ʻAʻole makemake ʻo Jack Osbourne iā MS e lilo i pāʻani keu

Anter

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• Pono e hoʻohui a hoʻoikaika
• Ke ola nei i kahi ola maikaʻi me MS

Kiʻi i kēia: nā hōkū ʻo Jack Osbourne a me kona kaikuahine, ʻo Kelly, e hoʻāʻo nei e pakele mai kahi moku kūwaho e hōʻino loa iā ia iho. E hana ai, pono lākou e pane pololei i nā nīnau e pili ana i nā sclerosis he nui.

"Maʻalahi ke haʻi inā loaʻa iā MS kekahi," heluhelu i hoʻokahi nīnau. ʻOiaʻiʻo paha wahaheʻe paha? "Wahaheʻe," pane ʻo Jack, a neʻe aku ka lua.

"Ehia mau kānaka o ka honua i loaʻa iā MS?" heluhelu kekahi. "2.3 miliona," pane pololei ʻo Kelly.

Akā no ke aha e hoʻāʻo nei ka ʻohana Osbourne e pakele mai kahi mokulele, e haʻohaʻo paha kekahi?

ʻAʻole, ʻaʻole lākou i kāʻili ʻia e nā malihini. Ua hui pū ʻo Jack me kahi keʻena e pakele ai ma Los Angeles e hana i ka pūnaewele hou loa no kāna pāʻina You Not Know Jack About MS (YDKJ). Hana ʻia me ka launa pū ʻana me Teva Pharmaceuticals ʻehā mau makahiki i hala aku nei, ke manaʻo nei ka hoʻouka kaua e hāʻawi i ka ʻike i ka poʻe i ʻike hou ʻia a noho paha me MS.

"Ua makemake mākou e hoʻolilo i ka hoʻokūkū i mea naʻaupō a me nā leʻaleʻa a me nā puʻuwai," wahi a Jack. "ʻAʻole hopena a me ka pōuliuli, ʻo ka hopena-kokoke i nā ʻano mea."

"Mālama mākou i ka vibe maikaʻi a hoʻokiʻekiʻe a kāpīpī mākou i ka aʻo ma o ka leʻaleʻa."

Pono e hoʻohui a hoʻoikaika

Ua ʻike ʻia ʻo Osbourne me ka relapsing-remitting mau sclerosis (RRMS) i ka makahiki 2012 ma hope o ka ʻike ʻana i ke kauka no ka neuritis optic, a i ʻole ke aʻalolo optic inflamed. Ma mua o ka ʻike ʻia ʻana o nā ʻōuli o ka maka, ua ʻike ʻo ia i ka ʻūlū a me ka helu ʻana i kona wāwae no ʻekolu mau mahina pololei.

"ʻAʻole wau i nānā i ka ʻūlū ʻana i kuʻu wāwae no ka mea ua manaʻo wau ua ʻūʻī wale wau i kahi nerve," wahi a Jack. "ʻOiai i ka manawa i loaʻa ai iaʻu kahi maʻi, ua manaʻo wau," ʻAʻole wau ʻōpio loa e kiʻi i kēia? 'I kēia manawa, ʻike wau i ka makahiki maʻamau o ka hōʻailona ma waena o 20 a 40. "

ʻ sayslelo ʻo Osbourne makemake ʻo ia e ʻike ʻoi aku e pili ana iā MS ma mua o ka ʻike ʻia. "I ka wā i haʻi mai ai nā kauka iaʻu," Manaʻo wau he MS kāu ', ua hele a huhū wau a noʻonoʻo: "Pau ka pāʻani." Akā ʻo ia paha ka hihia 20 mau makahiki i hala. ʻAʻole wale kēia ka hihia. "

Ma hope koke iho o kona aʻo ʻana iā MS, ua hoʻāʻo ʻo Osbourne e hoʻopili me nā mea āna i ʻike ai me ka maʻi e loaʻa mua ai, nā moʻolelo pilikino o ka noho ʻana me MS. Ua kiʻi aku ʻo ia i ka hoa pili o kona ʻohana ʻo Nancy Davis, nāna i hoʻokumu i ka Race to Erase MS, a ʻo Montel Williams hoʻi.

"He mea ʻē aʻe ka heluhelu ʻana [e pili ana iā MS] ma ka pūnaewele, akā ʻo kahi mea ʻē aʻe e kikoo aku a lohe iā ia mai kahi mea e noho nei me ka maʻi no kekahi manawa e hoʻomaopopo pono i ke ʻano o ka lā," i ʻōlelo ʻo Osbourne. . "ʻO ia ka mea kōkua nui loa."

