Romberg maʻi maʻi

Anter

• He aha nā hōʻailona e kōkua ai e ʻike
• Pehea e hana ai i ka lāʻau

ʻO Parry-Romberg Syndrome, a i ʻole ʻo Romberg Syndrome, kahi maʻi laha ʻole i hōʻike ʻia e ka atrophy o ka ʻili, nā mākala, nā momona, nā iwi iwi a me nā ʻāʻī o ka maka, e hoʻoulu ana i ka hoʻoliʻiliʻi estetika. ʻO ka maʻamau, pili wale kēia maʻi i hoʻokahi ʻaoʻao o ka maka, akā naʻe, hiki ke hoʻonui ʻia i ke koena o ke kino.

Kēia maʻi ʻaʻohe lāʻauakā naʻe, ʻo ka lawe ʻana i ka lāʻau a me ke kaha ʻana e kōkua i ka mālama ʻana i ka holomua o ka maʻi.

He aha nā hōʻailona e kōkua ai e ʻike

ʻO ka maʻamau, hoʻomaka ka maʻi me nā loli o ka maka ma luna pono o ka ā a i ʻole ma kahi ākea ma waena o ka ihu a me ka waha, e hoʻonui ana i nā wahi ʻē aʻe i ka maka.

Hoʻohui ʻia, ʻike ʻia kekahi mau hōʻailona ʻē aʻe, e like me:

• Hoʻomaʻamaʻa paʻakikī;
• ʻO ka paʻakikī e wehe i kou waha;
• ʻO ka maka ʻulaʻula a hohonu i ka orbit;
• Haule lauoho lauoho;
• ʻO nā kiko māmā ma ka maka.

I ka hala ʻana o ka manawa, hiki i ka Parry-Romberg maʻi ke hoʻololi i ka loko o ka waha, ʻo ia hoʻi ma ke kaupaku o ka waha, i loko o nā papalina a me nā gum. I kekahi mau hihia, ulu paha nā ʻōuli neurological e like me ka hopu ʻana a me ka ʻehaʻeha loa i ka maka.

Hiki ke holomua i kēia mau ʻōuli mai 2 a 10 mau makahiki, a laila komo i kahi pae paʻa hou i ʻike ʻole ʻia ai nā loli hou i ka maka.

Pehea e hana ai i ka lāʻau

I ka mālama ʻia ʻana o Parry-Romberg Syndrome nā lāʻau immunosuppressive e like me prednisolone, methotrexate a i ʻole cyclophosphamide i lawe ʻia e kōkua i ke kaua ʻana i ka maʻi a hoʻēmi i nā ʻōuli, no ka mea, ʻo nā kumu nui o kēia maʻi he autoimmune, ʻo ia hoʻi ka hōʻeha ʻana o nā pūnaewele o nā ʻōnaehana pale i nā aʻa. o ka helehelena, e hoʻoulu ana i nā deformations, no ka laʻana.

Hoʻohui ʻia, pono paha ʻoe e hana i ke kahakaha, ka mea nui e kūkulu hou i ka maka, ma ka hana ʻana i nā momona, nā mākala a me nā iwi iwi. ʻO ka manawa kūpono e hana ai i ke kaha ʻokoʻa mai kēlā me kēia kanaka, akā koi ʻia ia e hana ʻia ma hope o ka ʻōpio a ke pau ka ulu ʻana o kēlā me kēia.