ʻO ka hahau Pediatric: He aha nā mākua o nā keiki me kēia ʻano e makemake ai ʻoe e ʻike

Anter

• Aia nā hōʻailona, ​​akā ʻaʻole ʻike ka hapa nui o ka poʻe i ka mea e nānā ai
• He hopena mau ka pēpē Pediatric i nā keiki a me ko lākou mau ʻohana
• Hiki i ke olakino a me nā lāʻau lapaʻau ʻē aʻe ke kōkua i ke kiʻi ʻana i nā milestones o ke kino
• ʻO ka hoʻomaopopo ʻana i kēlā kākoʻo ma waho kahi mea nui

ʻO Mei ka mahina ʻike pediatric stroke. Eia ka mea e ʻike ai e pili ana i ke ʻano.

No ke kaikamahine a Megan ʻo Kora, ua hoʻomaka me ka ʻoluʻolu lima.

"Ke nānā nei i nā kiʻi hiki iā ʻoe ke ʻike maʻalahi i ka makemake o kaʻu kaikamahine i kekahi lima ʻoiai e paʻa mau ana ka lima o kekahi."

ʻAʻole pono ka hana lima ma mua o 18 mau mahina, akā e hōʻike ana ʻo Kora i nā hōʻailona o kēia mai ka wā ma mua.

E like me ka mea i ʻike ʻia, ua ʻike ʻo Kora i ka mea i ʻike ʻia ʻo ka pēpē pediatric, kahi ʻano o ka hahau i loaʻa i nā keiki, ʻoiai e hāpai ana ʻo Megan me ia a me kona kaikuahine. (A ʻo ka ʻoluʻolu lima kekahi o nā hōʻailona - ʻoi aʻe ma kēia hope).

ʻElua ʻano o ka hahau pediatric:

• Perinatal. Kū kēia i ka wā o ka hāpai ʻana a hiki i ka wā o ke keiki 1 mahina a ʻo ia ka ʻano maʻamau o ka maʻi pēpē pediatric.
• Kamaliʻi. Hana ʻia kēia i kahi keiki i nā makahiki 1 a 18 mau makahiki.

ʻOiai ʻaʻole paha kahi hahau pediatric i mea e ʻike ai ka poʻe he nui, ʻaʻole ʻo Kora wale nō i kāna ʻike. ʻO ka ʻoiaʻiʻo, kū ka pēpē pediatric ma kahi o 1 i 4,000 mau pēpē a me ke kuhi hewa ʻole a i ʻole ka lohi o ka hōʻoia ʻana i nā keiki ka mea maʻamau.

ʻOiai he ʻike nui e pili ana i nā hahau mākua, ʻaʻole pono kēia no ka hahau pediatric.

Aia nā hōʻailona, ​​akā ʻaʻole ʻike ka hapa nui o ka poʻe i ka mea e nānā ai

ʻO kā Kauka ʻohana, ʻo Terri, kāna kaikamahine ʻo Kasey i kona wā he 34. Ua wehewehe ka kamaʻāina o Kansas he hana lōʻihi kāna, a ʻo kekahi manawa ka mea i hoʻoulu ʻia e ka cer servic dilation. Manaʻoʻiʻo ʻo ia ʻo ia ka manawa i loaʻa ʻo Kasey i ka maʻi ahulau. Hoʻomaka ʻo Kasey i ka hopu ʻana i nā maʻi i loko o 12 mau hola o kona hānau ʻia ʻana.

ʻOiai ʻo ke kauka ʻohana, ʻaʻole i aʻo ʻia ʻo Terri i ka hahau pediatric - me nā hōʻailona e nānā ai. "ʻAʻole mākou i uhi i kēlā i ke kula kauka," i ʻōlelo ʻo ia.

Hoʻomanaʻo pinepine ʻia nā ʻōuli ʻōkalakala no ka hahau ʻana no kēlā me kēia me ka acronym FAST. No nā keiki a me nā keiki hānau hou i ʻike i ka maʻi hahau, eia nō naʻe aia kekahi mau hōʻailona hou aʻe a ʻokoʻa paha. Pākuʻi ʻia kēia mau mea:

• ka hopu ʻana
• hiamoe nui loa
• kahi makemake e aloha i kekahi ʻaoʻao o ko lākou kino

Ua ʻoi aku ka nui o ka makaʻu o Megan i ka hāpai ʻana. He 35 ʻo ia, ʻoi ke kaupaona, a ke hāpai nei i nā mea he nui a ʻoi aku ka nui o kāna mau keiki i ka hoʻomohala ʻana i kekahi mau ʻano. Ua ʻike nā kauka ʻaʻole ulu wikiwiki ʻo Kora e like me kona kaikuahine. ʻO ka ʻoiaʻiʻo, ua hānau ʻia lākou me ka 2 paona ʻokoʻa, akā ua hala he mau mahina no ka hoʻomaopopo ʻana o nā kauka o Kora ua loaʻa ʻo ia i ka maʻi hahau.

ʻOiai paʻakikī e haʻi inā ua loaʻa kahi maʻi kīnā i ke keiki i ka wā o ka ʻōpū, e hōʻike ʻia nā hōʻailona ma hope.

"Inā ʻaʻole iā māua kāna māhoe e hoʻohālikelike i nā milestones, ʻaʻole wau i ʻike i ka lohi o nā mea," wahi a Megan.

