Nā mea 6 i aʻo ʻia i koʻu makahiki mua me MS

Anter

• 1. ʻAʻohe hewa o MS
• 2. ʻOi aku ka paʻakikī ma mua o kaʻu i manaʻo ai
• 3. Ma ka ʻaoʻao ʻē aʻe, ua maikaʻi nā heheʻe
• 4. He loea ka poʻe āpau
• 5. Ke koʻikoʻi o ka ʻohana
• 6. ʻAʻole pili nā mea āpau iā MS
• Lawe aku

I ka ʻumikūmāhiku makahiki aku nei, ua loaʻa iaʻu ka hōʻailona o ka sclerosis maha (MS). No ka hapa nui, manaʻo wau he maikaʻi loa wau i ka loaʻa ʻana o MS. He hana paʻakikī a lousy ka uku, akā mālama wau i ka mea e pono ai ke hoʻokele. Hele wau me ia, a kaʻana like wau i kaʻu mau ʻike ma kaʻu blog, Tripping On Air.

ʻAʻole naʻe wau he luna nui me MS, ʻoiai. I ka manawa i ʻike mua ʻia ai au, makaʻu wau. Ke hoʻomaka nei wau i ke ola, a ua ʻike ʻia kaʻu kuhi e like me kaʻu mau wā e hiki mai ana i kiola ʻia.

ʻO ka makahiki ma hope o ka hōʻailona hiki ke lilo i mea paʻakikī loa i kou ola. Ua aʻo wau i nā mea he nui i kēlā manawa, a ʻo ʻoe kekahi kekahi.

Eia nā mea ʻeono aʻu i aʻo ai i ka makahiki mua ma hope o kaʻu kuhi.

1. ʻAʻohe hewa o MS

He kūlohelohe ke kanaka e makemake e ʻike i ke kumu o ka hana. ʻAʻole hiki iā mākou ke kōkua.

ʻO kaʻu MS hōʻailona mua ke kuʻi nei i ka ʻeha o ka maka i ʻike ʻia ma hope he neuritis optic. Ua ʻike ʻia hoʻokahi pule ma hope o koʻu hala ʻana i kahi pō Halloween e inu nui ana i ka waina me kaʻu mau ipo wahine, ke kīloi ʻana i nā kilokilo ʻana, a me ka hana ʻana i nā moʻo leʻaleʻa.

No kekahi manawa lōʻihi, ua hōʻoiaʻiʻo wau iaʻu iho ua kono ka waina ʻulaʻula a me nā daimonio iā MS i loko o koʻu ola. ʻAʻole maopopo iā mākou ke kumu o MS, akā palekana ka ʻōlelo ʻana ʻaʻole kilokilo kēlā.

ʻAʻole i loaʻa iā ʻoe ʻo MS mai ka hiamoe ʻana a i ʻole ʻaʻole kuʻi ikaika ʻana i ka hale hoʻoikaika kino. ʻAʻole i loaʻa iā ʻoe ʻo MS no ka mea poina iā ʻoe ke floss a ʻai paha ʻoe i ke kanakē no ka ʻaina kakahiaka. ʻAʻole ʻo MS ka hopena o kēlā me kēia ʻano maʻamau āu e kuʻi nei iā ʻoe iho. Hana ʻo MS ʻaʻole ia ou ka hewa.

2. ʻOi aku ka paʻakikī ma mua o kaʻu i manaʻo ai

ʻO ka lāʻau lapaʻau mua aʻu i kuhikuhi ʻia ai he injection - he injection ka mea aʻu e hāʻawi ai iaʻu iho. ʻO koʻu manaʻo wale nō, ʻaʻole, ʻoi a mau. ʻAʻole hiki iaʻu ke noʻonoʻo e hiki iaʻu ke kū i nā injection i kēlā me kēia lā, waiho wale iā lākou iaʻu iho.

Hāʻawi koʻu makuahine iaʻu i kaʻu mau nila no ka mahina mua. Akā i kekahi lā, ua hoʻoholo wau makemake wau i koʻu kūʻokoʻa.

ʻO ka puhi ʻana i kahi mea hoʻopili auto i loko o koʻu wāwae no ka manawa mua weliweli, akā ua hana wau. A i ka manawa hou aʻu e hana ai, ua maʻalahi. Ua maʻalahi ka hoʻomaʻemaʻe ʻana o kaʻu mau injection, a hiki i ka hāʻawi ʻana iaʻu iho i kahi nila no ka mea lilo ʻole i mea nui.

3. Ma ka ʻaoʻao ʻē aʻe, ua maikaʻi nā heheʻe

ʻOiai wau e ʻike nei hiki iaʻu ke hana i nā mea paʻakikī, ʻike wau i kekahi manawa i kuʻu wā ʻia i ka papahele ʻauʻau, e uē ana i koʻu mau maka. Ua hoʻokau wau i kahi kaomi nui iaʻu iho e kau i ka helehelena koa no nā poʻe ʻē aʻe, akā maʻamau ka freak i waho.

