Hoʻomaʻo no ka maʻi ʻaʻai kamaliʻi - nā pilikia lōʻihi

ʻO nā mālama ʻana i ka maʻi ʻaʻai o kēia lā e kōkua i ka hoʻōla i ka hapa nui o nā keiki me ka maʻi ʻaʻai. Hiki i kēia mau lāʻau ke kumu i nā pilikia olakino ma hope. Kapa ʻia kēia mau mea ʻo "hopena hopena."

ʻO nā hopena hope loa nā hopena hopena e hōʻike ʻia i mau mahina a i ʻole mau makahiki ma hope o ka mālama ʻana no ka maʻi ʻaʻai. Hiki i nā hopena hope ke hoʻopili i hoʻokahi a ʻoi paha mau wahi o ke kino. Hiki i nā hopena ke akahai a paʻakikī.

Inā paha e hopena hopena kāu keiki ma muli o ke ʻano o ka maʻi ʻaʻai a me nā mālama ʻana a kāu keiki. ʻO ka hoʻomaopopo ʻana i ka pilikia o kāu keiki i nā pilikia olakino lōʻihi hiki ke kōkua iā ʻoe e hāhai me nā poʻe lawelawe olakino a ʻike koke i nā pilikia.

Hoʻopōʻino kekahi o nā maʻi maʻi ʻaʻai i nā hunaola olakino. ʻAʻole ʻike ʻia ka pōʻino i ka wā o ka mālama ʻana, akā i ka ulu ʻana o ke kino o ke keiki, hoʻololi ʻia ka ulu ʻana o ka pūnaewele a i ʻole hana.

ʻO nā lāʻau i hoʻohana ʻia no ka chemotherapy a me nā kukuna ikaika loa i hoʻohana ʻia i ka radiation radiation hiki ke hōʻeha i nā hunaola olakino. Hiki i kēia hōʻino ke hoʻololi a hoʻolohi paha i ke ala e ulu ai nā hunaola. Loaʻa ka hopena pololei o ka radiation radiation i ka ulu lōʻihi ma mua o chemotherapy.

Ke hoʻokō ʻia ke kīkino maʻi ʻaʻai, hana ia i kumu e hoʻololi i ka ulu a i ʻole ka hana o kahi meaola.

E hele mai ka hui mālama ola o kāu keiki me kahi papa hana e hōʻalo ai i ka hōʻeha ʻana i nā hunaola olakino e like me ka hiki.

Kūpono kēlā me kēia keiki. ʻO ka hopena o ka hopena hopena ma muli o nā kumu he nui e like me:

• ʻO ke olakino olakino o ke keiki ma mua o ka maʻi ʻaʻai
• ʻO nā makahiki o ke keiki i ka manawa o ka lapaʻau
• Hana o ka radiation therapy a me nā mea a ke kino i loaʻa i ka radiation
• ʻO ka Chemotherapy a me ka nui o ka hopena
• Pehea ka lōʻihi e pono ai ka lāʻau
• Mālama ʻia ke ʻano maʻi ʻaʻai a me kahi o ke kino e pili ana
• ʻO ka moʻomeheu keiki (ʻoi aku ka maʻalahi o kekahi mau keiki i nā mālama ʻana)

Nui a hewahewa nā ʻano hopena o ke hopena e kū ana ma muli o kahi o ka maʻi ʻaʻai a me nā ʻano o nā hana i hana ʻia. ʻO nā hopena lohi ke wānana ʻia e pili ana i nā hana maʻamau a ke keiki. Hiki ke mālama ʻia nā hopena he nui. Eia nā laʻana o kekahi mau hopena hopena e pili ana i nā ʻāpana o ke kino i hoʻopili ʻia. E hoʻomaopopo he papa inoa piha kēia a ʻaʻole pili nā hopena āpau i kahi keiki e pili ana i nā ʻano maʻamau.

Lolo:

• Ke aʻo ʻana
• Hoʻomanaʻo
• Nānā
• ʻLelo
• Nā pilikia a me nā pilikia o ka naʻau
• Ka hopu ʻana i ka ʻūhū, poʻo poʻo poʻo

Pepeiao:

• Lohe hoʻolohe
• Ke kani nei i nā pepeiao
• Puʻupuʻu

Maka:

• Nā pilikia ʻike
• ʻO nā maka maloʻo a wai paha
• ʻIke i ka mālam
• Hoʻonāukiuki
• ʻŌpuʻu maka
• ʻO nā kūpeʻe kuʻemaka

Lungs:

• Nā maʻi ʻino
• Pokole o ka hanu
• Mū kūmau
• Hī pilikia
• Kanesa maʻi ʻaʻai

Waha:

• Nā niho liʻiliʻi a nalowale paha
• ʻO ka makaʻu no nā ana
• Niho ʻāwīwī
• Hoʻolālā niho hana lohi
• Maʻi maʻi gum
• Waha maloo

Hiki i nā hopena hope loa ke hoʻopili:

