9 Nīnau e nīnau i kāu kauka e pili ana i kāu ʻōuli nui Tenosynovial Giant Cell Tumor (TGCT)
Anter
- 1. Manaʻoʻiʻo ʻoe ʻo ia kaʻu mau hōʻailona ʻo TGCT?
- 2. No ke aha e pehu ai kuʻu hui?
- 3. E ulu mau anei koʻu tumo?
- 4. E hele a māhuahua paha koʻu mau ʻōuli?
- 5. He aha ke ʻano o ka TGCT iaʻu?
- 6. Hiki i ka tumo ke pāhola i nā ʻāpana ʻē aʻe o koʻu kino?
- 7. Pono e mālama koke ʻia kaʻu mau ʻōuli?
- 8. Pehea ʻoe e mālama ai iaʻu?
- 9. Pehea e hiki ai iaʻu ke mālama i kaʻu mau ʻōuli i kēia manawa?
- Lawe aku
Ua hele ʻoe i kāu kauka no ka pilikia pili like a ʻike ʻoe he tenosynovial giant cell tum (TGCT) ʻoe. He mea hou paha kēia ʻōlelo iā ʻoe, a i ka lohe ʻana ua hopu paha ʻoe iā ʻoe.
Ke hāʻawi ʻia ʻoe i kahi hōʻailona, makemake ʻoe e aʻo e like me ka hiki iā ʻoe e pili ana i ka maʻi a pehea e hopena ai i kou ola. I kāu kipa hou ʻana, makemake ʻoe e nīnau i nā nīnau kikoʻī e pili ana i kāu mau hōʻailona.
Eia nā nīnau ʻeiwa e kōkua iā ʻoe e hoʻomaopopo i kāu mau ʻōuli a me ke ʻano o lākou no kāu mālama ʻana.
1. Manaʻoʻiʻo ʻoe ʻo ia kaʻu mau hōʻailona ʻo TGCT?
ʻAʻole ʻo TGCT wale nō ka maʻi e kumu i ka pehu, ʻeha, a me ka ʻoʻoleʻa o nā hono. Hiki i ka Arthrit ke hana i kēia mau hōʻailona. A ʻo ka TGCT i hoʻomaʻamaʻa ʻole ʻia hiki ke alakaʻi i ka maʻi kōkō i ka manawa.
Hiki i nā hoʻokolohua kiʻi ke kōkua i kāu kauka e haʻi i ka ʻokoʻa. I ka maʻi kōkō, e ʻike ana kāu kauka i ka hoʻopili ʻana i kahi ākea ma kahi X-ray. E hōʻike ka hōʻike like i ka pohō o ka iwi a me ka cartilage i ka hui me TGCT.
ʻO ke kiʻi resonance ʻume mākenēki (MRI) kahi ala kikoʻī loa e hoʻokaʻawale ma waena o nā kūlana ʻelua. E hōʻike kahi MRI i nā loli i ke kū hoʻokahi i TGCT.
Inā ua hōʻoia ʻia ʻoe me TGCT, akā ʻaʻole ʻoe e hilinaʻi ʻo ia ka mea āu, e ʻike i kahi kauka ʻē aʻe no ka manaʻo ʻelua.
2. No ke aha e pehu ai kuʻu hui?
ʻO ka ʻōhū mai nā hunaola ʻōpala e hui pū ʻia i ka uhi o kou hui, a i ʻole synovium. I ka hoʻonui ʻana o nā hunaola, hana lākou i nā ulu ulu i kapa ʻia he tumors.
3. E ulu mau anei koʻu tumo?
E ulu maʻamau ʻo TGCT, akā ulu aʻe kekahi mau ʻano ma mua o nā mea ʻē aʻe. ʻO ka villovodular synovitis pigmented (PVNS) hiki ke hoʻokau ʻia a hoʻolaha ʻia paha. Pane maikaʻi ka palapala localized i ka lapaʻau. Eia nō naʻe, hiki i ka diffuse form ke ulu wikiwiki a paʻakikī e mālama.
ʻO ka tumo pūnaewele nui o ka sheet tendon (GCTTS) kahi ʻano kūloko o ka maʻi. E ulu lohi ka ulu ʻana.
