He ʻōpio wau, Immunocompromised, a me COVID-19 Maikaʻi

Anter

• E noho paha wau a hele paha wau?
• ʻO koʻu ʻike me COVID-19
• Ke kaʻina hoʻāʻo COVID-19
• ʻO kaʻu hana hoʻōla
• Pehea ka COVID-19 i hoʻopili ai i kaʻu maʻi maʻi Crohn
• He aha ka mea aʻe?

ʻAʻole wau i noʻonoʻo i kahi hoʻomaha hoʻomaha ʻohana e alakaʻi ai i kēia.

I ka COVID-19, ka maʻi i hoʻokumu ʻia e ka novel coronavirus, i kuʻi mua i ka nūhou, me he mea lā he maʻi ia i kuhi wale i ka poʻe maʻi a me nā ʻelemākule. ʻO ka nui o kaʻu mau hoa i manaʻo he pio ʻole mai ka wā ʻōpio a olakino hoʻi.

Hiki nō iaʻu nana e like me ke kiʻi o ke olakino ma 25 mau makahiki, akā ua lawe wau i nā pale pale pale no nā makahiki he nui e mālama i koʻu maʻi ʻo Crohn.

ʻOiai, aia wau i loko o kahi hui iʻoi aku ka nui o ka makaʻu o nā pilikia mai kēia virus hou a kekahi poʻe e manaʻo nui nei, a ʻo kekahi ʻaʻole. Ma ke ʻano he haumāna lapaʻau ʻehā makahiki e pili ana i ka hoʻomaka ʻana o ka huli ʻana i loko o kahi keʻena pilikia, ua hopohopo iki wau. Akā ʻaʻole wau i noʻonoʻo e ʻike maoli ʻia wau me COVID-19.

Ua maikaʻi kēia ma mua o ka holo ʻana o ka quarantine ponoʻī o ka ʻāina. E hana ana nō ka poʻe. Ua wehe ʻia nā pā a me nā hale ʻaina. ʻAʻohe hemahema pepa lua.

E noho paha wau a hele paha wau?

Ma kahi kokoke i hoʻokahi makahiki i hala, ua hoʻolālā koʻu mau hoahānau i kahi huakaʻi no ka mua o Malaki i Costa Rica e hoʻolauleʻa ai i ka male o ko mākou hoahānau. I ka wā a ka huakaʻi i huli ai a puni, manaʻo mākou aia he wahi kaiāulu liʻiliʻi e pālahalaha ana a ʻo COVID-19 ka maʻi nui o ka poʻe huakaʻi hele i kahi kai, no laila ʻaʻole mākou i hoʻopau.

Ua hoʻolālā kahi hui o 17 o mākou i kahi hopena pule lōʻihi lōʻihi e heʻenalu ana, e holo ana i nā ATV a i kahi wailele, a e hana ana i yoga ma kahakai. ʻAʻole mākou i ʻike, ʻo ka hapanui o mākou e loaʻa iā COVID-19.

Ma kā mākou mokulele e hoʻi i ka home, ua aʻo mākou he pilina pololei kekahi o ko mākou mau hoahānau me kahi hoaaloha i hōʻoia maikaʻi no COVID-19. Ma muli o ka hiki ke ʻike ʻia a me ka huakaʻi hele honua, ua hoʻoholo mākou āpau e quarantine ponoʻī i loko o ko mākou mau home ke pae mākou i laila. Ua noho māua me koʻu kaikuahine, ʻo Michelle, i ko mākou hale kamaliʻi ma mua o ka hoʻi ʻana i ko mākou keʻena liʻiliʻi.

ʻO koʻu ʻike me COVID-19

ʻElua mau lā i loko o kā mākou quarantine ponoʻī, iho mai ʻo Michelle me kahi maʻi fiva haʻahaʻa, haʻalulu, ʻehaʻeha o ke kino, luhi, ʻeha poʻo, a me nā ʻeha o ka maka. Ua ʻōlelo ʻo ia ua ʻano palupalu kona ʻili me he mea lā ua hoʻouna nā pā i nā haʻalulu a i ʻole nā ​​kaniʻula i loko o kona kino. Ua hala kēia i 2 mau lā ma mua o ka pīpī a nalowale kona ʻano ʻaʻala.

I ka lā aʻe, ua loaʻa wau i kahi kuni haʻahaʻa, haʻalulu, ʻeha o ke kino, luhi, a ʻeha ʻāʻī maikaʻi ʻole. Ua hoʻopau wau me nā ulcer i loko o koʻu ʻāʻī i hoʻokahe ke koko a me ka ʻeha poʻo poʻo, ʻoiai ʻaneʻane ʻaʻole loaʻa nā poʻo poʻo. Ua nalowale koʻu makemake a lilo koke wau i kahakaha loa a hiki i kahi i loaʻa ʻole ai kahi decongestant over-the-counter a i ʻole neti ipu i hāʻawi ʻia i kahi hoʻomaha.

