ʻO Pierre Robin maʻi maʻi

Anter

• Nā ʻōuli o Pierre Robin Syndrome
• Ka mālama ʻana iā Pierre Robin Syndrome
• Loulou pono:

ʻO Pierre Robin Syndrome, ʻo ia kekahi Mahele o Pierre Robin, kahi maʻi laha ʻole e hōʻike ʻia e nā anomalies o ke alo e like me ka hōʻemi ʻia o ka iwi, kahi hāʻule mai ke alelo a ka ʻāʻī, keakea i nā ala pulmonary a me ka pā palule. Aia kēia maʻi mai ka wā hānau.

KA ʻAʻohe lāʻau a Pierre Robin maʻi, eia nō naʻe, aia kekahi mau lapaʻau e kōkua i kēlā me kēia e loaʻa kahi ola maʻamau a olakino hoʻi.

Nā ʻōuli o Pierre Robin Syndrome

ʻO nā ʻōuli nui o Pierre Robin Syndrome ka: liʻiliʻi liʻiliʻi a hoʻi i ka auwae, hāʻule mai ke alelo a ka ʻāʻī, a me nā pilikia hanu. ʻO haʻi ʻē aʻe nā ʻano o Pierre Robin Syndrome hiki ke:

• Pāleo cleft, ʻano U a ʻano V paha;
• Ua mahele ʻia ʻo Uvula i ʻelua;
• Kiʻi kiʻekiʻe loa o ka waha;
• ʻO nā maʻi pepeiao pinepine e hiki ai ke kuli;
• Hoʻololi i ke ʻano o ka ihu;
• Malformations o nā niho;
• Reflux Gastric;
• Nā pilikia Cardiovascular;
• Ka ulu ʻana o ka manamana ʻeono ma ka lima a me nā wāwae.

He mea maʻamau ia no nā mea maʻi me kēia maʻi e hemo ai ma muli o ka ālai ʻia o nā ala pulmonary i hoʻokumu ʻia e ka hāʻule ʻana o ke alelo i hope, kahi e hoʻopiʻi ai i ka ʻāʻī. Hiki paha i kekahi mau mea maʻi ke loaʻa i nā pilikia me ka ʻōnaehana ʻōnaehana waena, e like me ka hoʻopaneʻe ʻōlelo, epilepsy, ka lolo a me ka wai i ka lolo.

ʻ ʻike ʻia o Pierre Robin Syndrome hana ʻia ia ma o ka nānā kino ʻana i ka wā hānau, kahi e ʻike ʻia ai nā ʻano o ka maʻi.

Ka mālama ʻana iā Pierre Robin Syndrome

ʻO ka mālama ʻana iā Pierre Robin Syndrome ka mālama ʻana i nā ʻōuli o ka maʻi i nā maʻi, e hōʻalo ana i nā pilikia koʻikoʻi. Hiki ke ʻōlelo lapaʻau ʻoki ʻia i nā hihia ʻoi loa o ka maʻi, e hoʻoponopono i ka lepe, nā pilikia hanu a hoʻoponopono i nā pilikia ma ka pepeiao, e hōʻalo ana i ka nalo ʻana o ka pepeiao i ke keiki.

Pono e lawe i kekahi mau kaʻina hana e nā mākua o nā pēpē me kēia maʻi e pale ai i nā pilikia ʻākeʻe, e like me ka waiho ʻana i ke alo o ka pēpē i lalo a huki ka ʻume i ka alelo i lalo; a i ʻole e hānai pono ʻana i ka pēpē, e pale ana iā ia mai ke kolo ʻana.

KA haʻi ʻōlelo ma Pierre Robin Syndrome Hōʻike ʻia ia e kōkua ai i ka mālama ʻana i nā pilikia e pili ana i ka ʻōlelo, ka hoʻolohe a me ka neʻe ʻana o nā keiki me kēia maʻi.

Loulou pono:

• Pāpā palu