekahi pilikia me kāu hemoglobin. He protein ʻo Hemoglobin i nā hunaola ʻulaʻula e hali i ka oxygen ma loko o ke kino. Me SCD, hana ka hemoglobin i mau koʻokoʻo ʻoʻoleʻa i loko o nā hunaola ʻulaʻula. Hoʻololi kēia i ke kinona o nā hunaola ʻulaʻula. Kuhi ʻia nā hunaola i ʻano kinikō, akā hoʻololi kēia iā lākou i kahi ʻano crescent, a i ʻole, ʻoluʻolu.

ʻAʻole palupalu nā kinona kākahu sickle a ʻaʻole hiki ke hoʻololi i ke kinona maʻalahi. Ua haki ka hapa nui o lākou i ko lākou neʻe ʻana i kāu mau moku koko. ʻO nā pūnaewele mīkini wale nō ka lōʻihi o 10 a 20 mau lā, ma kahi o 90 a 120 mau lā. E pilikia paha kou kino i ka hana ʻana i nā pūnaewele hou e pani i nā mea āu i nalo. Ma muli o kēia, ʻaʻole lawa paha nā hunaola ʻulaʻula iā ʻoe. ʻO kēia kahi ʻano i kapa ʻia he anemia, a hiki iā ʻoe ke luhi.

Hiki i nā hunaola ke ʻano like me ka sickle ke hoʻopili i nā paia o ka moku, e pā ana i kahi poloka e lohi a pani paha i ke kahe o ke koko. Ke hiki kēia, ʻaʻole hiki i ka oxygen i nā aʻa kokoke. Hiki i ka nele o ka oxygen ke hoʻouka i nā ʻeha o ka hōʻeha, ʻeha nui, i kapa ʻia ʻo crises ʻeha. Hiki i kēia mau hoʻouka ke hana me ka ʻole o ka ʻōlelo aʻoaʻo. Inā loaʻa iā ʻoe, pono ʻoe e hele i ka haukapila no ka mālama ʻana.

He aha ke kumu o ka maʻi maʻi maʻi maʻi (SCD)?

ʻO ke kumu o ka SCD kahi ʻāpana kīnā ʻole, i kapa ʻia he ʻāpana cell sickle. Hānau ʻia ka poʻe me kēia maʻi me nā ʻāpana pūnana maʻi ʻelua, hoʻokahi mai kēlā me kēia mākua.

Inā hānau ʻia ʻoe me hoʻokahi galani ʻāpana maʻi, ua kapa ʻia ia he ʻano maʻi maʻi maʻi. ʻO ka poʻe me ke ʻano o ka cell sickle he olakino maʻamau, akā hiki iā lākou ke hoʻoili i ka ʻāpana hemahema i kā lākou keiki.

ʻO wai ka mea e makaʻu i ka maʻi maʻi sickle (SCD)?

Ma ʻAmelika Hui Pū ʻIa, ʻo ka hapa nui o ka poʻe me SCD he ʻAmelika ʻAmelika.

• Ma kahi o 1 i ka 13 ʻApelika ʻAmelika nā pēpē i hānau ʻia me ke ʻano o ka cell illle
• Ma kahi o 1 o kēlā me kēia 365 mau keiki ʻeleʻele i hānau ʻia me ka maʻi maʻi maʻi maʻi

Hoʻololi pū kekahi ʻo SCD i kekahi poʻe i hele mai ka Hispanic, ka hema o ʻEulopa, Waena Waena, a i ʻole nā ​​ʻĀina ʻĀkia.

He aha nā hōʻailona o ka maʻi maʻi sickle (SCD)?

Hoʻomaka ka poʻe me SCD i nā hōʻailona o ka maʻi i ka makahiki mua o ke ola, ma kahi o 5 mau makahiki o ka makahiki. Pākuʻi ʻia paha nā ʻōuli o SCD

• ʻEha ʻeha o nā lima a me nā wāwae
• Ka luhi a i ʻole fussiness mai anemia
• ʻO kahi kala melemele o ka ʻili (jaundice) a i ʻole nā ​​keʻokeʻo o nā maka (icterus)

Hoʻololi nā hopena o SCD i kēlā me kēia kanaka a hiki ke hoʻololi i ka manawa. ʻO ka hapa nui o nā hōʻailona a me nā hōʻailona o ka SCD e pili ana i nā pilikia o ka maʻi. Pākuʻi ʻia paha lākou i ka ʻehaʻeha, anemia, nā ʻino o ke kino, a me nā maʻi.