He pīhoihoi kēia mau ʻōuli, akā akahai loa ke hoʻohālikelike ʻia me ka mea a mākou e lohe nei i kēia manawa e pili ana i nā mea maʻi maʻi nui i nā ea. ʻOiai ua ʻilihuna koʻu ikaika, ua hiki nō iaʻu ke hele i waho no ka hele wāwae pōkole i nā lā he nui a pāʻani i nā pāʻani me koʻu ʻohana.

I nā lā ʻelua i loko o ka maʻi, ua nalowale loa wau i koʻu ʻono a me ka pilau, ka mea i manaʻo ai iaʻu ua loaʻa kahi maʻi sinus. Ua nui loa ka nalo ʻana o ka naʻau i hiki ʻole iaʻu ke ʻike i nā pilau pungent e like me ka vīnega a ʻānai ʻana i ka ʻalekohola. ʻO ka mea wale nō kaʻu e ʻono ai ka paʻakai.

I ka lā aʻe, ua pau ka nūhou i ka nalo ʻana o ka ʻono a me ka honi nā hōʻailona maʻamau o COVID-19. ʻO kēlā manawa nō wau i ʻike ai e hakakā ana paha māua ʻo Michelle a me COVID-19, ka maʻi e hoʻopiʻi nei i nā ola ma nā ʻōpio a me nā mea kahiko.

Ke kaʻina hoʻāʻo COVID-19

Ma muli o kā mākou mōʻaukala huakaʻi, nā ʻōuli, a me kaʻu maʻi pale maʻi, ua kūpono ʻo Michelle a me au no ka hoʻāʻo COVID-19 ma kā mākou mokuʻāina.

Ma muli o kā mākou kauka ʻokoʻa, ua hoʻouna ʻia mākou i ʻelua mau wahi ʻokoʻa no ka hoʻāʻo ʻana. Ua alakaʻi wau koʻu makuakāne iaʻu i ka hale kaʻa hale kaʻa hale maʻi kahi i hele mai kahi kahu wahine wiwo ʻole i ka puka aniani o kaʻu kaʻa, e ʻaahu ana i ke kapa komo piha, ka pale maka N95, ka pale maka, nā mikina lima, a me ka pāpale Patriots.

ʻO ka hoʻāʻo kahi lūlū hohonu o koʻu mau ihu ʻelua i hoʻohāinu i koʻu mau maka me ka ʻoluʻolu ʻole. ʻEhiku mau minuke ma hope o ka hōʻea ʻana i ka wahi hoʻāʻo hoʻokele, e hoʻi ana mākou i ka home.

Ua hoʻāʻo ʻia ʻo Michelle ma kahi haukapila ʻokoʻa i hoʻohana i ka ʻau ʻana o ka puʻu. Ma lalo o 24 mau hola ma hope mai, ua loaʻa iā ia kahi kāhea mai kāna kauka ua hōʻoia maikaʻi ʻo ia no COVID-19. Ua ʻike mākou he maikaʻi nō paha wau, a mahalo nui mākou i ko mākou hoʻopakele ʻia ʻana mai ka manawa a mākou i haʻalele ai i ka mokulele.

ʻElima mau lā ma hope o ka hoʻāʻo ʻana, ua loaʻa iaʻu kahi kāhea mai kaʻu kauka ʻo wau pū kekahi no COVID-19.

Ma hope koke iho, ua kāhea kahi kahu mālama ola lehulehu me nā ʻōlelo aʻo ikaika e hoʻokaʻawale iā mākou iho i ka home. Ua haʻi ʻia mākou e noho i loko o kā mākou lumi moe, ʻoiai no ka ʻai, a hoʻopau loa i ka make i ka lua ma hope o kēlā me kēia hoʻohana. Ua aʻo ʻia mākou e kamaʻilio me kēia kahu i kēlā me kēia lā e pili ana i kā mākou mau hōʻailona a hiki i ka pau ʻana o kā mākou manawa kaʻawale.

ʻO kaʻu hana hoʻōla

I hoʻokahi pule i koʻu maʻi, ulu wau i ka ʻeha o ka umauma a me ka liʻiliʻi o ka hanu me ka hoʻoikaika. ʻO ka piʻi wale ʻana i ka hapalua o ke alapiʻi ka makani holoʻokoʻa iaʻu. ʻAʻole hiki iaʻu ke hanu hohonu me ka ʻole o ka ʻoka. ʻAʻole hiki ke lanakila i ka ʻāpana o aʻu no ka mea ʻōpio wau, olakino maikaʻi, a ma kahi biologic me nā pahuhopu hou aku, ma mua o ka ʻōnaehana, immunosuppression.

