Tourette Syndrome
Anter
- He aha ka maʻi maʻi Tourette?
- He aha nā hōʻailona o Tourette Syndrome?
- Nā kaʻa uila
- Nā leo uila
- He aha ke kumu o Tourette syndrome?
- Pehea i ʻike ʻia ai ka maʻi ʻo Tourette?
- Pehea e mālama ʻia ai ka maʻi Tourette?
- Lapaʻau kino
- Nā Lapaʻau
- Nā hana Neurological
- No ke aha he mea nui ke kākoʻo?
- He aha ka manaʻo lōʻihi?
He aha ka maʻi maʻi Tourette?
ʻO Tourette Syndrome kahi maʻi neurological. Kuhi ia i ka neʻe hou ʻana, ka neʻe ʻana o ke kino a me ka hū ʻana o ka leo. ʻAʻole ʻike ʻia ke kumu kūpono.
ʻO Tourette Syndrome kahi maʻi Tic Syndrome. ʻO nā tics nā spasms musele hoʻoikaika ʻole. Loaʻa lākou i nā twitches intermittent abrupt o kahi hui o nā mākala.
ʻO nā ʻano tics pinepine loa e pili ana:
- ʻālohilohi
- e honi ana
- ʻūhū
- ka hoʻomaʻemaʻe puʻu
- ʻūhū
- neʻe poʻohiwi
- neʻe poʻo
Wahi a ka National Institute of Neurological Disorder and Stroke (NINDS), ma kahi o 200,000 mau kānaka i ka United States i hōʻike i nā hōʻailona koʻikoʻi o Tourette Syndrome.
ʻO ka nui o 1 i 100 mau ʻAmelika i ʻike i nā ʻōuli māmā. Hoʻopili ka maʻi maʻi ma aneane ʻehā mau manawa ma mua o nā wahine.
He aha nā hōʻailona o Tourette Syndrome?
Hiki ke hoʻololi i nā ʻōuli mai kekahi kanaka a i kekahi. Kū pinepine lākou ma waena o nā makahiki o 3 a me 9 mau makahiki, e hoʻomaka ana me nā mākala liʻiliʻi o kou poʻo a i kou ʻāʻī. I ka hopena, ʻike ʻia nā tics ʻē aʻe i kāu pahu a me nā lālā.
ʻO ka poʻe i ʻike ʻia me ka maʻi maʻi Tourette he ʻelua mau motika a he leo kā kekahi.
Kūleʻa nā ʻōuli i nā wā o:
- pīhoihoi
- hoʻoluhi
- hopohopo
ʻOi loa lākou i kāu mau makahiki ʻōpio.
Hoʻokaʻawale ʻia nā Tics ma ke ʻano, e like me ka moto a i ʻole ka leo. Hoʻohui hou ʻia me nā tics maʻalahi a paʻakikī paha.
Hoʻokomo wale nā tics maʻalahi i hoʻokahi pūʻulu muscle a pōkole. Hoʻonohonoho ʻia nā tics paʻakikī i nā neʻe o nā neʻe a i ʻole nā leo e pili ana i nā pūʻulu muscle.
Nā kaʻa uila
Nā kaʻa uila maʻalahi | ʻO nā kaʻa kaʻa paʻakikī |
ʻālohilohi ka maka | honi a hoʻopā paha i nā mea |
kakaka maka | hana kolohe ʻana i nā hana |
kau i ke alelo i waho | kūlou a wili paha i kou kino |
mimilo ihu | e hehi ana i kekahi mau hiʻohiʻona |
neʻe waha | Lele aku ana |
poʻo poʻo | |
ʻūhā poʻohiwi |
Nā leo uila
Nā leo mele maʻalahi | Nā leo mele paʻakikī |
hiccupping | e hana hou nei i kāu mau ʻōlelo a i ʻole nā huaʻōlelo |
ʻūhū | hana hou ʻana i nā huaʻōlelo a haʻi ʻōlelo ʻē aʻe |
ʻūhā | me ka hoʻohana ʻana i nā huaʻōlelo pelapela a kolohe paha |
ka hoʻomaʻemaʻe puʻu | |
hae |
He aha ke kumu o Tourette syndrome?