4. E hele a māhuahua paha koʻu mau ʻōuli?
Hiki iā lākou. Hoʻomaka ka hapa nui o ka poʻe me ka pehu. Ke ulu nei ka tumo, kaomi ia i nā hale kokoke, a hiki ke hana i ka ʻeha, ʻoʻoleʻa, a me nā ʻōuli ʻē aʻe.
5. He aha ke ʻano o ka TGCT iaʻu?
ʻAʻole hoʻokahi o maʻi ʻo TGCT, akā ʻo kahi hui o nā kūlana pili. Loaʻa i kēlā me kēia ʻano nā ʻano o nā ʻōuli.
Inā pehu kou kuli a me kou uha, hiki iā ʻoe ke loaʻa iā PVNS. Hiki i kēia ʻano ke hoʻopili i nā hono e like me ka poʻohiwi, kuʻe lima, a me nā kuʻekuʻe wāwae.
ʻO ka ulu ʻana o nā ami liʻiliʻi e like me kou mau lima a me kou mau wāwae e ʻoi aku paha ma GCTTS. ʻO ka pinepine ʻaʻole ʻoe e ʻeha me ka pehu.
6. Hiki i ka tumo ke pāhola i nā ʻāpana ʻē aʻe o koʻu kino?
ʻAʻole paha. ʻAʻole ʻo ka maʻi ʻaʻai ʻo TGCT, no laila ʻaʻole ulu nā tumors ma ʻō aku o ka ami kahi i hoʻomaka ai. ʻAkahi wale nō a lilo kēia ʻano i maʻi ʻaʻai.
7. Pono e mālama koke ʻia kaʻu mau ʻōuli?
Ulu wikiwiki kekahi ʻano o ka TGCT ma mua o kekahi. Hiki i ka PVNS ke ulu koke a hōʻino i ka cartilage a me ka iwi a puni ia, e alakaʻi ana i ka maʻi kō. Hiki iā ia ke haʻalele i kāu hui i kīnā paʻa inā ʻaʻole ʻoe e mālama i ka lāʻau.
Lohi mālie ʻo GCTTS, a emi iki ka pōʻino i kou mau ami. Ma hope o ke kūkā kamaʻilio me kāu kauka, hiki paha iā ʻoe ke kali e mālama iā ia inā ʻaʻole pilikia nā ʻōuli iā ʻoe.
8. Pehea ʻoe e mālama ai iaʻu?
ʻO ka lapaʻau nui no ka TGCT ka ʻoki kino e hemo i ka tumo a i ʻino hoʻi ka ʻāpana o ka synovium i ka hui. Hiki ke hana i ke kaha ma o kahi ākea ākea (hāmama keʻoki) a i ʻole nā ʻoki liʻiliʻi (arthroscopy). Inā hōʻinoʻino kahi hui, pono paha ia e pani āpau.
9. Pehea e hiki ai iaʻu ke mālama i kaʻu mau ʻōuli i kēia manawa?
ʻO ke hoʻopaʻa ʻana i kahi ʻeke hau i ka hui ke kōkua paha me ka ʻeha a me ka pehu. ʻO kahi lāʻau lapaʻau anti-inflammatory nonsteroidal over-the-counter (OTC) (NSAID) e like me ibuprofen (Advil, Motrin) a i ʻole naproxen (Aleve) hiki ke kōkua pū me ka ʻeha a me ka pehu.
I mea e kaomi ai i kahi ami ʻeha, hoʻomaha ia. E hoʻohana i nā koʻokoʻo a i kahi kōkua ʻē aʻe ke hele ʻoe.
He mea nui ka hoʻoikaika kino i mea e pale ai i ka hui ʻana mai ka wī ʻana a nāwaliwali paha. E nīnau i kāu kauka inā kūpono paha iā ʻoe kahi papahana hoʻoikaika kino.
Lawe aku
ʻO ka loaʻa ʻana o kahi maʻi me kahi maʻi laha ʻole e like me TGCT hiki ke lilo i mea kaumaha. Pono paha ʻoe i kahi manawa e hoʻoponopono ai i nā mea āpau a kāu kauka i haʻi aku ai iā ʻoe.
E hilinaʻi nui aʻe ʻoe inā maopopo ʻoe iā TGCT. E heluhelu e pili ana i ke ʻano, a nīnau i kāu kauka i nā nīnau he nui e pili ana i ka mālama ʻana i kāu kipa aʻe.