E uku aku i mua, ua makemake ʻo Osbourne e lilo i kanaka a i wahi no nā poʻe ʻē aʻe e noho nei me MS.

Ma YDKJ, kau ʻo Jack i kahi mau pūnaewele pūnaewele-i kekahi manawa e hōʻike ana i nā hiʻohiʻona mai kona mau mākua, ʻo Ozzy lāua ʻo Sharon-a me nā pou blog a me nā loulou i nā kumuwaiwai MS. Ua ʻōlelo ʻo ia kāna pahuhopu no ia e lilo i kumuwaiwai no nā poʻe i ʻike ʻia me MS, a i ʻole makemake hoihoi e pili ana i ke ʻano.

"I ka manawa i loaʻa ai iaʻu ka maʻi, ua hoʻolōʻihi wau i ka manawa ma ka pūnaewele a me ka hele ʻana i nā pūnaewele a me nā blog a ʻike ʻaʻohe maoli kahi hale kūʻai wikiwiki hoʻokahi ma MS," hoʻomanaʻo ʻo ia. "Ua makemake wau e hana i kahua no ka poʻe e hele a aʻo e pili ana iā MS."

Ke ola nei i kahi ola maikaʻi me MS

Hoʻomanaʻo ʻo Jack i kahi manawa a kahi hoaaloha - iā MS pū kekahi - i haʻi ʻia e ke kauka e lawe iā Advil, e hiamoe, a hoʻomaka e nānā i nā hōʻike kamaʻilio i ke ao, no ka mea ʻo ia wale nō kona ola.

"ʻAʻole pololei kēlā. ʻO ka ʻoiaʻiʻo o ka nui o nā hana kupaianaha i waho a me ka ʻike e pili ana i ka maʻi, [ʻike ka poʻe] hiki iā lākou ke hoʻomau [me nā palena] keu hoʻi inā aia lākou ma ka hoʻolālā lapaʻau kūpono, "wehewehe ʻo Jack. ʻOiai nā pilikia maoli a MS e hōʻike nei, ua ʻōlelo ʻo ia makemake ʻo ia e hoʻoulu a hāʻawi i ka manaʻolana e "hiki iā ʻoe ke noho i kahi ola nui me MS."

ʻAʻole ia e ʻōlelo ʻaʻohe pilikia i kēlā me kēia lā, a hopohopo ʻole ʻo ia no ka wā e hiki mai ana. ʻOiaʻiʻo, ua hōʻea ʻo Jack's diagnosis he ʻekolu pule wale nō ma mua o ka hānau ʻana o kāna kaikamahine mua, ʻo Pearl.

"ʻO ka hopohopo kūlohelohe me ka hiki ʻole ke lilo i ke kino a i ʻole piha loa i nā mea āpau i nā ola o kaʻu mau keiki he mea weliweli ia," i ʻōlelo ʻo ia. "Hoʻomaʻamaʻa pinepine wau a nānā i kaʻu papaʻai, a ua hoʻāʻo e hoʻoliʻiliʻi i ke koʻikoʻi - akā aneane hiki ʻole ia ke loaʻa nā keiki a me ka hana."

"Eia nō naʻe, ʻaʻole wau i ʻike i ka palena mai ka wā e ʻike ʻia ai kahi maʻi. Ua manaʻo kekahi poʻe ʻē aʻe ua kaupalena ʻia wau, akā ʻo ko lākou manaʻo ia. "

ʻAʻole i kaupalena ʻia ʻo Jack ma ka kaʻana like ʻana i kāna moʻolelo a me ke ola piha ʻana. Ma hope o ka ʻike ʻia ʻana, ua komo ʻo ia i loko o ka "Hula me nā Hōkū," hoʻonui i kona ʻohana, a hoʻohana i kāna mea kaulana e hoʻolaha i ka ʻike, kaʻana like i ka ʻike, a hui pū me nā poʻe ʻē aʻe e noho nei me MS.

"Loaʻa iaʻu nā leka ma o ka pāpili kaiaulu, a ʻo ka poʻe ma ke alanui e piʻi mai iaʻu i nā manawa āpau, inā he MS ko lākou a he ʻohana paha a he hoa aloha paha kā lākou. Ua pili maoli ʻo MS iaʻu me nā poʻe aʻu i manaʻo ʻole ai. Maikaʻi, maoli. "