ʻIke i kāu mau kuleana me Psoriasis

Anter

• E hele ana i ka ʻauʻau
• Ke hele nei i ka spa
• Hoʻomaha ka manawa mai ka hana
• ʻO ka lawe lawe ʻana

Lohe wau i ka hawanawana ʻana o kēlā me kēia mea i ka wai ʻauʻau. Ua kau mai nā maka āpau iaʻu. Ke nānā mai nei lākou iaʻu me he malihini lā a lākou e ʻike nei no ka manawa mua. ʻAʻole lākou e ʻoluʻolu me nā kiko ʻulaʻula blotchy i ʻike ʻole ʻia ma ka ʻili o koʻu ʻili. Ua ʻike wau he psoriasis ia, akā ʻike lākou ia mea hoʻopailua.

Ua hele mai kahi lunamakaʻāinana o ka loko wai iaʻu a nīnau mai i ka mea e hana nei me koʻu ʻili. Ua hele wau ma luna o kaʻu mau ʻōlelo e hoʻāʻo ana e wehewehe i ka psoriasis. Ua ʻōlelo ʻo ia ʻoi aku ka maikaʻi noʻu e haʻalele a ʻōlelo aku e lawe wau i kahi palapala a ke kauka e hōʻoia ai ʻaʻole he maʻi lele. Ua haʻalele wau i ka wai ʻauʻau me ka hilahila a me ka hilahila.

ʻAʻole kēia kaʻu moʻolelo ponoʻī, akā he moʻolelo maʻamau ia o ka hoʻokae a me ka stigma he nui ka poʻe me ka psoriasis i kū i ko lākou ola i kēlā me kēia lā. Ua alo paha ʻoe i kahi kūlana maikaʻi ʻole ma muli o kou maʻi? Pehea ʻoe i lawelawe ai iā ia?

He mau kuleana kāu ma kahi hana a me ka lehulehu e pili ana i kāu psoriasis. Eia kekahi mau ʻōlelo aʻoaʻo kōkua pehea e pane ai i ka wā a inā ʻoe e ʻike i ka pushback ma muli o kou kūlana.

E hele ana i ka ʻauʻau

Ua hoʻomaka wau i kēia ʻatikala me kahi moʻolelo o kekahi e hoʻokae ʻino ʻia i ka loko wai lehulehu no ka mea, eia ka mea pinepine kēia e hana nei no ka poʻe e noho ana me ka psoriasis.

Ua ʻimi au i nā lula o kekahi mau loko lehulehu like ʻole a ʻaʻohe mea i hōʻike ʻia ʻaʻole ʻae ʻia ka poʻe me nā ʻili. I kekahi mau manawa, ua heluhelu au i nā lula e ʻōlelo ana ʻaʻole ʻae ʻia ka poʻe me nā ʻehaʻeha i loko o ka wai ʻauʻau.

ʻO ka mea maʻamau no kā mākou me ka psoriasis ka ʻeha hamama ma muli o ka ʻili ʻana. I kēia hihia, ʻoi aku paha ka maikaʻi o ka hōʻole ʻana iā ʻoe mai ka wai o ka wai momona no ka mea he hopena maikaʻi ʻole paha i kou ʻili.

Akā inā haʻi kekahi iā ʻoe e haʻalele i ka loko wai ma muli o kou olakino, he hewa kēia i kāu kuleana.

I kēia hihia, e paipai wau e paʻi i kahi pepa hōʻike mai kahi e like me ka National Psoriasis Foundation (NPF), e wehewehe nei he aha ka psoriasis a ʻaʻole ia he maʻi lele. Aia kekahi koho e hōʻike i kāu ʻike ma kā lākou pūnaewele, a e hoʻouna lākou iā ʻoe i kahi ʻikepili a me kahi leka e hāʻawi i ka ʻoihana kahi āu i kū ai i ka hoʻokae. Hiki iā ʻoe ke loaʻa kahi leka mai kāu kauka.