• Hiki ke hoʻopili ʻia ka mākala a iwi paha i kēlā me kēia wahi o ke kino kahi e pono ai nā mālama. Hiki paha i ka hopena ke hele a holo paha ke keiki a i ʻole ke kumu o ka ʻeha a ʻeha paha o ka iwi, nāwaliwali, a i ʻole ke ʻoʻoleʻa.
• Hiki ke hōʻike ʻia nā glands a me nā meaola e hana ai i nā hormones i nā lāʻau lapaʻau. Hoʻopili kēia i ka gland thyroid i ka ʻāʻī a me ka pituitary gland i ka lolo. Hiki i kēia ke hopena i ka ulu ʻana ma hope, ka metabolism, ka wā ʻōpio, ka momona, a me nā hana ʻē aʻe.
• Hoʻopilikia ʻia paha ka lehelehe o ka puʻuwai a i ʻole ka hana e kekahi mau ʻano lāʻau.
• Hoʻonui iki i ka makaʻu o ka loaʻa ʻana i kahi maʻi ʻaʻai ʻē aʻe ma hope o ke ola.

ʻO ka hapa nui o nā hopena i luna he kino. Loaʻa paha nā hopena naʻau lōʻihi. ʻO ke kū ʻana i nā pilikia olakino, nā kipa lapaʻau hou aʻe, a i ʻole nā ​​hopohopo e hele mai me ka maʻi ʻaʻai hiki ke lilo i pilikia ma ke ola a pau.

ʻAʻole hiki ke pale ʻia nā hopena hopena he nui, akā hiki ke mālama ʻia a mālama ʻia paha nā poʻe ʻē aʻe.

Aia kekahi mau mea i hiki i kāu keiki ke hana e pale aku i nā pilikia olakino ʻē aʻe a ʻike i nā pilikia ma mua e like me:

• ʻAi i nā meaʻai olakino
• Mai puhi
• Hoʻomaʻamaʻa pinepine
• Mālama i kahi kaupaona olakino
• Loaʻa i nā kānana maʻamau a me nā hoʻāʻo ʻana, me ka puʻuwai a me nā akemāmā

ʻO ka kiaʻi ʻana i nā hopena hopena e lilo i kī nui o ka mālama ʻana o kāu keiki no nā makahiki he nui. Hoʻokumu ka Children's Oncology Group (COG) i nā alakaʻi no ka ukali wā lōʻihi i nā keiki a me nā ʻōpio i loaʻa i ka maʻi ʻaʻai. E noi i ka mea hāʻawi i kāu keiki e pili ana i nā kuhikuhi. E hāhai i kēia mau kaʻina maʻamau:

• Hana i nā manawa maʻamau no nā hoʻokolohua kino a me nā hoʻāʻo.
• Mālama i nā moʻolelo kikoʻī no nā mālama ʻana o kāu keiki.
• E kiʻi i nā kope o nā hōʻike olakino āpau.
• E mālama i kahi papa inoa o ke kime mālama ola o kāu keiki.
• E noi i kāu mea hāʻawi i kāu keiki he aha nā hopena hopena e makemake ai kāu keiki e nānā no ka mea ma muli o nā ʻano lāʻau.
• Kaʻana like i ka ʻike e pili ana i ka maʻi ʻaʻai me nā mea hoʻolako e hiki mai ana.

Hāʻawi ka mālama ʻana a me ka mālama mau i kāu keiki i ka manawa kūpono loa o ke ola a me ke olakino maikaʻi.

Ka maʻi ʻaʻai kamaliʻi - hopena hopena

Pūnaewele ʻAmelika Hui Pū ʻIa ʻAmelika. Nā hopena hope loa o ka mālama ʻana i ka maʻi ʻaʻa kamaliʻi. www.cancer.org/treatment/ Childrenandcancer/whenyourchildhascancer/ Children-diagnosed-with-cancer-late-effects-of-cancer-treatment. Hoʻohou ʻia Kepakemapa 18, 2017. Loaʻa iā ʻOkakopa 7, 2020.

Pūnaewele ʻo National Cancer Institute. Nā keiki me ka maʻi ʻaʻai: Kahi alakaʻi no nā mākua. www.cancer.gov/publications/patient-ed edukasyon/ keiki- me-cancer.pdf. Hoʻohou ʻia Kepakemapa 2015. Loaʻa iā ʻOkakopa 7, 2020.

Pūnaewele ʻo National Cancer Institute. Nā hopena hope loa o ka mālama ʻana no ka maʻi ʻaʻai kamaliʻi (PDQ) - mana ʻoihana olakino. www.cancer.gov/types/childhood-cancers/late-effects-hp-pdq#section/all. Hoʻohou i ʻAukake 11, 2020. Loaʻa iā ʻOkakopa 7, 2020.

ʻO Vrooman L, Diller L, Kenney LB. ʻO ke ola ʻana o ka maʻi ʻōpio. I: Orkin SH, Fisher DE, Ginsburg D, Nānā MA, Lux SE, Nathan DG, eds. ʻO Hematology a Nathan a me Oski a me Oncology o ke kamaliʻi a me ke kamaliʻi. 8th ed. Piladelapia, PA: Elsevier Saunders; 2015: chap 72.

• Kanesa i nā Keiki