Pehea ke ola ma hope o Down Syndrome diagnosis

Anter

• 1. Pehea kou lōʻihi e ola ai?
• 2. He aha nā hoʻokolohua e pono ai?
• 3. Pehea ka lawe?
• 4. He aha nā pilikia olakino maʻamau?
• 5. Pehea ka ulu ʻana o ke keiki?
• 6. Pehea e pono ai ka meaʻai?
• 7. Pehea ke kula, ka hana a me ke ola o ka makua?

Ma hope o ka ʻike ʻana he Down Syndrome kā ka pēpē, pono e hoʻomaliʻi nā mākua a ʻimi i ka nui o ka ʻike e pili ana i ka Down Syndrome, he aha ke ʻano, he aha nā pilikia olakino a ke pēpē e kū ai a he aha nā hana e hiki ai ke kōkua i ka mana kūʻokoʻa. a hoʻomaikaʻi i ke ola o kāu keiki.

Aia nā hui a nā mākua e like me APAE, kahi e hiki ai ke ʻike i ka maikaʻi, ka ʻike pono a me nā loea a me nā hoʻoponopono i hiki ke hōʻike ʻia e kōkua i ka ulu ʻana o kāu keiki. I kēia ʻano hui, hiki nō ke ʻike i nā keiki ʻē aʻe me ka maʻi pīpī a me ko lākou mau mākua, hiki ke kūpono ke ʻike i nā palena a me nā mea hiki ke loaʻa i ka mea me Down Syndrome.

1. Pehea kou lōʻihi e ola ai?

He loli ke ola o ke kanaka me Down Syndrome, a hiki ke hoʻohuli ʻia e nā kīnā hānau, e like me nā kīnā o ka naʻau a me ka hanu, no ka laʻana, a mālama ʻia ka ukali olakino kūpono. I ka wā ma mua, i nā manawa he nui ʻaʻole i ʻoi aku ka lōʻihi o ke ola ma mua o 40 mau makahiki, eia nō naʻe, i kēia mau lā, me ka holomua i ka lāʻau a me nā hoʻomaikaʻi ʻana i nā lāʻau lapaʻau, hiki i kahi kanaka me Down Syndrome ke ola ma mua o 70 mau makahiki.

2. He aha nā hoʻokolohua e pono ai?

Ma hope o ka hōʻoia ʻana i ke kuhi o ke keiki me Down Syndrome, hiki i ke kauka ke kauoha hou aʻe i nā hoʻokolohua, inā pono, e like me: karyotype e pono ai e hana a hiki i ka makahiki 1 o ke ola, echocardiogram, helu o ke koko a me nā hormones thyroid T3, T4 a me TSH.

Hōʻike ka papa ma lalo i nā hoʻokolohua e pono e hana, a i ke kau e hana ai lākou i ke ola o ka mea me Down Syndrome.

* E hana hou wale ʻia ka echocardiogram inā loaʻa nā maʻi kīnā ʻole, akā e hōʻike ʻia ke alapine e ka mea maʻi puʻuwai nāna e hele pū me ke kanaka me Down Syndrome.

3. Pehea ka lawe?

ʻO ka hānau ʻana o kahi pēpē me Down's Syndrome hiki ke maʻa a kūlohelohe paha, akā naʻe, pono e loaʻa ka mea kākau maʻi maʻi a me kahi neonatologist inā hānau ʻia ʻo ia ma mua o ka lā i hoʻopaʻa ʻia, a no kēia kumu, koho kekahi mau mākua i ka ʻāpana cesarean, i kēia manawa ʻaʻole loaʻa mau kēia mau kauka i nā manawa āpau i nā haukapila.

E ʻike i kāu mea e hiki ai ke hana e ola hou mai ka ʻāpana cesarean me ka wikiwiki.

4. He aha nā pilikia olakino maʻamau?

ʻO ka mea me Down Syndrome paha e loaʻa i nā pilikia olakino e like me:

• I nā maka: Pono e hoʻopaʻa i nā cataract, pseudo-stenosis o ka lacrimal duct, ʻaʻa ʻaapo, a me nā aniani i ka wā ʻōpio.
• I loko o nā pepeiao: ʻO ka otitis pinepine i hiki ke aloha i ke kuli.
• I ka puʻuwai: ʻO ka kamaʻilio interatrial a i ʻole ka interventricular, hemahema septal atrioventricular.
• I ka ʻōnaehana endocrine: Hypothyroidism.
• I ke koko: Leukemia, anemia.
• I ka ʻōnaehana digestive: ʻO ka hoʻololi i ka esophagus e kumu ai i ka reflux, duodenum stenosis, aganglionic megacolon, ka maʻi ʻo Hirschsprung, ka maʻi Celiac.
• I nā mākala a me nā hono: ʻO ka nāwaliwali o ka ligament, subluxation o ka ʻōpū, ka hemo o ka hip, ka loli ʻole o ka hui, kahi e makemake ai i nā dislocations.

Ma muli o kēia, pono e hāhai i ke kauka no ke ola, e hana ana i nā hoʻokolohua a me nā mālama ʻana inā ʻike ʻia kekahi o kēia mau loli.

