Noho maikaʻi me Ankylosing Spondylitis: kaʻu mau mea hana punahele a me nā hāmeʻa

Anter

• 1. ʻO ke kaumaha ʻānō kumuhana
• 2. He uluna huakaʻi
• 3. He lāʻau paʻa
• 4. ʻO ka paʻakai ʻo Epsom
• 5. He pākaukau kū
• 6. Pahu uila
• 7. Maka aniani
• 8. Nā Podcast a me nā audiobooks
• Lawe aku

Hoʻopili mākou i nā huahana a mākou e manaʻo nei he pono no kā mākou poʻe heluhelu. Inā kūʻai ʻoe ma o nā loulou i kēia ʻaoʻao, loaʻa iā mākou kahi kōmike liʻiliʻi. Eia kā mākou hana.

Loaʻa iaʻu ka ankylosing spondylitis (AS) no kahi o ʻumi mau makahiki. Ua ʻike wau i nā ʻōuli e like me ka ʻeha mau o ke kua, ka neʻe palena ʻia, ka luhi nui loa, nā pilikia o ka gastrointestinal (GI), ka pehu ʻana o ka maka, a me ka ʻeha pū. ʻAʻole i loaʻa iaʻu kahi hōʻailona kūloko a hiki i ka hala ʻana o kekahi mau makahiki o ka noho ʻana me kēia mau hōʻailona hōʻoluʻolu ʻole.

ʻO AS kahi kūlana kūpono ʻole. ʻAʻole wau i ʻike pehea wau e ʻike ai mai kekahi lā a i kekahi lā aʻe. Hiki ke kaumaha kēia kānalua, akā i nā makahiki he nui, ua aʻo wau i nā ala e kōkua ai i ka mālama ʻana i kaʻu mau ʻōuli.

He mea nui ia e ʻike i ka mea e hana no kekahi kanaka ʻaʻole paha e hana no kekahi. Hele kēlā no nā mea āpau - mai nā lāʻau i nā lāʻau ʻē aʻe.

Hoʻokaʻawale ʻokoʻa ʻo AS i nā mea āpau. ʻO nā lauwili e like me kou pae hoʻoikaika kino, kahi o ka noho ʻana, kaʻai ʻana, a me nā pae hoʻoluhi i nā mea āpau i ka hopena a AS i kou kino.

Mai hopohopo inā ʻaʻole kōkua ka lāʻau lapaʻau no kāu hoa me AS me kāu mau ʻōuli. Hiki paha iā ʻoe ke koi i nā lāʻau ʻokoʻa. Pono paha ʻoe e hana i kahi hoʻokolokolo a me nā hemahema e ʻike ai i kāu hoʻolālā lapaʻau maikaʻi loa.

Noʻu, he aha ka mea e ʻoi ai ka maikaʻi o ka hiamoe ʻana o ka pō maikaʻi, ka ʻai ʻana me ka maʻemaʻe, ka hana ʻana, a me ka mālama ʻana i kaʻu mau pae koʻikoʻi A, kōkua nā mea hana ʻewalu a me nā hāmeʻa e hana i kahi honua ʻokoʻa.

1. ʻO ke kaumaha ʻānō kumuhana

Mai nā gels a hiki i nā pākuʻi, ʻaʻole hiki iaʻu ke hoʻokū i ka ʻino e pili ana i kēia mea.

I loko o nā makahiki, nui nā pō hiamoe ʻole. Nui koʻu ʻeha i koʻu kua i lalo, i koʻu pūhaka, a me koʻu ʻāʻī. Ke noi nei i kahi mea hōʻoluʻolu ʻoi loa (OTC) e like me Biofreeze e kōkua iaʻu e hiamoe me ka hoʻohuli ʻana iaʻu mai ka ʻeha a me ka ʻoʻoleʻa.

