Cystic fibrosis: he aha ia, nā hōʻailona nui, nā kumu a me nā lāʻau

Anter

• Nā hōʻailona nui
• Nā pilikia i hiki
• Pehea e hōʻoia ai i ke kuhi
• Pehea e hana ai i ka lāʻau
• 1. Hoʻohana o nā lāʻau
• 2. Hoʻololi o ka papaʻai
• 3. Nā kau Physiotherapy
• 4. ʻoki kino

ʻO Cystic fibrosis kahi maʻi maʻi e pili ana i ka protein i loko o ke kino, i ʻike ʻia ʻo CFTR, a ʻo ia ka hopena i ka hana ʻana o nā mea huna loa a viscous, he paʻakikī e hoʻopau a hoʻopau i ka hōʻiliʻili ʻana i loko o nā mea like ʻole, akā i ka akemāmā a me ʻaoʻao digestive.

Hiki i kēia hōʻiliʻili ʻana o nā huna ke hopena i nā ʻōuli e hoʻopili i ka maikaʻi o ke ola, e like me ka paʻakikī i ka hanu ʻana, ka mau o ka hanu a me nā maʻi hanu pinepine. Hoʻohui ʻia, aia paha kekahi mau ʻōuli digestive, e like me ka hana ʻana i nā noho nunui, momona a pilau a i ʻole constipation, no ka laʻana.

ʻO ka hapanui o nā manawa, ʻike ʻia nā ʻōuli o cystic fibrosis i ka wā kamaliʻi a ʻike koke ʻia ka maʻi, eia nō naʻe, aia kekahi mau kānaka i aneane ʻole nā ​​hōʻailona a, no laila, loaʻa paha kahi hōʻailona ma hope. I kēlā me kēia hihia, pono e hoʻomaka mau i ka mālama ʻana, no ka mea, pale ia i ka maʻi mai ʻino a kōkua i ka mālama ʻana i nā ʻōuli, ke ola lākou.

Nā hōʻailona nui

Hōʻike mau ʻia nā ʻōuli o ka cystic fibrosis i ka wā kamaliʻi, akā hiki ke ʻokoʻa i kēlā me kēia kanaka. ʻO ka hōʻailona ʻoi loa o ka cystic fibrosis ka hōʻiliʻili o ka mucus i nā alaloa, kahi e makemake ai i ka hōʻiliʻili ʻana o nā microorganism a me ka hoʻi hou ʻana o nā maʻi hanu, e alakaʻi ana i ke ʻano o nā ʻōuli ʻē aʻe e like me:

• Manaʻo o ka pōkole o ka hanu;
• Mū paʻa mau, me ka phlegm a i ʻole ke koko;
• Wheezing ke hanu;
• Ka hanu paʻakikī ma hope o ka hoʻoikaika kino;
• Sinusitis maʻi;
• Pneumonias a me ka pinepine bronchitis;
• Nā maʻi kūlohelohe hou;
• ʻO ke kūkulu ʻana i nā polyp nasal, kahi i kūlike i ka ulu pono ʻole o nā mea i kū i ka ihu. Hoʻomaopopo i ka nasal polyp a pehea e mālama ai iā ia.

Eia hou, hiki i kekahi poʻe ke hoʻomohala i nā hōʻailona digestive, e like me:

• Nā noho me ka pilau, nui a momona hoʻi;
• Maʻi hū paʻa mau;
• ʻIli melemele a me nā maka;
• Ka paʻakikī i ka loaʻa ʻana o ke kaumaha;
• Kaona kaumaha;
• Pākuʻi pinepine;
• Indigestion;
• Nānā holomua holomua.

Ma waho o kēia mau hōʻailona, ​​he mea maʻamau ia no ka poʻe me ka cystic fibrosis e ʻike i ka ʻeha pū, hoʻonui i nā kiʻekiʻe o ke kō a me ka hou paʻakai, no ka laʻana.

Nā pilikia i hiki

Hoʻopilikia ka hopena o ka cystic fibrosis i nā ʻōnaehana hanu, digestive a me nā reproductive. Pēlā, aia paha ka hoʻomohala ʻana o bronchitis, sinusitis, pneumonia, nasal polyps, pneumothorax, ʻole hanu, mimikō, ālai ʻana i nā aʻa o ka bile, nā pilikia o ke akepaʻa a me ka digestive, ka osteoporosis a me ka infertility, keu hoʻi i ka hihia o nā kāne.

Pehea e hōʻoia ai i ke kuhi

Hiki ke hana ʻia ke kuhi o ka cystic fibrosis i ka wā hānau ma o ka hoʻāʻo prick heel. Eia nō naʻe, i mea e hōʻoia ai i ka hōʻailona, ​​pono e hana i kahi hoʻokolohua hou a me nā hoʻokolohua genetical e ʻae ai i ka ʻike o ka hoʻololi no ke ʻano o ka maʻi.

Eia hou, he mea hiki ke hoʻokō ʻia ka hoʻokolohua halihali, kahi e hōʻoia ai i ka makaʻu o nā keiki me ka cystic fibrosis, a hana ʻia kēia hōʻike e ka poʻe i loaʻa ka moʻolelo ʻohana o ka maʻi.

Ke hōʻike ʻole ʻia ke kanaka ma ka hānau ʻana a i ʻole i nā mahina mua o ke ola, hiki ke hana ʻia i ke kuhi ma o nā hoʻokolohua koko no ke kumu o ka noiʻi no ka hoʻololi ʻano o ka maʻi, a i ʻole ma o ka moʻomeheu o nā laʻana o nā mea e hele mai ana. ka puʻu. me ka pahuhopu o ka nānā ʻana i ke alo o nā koʻohune a, no laila, e ʻae ana i ka hōʻailona, ​​me ka hoʻohui i nā hoʻokolohua koko e loiloi i kekahi mau enzyme kikoʻī.

