Mea Kākau: Robert Simon
Lā O Ka Hana: 22 Iune 2021
HōʻAno Hou I Ka Lā: 16 Nowemapa 2024
Anonim
Holomua-Hoʻolaha Hou i kahi Sclerosis (PRMS) - Ola Kino
Holomua-Hoʻolaha Hou i kahi Sclerosis (PRMS) - Ola Kino

Anter

He aha ka holomua-relapsing mau sclerosis (PRMS)?

I ka 2013, ua hoʻoponopono hou nā loea lapaʻau i nā ʻano MS. A ʻo kahi hopena, ʻaʻole manaʻo ʻia ʻo PRMS kekahi o nā ʻano like ʻole o MS.

ʻO ka poʻe i loaʻa kahi hōʻailona o PRMS i ka wā i hala aku nei i manaʻo ʻia he MS holomua mua me ka maʻi maʻi.

ʻIke ʻia nā sclerosis maha mua (PPMS) no nā ʻōuli e hōʻino ana ma ka manawa. Kuhi ʻia ka maʻi ma ke ʻano he "ʻeleu" a i ʻole "ʻeleu ʻole." Manaʻo ʻia ʻo PPMS ke hana inā aia kekahi mau hōʻailona hou a i ʻole nā ​​loli i kahi scan MRI.

ʻO nā ʻōuli PPMS maʻamau e alakaʻi i nā loli i ka neʻe, a hiki iā lākou ke hoʻopili:

  • nā hoʻololi i ke ala hele
  • ʻoʻoleʻa nā lima a me nā wāwae
  • nā wāwae kaumaha
  • hiki ʻole ke hele wāwae no kahi mamao

Holomua-relapsing mau sclerosis (PRMS) pili i ka PPMS me ka maʻi hana. ʻO kahi pākēneka liʻiliʻi o ka poʻe me sclerosis maha (MS) i loaʻa i kēia mana holomua-relapsing o ka maʻi.

Ke wehewehe nei i kahi "hoʻi hou" i ka PPMS hana

I ka hoʻomaka ʻana o MS, hele kekahi poʻe i nā fluctuations i loko o nā ʻōuli. I kekahi manawa ʻaʻole lākou e hōʻike i kahi hōʻailona o MS no nā lā a i ʻole mau pule i ka manawa.


Eia nō naʻe, i loko o nā wā hiamoe, hiki ke ʻike ʻia nā ʻōuli me ka ʻole o ka ʻōlelo aʻoaʻo. Kapa ʻia kēia he MS hoʻi hou, hoʻonui, a hoʻouka paha. ʻO ka hoʻi hou ʻana he hōʻailona hou ia, ka hoʻi hou ʻana o kahi ʻōuli kahiko i ʻoi aku ka maikaʻi, a i ʻole ke kaumaha ʻana o kahi ʻōuli kahiko i ʻoi aku ma mua o 24 mau hola.

ʻO nā kuhi i ka PPMS ʻokoʻa he ʻokoʻa ia i nā hoʻi hou i ka hoʻi hou ʻana i nā sclerosis (RRMS).

ʻIke ka poʻe me PPMS i kahi kaʻina o nā ʻōuli. E hoʻomaikaʻi iki paha nā ʻōuli akā ʻaʻole loa e hele. Ma muli o ka hala ʻole o nā ʻōuli o ka hoʻi hou ʻana i PPMS, ʻoi aku ka nui o nā hōʻailona MS o ke kanaka me PPMS ma mua o kekahi me RRMS.

Ke hoʻomohala ʻo PPMS ʻeleu, hiki i nā relapses ke hana kūlohelohe, me ka ʻole a me ka ʻole o ka lāʻau.