Pehea e ʻike ʻia ai ka maʻi maʻi maʻi maʻi (SCD)?

Hiki i kahi hōʻoia koko ke hōʻike inā loaʻa iā ʻoe ka SCD a i ʻole ke ʻano o ka cell sickle. Ke hoʻāʻo nei nā mokuʻāina āpau i nā keiki hānau hou ma ke ʻaoʻao o kā lākou papahana loiloi, no laila hiki i ka lapaʻau ke hoʻomaka mua.

ʻO ka poʻe e noʻonoʻo nei e pili ana i ka loaʻa ʻana o nā keiki hiki ke loaʻa i ka hoʻokolohua e ʻike ai pehea paha e loaʻa i kā lākou keiki SCD.

Hiki i nā kauka ke kuhikuhi pono iā SCD ma mua o ka hānau ʻana o kahi pēpē. Hoʻohana kēlā hōʻike i kahi laʻana o ka wai amniotic (ka wai i loko o ka ʻeke e hoʻopuni ana i ka pēpē) a i ʻole nā ​​kiko i lawe ʻia mai ka placenta (ka meaola e lawe ana i ka oxygen a me nā mea momona i ka pēpē).

He aha nā ʻano lāʻau no ka maʻi maʻi sickle (SCD)?

ʻO ka mea hoʻōla wale no ka SCD ka iwi iwi a i ʻole ke kāpili ʻana o ke koʻokoʻo paʻa. Ma muli o ka weliweli o kēia mau transplants a hiki ke loaʻa nā hopena ʻaoʻao koʻikoʻi, hoʻohana wale ʻia ia mau mea i nā keiki me ka SCD koʻikoʻi. No ka hana o ke transplant, pono ke kihi iwi e pili pono. ʻO ka maʻamau, ʻo ke kaikaina a kaikuahine paha ka mea hāʻawi maikaʻi loa.

Aia kekahi mau lāʻau i hiki ke kōkua i ka hōʻoluʻolu ʻana i nā ʻōuli, hōʻemi i nā pilikia, a hoʻolōʻihi i ke ola.

• Nā Antibiotics e hoʻāʻo e pale i nā maʻi i nā keiki ʻōpio
• Nā mea hōʻeha ʻeha no ka ʻehaʻeha a ʻeha mau paha
• ʻO Hydroxyurea, kahi lāʻau i hōʻike ʻia e hōʻemi a pale aku paha i nā pilikia SCD he nui. Hoʻonui ia i ka nui o hemoglobin fetal i ke koko. ʻAʻole kūpono kēia lāʻau i kēlā me kēia mea; e kamaʻilio me kāu kauka lawelawe e pili ana inā pono ʻoe e lawe. ʻAʻole palekana kēia lāʻau i ka wā hāpai.
• ʻO nā lāʻau ʻōpio e pale ai i nā maʻi
• ʻO ke kahe o ke koko no ka anemia koʻikoʻi. Inā ua loaʻa iā ʻoe kekahi mau pilikia koʻikoʻi, e like me ka hahau ʻana, loaʻa paha iā ʻoe nā transfusions e pale aku ai i nā pilikia hou aʻe.

Aia kekahi mau lapaʻau ʻē aʻe no nā pilikia kikoʻī.

E noho i ke olakino e like me ka hiki, e mālama pono i ka mālama olakino maʻamau, ola i kahi nohona olakino, a pale i nā hanana i kū i kahi pilikia ʻeha.

NIH: National Heart, Lung, a me Blood Institute

• Mai ʻApelika a i US: ʻO ka ʻimi a kahi wahine ʻōpio no ka mālama ʻana i ka maʻi maʻi maʻi Sickle
• ʻO kahi hoʻōla ākea e loaʻa no ka maʻi maʻi maʻi ma ka Horizon?
• Ke ala i ka manaolana no ka maʻi maʻi Sickle
• ʻO ka maʻi maʻi sickle: ka mea āu e ʻike ai
• ʻAnuʻu i loko o ka NIH's Sickle Cell Branch
• No ke aha e makemake ai ʻo Jordin Spark i ka poʻe hou e kamaʻilio e pili ana i ka maʻi maʻi Sickle