Nā Moʻolelo ʻlelo: Noho me ka maʻi HIV

Anter

• ʻO Chelsea White
• ʻO Nicholas Snow
• ʻO Josh Robbins

Aia ma mua o 1.2 miliona mau kānaka ma ʻAmelika Hui Pū ʻIa e noho nei me ka maʻi HIV.

ʻOiai ke heleleʻi mau nei nā diagnostical HIV hou i loko o nā makahiki he 10 i hala iho nei, ua lilo ia i ʻāpana kūkā kamaʻilio koʻikoʻi - akā ʻo ka mea i ʻike ʻia aia ma kahi o 14 pākēneka o ka poʻe me ka maʻi HIV ʻaʻole lākou e ʻike.

ʻO kēia nā moʻolelo o ʻekolu mau poʻe e hoʻohana nei i ko lākou ʻike i ke ola ʻana me ka maʻi HIV e paipai i ka poʻe e hoʻāʻo, e kaʻana like i kā lākou mau moʻolelo, a i ʻole e ʻike i nā koho kūpono no lākou.

ʻO Chelsea White

"I koʻu hele ʻana i loko o ka lumi, ʻo ka mea mua aʻu i ʻike ai, ʻaʻole like kēia mau kānaka me aʻu," wahi a Chelsea White, me ka hoʻomanaʻo ʻana i kāna hui pūʻulu mua me nā poʻe ʻē aʻe he maikaʻi ka HIV.

ʻO Nicholas Snow

ʻO Nicholas Snow, 52, mālama mau i ka hoʻokolohua HIV i kona ola makua āpau a hoʻohana mau i nā ʻano pale. A laila, i kekahi lā, he "slip" kāna i kāna hana moekolohe.

I kekahi mau pule ma hope mai, ua hoʻomaka ʻo Nicholas i ka ʻike ʻana i nā maʻi flu-like, he hōʻailona maʻamau no ka maʻi HIV mua. ʻElima mau mahina ma hope o kēlā, ua loaʻa iā ia kāna maʻi: ʻo HIV.

I ka manawa o kāna kuhi, ʻo Nicholas, kahi mea kākau moʻolelo, e noho ana ma Thailand. Ua hoʻi ʻo ia i United States a noho ma Palm Springs, Kaleponi. Hele ʻo ia i kēia manawa i ka Desert AIDS Project, kahi keʻena lapaʻau i hoʻolaʻa piha ʻia i ka mālama ʻana a me ka mālama ʻana i ka maʻi HIV.

Ua ʻōlelo ʻo Nicholas i kahi pilikia maʻamau i ka wā e pili ana i ka lawe ʻia ʻana o ka maʻi HIV: "Hoʻohālikelike ka poʻe iā lākou iho me he lāʻau lā- a me ka maʻi ʻole, akā nui ka poʻe i loaʻa i ka maʻi HIV ʻaʻole maopopo iā lākou ia mea," wahi āna.

ʻO ia ke kumu e paipai ai ʻo Nicholas i ka hoʻāʻo maʻamau. "ʻElua ala o ka ʻike ʻana i ka maʻi o kekahi kanaka - hōʻoia ʻia lākou a maʻi paha lākou," wahi a ia.

Lawe ʻo Nicholas i ka lāʻau i kēlā me kēia lā - hoʻokahi pila, hoʻokahi manawa i ka lā. A ke hana nei. "Ma loko o 2 mau mahina o ka hoʻomaka ʻana o kēia lāʻau, ua lilo ʻole kaʻu viral viral."

ʻAi maikaʻi ʻo Nicholas a hoʻoikaika pinepine, a ma waho o kahi pilikia me kāna pae kolesterol (kahi hopena maʻa mau o ka lāʻau HIV), olakino nui ʻo ia.

Ke hāmama loa nei e pili ana i kāna kuhi, ua kākau ʻo Nicholas a hana i kahi wikiō mele e lana ka manaʻo e paipai i ka poʻe e hoʻāʻo pinepine.

Mālama pū kekahi ʻo ia i kahi lekiō uila e kūkākūkā ana, me nā mea ʻē aʻe, e noho nei me ka maʻi HIV. "Ke ola ākea wau me ka ʻoiaʻiʻo," i ʻōlelo ʻo ia. "ʻAʻole wau e hoʻonele i kekahi manawa a me ka ikaika e hūnā i kēia ʻāpana o koʻu ʻoiaʻiʻo."

ʻO Josh Robbins

"ʻO wau nō ʻo Josh. ʻAe, ke noho nei wau me ka maʻi HIV, akā ʻo wau nō ka mea like. ” ʻO kēlā ʻike ka mea i alakaʻi iā Josh Robbins, he agena talena 37 makahiki ma Nashville, Tennessee, e haʻi aku i kona ʻohana e pili ana i kāna maʻi i loko o 24 mau hola o ka ʻike he maʻi maikaʻi ʻo ia.

"ʻO ke ala wale nō e maikaʻi ai koʻu ʻohana, ʻo ia naʻu e haʻi aku iā lākou he alo a he alo, no lākou e ʻike ai iaʻu a hoʻopā mai iaʻu a nānā i koʻu mau maka a ʻike ʻo wau nō ka mea like."

I ka pō i loaʻa ai iā Josh ka nūhou mai kāna kauka mai ʻo kāna maʻi like flu ka hopena o ka maʻi HIV, aia ʻo Josh ma ka home, e haʻi ana i kona ʻohana e pili ana i kāna maʻi pale hou i ʻike ʻia.

I ka lā aʻe, ua kāhea ʻo ia i ke kāne ua ʻaʻa ʻo ia i ka maʻi, e haʻi iā ia i kāna maʻi. "Ua manaʻo wau ʻaʻole maopopo iā ia, a ua hoʻoholo wau e kāhea iā ia ma mua o ka hiki i ka ʻoihana olakino. He leo hoihoi kēnā, e haʻi liʻiliʻi. ”

I ka manawa a kona ʻohana i ʻike ai, ua paʻa ka manaʻo paʻa o Josh e hūnā ʻole i kāna kuhi. "ʻAʻole naʻu ka hū ʻana. Ua manaʻo wau ʻo ke ala wale nō e hakakā ai i ka stigma a i ʻole ka pale ʻana i ka ʻōhumu ʻōlelo e haʻi mua i kaʻu moʻolelo. No laila ua hoʻomaka wau i kahi blog. ”

ʻO kāna blog, ImStillJosh.com, ʻae iā Josh e haʻi i kāna moʻolelo, kaʻana like i kona ʻike me nā poʻe ʻē aʻe, a hui pū me nā poʻe e like me ia, kahi mea i paʻakikī iā ia i ka hoʻomaka.

"ʻAʻole i loaʻa iaʻu hoʻokahi mea e haʻi iaʻu he HIV-maikaʻi lākou ma mua o kaʻu ʻike ʻia. ʻAʻole wau i ʻike i kekahi, a ua ʻano mehameha wau. Eia kekahi, makaʻu wau, makaʻu hoʻi, no koʻu olakino. "

Ma hope o ka hoʻolana ʻana i kāna blog, he mau kaukani ka nui o ka poʻe i hiki aku iā ia, aneane 200 o lākou mai kāna wahi o ka ʻāina wale nō.

"ʻAʻole wau mehameha i kēia manawa. He hanohano nui a hoʻohaʻahaʻa loa ia e koho ai kekahi e kaʻana like i kā lākou moʻolelo ma o ka leka uila no ka mea ua manaʻo lākou i kahi ʻano pilina no ka mea ua hoʻoholo wau e haʻi i kaʻu moʻolelo ma kaʻu blog. "