Nā ʻōuli o PPMS

ʻO nā ʻōuli neʻe i waena o nā hōʻailona maʻamau o PPMS, akā hiki ke loli ke koʻikoʻi a me nā ʻano o nā ʻōuli mai kēlā me kēia kanaka. Hiki i nā hōʻailona maʻamau o ka PPMS hana ke hoʻopili:

  • ʻūpē mākala
  • nā mākala nāwaliwali
  • hoʻemi i ka hana o ka ʻai
  • ʻūpā
  • ʻeha mau
  • loli ka hihiʻo

Ke holo nei ka maʻi, hiki i ka PPMS ke hana i nā ʻōuli maʻamau e like me:


  • nā hoʻololi i ka ʻōlelo
  • haʻalulu
  • poho lohe

Holomua o PPMS

Ma waho o nā hoʻi hou ʻana, ʻike ʻia ka PPMS ʻeleu e kahi holomua mau o ka hoʻemi ʻia o ka hana neurological.

ʻAʻole hiki i nā kauka ke wānana i ka helu kikoʻī o ka holomua o PPMS. I nā manawa he nui, he lohi akā holo paʻa ka holomua i hala i mau makahiki. Kuhi ʻia nā hihia ʻoi loa o ka PPMS e ka holomua wikiwiki.

Nānā i ka PPMS

Hiki i ka PPMS ke paʻakikī ke kuhi mua. He hapa kēia ma muli o ka ʻike ʻole ʻia o ka hoʻi hou ʻana i PPMS e like me nā ʻano MS ʻē aʻe i ʻoi aku ka paʻakikī.

Ua hala kekahi poʻe i nā hoʻi hou ma muli o ka hopena o nā lā maikaʻi ʻole ma mua o ka manaʻo he hōʻailona lākou o ka exacerbations maʻi. Kuhi ʻia ʻo PPMS me ke kōkua o:

  • nā hoʻokolohua lab, e like me ka hoʻokolohua koko a me ka lumbar puncture
  • MRI hoʻoili
  • nā hoʻāʻo neurological
  • ka moʻolelo olakino o kekahi kanaka e hōʻike kikoʻī ana i nā loli

Ka mālama ʻana iā PPMS

E kau ana kāu lāʻau i ke kōkua ʻana e hoʻokele i nā hoʻi hou. ʻO ka lāʻau wale nō i ʻae ʻia e ka FDA no PPMS ʻo ocrelizumab (Ocrevus).


ʻO nā lāʻau lapaʻau hoʻokahi wale nō ʻano o ka mālama ʻana MS. Hiki paha i kāu kauka ke koi aku i nā loli nohona e kōkua i ka hōʻoluʻolu i kāu mau hōʻailona a hoʻomaikaʻi i ke ola. Hiki i ka hoʻoikaika kino ʻana a me ka meaʻai pono ke kōkua i ka mālama olakino no MS.

Outlook no PPMS

ʻAʻohe mea ola i kēia manawa no MS.

E like me nā ʻano maʻi ʻē aʻe, kōkua ke kōkua i ka hoʻolōʻihi i ka holomua o PPMS. Hiki i ka mālama ʻana ke hōʻemi i nā ʻōuli.

Hiki i ke kōkua olakino mua ke pale aku i ka maʻi mai ka hopena nui ʻana i kou ola. Eia nō naʻe, he mea nui e kiʻi i kahi hōʻailona kūpono mai kāu kauka e hōʻoia e loaʻa iā ʻoe ka mālama kūpono.

Hoʻomau ka poʻe noiʻi e hoʻopaʻa i ka MS e hoʻomaopopo i ke ʻano o ka maʻi a nānā paha i nā hoʻōla.

ʻOi aku ka liʻiliʻi o nā noiʻi maʻi PPMS ma mua o nā ʻano maʻi ʻē aʻe no ka mea ʻaʻole maʻalahi e ʻike. Hiki ke paʻakikī ke kaʻina loiloi no nā hoʻokolohua hoʻokolohua ke hāʻawi ʻia i ka rarity o kēia ʻano MS.

ʻO ka hapa nui o nā hoʻāʻo no ka PPMS hoʻopaʻa i nā lāʻau e hoʻomalu i nā ʻōuli. Inā makemake ʻoe i ke komo ʻana i kahi hoʻokolohua hoʻokolohua, e kūkākūkā i nā kikoʻī me kāu kauka.

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