10 Nīnau e nīnau i kāu Pulmonologist e pili ana iā Idiopathic Pulmonary Fibrosis

Anter

• 1. He aha ka mea e idiopathic ai koʻu kūlana?
• 2. Pehea ka maʻamau o ka IPF?
• 3. He aha ka mea e hana ai i koʻu hanu ʻana ma hope o ka manawa?
• 4. He aha nā mea e hiki aʻe i koʻu kino i ka hala ʻana o ka manawa?
• 5. Aia kekahi mau ʻano ʻāpā ʻē aʻe e ʻike paha wau me IPF?
• 6. He aha nā pahuhopu o ka mālama ʻana iā IPF?
• 7. Pehea wau e mālama ai iā IPF?
• Nā Lapaʻau
• Hoʻoulu pulmonary
• ʻOkoʻa oxygen
• Ke kuʻi ʻōpū
• 8. Pehea e hiki ai iaʻu ke pale i ke kūlana mai ka maikaʻi aʻe?
• 9. He aha nā ʻano nohona e hiki ai iaʻu ke hana e hoʻomaikaʻi i kaʻu mau ʻōuli?
• 10. Ma hea e loaʻa ai iaʻu ke kākoʻo no koʻu kūlana?
• Lawe aku

Hōʻike Overview

Inā ua hōʻoia ʻia ʻoe me ka fibrosis pulmonary idiopathic (IPF), piha paha ʻoe i nā nīnau e pili ana i ka mea e hiki mai ana.

Hiki i kahi pulmonologist ke kōkua iā ʻoe e ʻike i ka hoʻolālā lapaʻau maikaʻi loa. Hiki iā lākou ke ʻōlelo iā ʻoe e pili ana i nā loli nohona hiki ke hana e hōʻemi i kāu mau hōʻailona a loaʻa kahi maikaʻi o ke ola.

Eia nā nīnau he 10 i hiki iā ʻoe ke lawe i kāu kau pono pulmonologist e kōkua iā ʻoe e hoʻomaopopo pono a mālama i kou ola me IPF.

1. He aha ka mea e idiopathic ai koʻu kūlana?

Kamaʻāina paha ʻoe i ka huaʻōlelo “pulrosary fibrosis.” ʻO ia ka scarring o nā ake māmā. ʻO ka huaʻōlelo "idiopathic" e wehewehe ana i kahi ʻano o pulmonary fibrosis kahi e hiki ʻole ai i nā kauka ke hoʻomaopopo i ke kumu.

Hoʻopili ka IPF i kahi hiʻohiʻona scarring i kapa ʻia ʻo pneumonia interstitial maʻamau. ʻO ia kahi ʻano maʻi maʻi lele interstitial. Loaʻa kēia mau maʻi i nāʻiʻo maʻa mau i loaʻa ma waena o kāu mau alaloa a me nā kahe o ke koko.

ʻOiai ʻaʻohe kumu kikoʻī o ka IPF, aia kekahi mau mea weliweli no ka maʻi. ʻO kekahi o kēia mau pilikia pilikia he genetics. Ua hoʻomaopopo nā kānaka noiʻi he ʻano like ʻole o ka MUC5B Hāʻawi ka ʻāpana iā ʻoe i kahi 30 pakeneka o ka hoʻomohala ʻana i ke ʻano.

ʻO nā kumu pilikia ʻē aʻe no IPF pū kekahi:

• kou mau makahiki, mai ka wā o ka IPF e hana pinepine ʻia i ka poʻe ma mua o 50
• kou moekolohe, ʻoiai e hoʻonui paha nā kāne i IPF
• puhipaka
• nā kūlana comorbid, e like me nā kūlana autoimmune
• nā kūlohelohe

2. Pehea ka maʻamau o ka IPF?

Hoʻopili ka IPF ma kahi o 100,000 mau ʻAmelika, a no laila i manaʻo ʻia he maʻi maʻamau. I kēlā me kēia makahiki, ʻike nā kauka i 15,000 mau kānaka i United States me ke ʻano.

Ma ka honua holoʻokoʻa, ma kahi o 13 a 20 paha i kēlā me kēia 100,000 poʻe i loaʻa ka maʻi.

3. He aha ka mea e hana ai i koʻu hanu ʻana ma hope o ka manawa?

ʻO kēlā me kēia kanaka i loaʻa kahi ʻike IPF e loaʻa i kahi pae ʻokoʻa o ka hanu paʻakikī i ka mua. E ʻike ʻia paha ʻoe i nā wā mua o ka IPF ke loaʻa wale ʻoe i ka hanu hana luhi i ka wā o ka hoʻoikaika kino aerobic. A i ʻole, ua hoʻopuka ʻoe i ka hanu mai nā hana o kēlā me kēia lā e like me ka hele wāwae ʻana a ʻauʻau ʻana paha.

