Ke pau ka hana ʻana o ka maʻi ʻaʻai o kāu keiki

I kekahi manawa ʻaʻole lawa nā lapaʻau maikaʻi loa e hōʻoki i ka maʻi ʻaʻai. Ua kūʻē paha ka maʻi ʻaʻai o kāu keiki i nā lāʻau anti-cancer. Ua hoʻi mai paha ia a hoʻomau paha i ka ulu ʻana ʻoiai ke lapaʻau. He manawa paʻakikī kēia nou a me kou ʻohana i kāu hoʻoholo ʻana e pili ana i ka mālama mau ʻana a me nā mea e hiki mai ana.

ʻAʻole maopopo i ka manawa e hōʻoki ai i ka lāʻau i kuhikuhi ʻia i ka maʻi ʻaʻai.Inā ʻaʻole holo ka lapaʻau mua, hoʻāʻo pinepine nā kauka i nā ʻano like ʻole. ʻO ka maʻamau, iho i lalo ka manawa kūpono o ka kūleʻa me kēlā me kēia laina o ka lapaʻau. Pono paha kāu ʻohana a me kāu kahu mālama ola e hoʻoholo inā he pono ka hoʻomaʻamaʻa hou ʻana e kuhikuhi ʻia i ka maʻi ʻaʻai i nā hopena ʻē aʻe e hopena ai kāu keiki, me ka ʻeha a me ka hōʻeha ʻole. ʻO ka mālama ʻana i nā hopena a me nā ʻeha e pili ana i ka maʻi ʻaʻai a me nā pilikia a pau ʻole.

Inā ʻaʻole hana hou ka lapaʻau a ua hoʻoholo paha ʻoe e kāpae i ka lāʻau, e loli ke ʻano o ka mālama ʻana mai ka mālama ʻana i ka maʻi ʻaʻai i mea e ʻoluʻolu ai kāu keiki.

ʻOiai inā ʻaʻohe manaʻolana e hele aku ka maʻi ʻaʻai, hiki i kekahi mau hōʻailona ke mālama i nā tumors mai ka ulu ʻana a hoʻemi i ka ʻeha. E kamaʻilio pū paha ke kime mālama ola o kāu keiki iā ʻoe e pili ana i nā mālama ʻana e pale ai i ka ʻeha pono ʻole.

Inā ʻaʻole ʻoe i hana pēlā, pono ʻoe e hoʻoholo i kekahi mau hopena e pili ana i ka hopena o ke ola o kāu keiki. He paʻakikī paʻakikī e noʻonoʻo e pili ana, akā ʻo ka mālama ʻana i kēia mau pilikia hiki ke kōkua iā ʻoe e kau i ka hana ʻana i ke koena o ko ke keiki ola. Nā mea e noʻonoʻo ai:

• He aha nā ʻano hana e kōkua ai i kāu keiki e ʻoluʻolu.
• Inā ʻaʻole a loaʻa ʻole kahi kauoha hou.
• Ma hea ʻoe e makemake ai i kāu keiki e noho i kāna mau lā hope loa. ʻOi aku kaʻoluʻolu o kekahi mau ʻohana i kahi haukapila kahi e kūpono ai ke kauka. Manaʻo nā ʻohana ʻē aʻe i ka ʻoluʻolu o ka home. Pono i kēlā me kēia ʻohana ke hoʻoholo i kūpono iā lākou.
• Ehia mau mea e hoʻokomo i kāu keiki i nā hoʻoholo.

ʻO ia paha ka mea paʻakikī āu e hana ai, akā ʻo ka hoʻololi ʻana i kou nānā ʻana mai ka mālama ʻana i ka maʻi ʻaʻai i ka pale ʻana i kāu keiki mai nā ʻano hana kōkua ʻole hiki ke lilo i mea maikaʻi loa na kāu keiki. Hiki paha iā ʻoe ke hoʻomaopopo i ka mea o kāu keiki e hele nei, a me nā mea e pono ai kāu keiki mai iā ʻoe, inā ʻike maoli ʻoe i nā mea e hana nei.

ʻAʻole pono ʻoe e noʻonoʻo i kāu iho. Nui nā haukapila a me nā hui i loaʻa nā lawelawe e kōkua i nā keiki a me nā mākua e kū i nā pilikia hopena o ke ola.

ʻIke pinepine nā keiki ma mua o ka manaʻo o ko lākou mau mākua. Nānā lākou i ka hana a nā mākua a hoʻolohe i nā mea a lākou e ʻōlelo ai. Inā ʻoe e hōʻalo i nā kumuhana paʻakikī, hiki iā ʻoe ke hāʻawi i kāu keiki i ka leka e pili ana nā kumu i ka palena ʻole. Makemake paha kāu keiki e kamaʻilio, akā ʻaʻole makemake e hoʻonāukiuki iā ʻoe.

Ma ka ʻaoʻao ʻē aʻe, mea nui ʻaʻole e hoʻokikina i kāu keiki e kamaʻilio inā ʻaʻole lākou mākaukau.

Hiki i ka hana a kāu keiki ke hāʻawi iā ʻoe i kekahi mau hōʻailona. Inā nīnau kāu keiki i nā nīnau e pili ana i ka make, he hōʻailona ia e makemake lākou e kamaʻilio. Inā hoʻololi kāu keiki i ke kumuhana a makemake paha e pāʻani, ua lawa paha kāu keiki no kēia manawa.

