ʻO Cystic Fibrosis a me ka hāpai keiki

Anter

• Nā hopena i ka hāpai ʻana
• Ke hoʻāʻo nei i ka wā hāpai
• Nā ʻōlelo aʻoaʻo a ke ola
• ʻAi kūpono
• Hoʻoikaika kino
• Nā ʻōlelo aʻoaʻo ʻē aʻe e hōʻoia i ka hāpai hāpai olakino
• Nā lāʻau e hōʻalo ai i ka wā hāpai
• Nā ʻōlelo aʻoaʻo no ka hāpai ʻana me ka fibrosis cystic
• Lawe aku

Ke loaʻa iā ʻoe ka cystic fibrosis, hiki nō ke hāpai a hāpai i kahi pēpē a hiki i ka manawa. Eia nō naʻe, pono ʻoe e kiaʻi pono ʻia i loko o kēia mau mahina eiwa e hōʻoia i ka olakino o ʻolua a me kāu keiki hoʻi.

E hāʻawi iā ʻoe iho i ka manawa kūpono loa loa o ka hoʻokō ʻana i kahi hāpai hāpai kūleʻa, e ʻike i kahi obstetrician kūlana kiʻekiʻe ma mua o kou hoʻāʻo ʻana e hāpai.

Na kēia loea e:

• loiloi i kou olakino
• e hoʻoholo inā palekana iā ʻoe e hāpai
• alakaʻi iā ʻoe ma ka hāpai ʻana

E hana pū ʻoe me ka pulmonologist nāna e mālama i kāu cystic fibrosis ma loko o kou hāpai ʻana.

Eia kahi preview o ka mea e kali ai ke hoʻomaka ʻoe e hoʻolālā i kahi ʻohana.

Nā hopena i ka hāpai ʻana

I ka wā o ka hāpai ʻana, e ʻoi aku paha ka maikaʻi o kāu ʻōuli cystic fibrosis. Hiki i ke pēpē ulu ke hoʻokau i kou mau māmā a paʻakikī e hanu. ʻO ka constipation ka mea maʻamau i nā wahine me ka cystic fibrosis.

ʻO nā pilikia cystic fibrosis hāpai hāpai pū kekahi:

• Lawe hānau ma mua. ʻO kēia ka manawa i hānau ʻia kāu pēpē ma mua o ka hebedoma 37th o ka hāpai keiki. ʻO nā pēpē i hānau mua ʻia aia i ka makaʻu i nā pilikia e like me nā pilikia hanu a me nā maʻi.
• ʻO ka maʻi diabetes Gestational. ʻO kēia ke kiʻekiʻe o ke kō i ke kō i ka wā hāpai. Hiki i ka maʻi diabetes ke hōʻino i nā ʻāpana e like me nā puʻupaʻa a me nā maka. Hiki iā ia ke kumu i nā pilikia i ka pēpē ulu.
• Ke koko kiʻekiʻe (hypertension). Hoʻonui ʻia kēia kūpaʻa ma muli o ke kō ʻole o nā kīʻaha koko. Ke kiʻekiʻe ke kiʻekiʻe o ke koko i ka wā hāpai, hiki iā ia ke hōʻemi i ke kahe o ke koko i kāu pēpē, hoʻolohi i ka ulu ʻana o kāu pēpē, a alakaʻi i ka hānau mua.
• Kaʻai kūpono ʻole. Hiki i kēia ke pale i kāu pēpē mai ka ulu lawa ʻana i ka ʻōpū.

Ke hoʻāʻo nei i ka wā hāpai

Aia kahi manawa hiki iā ʻoe ke hele i ka cystic fibrosis i kāu pēpē. No ka mea e hiki mai ana, pono i kāu pakanā e halihali i ka ʻāpana ʻokoʻa. Hiki i kāu hoapili ke kiʻi i kahi hoʻāʻo koko a kuha paha ma mua o kou hāpai ʻana e nānā i kona kūlana lawe.

I ka wā o ka hāpai ʻana, nānā kēia mau hōʻike prenatal ʻelua no ka hoʻololi pinepine ʻana o ka ʻaoʻao. Hiki iā lākou ke hōʻike inā loaʻa paha i kāu pēpē fibrosis cystic a i ʻole hāpai i kekahi o nā mutations ʻē aʻe i ʻike ʻia e kumu i ka fibrosis cystic:

• Hana ʻia ʻo Chorionic villus sampling (CVS) ma waena o ka 10 a 13 mau pule o ka hāpai ʻana. E hoʻokomo kāu kauka i kahi kui kele lōʻihi a lahilahi i loko o kou ʻōpū a hemo i kahi laʻana o nā mea no ka hoʻāʻo ʻana ʻOkoʻa, hiki i ke kauka ke lawe i kahi laʻana me ka hoʻohana ʻana i ka paipu lahilahi i kau ʻia i loko o kou cervix a me ka omo mālie.
• Hana ʻia ka amniocentesis ma waena o ka 15th a me ka 20 mau pule o kou hāpai ʻana. Hoʻokomo ke kauka i kahi nila keleawe lahilahi i loko o kou ʻōpū a hemo i kahi laʻana o ka wai amniotic mai kāu pēpē. A laila ho'āʻo kahi lab i ka wai no cystic fibrosis.

