He Leta naʻu iho ma mua o ka maʻi ʻaʻai umauma Metastatic

E Sarah aloha,

E huli ana kou ola i luna a i waho i waho.

ʻO ka hakakā ʻana i ka maʻi ʻaʻai umauma metastatic 4 i kāu 20 mau makahiki ʻaʻole ia kahi mea āu e ʻike ai e hele mai ana. ʻIke wau he mea weliweli a kūpono ʻole ia, a ke manaʻo nei ʻoe e noi ʻia ʻoe e neʻe i kahi kuahiwi, akā ʻaʻohe ou manaʻo i kou ikaika a kūpaʻa hoʻi.

E lanakila ʻoe i nā makaʻu he nui a aʻo e ʻapo i ka maopopo ʻole o ka wā e hiki mai ana. E kaomi ke kaupaona o kēia ʻike iā ʻoe i lalo i kahi daimana ikaika loa e hiki ai iā ia ke kūʻē i nā mea āpau. No nā mea a ka maʻi ʻaʻai e lawe aku ai iā ʻoe, e hāʻawi nō ia iā ʻoe i ka nui.

ʻOi aku ka maikaʻi loa o ka mea haku mele ʻo Rumi i kāna kākau ʻana, "ʻO ka ʻeha kahi e komo ai ka mālamalama iā ʻoe." E aʻo ʻoe e loaʻa kēlā kukui.

I ka hoʻomaka, e ʻike ʻoe e like me ka make ʻana i nā wā i hoʻopaʻa ʻia, nā hoʻolālā lapaʻau, nā palapala kuhikuhi, a me nā lā ʻoki. He mea nui loa ka hopu ʻana i ke ala e waiho nei i mua ou. Nui loa kāu mau nīnau e pili ana i ke ʻano o ka wā e hiki mai ana.

Akā ʻaʻole pono ʻoe e loaʻa nā mea āpau i kēia manawa. Pono ʻoe e hana ma o hoʻokahi lā i kēlā me kēia manawa. Mai hopohopo iā ʻoe iho me ka mea e hiki mai ana i hoʻokahi makahiki, hoʻokahi mahina, a i ʻole i hoʻokahi pule. E kia i ka mea e pono ai i kēia lā.

Lohi akāʻoiaʻiʻo, e hana ʻoe i kēlā ʻaoʻao. Lawe i nā mea i hoʻokahi lā i ka manawa. He paʻakikī e noʻonoʻo i kēia manawa, akā ke kali nei ke aloha a me ka nani iā ​​ʻoe i nā lā e hiki mai ana.

ʻO ka pale kala o ka maʻi ʻaʻai ka mea e koi iā ʻoe e hoʻomaha i kou ola maʻamau a mālama iā ʻoe iho i kāu hana manawa piha - {textend} ʻelua i ka mea hoʻomanawanui, ʻo ia hoʻi. He makana kēia manawa, no laila e hoʻohana me ke akamai.

E ʻike i nā mea e waiwai ai kou noʻonoʻo, kou kino, a me kou ʻuhane. E hoʻāʻo i ke aʻo ʻana, ka noʻonoʻo ʻana, ka yoga, ka manawa me nā hoaaloha a me ka ʻohana, acupuncture, massage therapy, physiotherapy, Reiki, nā palapala, nā puke, nā podcast, a me nā mea hou aku.

Maʻalahi ke kahili ʻia i nā “aha inā,” akā e hopohopo no ka wā e hiki mai ana - {textend} a me Googling i kāu hōʻailona ma ka hola 2 o ke kakahiaka - ʻaʻole e lawelawe ʻo {textend} iā ʻoe. ʻOiai he paʻakikī e like me ia, pono ʻoe e aʻo e ola i kēia manawa i hiki ke hiki.