ʻO Tourette kahi maʻi maʻi paʻakikī loa. Pili ia i nā mea kūpono ʻole i nā ʻāpana like ʻole o kou lolo a me nā kaʻa uila e hoʻopili iā lākou. Aia paha kahi mea maʻamau ʻole i kāu ganglia basal, ka ʻāpana o kou lolo e hāʻawi i ka kaohi ʻana i nā neʻe o ka kaʻa.
ʻO nā kemikū i kou lolo e hoʻoili i nā impulses nerve e pili pū paha. ʻIke ʻia kēia mau kemika ma ke ʻano he neurotransmitters.
Pākuʻi ʻia lākou:
- dopamine
- serotonin
- norepinephrine
I kēia manawa, ʻike ʻole ʻia ke kumu o Tourette, a ʻaʻohe ala e pale aku ai. Manaʻo nā kānaka noiʻi he hemahema kūpuna i hoʻoili ʻia ke kumu. Ke hana nei lākou e ʻike i nā gen kikoʻī e pili pono ana iā Tourette.
Eia naʻe, ua ʻike ʻia nā pūʻulu ʻohana. Alakaʻi kēia mau pūʻulu i nā kānaka noiʻi e manaʻoʻiʻo i ke kuleana o nā genetics i kekahi poʻe e ulu ana iā Tourette.
Pehea i ʻike ʻia ai ka maʻi ʻo Tourette?
E nīnau aku kāu kauka iā ʻoe e pili ana i kāu mau hōʻailona. Pono ka hōʻailona i hoʻokahi motika a hoʻokahi leo tic no ka liʻiliʻi o 1 makahiki.
Hoʻohālikelike paha kekahi mau ʻano iā Tourette, no laila hiki i kāu kauka olakino ke kauoha i nā noi kiʻi ʻana, e like me MRI, CT, a i ʻole EEG, akā ʻaʻole koi ʻia kēia mau ʻike kiʻi no ka hana ʻana i kahi hōʻailona.
Loaʻa nā kūlana ʻē aʻe i nā poʻe me Tourette, a me:
- ka maʻi hyperactivity deficit attention (ADHD)
- maʻi hōʻino obsessive-compulsive (OCD)
- kahi kīnā aʻo
- he hiamoe hiamoe
- he maʻi pīhoihoi
- nā maʻi maʻi
Pehea e mālama ʻia ai ka maʻi Tourette?
Inā ʻaʻole koʻikoʻi kāu tics, ʻaʻole pono ʻoe e lapaʻau. Inā kūpilikiʻi lākou a hoʻokū paha i nā manaʻo no ka hōʻeha ponoʻī, loaʻa i kekahi mau lapaʻau. Hiki paha i kāu kauka olakino ke koi aku i nā lāʻau lapaʻau inā hōʻeha kāu ʻano i kou wā makua.
Lapaʻau kino
Hiki i kāu kauka olakino ke koi aku i ka lāʻau hoʻomalu a psychotherapy paha. Pili kēia i ka ʻōlelo aʻoaʻo ʻākahi a me kahi loea olakino noʻonoʻo laikini.
Hana ʻia me ka behavioral therapy:
- hoʻomaʻamaʻa ʻike
- hoʻomaʻamaʻa pane hoʻomaʻamaʻa
- hana kuʻuna koina ʻike no nā tics
Hiki i kēia ʻano therapy ke hōʻoluʻolu i nā ʻōuli o:
- ADHD
- OCD
- hopohopo
Hiki i kāu mea hoʻoponopono ke hoʻohana i nā ʻano hana i ka wā psychotherapy.
- hypnosis
- nā hana hoʻomaha
- alakaʻi noʻonoʻo
- hoʻoikaika hanu hohonu
Hiki paha iā ʻoe ke ʻike he mea kōkua ke kōkua pūʻulu. E loaʻa ʻoe i nā ʻōlelo aʻoaʻo me nā poʻe ʻē aʻe i ka makahiki like like me ka maʻi maʻi Tourette.
Nā Lapaʻau
ʻAʻohe lāʻau i hiki ke hoʻōla iā Tourette Syndrome.
Eia nō naʻe, hiki i kāu kauka olakino ke kuhikuhi i hoʻokahi a ʻoi paha o nā lāʻau e hiki mai ana e kōkua iā ʻoe e hoʻokele i kāu mau ʻōuli.