Ke holo nei ʻo IPF, ʻike paha ʻoe i nā paʻakikī hou aʻe i ka hanu ʻana. Hiki ke mānoanoa kou mau ake māmā mai ka nui o ka scarring. He mea paʻakikī kēia e hana i ka oxygen a hoʻoneʻe iā ia i kāu kahena koko. Ke hele a mānoanoa ke kūlana, ʻike ʻoe i kou hanu paʻakikī ʻoiai ke hoʻomaha ʻoe.

ʻO ka nānā aku no kāu IPF kū hoʻokahi iā ʻoe, akā ʻaʻohe mea hoʻōla i kēia manawa. Noho ka poʻe he nui ma hope o ka ʻike ʻia me IPF. Noho kekahi poʻe i ka lōʻihi a pōkole paha o ka manawa, kaukaʻi ʻia i ka wikiwiki o ka maʻi. ʻO nā ʻōuli āu e ʻike ai ma ke ʻano o kāu ʻano ʻokoʻa.

4. He aha nā mea e hiki aʻe i koʻu kino i ka hala ʻana o ka manawa?

Aia kekahi mau ʻōuli ʻē aʻe o IPF. Pākuʻi ʻia kēia mau mea:

• he pehu hua ʻole
• luhi
• Kaumaha emi
• ʻeha a me ka hōʻoluʻolu ʻole i kou umauma, ʻōpū, a me nā hono
• nā manamana lima a me nā manamana wāwae

E kamaʻilio me kāu kauka inā kū mai nā ʻōuli hou a i ʻole ke ʻino lākou. Hiki paha i nā mālama ʻana ke kōkua i ka hōʻoluʻolu i kāu mau ʻōuli.

5. Aia kekahi mau ʻano ʻāpā ʻē aʻe e ʻike paha wau me IPF?

Hiki paha iā ʻoe ke makaʻu i ka loaʻa ʻana a i ʻole ke hoʻomohala ʻana i nā kūlana lung ʻē aʻe ke loaʻa iā IPF. Pākuʻi ʻia kēia mau mea:

• huʻi koko
• hāhā hāhā
• maʻi pulmonary ākea
• pulumonia
• pulmonary hypertension
• pāʻālua hiamoe ʻaʻano
• maʻi ʻaʻai pūpū

Hiki paha iā ʻoe ke makaʻu i ka loaʻa ʻana a i ʻole ke hoʻomohala ʻana i nā kūlana ʻē aʻe e like me ka maʻi reflux gastroesophageal a me nā maʻi puʻuwai. Hoʻopilikia ka maʻi reflux Gastroesophageal me IPF.

6. He aha nā pahuhopu o ka mālama ʻana iā IPF?

ʻAʻole hiki ke mālama ʻia ʻo IPF, no laila e nānā ana nā pahuhopu i ka mālama ʻana i kāu mau ʻōuli. E hoʻāʻo kāu mau kauka e hoʻomau i ka pae o ka oxygen i hiki iā ʻoe ke hoʻopau i nā hana o kēlā me kēia lā a me ka hoʻoikaika kino.

7. Pehea wau e mālama ai iā IPF?

E kau ka mālama ʻana no IPF i ka mālama ʻana i kāu mau ʻōuli. Nā mālama ʻana no ka IPF:

Nā Lapaʻau

Ua ʻae ʻo ka US Food and Drug Administration ʻelua mau lāʻau hou i 2014: nintedanib (Ofev) a me pirfenidone (Esbriet). ʻAʻole hiki i kēia mau lāʻau ke hoʻohuli i ka hōʻino i kāu mau māmā, akā hiki iā lākou ke hoʻolohi i ka scarring o nā kiko o ka māmā a me ka holomua o IPF.

Hoʻoulu pulmonary

Hiki i ka pulmonary rehabilitation ke kōkua iā ʻoe e mālama i kou hanu ʻana. E aʻo aku kekahi mau loea iā ʻoe pehea e mālama ai iā IPF.

Hiki i ka pulmonary rehabilitation ke kōkua iā ʻoe:

• e aʻo hou e pili ana i kāu kūlana
• hoʻoikaika kino me ka hoʻonāukiuki ʻole i kou hanu ʻana
• ʻai i nā meaʻai maikaʻi a maikaʻi
• hanu me ka maʻalahi
• mālama i kou ikehu
• e hoʻokele i nā ʻuhane o kou ʻano

ʻOkoʻa oxygen

Me ka oxygen therapy, e loaʻa iā ʻoe kahi lako pono o ka oxygen ma o kou ihu me ka pale a i ʻole nā ​​ihu ihu. Hiki i kēia ke kōkua i ka hanu ʻana i kou hanu ʻana. Kaukaʻi ʻia i ka paʻakikī o kāu IPF, hiki i kāu kauka ke koi iā ʻoe e ʻaʻahu iā ia i kekahi mau manawa a i nā manawa āpau.

