Maffucci maʻi

Anter

• Nā ʻōuli o Maffucci Syndrome
• Ka mālama ʻana i ka Maffucci's Syndrome
• Nā kiʻi o Maffucci's Syndrome
• Puna:Nā kikowaena no ka mālama ʻana i ka maʻi a me ka pale ʻana
• Loulou pono:

Maffucci maʻi kahi maʻi laha ʻole e hoʻopili i ka ʻili a me nā iwi, e hana ana i nā tumors i ka cartilage, deformities i loko o nā iwi a me ke ʻano o nā tumors ʻeleʻele i ka ʻili i hoʻokumu ʻia e nā ulu koko ʻole.

Ma nā kumu o ka maʻi Maffucci he kūpuna lākou a pili like i nā kāne a me nā wahine. ʻO ka maʻamau, hoʻomohala nā ʻōuli o ka maʻi i ka wā kamaliʻi ma kahi o 4-5 mau makahiki.

KA ʻAʻohe lāʻau o Maffucci maʻi, akā, hiki i nā mea maʻi ke loaʻa i ka lāʻau e hōʻemi i nā hōʻailona o ka maʻi a hoʻomaikaʻi i ko lākou ola.

Nā ʻōuli o Maffucci Syndrome

ʻO nā ʻōuli nui o ka maʻi Maffucci:

• ʻO nā kūpuna Benign i ka cartilage o nā lima, nā wāwae a me nā iwi lōʻihi o ka lima a me nā wāwae;
• E palupalu nā iwi a hiki wawe ke haki;
• Hoʻopōkole ʻana o nā iwi;
• Hemangiomas, ʻo ia nā ʻeleʻele ʻeleʻele a bluish liʻiliʻi paha i ka ʻili;
• Pōkole;
• Ka nele o ka mākala.

Hiki i nā kānaka me ka Maffucci Syndrome ke hoʻomōhala i ka maʻi ʻaʻai iwi, keu hoʻi i ka iwi poʻo, akā ʻo ka ovarian a me ke kanesa maʻi ʻaʻai.

ʻ ʻike o ka maʻi Maffucci hana ʻia ia ma o ka hoʻokolokolo kino ʻana a me ka hōʻuluʻulu ʻana i nā ʻōuli i hōʻike ʻia e nā mea maʻi.

Ka mālama ʻana i ka Maffucci's Syndrome

ʻO ka mālama ʻana iā Maffucci's Syndrome me ka hoʻohaʻahaʻa ʻana i nā ʻōuli o ka maʻi ma o ke kahakaha ʻana e hoʻoponopono i nā hemahema iwi a i ʻole nā ​​mea kōkua e kōkua ai i ka ulu ʻana o ke keiki.

ʻO nā kānaka i luhi ʻia e ka maʻi e kūkākūkā mau me ke kauka orthopedic e nānā i nā loli i nā iwi, ka hoʻomohala ʻana i ka maʻi ʻaʻa iwi a e mālama i nā haki i kū ma muli o ka maʻi. Pono e nīnau ʻia ka dermatologist e loiloi i ka helehelena a me ka hoʻomohala ʻana o hemangiomas ma ka ʻili.

He mea nui i nā mea maʻi e loaʻa i nā hoʻokolohua kino maʻamau, nā lekiō a i ʻole nā ​​mīkini tomography i helu ʻia.

Nā kiʻi o Maffucci's Syndrome

Puna:Nā kikowaena no ka mālama ʻana i ka maʻi a me ka pale ʻana

Kiʻi 1: Ke kū ʻana o nā tumors liʻiliʻi i nā hono o nā manamana lima o ka Maffucci's Syndrome;

Kiʻi 2: Hemangioma ma ka ʻili o kahi mea maʻi me ka maʻi Maffucci.

Loulou pono:

• Hemangioma
• Proteus Syndrome