5. Pehea ka ulu ʻana o ke keiki?

Palupalu ka leo o ke keiki a no laila hiki i ka pēpē ke hoʻolōʻihi i ke poʻo e noho kaʻawale a no laila e akahele pono nā mākua a kākoʻo mau i ka ʻāʻī o ka pēpē e hōʻalo i ka hemo ʻana o ka ʻeha a me kahi ʻeha ma ka iwi kuamoʻo.

ʻO ka hoʻomohala psychomotor o ke keiki me Down Syndrome he lohi iki ia a no laila hiki ke liʻuliʻu e noho, keolo a hele wāwae, akā hiki ke kōkua me ka psychomotor physiotherapy iā ia e hōʻea i kēia mau mile o ka ulu wikiwiki. ʻO kēia wikiō he mau hoʻomaʻamaʻa hiki ke kōkua iā ʻoe e mālama i kāu hoʻoikaika kino ma ka home.

Aia a hiki i ka 2 mau makahiki, mālama pinepine ka pēpē i nā hanana flu, anuanu, reflux gastroesophageal a loaʻa paha i ka niumonia a me nā maʻi hanu ʻē aʻe inā ʻaʻole mālama pono ʻia. Hiki i kēia mau pēpē ke loaʻa i ka lāʻau lapaʻau flu i kēlā me kēia makahiki a loaʻa mau i ka lāʻau lapaʻau Virus Respiratory Syncytial i ka wā hānau e pale aku ai i ka maʻi flu.

Hiki i ke keiki me Down Syndrome ke hoʻomaka i ke kamaʻilio ʻana ma hope, ma hope o 3 mau makahiki, akā hiki ke kōkua me ka hoʻomaʻamaʻa ʻōlelo ʻana me ka hoʻomaʻamaʻa nui ʻana i kēia manawa, e kōkua ana i ke kamaʻilio ʻana o ke keiki me ka ʻohana a me nā hoa aloha

6. Pehea e pono ai ka meaʻai?

Hiki i ka pēpē me Down Syndrome ke hānai i ka waiū akā ma muli o ka nui o ke alelo, ka paʻakikī o ka hoʻohui ʻana i ka omo me ka hanu ʻana a me nā mākala e luhi koke, loaʻa paha iā ia kahi pilikia i ka hānai ʻana, ʻoiai me kahi hoʻomaʻamaʻa a me ke ahonui. hiki ke hānai wale.

He mea nui kēia hoʻomaʻamaʻa a hiki ke kōkua i ka pēpē e hoʻoikaika i nā mākala o ka maka e kōkua iā ia e ʻōlelo wikiwiki, akā i kēlā me kēia hihia, hiki i ka makuahine ke hōʻike i ka waiū me ka pauma umauma a hāʻawi iā ia i ka pēpē me kahi ʻōmole. .

E nānā i ke alakaʻi alakaʻi hānai piha no nā mea hoʻomaka

Paipai pū ʻia ka hānai hānai ʻana a ʻeono mau mahina, ke hiki ke hoʻolauna ʻia i nā meaʻai ʻē aʻe. Makemake mau ʻoe i nā meaʻai olakino, ka hōʻalo ʻana i ka soda, ka momona a me ka palai ʻana, no ka laʻana.

7. Pehea ke kula, ka hana a me ke ola o ka makua?

Hiki i nā keiki me Down Syndrome ke hoʻopaʻa haʻawina i ke kula maʻamau, akā ʻo ka poʻe i loaʻa i ka nui o nā pilikia aʻo a i ʻole ke kūleʻa o ka noʻonoʻo i ke kula kūikawā.Hoʻokipa mau ʻia nā hana e like me ka hoʻomaʻamaʻa kino a me ka ʻike noʻeau a kōkua i ka poʻe e maopopo i ko lākou mau manaʻo a hōʻike maikaʻi iā lākou iho.

ʻO ka mea me Down Syndrome he mea momona, hele aku, pili a hiki ke aʻo, hiki ke hoʻopaʻa a hiki ke hele i ke koleke a hana. Aia kekahi mau moʻolelo o nā haumāna i hana iā ENEM, i hele i ke koleke a hiki i ka lā, moe kolohe, a male, a hiki i ka wahine ke noho kaʻawale, me ke kākoʻo wale o kekahi.

ʻOiai ke ʻano o ka mea me Down Syndrome e kau i ke kaupaona i ka hana maʻamau o ka hoʻoikaika kino e lawe mai i nā pono he nui, e like me ka mālama ʻana i ke kaupaona maikaʻi, hoʻonui i ka ikaika o nā mākala, kōkua i ka pale ʻana i nā ʻeha pū me ka launa pū ʻana i ka pilikanaka. Akā e hōʻoia i ka palekana i ka wā o ka hana o nā hana e like me ka haʻuki, hoʻomaʻamaʻa kaumaha, ʻauʻau ʻana, ka holo lio, kauoha paha ke kauka i nā hōʻike X-ray pinepine e loiloi i ka iwi ʻiwi, kahi e ʻeha ai nā dislocations, no ka laʻana.

ʻO ke keikikāne me Down Syndrome ʻaneʻane maʻa mau loa ka make, akā ʻo nā kaikamahine me Down Syndrome hiki ke hāpai akā he manawa nui ka loaʻa ʻana o kahi pēpē me ka Syndrome like.