No ke aha ʻaʻole he "kaua" ka maʻi kanesa

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Ke kamaʻilio ʻoe e pili ana i ka maʻi kanesa, he aha kāu e ʻōlelo ai? Ua 'nalo' kekahi i kā lākou kaua me ka maʻi kanesa? Ke hakakā nei lākou no ko lākou ola? Ua lanakila lākou i ka maʻi? ʻAʻole kōkua kāu mau ʻōlelo, wahi a kahi noiʻi hou i paʻi ʻia i ka puke pai ʻO ka Bulletin Psychology pilikino a me ka pilikanaka-a ua ʻae kekahi poʻe maʻi maʻi maʻi maʻi maʻi o kēia manawa a me ka wā kahiko. ʻAʻole maʻalahi paha e uhaʻi i kēia vernacular, akā he mea nui ia. ʻO ka ʻōlelo kaua-hoʻohana ʻana i nā huaʻōlelo e like me ke kaua, hakakā, ola, ʻenemi, nalowale, a lanakila - hiki ke hoʻololi i ka ʻike o ka maʻi kanesa a me ka pane ʻana o nā kānaka iā ia, e like me nā mea kākau. ʻO ka ʻoiaʻiʻo, ʻo kā lākou hopena e hōʻike ana e hiki ke hōʻeha ʻia nā metaphors ʻenemi no ka maʻi kanesa no ke olakino lehulehu. (E nānā i 6 mau mea āu i ʻike ʻole e pili ana i ka maʻi maʻi umauma)

"Aia kahi laina maʻalahi," wahi a Geralyn Lucas, he mea kākau a mea hana kīwī mua i kākau i ʻelua mau puke e pili ana i kona ʻike ponoʻī me ka maʻi maʻi umauma. "Makemake au i kēlā me kēia wahine e hoʻohana i ka ʻōlelo e ʻōlelo iā ia, akā i ka puka ʻana o kaʻu puke hou. A laila hiki mai ke ola, ʻAʻole wau i makemake i kekahi o kēlā ʻōlelo ma kaʻu uhi, "i ʻōlelo ʻo ia." ʻAʻole wau i lanakila a i lilo paha ... ua hana koʻu chemo. A ʻaʻohe oʻu ʻoluʻolu i ka ʻōlelo ʻana ua lanakila wau, no ka mea, ʻaʻohe aʻu mea e pili ai. ʻAʻole i pili iki iaʻu me nā mea hou aku e pili ana i kaʻu ʻano cell, "wehewehe ʻo ia.

"Ma hope, ʻaʻole wau i manaʻo e hoʻohana a hoʻohana paha ka hapa nui o ka poʻe a puni iaʻu i nā huaʻōlelo hakakā, a i ʻole i manaʻo ʻia he kūlana lanakila / nalowale kēia," wahi a Jessica Oldwyn, nāna i kākau e pili ana i ka loaʻa ʻana o ka lolo a i ʻole kāna blog pilikino. Akā ua ʻōlelo ʻo ia, ʻo kekahi o kona mau hoa me ka maʻi kanesa, hoʻowahāwahā loa i nā huaʻōlelo kaua i hoʻohana ʻia e wehewehe i ka maʻi kanesa. "Ua maopopo iaʻu ua hoʻokau nui nā huaʻōlelo hakakā i ka poʻe i loaʻa i ke koʻikoʻi hiki ʻole ke kūleʻa i ke ʻano o David a me Goliath. e kamaʻilio pū me kekahi me ka maʻi kanesa." No ka mea ʻole, ʻōlelo ʻo Oldwyn i ke kamaʻilio ʻana me kekahi mea i loaʻa i ka maʻi ʻaʻai a me ka hoʻolohe ʻana iā lākou e kōkua iā lākou e kākoʻo. "E hoʻomaka me nā nīnau mālie a ʻike i kahi e hele ai mai laila," ʻōlelo ʻo ia. "A e ʻoluʻolu e hoʻomanaʻo a pau i ka hana ʻia me nā lāʻau lapaʻau, ʻaʻole i pau maoli kā mākou. Noho ia i kēlā me kēia lā, piʻi hou ka makaʻu o ka maʻi ʻaʻai. Ka makaʻu i ka make."

Ua kākau pū ʻo Mandi Hudson e pili ana i kona ʻike me ka maʻi kanesa o ka umauma ma kāna blog ʻo Darn Good Lemonade a ʻae ʻo ia ʻoiai ʻaʻole ʻo ia i ʻokoʻa i ka ʻōlelo kaua e kamaʻilio e pili ana i ke kanaka me ka maʻi kanesa, maopopo iā ia ke kumu e ʻōlelo ai ka poʻe ma ia mau ʻōlelo. "He paʻakikī ka mālama ʻana," i ʻōlelo ʻo ia. "Ke pau ʻoe i ka mālama ʻana, pono ʻoe i kahi mea e hoʻolauleʻa ai, kahi mea e kapa ai, kahi ala e ʻōlelo ai 'Ua hana wau i kēia, he mea weliweli ia-akā eia wau!' e ʻōlelo mau ua pau koʻu kaua ʻana me ka maʻi kanesa o ka umauma, a i ʻole ua nalo wau i ka hakakā. Me he mea lā ʻaʻole wau i hoʻāʻo ikaika, "ʻae ʻo ia.

Akā naʻe, hiki i nā mea ʻē aʻe ke ʻoluʻolu i kēia ʻōlelo. "ʻAʻole kēia ʻano kamaʻilio e hāʻawi i ka manaʻo maikaʻi ʻole iā Lauren," wahi a Lisa Hill, ka makuahine o 19 makahiki ʻo Lauren Hill, he mea pāʻani pīpeku ma Mount St. Joseph's University i ʻike ʻia me ka Diffuse Intrinsic Pontine Glioma (DIPG), he ʻano laha ʻole a me ka hiki ʻole ke hoʻōla ʻia o ka maʻi ʻaʻai lolo. "Aia ʻo ia i ke kaua me ka lolo lolo. ʻIke ʻo ia iā ia iho e hakakā ana no kona ola, a he koa DIPG ʻo ia e hakakā nei no nā keiki āpau i hoʻopilikia ʻia," wahi a Lisa Hill. I ka ʻoiaʻiʻo, ua koho ʻo Lauren e hoʻolilo i kāna mau lā hope loa 'hakakā' no nā poʻe ʻē aʻe, ma ka ʻohi kālā ʻana no ka hoʻokumu The Cure Starts Now ma o kāna pūnaewele.

"ʻO ka pilikia me ka noʻonoʻo kaua, aia ka poʻe lanakila a me ka poʻe pio, a no ka lilo ʻana o kāu kaua i ka maʻi kanesa, ʻaʻole ia he manaʻo he hemahema ʻoe," wahi a Sandra Haber, Ph.D., he psychologist loea i ka maʻi kanesa. ka hoʻokele (nāna ka maʻi ʻaʻai iā ia iho). "Ua like ia me ka holo marathon," wahi āna. "Inā pau ʻoe, lanakila mau ʻoe, ʻoiai inā ʻaʻole i loaʻa iā ʻoe ka manawa maikaʻi loa. E hōʻole i ka ikaika a me ka hana a me nā manaʻo. He kūleʻa ia, ʻaʻole lanakila. ʻOiai no ka mea e make ana, hiki nō iā lākou ke kūleʻa.

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