30 mau mea wale nō me ka Immune Thrombocytopenic Purpura e maopopo

1. Loaʻa ka immune thrombositopenic purpura (ITP) ʻaʻole pili ke koko e like me ka mea ma muli o kahi helu haʻahaʻa o nā thrombosit (platelets).

2. Kāhea ʻia ke ʻano i kekahi manawa i ka idiopathic a i ʻole autoimmune thrombositopenic purpura. ʻIke ʻoe iā ITP.

3. Pālolo, i hana ʻia i ka momona o ke koko, pili paʻa. ʻO kēia ka mea e hoʻokuʻu i kou koko ke loaʻa i nā ʻūlū a ʻokiʻoki paha.

4. Me ITP, hiki i nā platelet haʻahaʻa ke paʻakikī iā ʻoe e hōʻoki i ke kahe ʻana ke ʻeha ʻoe.

5. ʻO ke kahe ʻana ke kahe nui ka komplication maoli o ITP.

6. E nīnau paha ka poʻe iā ʻoe pehea ʻoe e "loaʻa" iā ITP. ʻLelo aku ʻoe iā lākou he kūlana autoimmune ia me nā kumu ʻike ʻole ʻia.

7. E nīnau paha ka poʻe iā ʻoe he aha ka maʻi autoimmune. ʻ Youlelo aku ʻoe iā lākou i ka hopena o nā maʻi autoimmune i kou kino e hoʻouka ai i kāna mau pilikino ponoʻī (i kēia hihia, i kāu platelet koko).

8. ʻAʻole, ʻaʻole lele maʻi ITP. ʻO nā maʻi ʻo Autoimmune i kekahi manawa he moʻokūʻauhau, akā ʻaʻole ʻoe e loaʻa mau i ke ʻano o ke ʻano autoimmune e like me nā lālā o kou ʻohana.

9. Hōʻike pū ʻo ITP i ka purpura ma kou ʻili. He nui.

10. He ala moemoeā ʻo Purpura e ʻōlelo ai he “ʻeha.”

11. Kahi manawa kekahi ITP i kumu i nā ʻulaʻula ʻulaʻula ʻulaʻula i kapa ʻia ʻo petechiae.

12. Kapa ʻia nā ʻōpala o ke koko i kāpili ʻia ma lalo o kou ʻili hematomas.

13. ʻO kāu hematologist kekahi o kāu pili pili loa. Kūlana kēia ʻano kauka i nā maʻi koko.

14. ʻ telllelo aku ʻoe i kāu poʻe i aloha ʻia e kiʻi iā ʻoe i kōkua kōkua olakino inā loaʻa ʻoe i kahi ʻeha e kū ʻole ai ke kahe ʻana i ke kahe.

15. Kaha ka nui o kou koko i ka wā e hele ai i ka kauka niho no ka hoʻomaʻemaʻe.

16. Makau paha ʻoe i ka pihe mai ka makaʻu o ka hoʻomaka ʻana i kahi nosebleed ʻē aʻe.

17. Hiki ke kaumaha loa nā wā haehae inā he wahine ʻoe me ITP.

18. He kaʻao no ka hiki ʻole i nā wahine me ITP ke loaʻa nā pēpē. Eia nō naʻe, makaʻu paha ʻoe i ke kahe ʻana o ke koko ke hānau ʻoe.

19. Ma waho o ke kahe ʻana o ka hoʻokahe, luhi loa ʻoe ke haʻahaʻa kāu mau pā koko.

20. Ua hala ʻoe i ke ala o nā manawa a ka poʻe i hāʻawi aku ai iā ʻoe i ka ibuprofen a i ʻole ka aspirin no ka ʻeha poʻo. ʻO kēia nā palena palena ʻole no ka mea hiki iā lākou ke hoʻonui iā ʻoe i ke kahe.

21. Kamaʻāina ʻoe i nā manawa a me nā lāʻau immunoglobin.

22. Hiki paha iā ʻoe ke kīʻaha hou. I kekahi manawa pono ka poʻe me ITP e kāpae i ko lākou huna no ka mea hiki iā ia ke hana i nā mea ʻino e hoʻopau hou i kāu platelet.

23. Loaʻa ʻoe i kekahi manawa i nā hiʻohiʻona ʻano ʻē no ka pale keu i kou mau kuʻe lima a me kou mau kuli ʻoiai e holo ana i kāu keke. Ua ʻoi aku kou palekana ma mua o ke kala!

24. ʻAʻole paha i ʻike kou mau hoaaloha ʻaʻole hiki iā ʻoe ke pāʻani i ka pōpeku, ke kinipōpō hīnaʻi, a me nā haʻuki pili pili ikaika ʻē aʻe. Loaʻa iā ʻoe kahi hoʻolālā papaʻa ma ka lima. (Heihei a puni ka palaka, ʻo wai?)

25. ʻO ka hele wāwae kāu hana āu i koho ai, akā makemake ʻoe i ka ʻauʻau, ka hele wāwae, a me ka yoga. Hele ʻoe i lalo no kekahi mea haʻahaʻa.

26. Ua maʻa ʻoe i ka hoʻokele i koho ʻia. ʻAʻole pono ka inu ʻana i ka waiʻona i ka pilikia.

27. Hiki ke hoʻokaumaha ka huakaʻi ma mua o ka hoʻomaha. Ma waho o ka hōʻoia ʻana iā ʻoe kāu meds, ka kūpeʻe lima ID, a me nā memo a ke kauka, loaʻa iā ʻoe kahi waihona o nā wahī hoʻoliʻiliʻi inā ʻaʻole ʻoe e ʻeha.

28. Hiki i ka ITP ke noho mau, mau loa i ke ola holoʻokoʻa. Akā hiki iā ʻoe ke ʻike i ke kala ʻana ke loaʻa a mālama i kahi helu platelet olakino.

29. Hiki i nā wahine a ʻekolu mau manawa ke loaʻa i nā ʻano maʻamau o ITP.

30. He makaʻu maoli nō ka hoʻokahe ʻana i ka lolo ma ka lolo, ʻoiai ʻoe e haʻi aku i kāu poʻe i aloha ai ua haʻahaʻa ka pilikia.