Eia kekahi, ʻoiai wau e noho nei i NYC, ma ke kaʻa ʻōhua a i ʻole ke ala kaʻaahi au i mau ai. Lawe wau i kahi ʻōmole liʻiliʻi o Tiger Balm a i ʻole me kekahi mau ʻāpana uhi panioka me aʻu i koʻu wā e huakaʻi ai. Kōkua ia iaʻu i ka ʻoluʻolu hou aʻe i kaʻu hele ʻana e ʻike he mea kaʻu me aʻu inā he lapalapa.

2. He uluna huakaʻi

ʻAʻohe mea e like me ka waenakonu o kahi ʻoʻoleʻa, ʻehaʻeha AS flare-up ʻoiai ma kahi kaʻaahi lehulehu a i ʻole ka holo mokulele. Ma ke ʻano he mea pale, kau wau i kekahi mau ʻāpala lidocaine ma mua o ka huakaʻi.

ʻO kahi hack huakaʻi punahele ʻē aʻe kaʻu e lawe mai i kahi uluna huakaʻi U me aʻu i nā huakaʻi lōʻihi. Ua ʻike wau i kahi uluna huakaʻi maikaʻi e hoʻopili pono i kou ʻāʻī me ka ʻoluʻolu a kōkua iā ʻoe e hiamoe.

3. He lāʻau paʻa

Ke huhū ʻoe, ʻo ka ʻohi ʻana i nā mea mai ka papahele hiki ke maʻalahi. E laka paha kou mau kuli, a i ʻole hiki ʻole iā ʻoe ke pelu i kou kua e hopu i ka mea āu e pono ai. ʻAʻole pono wau e hoʻohana i kahi lāʻau paʻa, akā hiki ke maʻalahi i ka wā e pono ai wau e kiʻi i kahi mea mai ka papahele.

Ke mālama nei i kahi koʻokoʻo paʻa e hiki ke kōkua iā ʻoe e kiʻi i nā mea i hiki ʻole i ka lima. ʻO kēlā ala, ʻaʻole ʻoe e kū aʻe i luna mai kou noho!

4. ʻO ka paʻakai ʻo Epsom

Loaʻa iaʻu kahi ʻeke lavender Epsom paʻakai ma ka home i nā manawa āpau. ʻO ka pulu ʻana i ka ʻauʻau paʻakai ʻo Epsom no 10 a 12 mau minuke hiki ke hāʻawi i nā keu maikaʻi maikaʻi maikaʻi loa. ʻO kahi laʻana, hiki iā ia ke hōʻemi i ka mumū a hoʻomaha i nā ʻehaʻeha a me nā haunaele.

Makemake wau e hoʻohana i ka paʻakai lavender no ka mea ʻo ka ʻala o ka pua ke hana i kahi ʻano spa. Hoʻoluʻolu a mālie hoʻi.

E hoʻomanaʻo he ʻokoʻa kēlā me kēia, a ʻaʻole paha ʻoe e ʻike i nā pono like.

5. He pākaukau kū

I ka manawa he hana keʻena kaʻu, ua noi wau i kahi pākaukau kū. Ua haʻi wau i koʻu luna e pili ana i kaʻu AS a wehewehe i ke kumu e pono ai iaʻu e loaʻa kahi pākaukau hoʻoneʻe. Inā noho au i ka lā holoʻokoʻa, e paʻakikī wau.

Hiki i ka noho ke ʻenemi no ka poʻe me AS. Ke hāʻawi nei iaʻu i kahi pākaukau kū i ka neʻe a me ka maʻalahi hoʻi. Hiki iaʻu ke mālama pololei i koʻu ʻāʻī ma kahi o ka laka, i lalo ke kūlana. ʻO ka hiki ke noho a kū paha ma kaʻu pākaukau ua ʻae iaʻu e leʻaleʻa i nā lā ʻeha ʻole i ka wā ma kēlā hana.

6. Pahu uila

Kōkua ka wela i ka hoʻomaha i ka ʻeha a me ka paʻakikī o AS. ʻO kahi pākeke uila kahi mea hana maikaʻi no ka mea uhi ia i kou kino āpau a ʻoluʻolu loa.