He olakino ke kaumaha i ka mea āu e hele nei. Akā inā e hakakā nei ʻoe, he mea maikaʻi e noi i ke kōkua. E kamaʻilio me kāu kauka e loaʻa nā ʻōlelo aʻoaʻo no nā ʻoihana olakino hiki ke kōkua iā ʻoe.

4. He loea ka poʻe āpau

Ma hope o kaʻu hōʻoia ʻana, me he mea lā he manaʻo kā kēlā me kēia kanaka ʻike ʻole iaʻu he MS. E haʻi lākou iaʻu e pili ana i ka haku makuahine o ko lākou kaikuahine hoaloha o ka mea i loaʻa iā MS, akā ua hoʻōla ʻia me kahi papa hana mana, exotic exotic, a i ʻole ka loli nohona.

ʻO ka ʻōlelo aʻoi ʻole i noi ʻia i manaʻo nui ʻia, akā ʻike ʻole ʻia. E hoʻomanaʻo, aia kāu mau hoʻoholo lapaʻau ma waena ou a me kāu kauka. Inā maikaʻi ʻole ke kani, ʻoiaʻiʻo paha.

5. Ke koʻikoʻi o ka ʻohana

Ma hope o kaʻu kuhi, ua kikoʻi wau i ka poʻe e hele ana i nā ʻano like o nā mea i kēlā manawa. Ma mua o ka maʻalahi o ka loaʻa ʻana o nā pūʻulu ma ka pūnaewele, akā ua hiki iaʻu ke hoʻohui me nā poʻe ʻē aʻe e like me aʻu iho ma o ka National MS Society a ma o nā hoa aloha pū kekahi. Ua hana wau i nā pilina me nā wahine ʻōpio me MS e noho ana ma ka pae ola like me aʻu, e hoʻāʻo nei e ʻike i nā mea e like me ka launa pū ʻana a me ka hoʻomaka ʻana i ka ʻoihana.

ʻUmikūmāhiku makahiki ma hope, pili mau wau me kēia mau wahine. ʻIke wau hiki iaʻu ke kāhea a leka uila iā lākou i nā manawa āpau e pono ai wau e kīkiʻi a kaʻana like i ka ʻike, a e loaʻa iā lākou ma ke ala e hiki ʻole ai i kekahi mea ʻē aʻe. ʻIke ʻia ka waiwai, a ma ke kōkua ʻana i kekahi i kekahi, hiki iā ʻoe ke kōkua iā ʻoe iho.

6. ʻAʻole pili nā mea āpau iā MS

Aia kekahi mau lā ke manaʻo wau ʻaʻole wau e noʻonoʻo e pili ana iā MS. I kēia mau lā, pono wau e hoʻomanaʻo iaʻu iho ua ʻoi aku wau ma mua o kaʻu hōʻailona - ʻoi loa aku.

Ke hoʻoponopono nei i kahi maʻamau maʻamau a me kahi ala hou hou pehea ʻoe i manaʻo ai e nānā ana i kou ola hiki ke luhi, akā ʻo ʻoe nō ia. He pilikia ʻo MS e pono ai e hana pū, no laila e nānā pono i kāu MS. Akā e hoʻomanaʻo mau ʻaʻole ʻoe i kāu MS.

Lawe aku

I koʻu makahiki mua me MS, ua aʻo nui wau e pili ana i ke ʻano o ka noho ʻana me nā maʻi maʻi mau. Ua aʻo pū wau i nā mea he nui e pili ana iaʻu iho. ʻOi aku koʻu ikaika ma mua o kaʻu i manaʻo ai he hiki. I nā makahiki mai koʻu kuhi, ua aʻo wau hiki i ka MS ke hana i ke ola paʻakikī, akā ʻaʻole kahi ola paʻakikī kahi ola kaumaha.

ʻO Ardra Shephard ka mea kākau moʻolelo koʻikoʻi Kanada ma hope o ka blog lanakila Tripping On Air - ka mea nāna i mālama ʻole e pili ana i kona ola me ka sclerosis maha. He kākā'ōlelo script ʻo Ardra no ka pūʻulu kīwī o AMI e pili ana i ka pili a me ke kīnā ʻole, "Aia kekahi mea āu e ʻike ai," a ua hōʻike ʻia ma Sickboy Podcast. Ua kōkua ʻo Ardra i ka msconnection.org, The Mighty, xojane, Yahoo Lifestyle, a me nā mea ʻē aʻe. I ka 2019, ʻo ia ka mea haʻi ʻōlelo nui ma ka MS Foundation o ka Cayman Islands.E hāhai iā ia ma Instagram, Facebook, a i ʻole hashtag #babeswithmobilityaids e hoʻoulu ʻia e ka poʻe e hana ana e hoʻololi i ka ʻike i ke ʻano o ka noho ʻana me ke kīnā ʻole.