Hiki ke uku ʻia kēia mau hōʻike prenatal i kekahi mau kaukani kālā, ke kaukaʻi ʻia i kahi i hana ai ʻoe iā lākou. ʻO ka hapa nui o nā hoʻolālā ʻinikua e uhi i ke kumukūʻai no nā wahine ma mua o 35 mau makahiki a no nā wahine me nā pilikia ʻike.

Ke ʻike ʻoe inā he cystic fibrosis kāu pēpē, hiki iā ʻoe ke hoʻoholo i nā mea e pili ana i ka wā e hiki mai ana o kou hāpai ʻana.

Nā ʻōlelo aʻoaʻo a ke ola

ʻO kahi liʻiliʻi o ka hoʻolālā a me ka mālama hou ʻana i kou wā hāpai e kōkua i ka hōʻoia ʻana i ka hopena maikaʻi loa nāu a me kāu pēpē. Eia kekahi mau mea hiki iā ʻoe ke hana.

ʻAi kūpono

ʻOi aku ka paʻakikī o ka Cystic fibrosis i ka loaʻa ʻana o ka meaʻai kūpono i ka wā hāpai. Ke ʻai nei ʻoe no ʻelua, ʻoi aku ka nui o ke koʻikoʻi e loaʻa iā ʻoe ka nui o nā calories a me nā meaola.

Hiki paha i kāu kauka ke koi aku e hoʻomaka i kou hāpai ʻana me ka papa kuhikuhi o ka nui o ke kino (BMI) o ka liʻiliʻi 22. Inā ʻoi aku ka haʻahaʻa o kāu BMI ma mua o kēlā, pono paha ʻoe e hoʻonui i kāu loaʻa o ka calorie ma mua o kou hāpai ʻana.

Ke hāpai ʻoe, pono ʻoe i kahi 300 calories keu i kēlā me kēia lā. Inā ʻaʻole hiki iā ʻoe ke hōʻea i kēlā helu me ka meaʻai wale nō, inu i nā mea hoʻopili pono.

I kekahi manawa hiki i ka maʻi kakahiaka nui a i ʻole cystic fibrosis ke pale iā ʻoe mai ka loaʻa ʻana o ka nui o nā calories e kū ai i nā pono o kāu pēpē. I kēia hihia, manaʻo paha kāu kauka e kiʻi i kāu meaʻai me ka intravenously. Kapa ʻia kēia he meaʻai makua.

Eia kekahi mau ʻōlelo aʻoaʻo ʻē aʻe e ukali ai i kou wā hāpai.

• Inu nui i ka wai, ʻai i nā hua a me nā mea kanu, a hoʻonui i ka fiber i kāu papaʻai e pale ai i ka paʻa paʻa.
• E ʻike pono i ka lawa ʻana o ka waikawa folic, ka hao, a me ka wikamina D. Pono kēia mau meaola i ka ulu ʻana o kāu pēpē. I kekahi manawa ʻaʻole lawa ka poʻe me ka cystic fibrosis iā lākou.

Hoʻoikaika kino

He mea nui ka hoʻoikaika kino ʻana i kou kino i ke ʻano no ka lawe ʻana a mālama i kou māmā i ke olakino. Hiki i kāu kauka ke koi iā ʻoe e hana i nā hana kūikawā e hoʻoikaika i nā mākala e kōkua iā ʻoe e hanu. E hōʻoia me kāu kauka i mua o ka palekana o nā hana āu e hana nei.

Eia kekahi, e nīnau i ke kākāʻai ma mua o kou hoʻomaka ʻana i kahi papahana hoʻoikaika kino hou. Pono ʻoe i ka meaʻai pono e kākoʻo i kāu koi koi hoʻonui ʻia.

Nā ʻōlelo aʻoaʻo ʻē aʻe e hōʻoia i ka hāpai hāpai olakino

E ʻike pinepine i kāu kauka. E hoʻolālā i nā kipa prenatal maʻamau me kāu kauka hānau kiʻekiʻe, akā e hoʻomau i ka ʻike i ke kauka nāna e mālama i kāu cystic fibrosis.

Nānā i kou olakino. E hoʻomau i nā kūlana e like me ka maʻi diabetes a me nā maʻi o ke ake, inā loaʻa iā ʻoe. Hiki i kēia mau maʻi ke hoʻonā i nā pilikia o ka hāpai inā ʻaʻole ʻoe e mālama iā lākou.

Noho i kāu mau lāʻau. Inā ʻaʻole i haʻi kikoʻī kāu kauka iā ʻoe e hōʻoki i kahi lāʻau i ka wā hāpai, lawe pinepine ia e mālama i kāu cystic fibrosis.

Nā lāʻau e hōʻalo ai i ka wā hāpai

ʻO ka lāʻau ka mea pono e mālama ai i ka cystic fibrosis. ʻO ka nūhou maikaʻi, ʻo ka hapa nui o nā lāʻau e mālama i ke ʻano e manaʻo ʻia he palekana no kāu pēpē.