Kauoha ʻia nō hoʻi nā kauka e nā kauka, a me nā kukuna X a i ʻole tomography i helu ʻia. Kauoha pinepine ʻia kēia mau hoʻāʻo no ka poʻe ʻōpio a me nā mākua i loaʻa nā ʻōnaehana hanu maʻi mau.

Pehea e hana ai i ka lāʻau

Hana mau ʻia ka lāʻau no ka cystic fibrosis me ka lawe ʻana o nā lāʻau i kuhikuhi ʻia e ke kauka, ka physiotherapy respiratory a me ka nānā ʻana i nā meaola, e kaohi i ka maʻi a hoʻomaikaʻi i ke ola o kēlā kanaka.

Hoʻohui ʻia, hiki ke hoʻohana ʻia ke kaha ʻana ma kekahi mau hihia, keu hoʻi ke loaʻa ʻia ke kahakaha a i ʻole ke kū ʻana o nā pilikia hanu koʻikoʻi.

1. Hoʻohana o nā lāʻau

Hoʻohana ʻia nā lāʻau no ka cystic fibrosis me ka pahuhopu o ka pale ʻana i nā maʻi, hiki i ke kanaka ke hanu maʻalahi a pale i ke ʻano o nā ʻōuli ʻē aʻe. No laila, ʻo nā lāʻau nui i hiki ke hōʻike ʻia e ke kauka ʻo:

• ʻO nā enzymes Pancreatic, ka mea pono e lawelawe waha ʻia, a me ka pahuhopu e kōkua i ke kaʻina hana digestion a me ka omo ʻana o nā meaola;
• Nā Antibiotics e mālama a pale aku i nā maʻi lolo;
• ʻO Bronchodilators, ka mea e kōkua i ka wehe ʻana i nā ala ākea a hoʻomaha i nā mākala bronchial;
• ʻO Mucolytic e kōkua e hoʻokuʻu i ka mucus;

I nā hihia kahi e ʻino ai ka ʻōnaehana hanu a loaʻa i nā mea maʻi ka pilikia e like me ka bronchitis a i ʻole ka niumonia, no ka laʻana, pono paha ia e loaʻa ka oxygen ma o ka pale maka. He mea nui e ukali ʻia ka lāʻau i hōʻike ʻia e ke kauka e like me ke kuhikuhi a hoʻomaikaʻi ʻia ke ola o ke kanaka.

2. Hoʻololi o ka papaʻai

Pono ka nānā pono ʻana i nā meaola i ka cystic fibrosis, ʻoiai he mea maʻamau ia no kēia mau mea maʻi e loaʻa ka paʻakikī i ka loaʻa ʻana o ke kaumaha a me ka ulu ʻana, nā hemahema o ka meaʻai a i kekahi manawa, malnutr No laila, he mea nui e aʻoaʻo i ka mea hānai e hoʻopiha i ka papaʻai a hoʻoikaika i ka ʻōnaehana pale, e hakakā ana i nā maʻi. No laila, ʻo ka papaʻai o ke kanaka me ka cystic fibrosis e:

• Loaʻa ka waiwai i nā calorie, ʻoiai ʻaʻole hiki i ka mea maʻi ke ʻeli i nā meaʻai āpau āna i ʻai ai;
• E waiwai i ka momona a me ka protein no ka mea ʻaʻohe o nā meaola digestive a pau a nalowale hoʻi kēia mau meaola i loko o ka pahu.
• Hoʻohui ʻia me nā mea hoʻohui o nā huaora A, D, E a me K, i loaʻa i ka mea maʻi nā meaola āpau a lākou e pono ai.

Pono e hoʻomaka ka papaʻai ke ʻike koke ʻia ka cystic fibrosis, a hoʻopili ʻia e like me ka ulu ʻana o ka maʻi. E aʻo hou aʻe e pili ana i ka hānai ʻana i nā cystic fibrosis.

3. Nā kau Physiotherapy

Hoʻolālā ka hoʻomaʻamaʻa Physiotherapeutic e kōkua i ka hoʻokuʻu ʻana i nā huna huna, hoʻomaikaʻi i ka hoʻololi ʻana o ke kinoea i nā akemāmā, hoʻomaʻemaʻe i nā ala ea a hoʻomaikaʻi i ka pau ʻana, ma o nā hana hanu a me nā hāmeʻaEia hou, kōkua pū ka physiotherapy i ka hoʻoliʻiliʻi i nā hono a me nā mākala o ka umauma, kua a me nā poʻohiwi ma o ka hoʻolōʻihi ʻana i nā hana.

Pono e mālama ka physiotherapist e hoʻoponopono i nā ʻenehana e like me ka makemake o ke kanaka e hoʻokō i nā hopena maikaʻi aʻe. He mea nui e hana ʻia ka hoʻōla kino mai ka manawa i ʻike ʻia ai ka maʻi, a hiki ke hana ʻia ma ka home a i ʻole ke keʻena.

4. ʻoki kino

Ke lawa ʻole ka lapaʻau ʻana me ka lāʻau e hōʻoluʻolu i nā ʻōuli a pale i ka holo ʻana o ka maʻi, hiki i ke kauka ke kuhikuhi i ka pono no kahi transplant lung. Hoʻohui ʻia, hiki ke hōʻike ʻia ke kahakaha ke keakea ʻia ka mucus i kahi auwai, keakea i ka hana o ka meaola. Hoʻomaopopo pehea ka lawe ʻana o ka pulukū a me ka wā e pono ai.