9 Nā mea Kaulana me Lupus

Anter

• Wehewehe ʻia Lupus
• 1. Selena Gomez
• 2. ʻO Lady Gaga
• 3. ʻO Toni Braxton
• 4. ʻO Nick Cannon
• 5. Sila
• 6. Kristen Johnston
• 7. Pāpā Pāpā
• 8. Shannon Boxx
• 9. Maurissa Tancharoen

Wehewehe ʻia Lupus

ʻO ka Lupus kahi maʻi autoimmune e kumu i ka hoʻowahāwahā ʻana i nā mea like ʻole. Hiki ke kau ʻia nā ʻōuli mai ke akahai a i ke koʻikoʻi a i ʻole ke kūlike ʻole i ka mea o kēlā me kēia. ʻO nā ʻōuli maʻamau o ke kakahiaka e komo pū me:

• luhi
• fiva
• ʻoʻoleʻa hui pū
• huʻi ʻili
• nā pilikia noʻonoʻo a me ka hoʻomanaʻo
• poho lauoho

Hiki i nā ʻōuli koʻikoʻi ʻē aʻe ke hoʻopili pū me:

• pilikia gastrointestinal
• nā pilikia pulmonary
• pākī ʻāʻī
• pilikia thyroid
• ʻosteoporosis
• anemia
• ka hopu ʻana

Wahi a The Johns Hopkins Lupus Center, ma kahi o 1 o 2000 mau kānaka i ʻAmelika Hui Pū ʻIa i loaʻa i ka lupus, a 9 mai loko mai o 10 diagnose i loaʻa i nā wahine. Hiki i nā ʻōuli mua ke hana i nā makahiki ʻōpio a hoʻonui i nā mākua i ko lākou 30 mau makahiki.

ʻOiai ʻaʻohe lāʻau lapaʻau no ka lupus, nui ka poʻe me ka lupus e ola olakino a me nā ola kamahaʻo. Eia kahi papa inoa o ʻeiwa mau laʻana kaulana.

1. Selena Gomez

Ua hōʻike koke ʻo Selena Gomez, ka wahine ʻAmelika a me ka mea mele pop, i kāna ʻike o ka lupus i loko o kahi Instagram post i palapala i ka transplant kidney nāna e pono ai ma muli o kēia maʻi.

I ka wā o nā mumū o lupus, ua hoʻopau ʻo Selena i nā huakaʻi, hele i ka chemotherapy, a lawe i kahi manawa nui mai kāna ʻoihana e hoʻi hou. Ke maikaʻi ʻo ia, manaʻo ʻo ia iā ia iho he olakino loa.

2. ʻO Lady Gaga

ʻOiai ʻaʻole i hōʻike ʻia nā ʻōuli, ua hoʻāʻo kēia mea mele ʻAmelika, mea kākau mele, a mea hana keaka wahine i ka palena palena maikaʻi no ka lupus ma 2010.

"No laila i kēia manawa," hoʻopau ʻo ia i kahi nīnauele me Larry King, "ʻAʻohe iaʻu. Akā pono iaʻu e mālama pono iaʻu iho. ”

Ua hele ʻo ia e hoʻomaopopo ua make ka ʻanakē o kona makua iā lupus. ʻOiai ʻoi aku ka nui o ka makaʻu no ka hoʻomohala ʻana i ka maʻi ke loaʻa ka ʻohana iā ia, hiki nō i ka maʻi ke moe a hiamoe no nā makahiki he nui - he lōʻihi paha ka lōʻihi o ke ola o ke kanaka.

Ke hoʻomau nei ʻo Lady Gaga i ka nānā ʻana i ka lehulehu i ka lupus ma ke ʻano he kūlana olakino ʻae ʻia.

3. ʻO Toni Braxton

ʻO kēia makana Grammy Award – ua hakakā ākea me lupus mai ka 2011.

"ʻO kekahi mau lā ʻaʻole hiki iaʻu ke kaulike i nā mea āpau," i ʻōlelo ʻo ia ma kahi hālāwai ninaninau me Huffpost Live ma 2015. "Pono wau e moe i kahi moe. ʻIke nui inā loaʻa ʻoe i ka lupus manaʻo ʻoe e loaʻa ana ka maʻi flu i kēlā me kēia lā. Akā i kekahi mau lā hele ʻoe ma o. Akā noʻu, inā maikaʻi ʻole wau, ʻōlelo wau i kaʻu mau keiki, 'Auē e hoʻomaha wale ana koʻu makuahine i kēia lā.' ʻAno maʻalahi wau. "

ʻOiai ʻo kāna mau haukapila he nui a me nā lā hoʻolaʻa e hoʻomaha ai, ua ʻōlelo ʻo Braxton ʻaʻole ʻo ia e ʻae i kāna mau ʻōuli e hōʻoki iā ia i kahi hōʻike.