Eia nō naʻe, aia kekahi mau lāʻau e pono ai ʻoe e hoʻohana me ka akahele. Aia kahi manawa liʻiliʻi hiki iā lākou ke hoʻonui i ka makaʻu o nā hānau hānau a i ʻole nā ​​pilikia ʻē aʻe i kāu pēpē i hānau ʻole ʻia. Nā lāʻau e nānā ai:

• antibiotics like ciprofloxacin (Cipro), clarithromycin, colistin, doxycycline (Oracea, Targadox), gentamicin (Gentak), imipenem (Primaxin IV), meropenem (Merrem), metronidazole (MetroCream, Noritate), rifampin (Rifadinole (trimetximole) Bactrim), vancomycin (Vancocin)
• nā lāʻau antifungal e like me fluconazole (Diflucan), ganciclovir (Zirgan), itraconazole (Sporanox), posaconazole (Noxafil), voriconazole (Vfend)
• nā lāʻau antiviral e like me acyclovir (Zovirax)
• bisphosphonates e hoʻoikaika i nā iwi
• cystic fibrosis lāʻau e like me ivacaftor (Kalydeco) a me lumacaftor / ivacaftor (Orkambi)
• ranitidine (Zantac) e mālama i ka puʻuwai puʻuwai a me ka reflux gastroesophageal
• transplant nā lāʻau e pale ai i ka hōʻole ʻana, e like me azathioprine (Azasan), mycophenolate
• ursodiol (URSO Forte, URSO 250) e hoʻonā i nā gallstones

E kamaʻilio me kāu kauka inā lawe ʻoe i kekahi o kēia mau lāʻau. Pono ʻoe e kaupaona i nā pono a me nā pilikia o ka noho ʻana ma nā lāʻau āpau i hiki ke hoʻopilikia i nā wā hāpai. Hiki paha i kāu kauka ke hoʻololi iā ʻoe i kahi lāʻau ʻē aʻe a hiki i kou lawe ʻana.

Nā ʻōlelo aʻoaʻo no ka hāpai ʻana me ka fibrosis cystic

ʻO ka hapa nui o nā wahine me kēia ʻano hiki ke hāpai, akā hiki ke lōʻihi iki aʻe ma mua o ka maʻamau. Mānoanoa ʻo Cystic fibrosis i ka huhū ma loko o ke kino - me ka mucus i loko o ka cervix. ʻOi aku ka paʻakikī o ka mucus mānoanoa no ka sperm a ke kāne e ʻauʻau ai i ka cervix a hoʻomomona i kahi hua manu.

Hiki i nā hemahema Nutritional ke pale iā ʻoe mai ka ovulate pinepine ʻana. I kēlā me kēia manawa ke ovulate ʻoe, hoʻokuʻu kāu ovary i kahi hua manu no ka momona. Me ka ʻole o kahi hua manu i kēlā me kēia mahina, ʻaʻole hiki iā ʻoe ke hāpai maʻalahi.

Inā ua hoʻāʻo ʻoe no kekahi mau mahina e hāpai ai, akā ʻaʻole ʻoe i kūleʻa, e kamaʻilio me kahi loea hānau. Nā lāʻau e hoʻonui ai i kāu hana hua manu a i ʻole nā ​​ʻenehana hanauna hānau e like me ka fertilization in-vitro hiki ke hoʻomaikaʻi i kou manawa e hāpai ai.

Loaʻa nā kāne me ka cystic fibrosis a i ʻole keʻaʻa i ka paipu e halihali ana i ka sperm mai ka testicle i ka urethra no ka ejaculation. Ma muli o kēia, ʻaʻole hiki i ka hapanui ke hāpai kūlohelohe.

Pono lākou a me kā lākou hoa i ka IVF e hāpai ai. I ka wā o IVF, wehe ke kauka i kahi hua manu mai ka wahine a me ka sperm mai ke kāne, hoʻohui iā lākou i loko o kahi pā hale hana, a hoʻoili i ka embryo i loko o ka kōpū o ka wahine.

Ma mua o kou hoʻomaka ʻana iā IVF, e kamaʻilio me ke kauka nāna e mālama i kāu cystic fibrosis. Hiki paha iā ʻoe ke hoʻoponopono i kāu mālama ʻana, no ka mea hiki i ka cystic fibrosis ke hoʻopili i ka lawe ʻia ʻana o nā hormona e pono ai no IVF.

Lawe aku

ʻAʻole pono ka loaʻa ʻana o ka cystic fibrosis iā ʻoe mai ka hoʻomaka ʻana i kahi ʻohana. Lawe paha i ka hāpai ʻana i kahi hoʻomākaukau hou a mālama.

I ka manawa e hāpai ai ʻoe, e hana pū me nā mea hānau kiʻekiʻe ʻelua a me ke kauka nāna e mālama i kāu fibrosis cystic. Pono ʻoe e mālama pono i loko o kou hāpai ʻana e hōʻoia i ka hopena maikaʻi loa nāu me kāu pēpē.