ʻO ke ola ʻana i kahi ʻano kakaʻikahi o ka maʻi maʻi i lilo ai iaʻu i mea holo ʻoi aku ka maikaʻi

Anter

• Ka nahu ʻino ʻino
• Ke kauwela paʻakikī loa
• ʻO ke ola ma hope o ka maʻi ʻaʻai
• Nānā no

I ka lā 7 o Iune, 2012, he mau hola wale nō ma mua o koʻu hoʻonohonoho ʻia ʻana e hele ma luna o ke kahua a loaʻa kaʻu diploma kula kiʻekiʻe, ua haʻi mai kekahi kauka lapaʻau orthopedic i ka nūhou: ʻAʻole wale i loaʻa iaʻu kahi maʻi maʻi maʻi maʻi ʻaʻole i loaʻa iaʻu ma koʻu wāwae, a makemake wau e hōʻoki ʻia e wehe. ʻo ia, akā he ʻaleʻa ʻeleu makemake wau i hoʻopau i kaʻu hapa marathon hou loa i loko o ʻelua mau hola a me 11 mau minuke-ʻaʻole hiki ke holo hou.

Ka nahu ʻino ʻino

Ma kahi o ʻelua a me ka hapa mahina ma mua, ua loaʻa iaʻu kahi nahu pepeke ma koʻu ʻūhā lalo ʻākau. Me he mea lā ua pehu ka wahi ma lalo, akā manaʻo wau he hopena ia i ka nahu. Ua hala nā pule a ma kahi holo maʻamau he 4 mau mile, ʻike wau ua ulu nui ka puʻu. Ua hoʻouna mai kuʻu mea aʻo haʻuki kula kiʻekiʻe iaʻu i kahi keʻena orthopedic kūloko, kahi aʻu i hana ai i kahi MRI e ʻike i ke ʻano o ka puʻupuʻu kinipōpō hīnaʻi.

ʻO nā lā aʻe aʻe he mau kelepona kelepona wikiwiki a me nā huaʻōlelo weliweli e like me "oncologist," "tumor biopsy," a me "bone density scan." Ma ka lā 24 o Mei, 2012, ʻelua pule ma mua o ka puka ʻana, ua ʻike ʻia au me ka pae 4 alveolar rhabdomyosarcoma, kahi ʻano kakaʻikahi o ka maʻi maʻi ʻiʻo palupalu i ʻāwili iā ia iho i nā iwi a me nā aʻalolo o koʻu wāwae ʻākau. A ʻae, ʻo ka pae 4 ka wānana ʻoi loa. Ua hāʻawi ʻia iaʻu he 30 pākēneka manawa kūpono o ka noho ʻana, me ka nānā ʻole inā ua ukali wau i ke kaola i manaʻo ʻia o ke ʻoki, chemotherapy, a me radiation.

E like me ka laki, ua hana koʻu makuahine me kekahi wahine nona ke kaikunāne he oncologist loea i ka sarcoma (a i ʻole nā ​​maʻi maʻi maʻi palupalu) ma MD Anderson Cancer Center ma Houston. Aia ʻo ia ma ke kūlanakauhale no ka male ʻana a ua ʻae ʻo ia e hui e hāʻawi iā mākou i ka manaʻo ʻelua. I kekahi lā aʻe, ua hoʻopau wau me koʻu ʻohana ma kahi o ʻehā mau hola e kamaʻilio pū me Kauka Chad Pecot ma kahi Starbucks kūloko-ʻo kā mākou papaʻaina i uhi ʻia me ka hui pū ʻana o nā moʻolelo olakino, scans, kofe ʻeleʻele, a me nā latte. Ma hope o ka nui o ka noʻonoʻo nui ʻana, manaʻo ʻo ia ʻo ka likelika o ka hahau ʻana i kēia tumo ua like ia inā ʻaʻole wau e haʻalele i ke ʻoki, me ka ʻōlelo ʻana he hiki i ka pā chemo ikaika a me ka pāhawewe ke hoʻohana pū kekahi. No laila ua hoʻoholo mākou e hele i kēlā ala.