- Haloperidol (Haldol), aripiprazole (Abilify), risperidone (Risperdal), a i ʻole nā lāʻau neuroleptic ʻē aʻe: Hiki i kēia mau lāʻau ke kōkua i ka pale ʻana a hōʻemi paha i nā mea loaʻa i ka dopamine i kou lolo a kōkua i ka mālama ʻana i kāu lekiō. Hiki i nā hopena āpau ke hoʻopili i ka loaʻa ʻana o ke kaupaona a me ka fogginess o ka noʻonoʻo.
- Onabotulinum toxin A (Botox): Hiki i nā hoʻopili Botox ke kōkua i ka mālama ʻana i nā kaʻa maʻalahi a me nā leo leo. ʻO kēia kahi hoʻohana inoa ʻole o ka onabotulinum toxin A.
- Methylphenidate (Ritalin): Hiki ke kōkua i nā lāʻau hoʻonāukiuki, e like me Ritalin, e hōʻemi i nā ʻōuli o ADHD me ka ʻole e hoʻonui i kāu ʻikena.
- Clonidine: ʻO Clonidine, kahi lāʻau lapaʻau koko, a me nā lāʻau like ʻē aʻe, hiki ke kōkua i ka hōʻemi ʻana i nā tics, ka mālama ʻana i nā hoʻouka huhū a kākoʻo i ka kaohi impulse. ʻO kēia kahi hoʻohana inoa inoa ʻole o ka clonidine.
- Topiramate (Topamax): Hiki ke kuhikuhi ʻia ʻo Topiramate e hōʻemi i nā tics. ʻO nā pōpilikia e pili pū ana i kēia lāʻau me nā pilikia noʻonoʻo a me ka ʻōlelo, somnolence, ka pohō kaumaha, a me nā pōhaku hakuʻala.
- Nā lāʻau i hoʻokumu ʻia i ka cannabis: Aia kekahi mau palena palena paʻa cannabinoid delta-9-tetrahydrocannabinol (dronabinol) hiki ke hoʻōki i nā tics i nā mākua. Aia kekahi mau palena palena palena ʻole e hōʻike ʻia no kekahi mau ʻano o ka pakalōlō lapaʻau. ʻAʻole pono e hāʻawi ʻia nā lāʻau i hiki i ka cannabis i nā keiki a me nā ʻōpio, a me nā wahine hāpai a hānai paha.
ʻO ka hoʻohana ʻana i ka lāʻau lapaʻau i hōʻailona ʻia ʻo ia ka lāʻau i ʻae ʻia e ka FDA no hoʻokahi kumu i hoʻohana ʻia no kahi kumu ʻē aʻe i ʻae ʻole ʻia. Eia nō naʻe, hiki i ke kauka ke hoʻohana i ka lāʻau no ia kumu.
ʻO kēia no ka mea hoʻoponopono ka FDA i ka hoʻāʻo a me ka ʻae ʻana o nā lāʻau, akā ʻaʻole pehea e hoʻohana ai nā kauka i nā lāʻau e mālama ai i kā lākou mau maʻi. No laila, hiki i kāu kauka ke kuhikuhi i kahi lāʻau akā manaʻo lākou ʻoi aku ka maikaʻi no kāu mālama.
Nā hana Neurological
ʻO ka hoʻonāukiuki ʻana o ka lolo hohonu kahi ʻano lapaʻau e loaʻa no ka poʻe me nā ʻano koʻikoʻi koʻikoʻi. No ka poʻe me Tourette Syndrome, ke nānā ʻia nei ka maikaʻi o kēia ʻano lapaʻau.
Hoʻokomo paha kāu kauka olakino i kahi mea hana uila i kāu lolo e hoʻonāukiuki i nā ʻāpana e kaohi i ka neʻe. ʻOkoʻa, hoʻokomo paha lākou i nā uea uila i kou lolo e hoʻouna i nā mea uila i kēlā mau wahi.
He mea maikaʻi kēia hana no ka poʻe i loaʻa nā tics i manaʻo ʻia he paʻakikī loa e mālama. Pono ʻoe e kamaʻilio me kāu kauka e aʻo e pili ana i nā pilikia a me nā pōmaikaʻi kūpono nāu a inā paha e holo pono kēia hana no kāu olakino.
No ke aha he mea nui ke kākoʻo?