Ke hele nei i ka spa

Hiki i kahi huakaʻi i ka spa ke hāʻawi i nā pono he nui no mākou e noho nei me psoriasis. Akā ʻo ka hapa nui o ka poʻe e noho nei me ko mākou ʻano e hōʻalo i ka spa ma nā koina āpau, ma muli o ka makaʻu i ka hōʻole ʻia a hoʻokae ʻole ʻia paha.

Hiki i nā Spas ke hōʻole i ka lawelawe inā loaʻa ʻoe i nā ʻeha hāmama. Akā inā hoʻāʻo kahi ʻoihana e hōʻole i ka lawelawe iā ʻoe ma muli o kou ʻano, he mau ʻōlelo aʻoaʻo kaʻu e hōʻalo ai i kēia kūlana pilikia.

ʻO ka mea mua, e kāhea i mua a aʻoaʻo i ka hoʻokumu ʻana i kāu kūlana. He mea maikaʻi loa kēia hana naʻu. Inā kolohe lākou a manaʻo paha ʻoe i kahi vibe maikaʻi ʻole ma ke kelepona, neʻe i kahi ʻoihana ʻē aʻe.

ʻO ka hapa nui o nā spa e maʻa me nā kūlana ʻili. I koʻu ʻike, nui nā masseuse e lilo i mau ʻuhane manuahi, aloha, ʻoluʻolu, a me kaʻae ʻana. Ua loaʻa iaʻu nā lomilomi i ka manawa he 90 pākēneka koʻu uhi ʻia, a mālama ʻia me ka hanohano a me ka mahalo.

Hoʻomaha ka manawa mai ka hana

Inā makemake ʻoe i kahi manawa hoʻomaha mai ka hana no nā kipa kauka a i ʻole ʻo psoriasis mālama, e like me phototherapy, uhi ʻia ʻoe ma lalo o ka Family Medical Leave Act. Kuhi kēia kānāwai i kēlā me kēia kanaka i loaʻa nā kūlana olakino koʻikoʻi e kūpono i ka manawa hoʻomaha no nā pono olakino.

Inā ʻoe e ʻike nei i nā pilikia e hoʻolōʻihi ana i ka manawa no kāu mau pono lapaʻau psoriasis, hiki iā ʻoe ke hoʻokaʻaʻike aku i ka NPF Patient Navigation Center. Hiki iā lākou ke kōkua iā ʻoe e hoʻomaopopo i kāu mau pono ma ke ʻano he limahana e noho nei me kahi maʻi maʻamau.

ʻO ka lawe lawe ʻana

ʻAʻole pono ʻoe e ʻae i ka hoʻokae mai ka poʻe a me nā wahi ma muli o kou ʻano. Aia nā ʻanuʻu hiki iā ʻoe ke hana e hakakā i ka stigma i ka lehulehu a i ʻole ma ka hana ma muli o kāu psoriasis. ʻO kahi mea maikaʻi loa āu e hiki ai ke hāpai i ka ʻike i ka psoriasis, a kōkua i ka poʻe e hoʻomaopopo he ʻano maoli ia a ʻaʻole ia he maʻi lele.

Ua hakakā ʻo Alisha Bridges me ʻoi loa ʻo psoriasis ma mua o 20 mau makahiki a ʻo ka maka ma hope ʻO wau i koʻu ʻili ponoʻī, kahi blog e hōʻike i kona ola me psoriasis. ʻO kāna mau pahuhopu ka hoʻokumu ʻana i ke aloha a me ke aloha no ka poʻe i ʻike iki ʻole ʻia, ma o ka transparency o ka iho, ka hoʻolaha hoʻomanawanui, a me ke olakino. ʻO kāna mau kuko e pili ana i ka dermatology, ka mālama ʻana i ka ʻili, a me ke olakino a me ke olakino. Hiki iā ʻoe ke loaʻa iā Alisha ma ʻO Twitter a Instagram.