• Inā ʻōpio kāu keiki, e noʻonoʻo e hoʻohana i nā mea pāʻani a i ʻole nā ​​kiʻi kiʻi e kamaʻilio e pili ana i ka make. E kamaʻilio paha ʻoe e pili ana i ka hopena inā maʻi ka pēpē, a kamaʻilio paha e pili ana i kahi puke e pili ana i kahi holoholona i make.
• E noi i nā nīnau ākea e hāʻawi i kāu keiki i ka manawa e kamaʻilio ai. "Pehea kou manaʻo i hiki ʻia ʻo Tūtū i kona wā i make ai?"
• E hoʻohana i ka ʻōlelo pololei e maopopo ai i kāu keiki. Huikau paha nā ʻōlelo e like me "pass away" a i ʻole "go to sleep" i kāu keiki.
• E hoʻomaopopo i kāu keiki ʻaʻole lākou e kaʻawale ke make lākou.
• E haʻi i kāu keiki e hala ka ʻeha ke make lākou.

E hana nui ka pae ikehu o kāu keiki i ka hana i nā pule a i ʻole nā ​​mahina aʻe. Inā hiki, mālama i kāu keiki i loko o nā hana maʻamau.

• Hoʻopili i nā hana maʻamau e like me ka ʻai a ka ʻohana, nā hana, a me nā moʻolelo moe.
• E hoʻolilo kāu keiki i keiki. ʻO ke ʻano paha kēia o ka nānā ʻana i ke kīwī, pāʻani ʻana i nā pāʻani, a i ʻole ke hoʻouna ʻana i nā leka.
• Paipai i kāu keiki e noho i ke kula inā hiki.
• Kākoʻo i ka manawa o kāu keiki me nā hoaaloha. Inā ma ke kanaka, ma ke kelepona, a i ʻole ma ka pūnaewele, makemake paha kāu keiki e noho pili i nā poʻe ʻē aʻe.
• Kōkua i kāu keiki e hoʻopaʻa i nā pahuhopu. Makemake paha kāu keiki e huakaʻi a aʻo i kahi mea hou. E hilinaʻi ka pahuhopu o kāu keiki i kā lākou mau makemake.

ʻOiai ke kaumaha, aia he mau ala hiki iā ʻoe ke kōkua i kāu keiki e hoʻomākaukau e make. E hoʻomaopopo i kāu keiki i ka mea e loli ai ke kino. Hiki i ke kauka o kāu keiki ke kōkua iā ʻoe me kēia. ʻOiai ʻoi aku ka maikaʻi o ka hoʻokomo ʻole ʻana i nā kikoʻī hoʻoweliweli, ke ʻike nei i ka mea e manaʻo ai hiki ke kōkua i kāu keiki e liʻiliʻi i ka hopohopo.

• E hana i nā mea hoʻomanaʻo o ka ʻohana. Hele paha ʻoe i loko o nā kiʻi a hana pū i kahi pūnaewele a puke puke paha.
• Kōkua i kāu keiki i ke aloha i nā poʻe kūikawā i ke kanaka a i ʻole ma o nā leka.
• E hoʻomaopopo i kāu keiki i ka hopena hope loa a lākou e haʻalele ai. Inā he keikikāne maikaʻi a he hoahānau paha, a kōkua paha i nā poʻe ʻē aʻe, e haʻi i kāu keiki pehea lākou i hana ai i ka honua i wahi maikaʻi aʻe.
• E hoʻohiki ʻoe e maikaʻi ana ke make kāu keiki a mālama i ka poʻe a me nā holoholona a kāu keiki i aloha ai.

Pau ka mālama ola - keiki; Mālama Palliative - keiki; Hoʻolālā mālama mua - nā keiki

ʻAhahui ʻAmelika o ka Clinical Oncology (ASCO) pūnaewele. Ka mālama ʻana i ke keiki maʻi maʻi. www.cancer.net/navigating-cancer-care/advanced-cancer/caring-terminally-ill-child. Hoʻohou ʻia ʻApelila 2018. Loaʻa iā ʻOkakopa 8, 2020.

ʻO Mack JW, Evan E, Duncan J, Wolfe J. Mālama Palliative i ka oncology pediatric. I: Orkin SH, Fisher DE, Ginsburg D, Nānā MA, Lux SE, Nathan DG, eds. ʻO Hematology a Nathan a me Oski a me Oncology o ke kamaliʻi a me ke kamaliʻi. 8th ed. Piladelapia, PA: Elsevier Saunders; 2015: chap 70.

Pūnaewele ʻo National Cancer Institute. Nā keiki me ka maʻi ʻaʻai: Kahi alakaʻi no nā mākua. www.cancer.gov/publications/patient-ed edukasyon/ keiki- me-cancer.pdf. Hoʻohou ʻia Kepakemapa 2015. Loaʻa iā ʻOkakopa 8, 2020.

Pūnaewele ʻo National Cancer Institute. Mālama kōkua pēpē (PDQ) - mana mana. www.cancer.gov/types/childhood-cancers/pediatric-care-pdq#section/all. Hoʻohou Nowemapa 13, 2015. Loaʻa iā ʻOkakopa 8, 2020.

• Kanesa i nā Keiki
• Nā pilikia o ke ola