I ka poʻe e mālama nei i kekahi me ka maʻi ʻo Parkinson, e hana i nā hoʻolālā no kēia manawa

Ua hopohopo nui wau i ka wā i haʻi mua ai kaʻu kāne iaʻu ua ʻike ʻo ia i kekahi mea i hewa iā ia. He mea hoʻokani pila ʻo ia, a i kekahi pō i kahi gig, ʻaʻole hiki iā ia ke hoʻokani i kāna kika. Ua paʻahau i kona mau manamana lima. Hoʻomaka mākou e hoʻāʻo e loaʻa i kahi kauka, akā hohonu, ʻike mākou he aha ia. He maʻi ʻo Parkinson kona makuahine, a ua ʻike wale mākou.

I ka manawa i loaʻa iā mākou ka ʻike kūhelu i 2004, ʻo ka makaʻu wale nō kaʻu. Ua hele a makaʻu kēlā makaʻu. He paʻakikī paʻakikī e wahī i kou poʻo a puni. He aha ka mea e hiki mai ana? Hiki paha iaʻu i ka wahine i male ʻia me kekahi me ka maʻi ʻo Parkinson? Hiki paha iaʻu ke kahu? E ikaika paha wau? E lawa pono ʻole paha wau? ʻO ia kekahi o kaʻu mau makaʻu nui. I ka ʻoiaʻiʻo, loaʻa iaʻu ka makaʻu i kēia manawa ma mua o ka manawa.

I kēlā manawa, ʻaʻohe nui o ka ʻike ma waho e pili ana i ka lāʻau a me ka lāʻau, akā ua hoʻāʻo wau e aʻo iaʻu iho e like me ka hiki. Hoʻomaka mākou e hele e kākoʻo i nā hui e aʻo i ka mea e kali ai, akā kaumaha loa ia no kaʻu kāne. Maikaʻi ʻo ia i kēlā manawa, a ʻaʻole nā ​​poʻe o nā hui kākoʻo. Ua ʻōlelo mai kaʻu kāne iaʻu, “ʻAʻole au makemake e hele hou. ʻAʻole wau makemake e kaumaha. ʻAʻole wau he mea e like me lākou. ” A laila kū mākou i ka hele.

Laki loa wau i ka pili ʻana o kaʻu kāne i kāna kuhi. Ua kaumaha ʻo ia no kahi manawa pōkole loa akā hoʻoholo hope loa ʻo ia e lawe i ke ola e nā pepeiaohao a leʻaleʻa i kēlā me kēia manawa. He mea nui kāna hana iā ia, akā ma hope o kāna kuhi ʻana, hele mua kona ʻohana. Nui kēlā. Ua hoʻomaka ʻo ia e mahalo iā mākou. He mea hoʻonāukiuki kāna positivity.

Ua hoʻopōmaikaʻi ʻia mākou me nā makahiki he nui he nui, akā ʻo nā mea hope loa e ʻaʻa nei. Nui ʻino kāna diskinesia i kēia manawa. Hāʻule nui ʻo ia. Hiki ke hoʻonāukiuki ke kōkua ʻana iā ia no ka mea inaina ʻo ia i ke kōkua ʻia. E lawe ʻo ia i kēlā iaʻu. Inā hoʻāʻo wau e kōkua iā ia a puni i kona noho huila a ʻaʻole wau i hemolele, e ʻē mai ʻo ia iaʻu. Huhū ia iaʻu, no laila hoʻohana wau i ka hoʻomākeʻaka. E hoʻohenehene wau. Akā hopohopo wau. Makaʻu wau ʻaʻole wau e hana i kahi hana maikaʻi. Nui koʻu manaʻo.