Ke kauwela paʻakikī loa

I kēlā mahina like, i ka hoʻomaka ʻana o koʻu mau hoaaloha i kā lākou kauwela hope loa ma ka home ma mua o ke koleke, ua hoʻomaka wau i ka mua o 54 mau wiki hoʻopaʻi o ka chemotherapy.

Ma kahi o ka pō, ua hele au mai kahi mea pāʻani ʻai maʻemaʻe e holo mau ana i 12 mau mile i kēlā me kēia pule a makemake i ka ʻaina kakahiaka nui i kahi maʻi luhi hiki ke hele i nā lā me ka makemake ʻole. Ma muli o ka māka ʻia o koʻu maʻi ʻaʻai i ka pae 4, ʻo kaʻu mau lāʻau kekahi o nā mea ʻoi loa hiki ke loaʻa. Ua hoʻomākaukau kaʻu mau kauka iaʻu e "hoʻokuʻu ʻia mai koʻu mau wāwae" me ka nausea, luaʻi, a me ke kaumaha. ʻO ka mea kupanaha, ʻaʻole au i hoʻolei i hoʻokahi manawa, a ua nalowale wau ma kahi o 15 paona, ʻoi aku ka maikaʻi ma mua o ka mea i manaʻo ʻia. ʻO lākou, a ʻo wau nō hoʻi i hoʻopaʻa i kēia i ka mea ʻo wau i hele a maikaʻi i mua o ka hōʻailona. ʻO ka ikaika aʻu i kūkulu ai mai nā haʻuki a me ka ʻai olakino i lawelawe ʻia ma ke ʻano he pale pale pale e kūʻē i kekahi o nā lāʻau ikaika loa a puni. (E pili ana: ʻO ka noho ʻana i kōkua iaʻu e lanakila i ka maʻi maʻi pancreatic)

No hoʻokahi makahiki ʻoi aʻe, ua hoʻohana wau i ʻelima mau pō o ka pule i kahi lāʻau ʻawaʻawa o nā keiki kūloko e hoʻokomo mau ʻia i loko oʻu i ka hoʻāʻo e pepehi i nā maʻi kanesa. Ua noho koʻu makuakāne i kēlā me kēia pō me aʻu-a lilo i hoa aloha naʻu i ke kaʻina.

I loko o ia mau mea āpau, ua haʻo wau i ka hoʻoikaika kino, akā ʻaʻole hiki i koʻu kino ke hana. Ma kahi o ʻeono mahina i ka mālama ʻana, ua hoʻāʻo wau e holo i waho. ʻO kaʻu pahuhopu: Hoʻokahi mile. Ua hoʻokahe ʻia au mai ka hoʻomaka ʻana, pau ka hanu a hiki ʻole ke hoʻopau i lalo o 15 mau minuke. Akā ʻoiai ua manaʻo ʻo ia e ʻaneʻane e uhaʻi iaʻu, ua lilo ia i mea hoʻoikaika noʻonoʻo. Ma hope o ka hoʻolōʻihi ʻana i ka manawa e moe ana i ka moena, ʻimi ʻia me nā lāʻau lapaʻau a kāhea i ka wiwo ʻole e hele mau, ua manaʻo wau e hana ana wau i kekahi mea no au iho-ʻaʻole wale i ka hoʻoikaika ʻana e paʻi i ka maʻi kanesa. Ua hoʻoikaika iaʻu e hoʻomau i ka nānā ʻana i mua a me ka hahau ʻana i ka maʻi kanesa i ka wā lōʻihi. (E pili ana: 11 Nā kumu i kākoʻo ʻia i ka ʻepekema he maikaʻi maoli no ʻoe)

ʻO ke ola ma hope o ka maʻi ʻaʻai

I Kēkēmapa 2017, ua hoʻohanohano wau i nā makahiki ʻehā a me ka hapa manuahi me ka manuahi. Ua puka au mai ke Kulanui o Florida State me kahi kekelē kūʻai aku a loaʻa iaʻu kahi hana maikaʻi e hana pū me ka Tom Coughlin Jay Fund Foundation, e kōkua ana i nā ʻohana me nā keiki e hakakā nei i ka maʻi kanesa.