"ʻOiai ʻaʻole hiki iaʻu ke hoʻokō, ʻike nō wau. I kekahi manawa nānā wau i hope [i] i kēlā ahiahi [a] hele wau, 'Pehea wau i loaʻa ai i kēlā?' "

I ka 2013, ua hōʻike ʻo Braxton ma ka hōʻike a Kauka Oz e kūkākūkā e pili ana i ka noho ʻana me ka lupus. Hoʻomau mau ʻo ia e kiaʻi ʻia i ka wā e hoʻopaʻa leo ana a e hana ana i nā mele.

4. ʻO Nick Cannon

ʻIke ʻia i ka makahiki 2012, ʻo Nick Cannon, kahi mea hana rapper ʻAmelike nui, mea hana keaka, mea hoʻohenehene, luna hoʻomalu, mea kākau moʻolelo, mea hana, a mea kālepa, ua ʻike mua i nā ʻōuli koʻikoʻi o ka lupus, e like me ka hōʻino ʻana o nā puʻupaʻa a me nā huʻa koko i loko o kāna māmā.

"He mea weliweli loa ia no ka mea ʻaʻole ʻoe ʻike ... ʻaʻole ʻoe i lohe e pili ana i [lupus]," i ʻōlelo ʻo ia ma kahi hālāwai ninaninau me HuffPost Live i ka makahiki 2016. "ʻAʻole wau i ʻike iki e pili ana i ia mea a ʻike ʻia wau. , ʻOi aku koʻu olakino i kēia manawa ma mua o mua. ”

Hoʻomaopopo ʻo Cannon i ka mea nui o ka papaʻai a me ka mālama ʻana i nā hana ʻē aʻe e hiki ai ke pale i nā ahi. Manaʻoʻiʻo ʻo ia ke ʻike koke ʻoe he ʻano livable ka lupus, a laila hiki ke lanakila iā ia me nā loli nohona a me ka mālama ʻana i kahi ʻōnaehana kākoʻo ikaika.

5. Sila

Ua hōʻike mua kēia mea mele / haku mele Pelekane lanakila i nā hōʻailona o kekahi ʻano lupus i kapa ʻia ʻo discoid lupus erythematous i ka makahiki 23 me ka puka ʻana o ka scarring maka.

ʻOiai ʻaʻole ʻo ia e kamaʻilio nui e pili ana i ka lupus e like me nā mea kaulana ʻē aʻe e noho nei me ka maʻi, kamaʻilio pinepine ʻo Seal e pili ana i kāna mea noʻeau a me kāna mele ma ke ʻano he ala e hoʻolele ai i ka ʻeha a me ka ʻeha.

"Ke manaʻoʻiʻo nei wau ma nā ʻano hana āpau āpau e loaʻa ai kekahi mau pilikia mua: ʻo ia ka mea e hana ai ke kiʻi, i koʻu manaʻo," i haʻi aku ʻo ia i kahi mea nīnauele ma The New York Times i ka makahiki 1996."A ʻaʻole ia he mea āu e ola ai: ke ʻike ʻoe ia, ʻo ia nō me ʻoe."

6. Kristen Johnston

ʻIke ʻia i ka makahiki 46 me ka lupus myelitis, kahi ʻano laha ʻole o ka lupus e pili ana i ka iwi kuamoo, ua hōʻike mua kēia mea hoʻokani mele i nā hōʻailona o ka lupus ke hakakā nei e piʻi i kahi alapiʻi. Ma hope o 17 mau kipa ʻokoʻa a me nā mahina o nā hoʻokolohua ʻeha, ua loaʻa iā Johnson ka hōʻoia hope loa e loaʻa ai ka lāʻau me chemotherapy a me nā steroid, a ua loaʻa iā ia ke kala i nā mahina ʻeono i hala.

"He makana kēlā me kēia lā, a ʻaʻole wau e lawe i hoʻokahi kekona o ia mea no ka mea i hāʻawi ʻia," i ʻōlelo ʻo ia ma kahi hālāwai ninaninau me People ma 2014.

Hoʻomaʻamaʻa ʻo Johnston i kēia manawa ma hope o ka hala ʻana o nā makahiki he nui me ka hakakā ʻana i ka ʻalekohola a me ka hoʻōla lāʻau.

"Ua uhi mau ʻia nā mea āpau e nā lāʻau a me ka waiʻona, no laila e hele ai i loko o kēia ʻike weliweli loa - ʻaʻole wau i ʻike, he kanaka hauʻoli wale nō wau. Nui wale koʻu mahalo, mahalo nui. "

I ka makahiki 2014 ua hele pū ʻo Johnston i ka 14th Annual Lupus LA Orange Ball ma Beverly Hills, Kaleponi, a ua hoʻomau ʻia e kamaʻilio e pili ana i ke koʻikoʻi o kāna maʻi.

7. Pāpā Pāpā

ʻO Trick Pāpā, kahi mea hana lima ʻAmelika, mea hana keaka, a me nā mea hana, ua ʻike ʻia i nā makahiki i hala aku nei me ka discoid lupus, ʻoiai ʻaʻole ʻo ia e lawe hou i nā lāʻau Komohana e mālama iā ia.

