He aha a pehea e kuhikuhi ai i ka maʻi ʻo Ohtahara

Anter

• Pehea e hōʻoia ai i ke kuhi
• Pehea e hana ai i ka lāʻau
• He aha ke kumu o ka maʻi maʻi

ʻO ka maʻi ʻo Ohtahara kahi ʻano epilepsy laha ʻole e hana pinepine ʻia i nā pēpē ma lalo o 3 mau makahiki o ka makahiki, a no laila ʻike ʻia ʻo ia ʻo ka pēpē epileptic encephalopathy.

ʻO ka hopu mua ʻia ʻana o kēia ʻano epilepsy i ka manawa o ke trimester hope loa o ka hāpai ʻana, aia nō i loko o ka kōpū, akā hiki iā lākou ke ʻike ʻia i loko o nā lā he 10 o ke ola o ka pēpē, ke ʻano e nā kuʻikuʻi musele i waiho ʻole i nā wāwae a me nā lima. no kekona kekona.

ʻOiai ʻaʻohe mea hoʻōla, hiki ke hana i ka lāʻau me ka hoʻohana ʻana i nā lāʻau, ka physiotherapy a me ka meaʻai kūpono i mea e pale ai i ka hoʻomaka ʻana o nā pilikia a hoʻomaikaʻi i ke ola o ke keiki.

Pehea e hōʻoia ai i ke kuhi

I kekahi mau hihia, hiki ke ʻike ʻia ka maʻi o Ohtahara e ke kauka maʻi wale nō ma ka nānā ʻana i nā ʻōuli a me ka loiloi ʻana i ka mōʻaukala o ke keiki.

Eia nō naʻe, kauoha paha ke kauka i kahi electroencephalogram, kahi hōʻike hōʻeha ʻole, e ana i ka hana o ka lolo i ka wā o ka hopu ʻana. E aʻo hou e pili ana i ka hopena o kēia hōʻike.

Pehea e hana ai i ka lāʻau

ʻO ka hana mua i hōʻike ʻia e ka pediatrician, ka maʻa mau, ka hoʻohana ʻana i nā lāʻau anti-epileptic, e like me Clonazepam a i ʻole Topiramate, e hoʻāʻo e kāohi i ka hoʻomaka ʻana o nā pilikia, akā naʻe, hōʻike paha kēia mau lāʻau i nā hopena liʻiliʻi a, no laila, Paipai ʻia nā ʻano lapaʻau ʻē aʻe, e like me:

• Hoʻohana o nā corticosteroids, me ka corticotrophin a i ʻole prednisone: hōʻemi i ka nui o ka hopu ʻana i kekahi mau keiki;
• ʻOki kino Epilepsy: hoʻohana ʻia ia i loko o nā keiki kahi o ka hopu ʻia e kekahi wahi kikoʻī o ka lolo a hana ʻia me ka hemo ʻana o kēlā wahi, ʻoiai he mea nui ʻole ia no ka hana ʻana o ka lolo;
• Keʻai nei i ka papaʻai ketogenic: hiki ke hoʻohana ʻia i nā hihia āpau e hoʻokō i ka mālama ʻana a me ka hoʻopau ʻana i nā meaʻai momona i nā huʻohuhu mai ka papaʻai, e like me ka berena a pasta paha, i mea e kaohi ai i ka hoʻomaka ʻana o ka hopu ʻana. E ʻike i nā meaʻai i ʻae ʻia a pāpā ʻia i kēia ʻano papaʻai.

ʻOiai he mea nui loa ka hoʻomaʻamaʻa e hoʻomaikaʻi i ke ola o ke keiki, nui nā hihia kahi e ʻino ai ka maʻi ʻo Ohtahara ma hope o ka manawa, e hoʻopaneʻe ana i ka hoʻomohala ʻike a me nā kaʻa. Ma muli o kēia ʻano pilikia, haʻahaʻa ka manawa ke ola, ma kahi o 2 mau makahiki.

He aha ke kumu o ka maʻi maʻi

ʻO ke kumu o ka maʻi ʻo Ohtahara paʻakikī e hoʻomaopopo i ka hapanui o nā hihia, eia nō naʻe, ʻo nā kumu nui ʻelua i ʻike ʻia ma ke kumu o kēia maʻi he mutation genetika i ka wā hāpai a me nā malformations o ka lolo.

No laila, e hoʻāʻo e hoʻēmi i ka makaʻu o kēia ʻano maʻi, pono i kekahi ke hāpai i ka hāpai ʻana ma hope o 35 mau makahiki a me ka ukali i nā ʻōlelo a ke kauka, e like me ka hōʻalo ʻana i ka inu waiʻona, ʻaʻole puhipaka, pale i ka hoʻohana ʻana i nā lāʻau lapaʻau ʻole a me ke komo ʻana i nā kūkākūkā prenatal, no ka laʻana. Hoʻomaopopo i nā kumu āpau i hiki ke alakaʻi i kahi hāpai pilikia.