Hanhart maʻi maʻi

Anter

• Nā kiʻi o Hanhart Syndrome
• Nā ʻōuli o Hanhart Syndrome
• Ka mālama ʻana i ka Hanhart Syndrome

ʻO Hanhart's Syndrome kahi maʻi liʻiliʻi loa i hōʻike ʻia e ka ʻole a paʻa ʻole paha o nā lima, nā wāwae a me nā manamana lima, a hiki i kēia ʻano ke hana i ka manawa like ma ke alelo.

Ma nā kumu o Hanhart Syndrome he kūpuna lākou, ʻoiai ʻaʻole wehewehe ʻia nā kumu i alakaʻi ʻia i ke ʻano o kēia mau hoʻololi i nā genes o kēlā me kēia.

KA ʻAʻohe lāʻau a Hanhart Syndrome, akā naʻe, hiki i ka ʻoki lula ke kōkua i ka hoʻoponopono i nā kīnā o nā lālā.

Nā kiʻi o Hanhart Syndrome

Nā ʻōuli o Hanhart Syndrome

ʻO nā ʻōuli nui o Hanhart Syndrome hiki ke:

• Loaʻa hapa a piha ʻole paha o nā manamana a me nā manamana wāwae paha;
• Nā lima a me nā wāwae hemahema, hapa a i ʻole absent loa;
• Alelo liʻiliʻi a hōʻano ʻole paha;
• Waha liʻiliʻi;
• Kaʻi liʻiliʻi;
• Ua haʻalele ʻo Chin;
• Nā kui kui a lahilahi;
• Paralysis helehelena;
• Pilikia i ka ale ʻana;
• ʻAʻohe mamo o nā testicle;
• Hoʻoiho noʻonoʻo.

ʻO ka mea maʻamau, manaʻo ʻia ka ulu ʻana o ke keiki he mea maʻamau a ʻo kēlā me kēia kanaka me kēia maʻi ka loaʻa ʻana o ka ʻike noʻonoʻo maʻamau, hiki ke alakaʻi i kahi ola maʻamau, ma waena o kā lākou mau palena kino.

ʻ ʻike ʻia o Hanhart Syndrome hana mau ʻia ia i ka wā hāpai, ma o ka ultrasound a me ka loiloi ʻana i nā hōʻailona a me nā ʻōuli i hōʻike ʻia e ka pēpē.

Ka mālama ʻana i ka Hanhart Syndrome

Hoʻolālā ka mālama ʻana o Hanhart's Syndrome e hoʻoponopono i nā kīnā o ke keiki a hoʻomaikaʻi i kona ʻano o ke ola. Hoʻohui pinepine ia i ke komo ʻana o kahi hui o nā loea, mai nā pediatricians, plastic surgeons, orthopedists a me nā physiotherapists e nānā i ka hihia o kēlā me kēia keiki i hoʻopili ʻia e kēia maʻi.

ʻO nā pilikia e pili ana i nā kīnā o ka alelo a i ʻole ka waha e hiki ke hoʻoponopono ʻia ma o ke kaha ʻana, ka hoʻohana ʻana i nā prostheses, ka hoʻomaʻamaʻa kino a me ka hoʻōla ʻōlelo e hoʻomaikaʻi ai i ka nau ʻana, ka ale ʻana a me ka ʻōlelo.

E mālama i nā kīnā i nā lima a me nā wāwae, hiki ke hoʻohana i nā lima hoʻokalakupua, nā wāwae a i ʻole nā ​​lima e kōkua i ka neʻe ʻana o ke keiki, neʻe i kona mau lima, kākau a hopu paha i kekahi mea. ʻO ka physiotherapy e kōkua i nā keiki i ka neʻe ʻana i ka kaʻa he mea nui.

He mea nui ke kākoʻo ʻohana a me ka noʻonoʻo no ka ulu ʻana o ke keiki.