Ke kuʻi ʻōpū

I kekahi mau hihia o IPF, he moho paha ʻoe e loaʻa i kahi transplant lung e hoʻolōʻihi ai i kou ola. Hana wale ʻia kēia hana i ka poʻe ma lalo o 65 me ka ʻole o nā kūlana olakino koʻikoʻi.

ʻO ke kaʻina hana o ka loaʻa ʻana o kahi transplant lung hiki ke hala i mau mahina a ʻoi paha. Inā loaʻa iā ʻoe kahi transplant, pono ʻoe e lawe i nā lāʻau e pale ai i kou kino mai ka hōʻole ʻana i ka mea hou.

8. Pehea e hiki ai iaʻu ke pale i ke kūlana mai ka maikaʻi aʻe?

I mea e hōʻole ʻole ai i kāu mau hōʻailona, ​​pono ʻoe e hoʻomaʻamaʻa i nā ʻano olakino maikaʻi. Pākuʻi ʻia kēia:

• ke kū nei i ka puhi koke ʻana
• holoi lima mau
• e hōʻalo nei i ka launa ʻana me ka poʻe maʻi
• ke kiʻi ʻana i nā lāʻau no ka maʻi palū a me ka niumonia
• lawe i nā lāʻau no nā kūlana ʻē aʻe
• noho i waho o nā wahi haʻahaʻa-oxygen, e like me nā mokulele a me nā wahi me nā kiʻekiʻe kiʻekiʻe

9. He aha nā ʻano nohona e hiki ai iaʻu ke hana e hoʻomaikaʻi i kaʻu mau ʻōuli?

Hiki i nā hoʻoponopono nohona ke hōʻoluʻolu i kāu mau hōʻailona a hoʻomaikaʻi i kou ola o ke ola.

E ʻike i nā ala e noho kūleʻa ai me IPF. Hiki i kāu kime hoʻoponopono pulmonary ke paipai i kekahi ʻano hoʻoikaika kino. Hiki paha iā ʻoe ke ʻike i ka hele wāwae ʻana a i ʻole ka hoʻohana ʻana i nā pono hoʻoikaika kino ma kahi hale hoʻoikaika kino e hoʻomaha ai i ke koʻikoʻi a hoʻoikaika ai iā ʻoe. ʻO kahi koho ʻē aʻe e hele mau i waho e hana i nā leʻaleʻa a i ʻole nā ​​hui kaiāulu.

ʻO ka ʻai ʻana i nā meaʻai olakino hiki ke hāʻawi iā ʻoe i ka ikaika hou e mālama ai i kou kino. Hōʻalo i nā meaʻai i hana ʻia me ka momona, paʻakai, a kō. E hoʻāʻo e ʻai i nā meaʻai olakino e like me nā huaʻai, nā lau, nā kīʻaha holoʻokoʻa, a me nā protein protein.

Hiki i ka IPF ke hoʻopili i kou olakino manaʻo. E hoʻāʻo i ka noʻonoʻo ʻana a i ʻole kekahi ʻano hoʻomaha e hōʻoluʻolu i kou kino. ʻO ka lawa ʻana o ka hiamoe a hoʻomaha ʻana hiki ke kōkua i kou olakino noʻonoʻo. Inā kaumaha a hopohopo paha ʻoe, e ʻōlelo i kāu kauka a i ʻole kākāʻōlelo aʻoaʻo aʻoaʻo.

10. Ma hea e loaʻa ai iaʻu ke kākoʻo no koʻu kūlana?

He mea nui ka ʻike ʻana i kahi pūnaewele kākoʻo ke ʻike ʻia ʻoe me IPF. Hiki iā ʻoe ke nīnau i kāu kauka no nā ʻōlelo aʻoaʻo, a i ʻole hiki iā ʻoe ke ʻike i hoʻokahi ma ka pūnaewele. E kiʻi aku i ka ʻohana a me nā hoaaloha pū a e hoʻomaopopo iā lākou pehea e hiki ai iā lākou ke kōkua iā ʻoe.

Hiki i nā hui kākoʻo iā ʻoe ke launa pū me kahi kaiāulu o ka poʻe e ʻike nei i kekahi o nā pilikia like me ʻoe. Hiki iā ʻoe ke kaʻana like i kāu mau ʻike me IPF a aʻo e pili ana i nā ala e mālama ai iā ia i kahi ʻano aloha, hoʻomaopopo.

Lawe aku

Hiki i ka noho ʻana me IPF ke paʻakikī, ma ke kino a me ka noʻonoʻo. ʻO ia ke kumu nui o ka ʻike nui ʻana i kāu pulmonologist a nīnau iā lākou e pili ana i nā ala maikaʻi e mālama ai i kāu kūlana.

ʻOiai ʻaʻohe lāʻau lapaʻau, aia kekahi mau kaʻina hiki iā ʻoe ke lawe e lohi i ka holomua o IPF a hoʻokō i kahi kiʻekiʻe o ke ola.