Pono wau e hoʻoholo i nā hoʻoholo āpau i kēia manawa, a paʻakikī loa kēlā ʻāpana. Ua hana kaʻu kāne i nā hoʻoholo, akā ʻaʻole hiki iā ia. Ua ʻike ʻia ʻo ia me ka maʻi maʻi maʻi Parkinson i ka makahiki 2017. ʻO kekahi o nā mea paʻakikī ka ʻike ʻana i ka mea e hiki ai iaʻu ke ʻae iā ia e hana a me nā mea hiki ʻole iaʻu. He aha kaʻu e lawe aku ai? Ua kūʻai ʻo ia i kahi kaʻa me ka ʻole o kaʻu ʻae, no laila lawe wau i kāna kāleka hōʻaiʻē? ʻAʻole wau makemake e lawe i kona haʻaheo a i ʻole nā ​​mea e hauʻoli ai ʻo ia, akā ma ka lima like, makemake wau e pale iā ia.

Hoʻomaʻo wau ʻaʻole e noʻonoʻo e pili ana i ka naʻau. Aia lākou ma laila; ʻAʻole wau e hōʻike ana iā lākou. ʻIke wau e pili ana iaʻu i ke kino. ʻOi aku ke kiʻekiʻe o koʻu kahe koko a ua kaumaha wau. ʻAʻole wau mālama iaʻu iho e like me kaʻu ma mua. Aia wau i kahi ʻano o ke kinai ahi no nā poʻe ʻē aʻe. Kipaku aku au iā lākou pākahi. Inā waiho wau me kekahi manawa noʻu iho, e hele wau no ka holoholo a i ʻole ka ʻauʻau ʻana. Makemake au i kekahi e kōkua mai iaʻu e noʻonoʻo i ke ʻano o nā hana coping, akā ʻaʻole au pono i ka poʻe e haʻi iaʻu e hoʻolōʻihi i ka manawa naʻu iho. ʻIke wau pono wau e hana i kēlā, he mea ia o ka loaʻa ʻana o kēlā manawa.

Inā ʻoe e heluhelu ana i kēia a ua ʻike ʻia kāu mea aloha me Parkinson's, e hoʻāʻo e noʻonoʻo ʻole a hopohopo paha i ka wā e hiki mai ana ka maʻi. ʻO ia ka mea ʻoi loa i hiki iā ʻoe ke hana nāu iho a me kāu mea i aloha ai. E hauʻoli i kēlā me kēia kekona āu a hana i nā hoʻolālā he nui i hiki i kēia manawa.

Minamina wau ʻaʻole e loaʻa iaʻu kahi "hauʻoli ma hope," a hewa pū wau no ka loaʻa ʻole o ke ahonui e kōkua ai i koʻu makuahōnōwai wahine i kona wā e ola ana a e noho nei me ka maʻi. ʻAʻole ʻike iki ʻia kēlā manawa. ʻO ia wale kaʻu mea e minamina ai, ʻoiai manaʻo wau e loaʻa paha iaʻu nā minamina hou aku i ka wā e hiki mai ana, ʻoiai ke ʻano ʻino o ke ʻano o kaʻu kāne.

Manaʻo wau he mea kupaianaha ko mākou i nā makahiki he nui a hana i nā mea a mākou i hana ai. Ua hele mākou i kahi wā hoʻomaha hikiwawe, a ke hoʻomanaʻo nei mākou i kēia manawa me he ʻohana maikaʻi loa. Mahalo wau i kēlā mau mea hoʻomanaʻo.

Me ka ʻoiaʻiʻo,

Abbe Aroshas

Hānau ʻia ʻo Abbe Aroshas ma Rockaway, Nu Ioka. Ua puka ʻo ia ma ke ʻano he salutatorian o kāna papa kula kiʻekiʻe a hele i ke Kulanui ʻo Brandies kahi i loaʻa ai iā ia kāna kekelē laepua. Ua hoʻomau ʻo ia i kāna aʻo ʻana ma ke Kulanui ʻo Columbia a ua loaʻa ka kekelē laeoʻo no kauka niho. He ʻekolu kāna mau kaikamahine, a ke noho nei ʻo ia ma Boca Raton, Florida me kāna kāne, ʻo ʻIsaaka a me kā lākou dachshund, Smokey Moe.