Eia kekahi, ke kau nei i kahi ʻōmole wai wela e kūʻē i kou kua i lalo hiki ke hana i nā mea kupanaha no kēlā me kēia ʻeha kūloko a paʻakikī paha. I kekahi manawa lawe mai wau i kahi ʻōmole wai wela me aʻu ma nā huakaʻi, me ka hoʻohui i kaʻu uluna huakaʻi.

7. Maka aniani

I koʻu mau lā AS mua, ua hoʻomohala wau i ka uveitis mua loa (ka palahu o ka uvea). ʻO kēia kahi pilikia maʻamau o AS. Hana ia i ka ʻeha weliweli, ʻulaʻula, pehu, ʻike māmā, a me nā floaters i kāu ʻike. Hiki iā ia ke hoʻopōʻino i kāu ʻike. Inā ʻaʻole ʻoe e ʻimi koke i ka lāʻau, hiki ke loaʻa nā hopena lōʻihi i kou hiki ke ʻike.

ʻO ka mālamalama māmā kahi ʻino maikaʻi loa o ka uveitis iaʻu. Ua hoʻomaka wau e komo i nā aniani aniani e hana kikoʻī ʻia no nā poʻe me ka ʻike māmā. Eia kekahi, hiki i kahi visor ke pale aku iā ʻoe mai ka mālamalama o ka lā ke hele ʻoe i waho.

8. Nā Podcast a me nā audiobooks

ʻO ka hoʻolohe ʻana i kahi podcast a i ʻole audiobook kahi ala maikaʻi loa e aʻo ai e pili ana i ka mālama ponoʻī. Hiki iā ia ke lilo i mea hoʻoliʻiliʻi maikaʻi. Ke luhi maoli wau, makemake wau e kau i kahi podcast a hana i kekahi mau māmā, nā mea ʻoluʻolu.

ʻO ka hana maʻalahi wale o ka hoʻolohe ʻana hiki ke kōkua iaʻu i ka de-stress (hiki i kāu pae pae stress ke hopena i nā hōʻailona AS). Nui nā podcasts e pili ana iā AS no ka poʻe makemake e aʻo hou e pili ana i ka maʻi. E kikokiko wale i ka "ankylosing spondylitis" i loko o ka pā hulina o kāu polokalamu podcast a mele i loko!

Lawe aku

Nui a hewahewa nā pono hana i loaʻa no nā poʻe me AS. Ma muli o ke ʻano e pili ana i nā mea āpau i kēlā me kēia, he mea nui e ʻike i nā mea e pono ai nāu.

ʻO ka Spondylitis Association of America (SAA) kahi waiwai nui no kēlā me kēia mea e ʻimi nei e ʻike i ka ʻike hou aku e pili ana i ka maʻi a i ʻole kahi e loaʻa ai ke kākoʻo.

He mea ʻole kāu moʻolelo ʻo AS, pono ʻoe i kahi ola ʻoluʻolu, ʻaʻohe ʻeha. Loaʻa i kekahi mau mea kōkua e hiki ke hana maʻalahi i nā hana o kēlā me kēia lā. Naʻu, nā mea hana i luna e hana i nā ʻokoʻa āpau i koʻu ʻano a kōkua maoli iaʻu e mālama i koʻu ʻano.

ʻO Lisa Marie Basile he haku mele, ka mea kākau o “ʻO Magic Magic no nā Kau Pouli, ”A ʻo ka mea hoʻoponopono hoʻokumu o Luna Luna Magazine. Kākau ʻo ia e pili ana i ke olakino, hoʻōla trauma, kaumaha, maʻi maʻi, a me ka noho ʻana me ka manaʻo. Hiki ke loaʻa kāna hana ma ka The New York Times a me ka makasat Sabat, a ma ka Narrative, Healthline, a me nā mea hou aʻe. E ʻike iā ia ma lisamariebasile.com, a 'o kekahi Instagram a ʻO Twitter