ʻO ka noho ʻana me Tourette syndrome ke kumu o ka manaʻo o ka noho kaʻawale a kaʻawale. ʻO ka hiki ʻole ke hoʻokele i kāu huhū a me nā lekiʻi e hoʻonāukiuki paha iā ʻoe e komo i nā hana e ʻoliʻoli ai kekahi poʻe ʻē aʻe.
He mea nui ia e ʻike aia ke kākoʻo i loaʻa e kōkua iā ʻoe e hoʻokele i kāu ʻano.
Ke hoʻohana pono nei i nā kumuwaiwai i hiki ke kōkua iā ʻoe e kūʻē i ka maʻi maʻi Tourette. ʻO kahi laʻana, e kamaʻilio me kāu kauka e pili ana i nā pūʻulu kākoʻo kūloko. E makemake paha ʻoe e noʻonoʻo i ka hui pūʻulu.
Hiki i nā hui kākoʻo a me ka hui pūʻulu ke kōkua iā ʻoe e kūpale i ke kaumaha a me ka hoʻokaʻawale kaiapili.
ʻO ka hui ʻana a me ka hoʻokumu ʻana i kahi paʻa me ka poʻe i loaʻa ke ʻano like e hiki ke kōkua i ka hoʻomaikaʻi ʻana i ka manaʻo o ka mehameha. Hiki iā ʻoe ke hoʻolohe i kā lākou mau moʻolelo pilikino, me kā lākou lanakila a me nā hakakā, ʻoiai e loaʻa pū ana nā ʻōlelo aʻoaʻo e hiki ai iā ʻoe ke hoʻohui i kou ola.
Inā hele ʻoe i kahi hui kākoʻo, akā manaʻo ʻoe ʻaʻole ia he hoʻokūkū kūpono, mai hoʻonāwaliwali. Hele paha ʻoe i nā hui like ʻole a ʻike ʻoe i ka mea kūpono.
Inā he mea aloha kāu e noho nei me Tourette syndrome, hiki iā ʻoe ke komo i kahi hui kākoʻo ʻohana a aʻo hou e pili ana i ke ʻano. ʻO ka nui o kou ʻike e pili ana iā Tourette, ʻo ka nui o kāu hiki ke kōkua i kāu mea aloha e kū.
Hiki i ka Tourette Association of America (TAA) ke kōkua iā ʻoe e ʻike i ke kākoʻo kūloko.
Ma ke ʻano he makua, he mea nui ia e kākoʻo a lilo i mea kākoʻo no kāu keiki, hiki ke hoʻopili ʻia me ka hoʻomaopopo ʻana i kā lākou kumu i ke kūlana.
Hoʻoweliweli ʻia paha kekahi mau keiki me Tourette Syndrome e kā lākou mau hoa. Hiki i nā mea aʻo ke hana nui i ke kōkua ʻana i nā haumāna ʻē aʻe e hoʻomaopopo i ke kūlana o kāu keiki, a he mea hoʻi ia e pau ai ka hana hoʻomāinoino a me ka hoʻomāʻewaʻewa.
Hiki i nā Tics a me nā hana hana ʻole ke hoʻohoka i kāu keiki mai ka hana kula. E kamaʻilio i ke kula o kāu keiki e pili ana i ka ʻae ʻana iā lākou i ka manawa keu e hoʻopau i nā hoʻokolohua a me nā loiloi.
He aha ka manaʻo lōʻihi?
E like me nā poʻe me ka maʻi maʻi Tourette, ʻike paha ʻoe e hoʻomaikaʻi ana kāu ʻano i kou mau makahiki ʻōpio a 20 mau makahiki. Hiki paha i kāu mau ʻōuli ke kū mālie a ma ke ʻano makua.
Eia nō naʻe, inā e hōʻemi kāu mau hōʻailona Tourette me ka makahiki, hiki iā ʻoe ke hoʻomau i ka ʻike a pono i ka lāʻau no nā ʻano pili, e like me ke kaumaha, ka weliweli weliweli, a me ka hopohopo.
He mea nui e hoʻomanaʻo ʻo Tourette Syndrome kahi ʻano olakino e hoʻopili ʻole i kou ʻike a i ʻole ke ola o ke ola.
Me nā holomua i ka mālama ʻana, i kāu hui mālama ola, a me ke komo i ke kākoʻo a me nā kumuwaiwai, hiki iā ʻoe ke hoʻokele i kāu mau hōʻailona, i hiki ke kōkua iā ʻoe e ola i kahi ola hoʻokō.