Ke hana ʻole wau, holo wau. ʻAe, pololei kēlā. Ua hoʻi wau i ka noho a, haʻaheo wau e ʻōlelo, ʻoi aku ka wikiwiki ma mua o ka manawa. Hoʻomaka mālie wau, e kākau inoa no kaʻu heihei mua, he 5K, ma kahi o hoʻokahi makahiki a me ʻekolu mahina ma hope o ka pau ʻana o ka chemo. ʻOiai ua ʻalo wau i ke kīkō ʻana, ʻo kahi ʻāpana o kaʻu mālama ʻana i loko o ʻeono mau pule o ka pāhawewe e pili pono ana i koʻu wāwae, ka mea a ka oncologist a me ka radiologist i hōʻike mai ai iaʻu e hoʻonāwaliwali ka iwi, a haʻalele wau iaʻu i nā haʻi stress. "Mai hopohopo inā ʻaʻole hiki iā ʻoe ke hele ma mua o 5 mau mile me ka ʻole o ka ʻeha nui," wahi a lākou.

Akā ma ka 2015, ua hana wau i koʻu ala i hope i kahi mamao aku, hoʻokūkū i ka hapalua marathon ma ka lā Lā Hoʻomaikaʻi a me ka hahau ʻana i koʻu manawa ma mua o ka maʻi ʻaʻai-hapa hapalua marathon e 18 mau minuke. Ua hāʻawi iaʻu i ka hilinaʻi e hoʻāʻo i ka hoʻomaʻamaʻa ʻana no kahi marathon piha. A ma Mei 2016, ua hoʻopau au i ʻelua mau marathon a ua kūpono au no ka Marathon Boston 2017, aʻu i holo ai i ka hola 3:28.31. (Pili: ʻO kēia Survivor Kanesa i holo i kahi hapalua marathon i ʻaʻahu ʻia ʻo Cinderella no kahi kumu e hāʻawi ai i ka mana)

ʻAʻole loa au e poina i ka haʻi ʻana aku i kaʻu mea kālai lāʻau rockstar, ʻo Eric S. Sandler, M.D., e hoʻāʻo ana au iā Boston. "Ke hoʻohenehene nei ʻoe?!" wahi āna. "ʻAʻole anei wau i haʻi aku iā ʻoe i kekahi manawa ʻaʻole hiki iā ʻoe ke holo hou?" Ua hana ʻo ia, ua hōʻoia wau, akā ʻaʻole wau e hoʻolohe ana. "Maikaʻi, hauʻoli wau ʻaʻole ʻoe i hana," wahi āna. "ʻO ia ke kumu i lilo ai ʻoe i ke kanaka i kēia lā."

Ke ʻōlelo mau nei au ʻo ka manaʻolana ʻo ka maʻi kanesa ka mea ʻino loa aʻu e hele ai, akā ʻo ia ka mea maikaʻi loa. Ua hoʻololi ia i koʻu ala e noʻonoʻo ai i ke ola. Ua hoʻokokoke mai ia i koʻu ʻohana. Ua hoʻolilo iaʻu i mea holo maikaʻi. ʻAe, he wahi puʻupuʻu make kaʻu i koʻu wāwae, akā ʻē aʻe ma mua o kēlā, ʻoi aku koʻu ikaika ma mua o ka wā. Inā wau e holo pū ana me koʻu makuakāne, e pāʻani kolepa ana me koʻu hoa kāne, a i ʻole e ʻeli i loko o kahi kīʻaha smoothie i paʻi ʻia me nā ʻōpala plantain, nā makaʻu niu ʻūlū, pata ʻalemona, a me ke kinamona, e ʻakaʻaka mau ana au, no ka mea, eia wau. ola au a, ma 23, mākaukau wau e lawe i ka honua.

Nānā no