"Ua oki wau i ka lawe ʻana i ka lāʻau a lākou e hāʻawi mai ai iaʻu no ka mea no kēlā me kēia lāʻau a lākou i hāʻawi mai ai iaʻu, pono wau e lawe i kahi hōʻike a i ʻole lāʻau ʻē aʻe i kēlā me kēia 30 mau lā a ʻoi paha e ʻike i ka hopena ʻole o ka lāʻau. maikaʻi ʻole… Ua ʻōlelo wale wau āpau ʻaʻole wau e lawe i ka lāʻau, ”i ʻōlelo ʻo ia ma kahi hālāwai ninaninau me Vlad TV ma 2009.

Ua haʻi ʻo Trick Daddy i ka mea nīnauele ua manaʻo ʻo ia he nui nā mālama lupus he mau hoʻolālā Ponzi, a ke hoʻomau nei ʻo ia e hoʻomaʻamaʻa i kāna "ʻai ghetto," a ke manaʻo nei ia he mea kupanaha, ʻaʻohe ona pilikia hou.

8. Shannon Boxx

Ua hōʻike ʻia kēia mea pâʻani kinipōpeku ʻAmelika Hui Pū ʻIa ʻAmelika i ka mekala ma 2007 i ka makahiki 30 ʻoiai e pāʻani ana no ka Hui Lāhui o U.S. I loko o kēia manawa, ua hoʻomaka ʻo ia e hōʻike i nā hōʻailona pinepine o ka luhi, ʻeha pū, a me nā ʻehaʻeha o nā mākala. Ua hoʻolaha ʻo ia i kāna diagnose i ka lehulehu ma 2012 a ua hoʻomaka ʻo ia e hana me ka Lupus Foundation o ʻAmelika e hoʻolaha i ka maʻi.

Ma mua o ka loaʻa ʻana o ka lāʻau kūpono e kāpae ai i kāna mau hōʻailona, ​​ua haʻi aku ʻo Boxx i kahi mea nīnauele ma CNN i ka makahiki 2012 e "makemake ʻo ia iā ia" ma o kāna mau papa hoʻomaʻamaʻa ʻana a ma hope e hāneʻe i ka moena no ke koena o ka lā. ʻO ka lāʻau i lawe ʻia e ia i kēia manawa e kōkua i ka mālama ʻana i ka nui o nā mumū kūpono, a me ka nui o ka mumū i loko o kona kino.

ʻO kāna ʻōlelo aʻo i nā poʻe ʻē aʻe e noho nei me ka lupus.

"Manaʻo wau he mea nui loa ka loaʻa ʻana o kahi ʻōnaehana kākoʻo - nā hoaaloha, ʻohana, ka Lupus Foundation, a me ka Sjögren's Foundation - i maopopo i kāu mea e hele nei. Manaʻo wau he mea nui e loaʻa iā ʻoe kekahi e hoʻomaopopo hiki iā ʻoe ke manaʻo maikaʻi i ka hapa nui o ka manawa, akā aia ʻoe ma laila ke kū kahi ahi. Manaʻo wau he mea nui ia e noho i ka hana, ke ʻano o ka pae o ka hana e ʻoluʻolu iā ʻoe. Lana koʻu manaʻo ʻo kēia kahi aʻu e hoʻoulu ai i ka poʻe. ʻAʻole wau i ʻae i kēia maʻi e hōʻoki iaʻu mai ka hana ʻana i ka haʻuki aʻu e aloha ai. "

9. Maurissa Tancharoen

ʻIke ʻia me lupus i ka wā ʻōpio, ʻo Maurissa Tancharoen, mea hana / mea kākau kīwī ʻAmelika, mea hana keaka, mea mele, mea hulahula, a me nā mea kākau mele, i ʻike i nā hana hoʻomāinoino nui i hōʻeha i kāna mau puʻupaʻa a me nā akemāmā, a hoʻā ʻia hoʻi ka ʻōnaehana waena.

I ka 2015, makemake e loaʻa i kahi pēpē, hana ʻo ia me kāna rheumatologist i kahi hoʻolālā e hoʻāʻo e loaʻa kahi keiki ma hope o ʻelua mau makahiki o ka mālama ʻana i kāna lupus i kahi mokuʻāina. Ma hope o nā makaʻu he nui a me kahi noho lōʻihi i ka haukapila i kona wā hāpai e mālama pono i kāna mau puʻupaʻa, ua hānau mua ʻo ia i kahi "mana liʻiliʻi" ʻo Benny Sue ka inoa.

"A i kēia manawa ma ke ʻano he makuahine, makuahine hana," ua haʻi ʻo ia i kahi mea nīnauele ma ka Lupus Foundation o ʻAmelika ma 2016, kahi hui a lāua me kāna kāne e kākoʻo nui nei, "ʻoi aku ka paʻakikī no ka mea hiki ʻole iaʻu ke mālama iki iaʻu iho. Akā inā ʻaʻole wau olakino, ʻaʻole wau ʻoi koʻu mea maikaʻi loa no kaʻu kaikamahine. ʻAʻole wau e nalo i kahi milestone kupaianaha ma ka hoʻomaha ʻana no ka hapalua hola. ʻO ia kaʻu mea e hana ai nona a me kaʻu kāne. "