ʻAʻole ʻoe makemake e hoʻonele i kēia manawa i paʻa i ka wā kahiko a hopohopo paha i ka wā e hiki mai ana. E aʻo e ʻono i nā manawa maikaʻi a hoʻomanaʻo e hala nā manawa maikaʻi ʻole. He maikaʻi ke loaʻa i nā lā ke hiki i nā mea āpau ke hana ke waiho ma luna o ka moena e nānā nei iā Netflix. Mai paʻakikī loa iā ʻoe iho.

E kiʻi aku, ʻoiai paha manaʻo paha ʻaʻohe mea i ka honua e hoʻomaopopo i ka mea āu e hele nei. Hoʻohiki wau ʻaʻole ia he ʻoiaʻiʻo. Hana nā hui kākoʻo pilikino a me nā pūnaewele i nā ʻokoʻa āpau, keu hoʻi i nā lā mua.

Mai makaʻu e hoʻokau iā ʻoe iho i laila. ʻO ka poʻe e hoʻomaopopo i ka mea āu e hele nei i ka ʻoi loa ʻo ia ka poʻe e hele nei i kekahi o nā ʻike like me ʻoe. ʻO nā "hoaaloha maʻi ʻaukā" āu e hui ai ma nā hui kākoʻo like ʻole e lilo i mau hoaaloha maʻamau.

ʻO ka maʻalahi ka ikaika nui loa. Ke mākaukau ʻoe, e kaʻana like i kāu moʻolelo. E hele mai nā pilina kupaianaha he nui mai ka blog ʻana a kaʻana like ʻana i kāu huakaʻi ma ka pāpili kaiaulu.

Eʻikeʻoe he mau kaukani mau wahine e like meʻoe eʻike ana i keʻano o ka mea i loko o kou mau kāmaʻa. Kaʻana lākou i kā lākou ʻike a me nā ʻōlelo aʻoaʻo a ʻoliʻoli iā ʻoe ma o nā piʻi a me nā lalo o ka maʻi ʻaʻai. Mai hoʻowahāwahā i ka mana o kahi kaiāulu pūnaewele.

ʻO ka mea hope loa, mai haʻalele i ka manaʻolana. ʻIke wau ʻaʻole ʻoe e hilinaʻi i kou kino ponoʻī i kēia manawa a manaʻo ʻoe e lohe wale ʻoe i nā lono maikaʻi ʻole ma hope o nā lono maikaʻi ʻole. Akā he mea nui e hilinaʻi i ka hiki i kou kino ke hoola.

Heluhelu i nā puke e kamaʻilio e pili ana i nā hihia manaʻolana o ka poʻe i ola i nā diagnose maʻi a me nā helu helu i kuʻi ʻia. Paipai au iā "Anticancer: Ke Ala Hou o ke Ola" na David Servan-Schreiber, MD, PhD, "Hoʻomaha Loa: Ke Ola Ka maʻi ʻana i nā maʻi āpau" na Kelly A. Turner, PhD, a me "Dying to Be Me: My Journey from Cancer , i ka make kokoke loa, i ka hoʻōla maoli "na Anita Moorjani.

Pono ʻoe e hilinaʻi a manaʻoʻiʻo e ola ʻoe i kahi ola lōʻihi a lōʻihi e like me nā mea ola ʻē aʻe i mua ou. E hāʻawi iā ʻoe iho i ka pōmaikaʻi o ke kānalua a hakakā i kēia mea me nā mea āpau āu i loaʻa. ʻAiʻē ʻoe iā ʻoe iho.

ʻOiai ʻaʻole maʻalahi kēia ola, nani a nāu nō ia. E ola a piha.

Aloha

ʻO Sarah

ʻO Sarah Blackmore ka loio ʻōlelo a me ka mea blog blog e noho nei ma Vancouver, British Columbia. Ua ʻike ʻia ʻo ia me ke kanulau maʻi oligometastatic pae 4 i Iulai 2018 a ʻaʻohe ona hōʻike o ka maʻi mai Ianuali 2019. E hāhai i kāna moʻolelo ma kāna blog a me Instagram e aʻo hou aʻe e pili ana i ke ʻano o ka noho ʻana me ka maʻi ʻaʻai umauma metastatic i kāu 20.