5 Memes e wehewehe i koʻu ʻeha RA

Anter

• 1. 'ʻ letslelo ka ʻeha iā ʻoe e ola ana nō ʻoe'
• 2. Maikaʻi au
• 3. ʻeha ia iā ʻoe ke hana
• 4. ʻAʻole maopopo inā ʻaʻole e hana nā meds ʻeha ...
• 5. E mau ka puna i kou makemake
• ʻO ka lawe lawe ʻana

Ua ʻike ʻia me ka lupus a me ka rheumatoid arthritis i ka makahiki 2008, i ka makahiki 22.

Ua manaʻo wau hoʻokahi wale nō a ʻaʻole ʻike i kekahi e hele nei i loko oʻu. No laila ua hoʻomaka wau i kahi blog i hoʻokahi pule ma hope o koʻu ʻike ʻia a ʻike koke ʻaʻole wau hoʻokahi. Loaʻa iaʻu kahi PhD i ka sociology a me kahi kekelē laeoʻo i ke olakino olakino, no laila makemake nui wau i ke aʻo ʻana e pili ana i ka hopena o nā poʻe i ka maʻi. ʻO kaʻu blog, a ke hoʻomau nei e lilo i laina ola noʻu.

ʻOiai laki wau i ka loaʻa ʻana o kahi hui o nā lāʻau e hana e mālama i kaʻu lupus a me RA, hiki iaʻu ke ʻōlelo aia wau i kahi manawa i loaʻa iaʻu nā lā maikaʻi ʻoi aku ka maikaʻi ʻole. ʻO ka ʻeha a me ka luhi nō ka paio mau. Inā ʻoe e heluhelu ana i kēia a loaʻa iā RA, maopopo iā ʻoe he ʻoiaʻiʻo ka hakakā - ʻike ʻoe i ka mea aʻu e meme nei.

1. 'ʻ letslelo ka ʻeha iā ʻoe e ola ana nō ʻoe'

Loaʻa paha iā ʻoe kahi kakahiaka kahi āu e ala ai a noʻonoʻo ai, "makemake wau e hele i waho o kahi moe, akā ʻaʻole hiki iaʻu ..."? ʻIke piha wau i ka manaʻo. A ʻoiai ʻeha a weliweli hoʻi ka ʻeha, e like me ka manaʻo o kēia meme, ma ka liʻiliʻi e hōʻike iā mākou ke ola nei mākou, ʻoiai ʻaʻole hiki iā mākou ke hele i waho o kahi moe.

2. Maikaʻi au

Ke nīnau mai ka poʻe iā mākou pehea mākou, ʻike wau i ka hapanui o mākou e hoʻohina maʻamau i "Maikaʻi wau," ʻoiai ʻaʻole maikaʻi mākou, ʻo ka hapa nui o ka manawa. ʻOiai ke ʻeha nei au, haʻi pinepine wau i ka poʻe ua maikaʻi wau no ka mea ʻaʻole wau i ʻike inā hoʻomākaukau lākou a i ʻole hiki ke lawelawe i ka pane maoli a i ʻole ka ʻoiaʻiʻo o ke ʻano o koʻu ola i kēlā me kēia lā.

3. ʻeha ia iā ʻoe ke hana

Kākaʻikahi ka nalowale ʻana o kuʻu ʻeha. A ʻo kahi hopena, ua koi ʻia wau i kekahi manawa e noho ma ka ʻaoʻao o ke ola ʻoiai 30-somethings ʻē aʻe (a i ʻole 20 mau manawa, e like me kaʻu i ʻike mua ʻia ai) e hana ana i nā mea aʻu e makemake ai e hiki iaʻu ke hana. E like me ka ʻōlelo ʻana "Maikaʻi wau," i kekahi manawa pono mākou e hoʻopunipuni a hiki i ka wā e hana ai mākou. Maikaʻi kēlā ke hiki. Akā ke hiki ʻole, hoʻonāukiuki ke haʻi iki.

4. ʻAʻole maopopo inā ʻaʻole e hana nā meds ʻeha ...

ʻO ka noho ʻana me ka ʻeha mau ʻo ia hoʻi ka maʻa iā ʻoe. I kekahi manawa ua paʻakikī ka hoʻokaʻawale ʻana ma waena o ka hōʻemi ʻana o ka ʻeha a i ʻole ka hana ʻana o kā mākou lāʻau. Hoʻomaopopo wau i ka loaʻa ʻana o kahi infusion steroid ma hope o kaʻu ʻike ʻia a ʻaʻole e hana ana kaʻu meds. Ua nīnau mai koʻu makuahine iaʻu inā ʻeha au. Ua like wau, “ʻeha? He aha ka ʻeha? ” Manaʻo wau ʻo ia ka manawa hoʻokahi a hoʻokahi wale nō i loko o 10 mau makahiki i hiki iaʻu ke ʻōlelo i kēlā.

5. E mau ka puna i kou makemake

ʻO ka noho ʻana me RA ke kumu o ka hakakā no ko mākou ola a me ko mākou olakino i kēlā me kēia lā. No laila, ʻoiai ʻaʻole pili i ka ʻeha - inā e hakakā nei mākou i ka ʻeha, luhi, a i ʻole kahi pilikia e pili ana iā RA - hiki iā mākou āpau ke hoʻohana i kahi puna keu no ka mea maʻamau ʻaʻole lawa ka nui o lākou e hoʻomaka ai.

ʻO ka lawe lawe ʻana

Inā ʻeha ke koʻokoʻo e ana ai mākou i ko mākou ola, a laila ʻo kā mākou me RA he nui loa ia. ʻO ka maʻamau ʻike ʻia ka ʻeha ma ke ʻano maikaʻi ʻole. Akā he mea hoʻomākeʻaka pehea e hiki ai i nā huaʻōlelo a me nā kiʻi ke hōʻike i ke ʻano o ka ʻeha o RA a hoʻomāmā iki hoʻi iā ia.

Ua ʻike ʻia ʻo Leslie Rott me ka lupus a me ka rheumatoid arthritis i ka makahiki 2008 i ka makahiki 22, i kona makahiki mua o ke kula puka puka. Ma hope o ka hōʻoia ʻia ʻana, ua loaʻa ʻo Leslie i kahi PhD i ka sociology mai ke Kulanui o Michigan a me kahi kekelē laeoʻo no ke kākoʻo olakino mai kā Sarah Lawrence College. Kākau ʻo ia i ka blog Ke kiʻi kokoke nei iaʻu iho, kahi e puʻunaue ai ʻo ia i kona ʻike i ka hana ʻana me ka noho pū ʻana me nā maʻi kūmau he nui, kūleʻa a me ka hoʻomākeʻaka. He loio hoʻomanawanui ʻo ia e noho ana ma Michigan.