I ka manawa wale nō i hana ai ʻo Kora i kahi MRI ma 14 mau mahina, ma muli o kona lohi i ka hoʻomohala ʻana, ua ʻike nā kauka i ka mea i hana ʻia.

Nā pae mile developmental ʻOiai ʻo ka ʻike ʻana he mea nui nā ʻōuli o ka pēpē pediatric, he mea nui nō hoʻi ia e ʻike i kahi o kāu pēpē e pono ai i kā lākou mau hanana holomua. Hiki ke kōkua i ke kiaʻi ʻana no ka hoʻopaneʻe ʻana, e hoʻomaopopo ai paha iā ʻoe i ka hahau a me nā kūlana ʻē aʻe i kōkua ʻia me ka ʻike mua.

He hopena mau ka pēpē Pediatric i nā keiki a me ko lākou mau ʻohana

Hiki i nā keiki i loaʻa i ka maʻi hahau e hoʻomohala i nā maʻi hopu, nā hemahema neurological, a i ʻole ke aʻo ʻana a me nā pilikia ulu. Ma hope o kāna hahau ʻana, ua ʻike ʻia ʻo Kora me ka palsy cerebral, epilepsy, a me ka lohi o ka ʻōlelo.

I kēia manawa, aia ʻo ia ma lalo o ka mālama o kahi neurologist a me neurosurgeon e hoʻokele ai i kāna maʻi epilepsy.

No ka makua a me ka male ʻana, ua wehewehe ʻo Megan ua paʻakikī ka manaʻo o lāua ʻelua no ka mea "he nui nā kumu i pili."

He kipa pinepine ʻo Kora, a ua ʻōlelo ʻo Megan ua loaʻa pinepine iā ia nā kāhea mai ke kula kamaliʻi a i ʻole ka mālama keiki ʻaʻole maikaʻi ʻo Kora.

Hiki i ke olakino a me nā lāʻau lapaʻau ʻē aʻe ke kōkua i ke kiʻi ʻana i nā milestones o ke kino

ʻOiai nā keiki he nui i loaʻa i ka hahau ʻana i loaʻa i nā pilikia i ka noʻonoʻo a me ke kino, hiki i ke olakino a me nā lāʻau lapaʻau ʻē aʻe ke kōkua iā lākou e hōʻea i nā pae kiʻekiʻe a kū i kēlā mau pilikia.

Wahi a Terri, "Ua haʻi mai nā kauka iā mākou ma muli o ka wahi o kona ʻeha, laki mākou inā hiki iā ia ke hoʻoponopono i ka ʻōlelo a me ka ʻōlelo. ʻAʻole paha ʻo ia e hele wāwae a lohi loa. Manaʻo wau ʻaʻohe mea i haʻi iā Kasey. ”

Aia ʻo Kasey i ke kula kiʻekiʻe i kēia manawa a holo i ke ala i kahi pae aupuni.

I kēia manawa, ʻo Kora, i kēia manawa 4 mau makahiki, e hele wāwae ʻole ana mai ka makahiki 2.

"He minoʻaka mau kona ma kona alo a ʻaʻole loa ʻo ia e waiho i kekahi [o kāna mau kūlana] e hoʻōki iā ia mai ka hoʻāʻo ʻana e hoʻomau," wahi a Megan.

ʻO ka hoʻomaopopo ʻana i kēlā kākoʻo ma waho kahi mea nui

Ua ʻae ʻo Terri lāua ʻo Megan he mea nui e hana i kahi kime kākoʻo no ke keiki a me ko lāua ʻohana. Hoʻopili kēia i ka nānā ʻana i nā lālā o ka ʻohana, nā hoaaloha, nā hoa hana, nā poʻe o ke kaiāulu hahau pediatric, a me nā ʻoihana olakino.

Ua loaʻa iā Megan kahi noho maikaʻi loa a loaʻa iā ia nā hoa hana kōkua e kōkua i ka wā e pono ai. Ua loaʻa iā Terri lāua ʻo Megan ka hōʻoluʻolu a me ke kākoʻo mai nā hui Hemiplegia a me Stroke Association (CHASA) o nā kamaliʻi ma Facebook.

"I ka manawa aʻu i hoʻopili ai me CHASA, ua loaʻa iaʻu nā pane he nui a me kahi ʻohana hou," wahi a Terri.

Hāʻawi nā kaiāulu CHASA i nā pūʻulu kākoʻo pūnaewele a me nā poʻe no nā mākua o ka poʻe i pakele hahau pediatric. Hiki iā ʻoe ke ʻike hou aku i ka ʻike e pili ana i ka maʻi pēpē a me ke kākoʻo mai:

• ʻAhahui Puʻuwai ʻAmelika
• International Alliance no ka hahau Pediatric
• ʻO ʻAhahui Kākoʻo Stroke Pediatric Kanada

ʻO Jamie Elmer kahi hoʻoponopono kope i hū mai Kaleponi Hema. Aloha ʻo ia i nā huaʻōlelo a me ka ʻike olakino noʻonoʻo a ke ʻimi mau nei i nā ala e hoʻohui ai i nā mea ʻelua. He mea hoihoi hoʻi ʻo ia no nā mea ʻekolu ʻo P: nā ʻīlio, nā uluna, a me kaʻuala. E ʻike iā ia ma Instagram.