Eia naʻe kekahi ʻāpana o aʻu makaʻu i nā ʻōpū hanu. I kēlā me kēia pō no hoʻokahi pule a me ka hapa, e lilo wau i flush a piʻi aʻe koʻu mahana. Ua nānā pono wau i kaʻu mau ʻōuli i ʻole e mānoanoa koʻu hanu ʻana, akā ua hoʻomaikaʻi wale ia.

ʻEkolu mau pule i loko o ka maʻi, ua holoi ʻia ka ʻū a me ka pīhoihoi, kahi i pīhoihoi iaʻu ma mua o ka manaʻoʻiʻo ʻole. I ka nalowale ʻana o ka pīhoihoi, hoʻomaka ka hoʻi ʻana o koʻu ʻono a me ka pilau.

Ua hele ka maʻi o Michelle i kahi papa ʻoi aku ka māmā, me ka ʻike ʻana i ka pīhoihoi a me ka nalowale ʻana o ka pilau no 2 mau pule akā ʻaʻohe kahe a me ka hanu ʻole. ʻO ko mākou ʻano ʻala a ʻono hoʻi i kēia manawa ma kahi o 75 pakeneka o ka maʻamau. Ua nalo he 12 mau paona, akā ua hoʻi ka ikaika o koʻu makemake.

Mahalo nui mākou i ka hoʻoponopono piha ʻana o Michelle a me aʻu, ʻo ia hoʻi ma muli o ka maopopo ʻole o koʻu pilikia mai ka lawe ʻana i kahi biologic. Ma hope ua ʻike mākou i ka hapa nui o nā hoahānau o mākou ma ka huakaʻi i maʻi pū ʻia me COVID-19, me nā ʻōuli like ʻole a me nā lōʻihi o ka maʻi. Mahalo, ua ola piha nā mea āpau ma ka home.

Pehea ka COVID-19 i hoʻopili ai i kaʻu maʻi maʻi Crohn

I loko o ʻelua mau pule, e loaʻa wau i kaʻu infusion aʻe ma luna pono o ka manawa. ʻAʻole pono wau e hōʻoki i kaʻu lāʻau a makaʻu i ka lapalapa ahi o Crohn, a ʻaʻole i like ka hopena o ka lāʻau i kaʻu papa COVID-19.

Ma waena o māua ʻo Michelle, ua ʻike wau i nā ʻōuli hou aʻe a ʻoi aku ka lōʻihi o nā ʻōuli, akā pili a pili ʻole paha ia i kaʻu immunosuppression.

Ua hoʻokumu ka International Organization for the Study of Inflammatory Bowel Disease (IOIBD) i nā kulekele no ka lāʻau i ka wā o ke ahulau. Paipai ka hapa nui o nā ʻōkuhi i ka noho ʻana i kāu mālama ʻana o kēia manawa a me ka hoʻāʻo ʻana e hōʻalo a i ʻole ka taper prednisone inā hiki. E like me ka mau, e kamaʻilio me kāu kauka e pili ana i nā hopohopo.

He aha ka mea aʻe?

ʻO ka pale kālā noʻu ka lana o ka pale i ka maʻi virus i hiki ai iaʻu ke hui pū me nā pūʻali koa a kōkua i koʻu mau hoapapa ma ka laina mua.

ʻO ka hapanui o mākou e ʻaelike COVID-19 e ola loa ia. ʻAʻole hiki iā mākou ke wānana mau i ka mea e maʻi nui loa.

Pono mākou e hoʻolohe i nā mea āpau a nā alakaʻi olakino honua e ʻōlelo ai. He virus nui loa kēia, a ʻaʻole pono mākou e lawe māmā i ke kūlana.

I ka manawa like, ʻaʻole pono mākou e noho i ka makaʻu. Pono mākou e hoʻomau i ka hoʻokalakupua kino iā mākou iho ʻoiai e pili kokoke ana i ka pilikanaka, holoi maikaʻi i nā lima, a e hele pū mākou ma kēia.

ʻO Jamie Horrigan kahi haumāna olakino ʻehā makahiki he mau pule ka mamao mai ka hoʻomaka ʻana o kāna noho lāʻau kūloko. He manaʻo nui ʻo ia i ka maʻi maʻi o Crohn a manaʻoʻiʻo maoli i ka mana o ka meaʻai a me ka nohona. Ke mālama ʻole ʻo ia i nā mea maʻi ma ka haukapila, hiki iā ʻoe ke loaʻa iā ia i ka lumi kuke. No kekahi mau mea hoʻoweliweli, ʻaʻohe gluten, paleo, AIP, a me SCD, nā ʻōlelo aʻoaʻo, a e hoʻomau i kāna huakaʻi, e mālama pono i kāna blog, Instagram, Pinterest, Facebook, a me Twitter.