ʻO ka mea nui o ke kaiāulu maʻi ʻaʻai

I ka manawa i ʻike ʻia me ka maʻi ʻaʻai umauma 2A HER2-maikaʻi ma 2009, ua hele au i kaʻu kamepiula e aʻo iaʻu iho e pili ana i ke ʻano.

Ma hope o kaʻu aʻo ʻana he maikaʻi loa ka maʻi, ua loli kaʻu mau nīnau no ka noʻonoʻo inā e ola wau, a pehea e mālama ai i kēia ʻano.

Ua hoʻomaka wau e haʻohaʻo i nā mea e like me:

• Pehea ka lōʻihi e ola ai mai ke ʻoki ʻana?
• Pehea ke ʻano o ka mastectomy?
• E hiki paha iaʻu ke hana ʻoiai ke hele nei wau i ka chemotherapy?

ʻO nā blog a me nā kolamu pūnaewele ka mea kōkua nui i ka pane ʻana i kēia mau nīnau. ʻO ka blog mua aʻu i ʻike ai ua kākau ʻia e kahi wahine me koʻu maʻi like. Ua heluhelu au i kāna mau huaʻōlelo mai ka mua a ka hopena. Ua ʻike au iā ia he nani loa. Ua weliweli wau i ka ʻike ʻana ua metastasized kāna maʻi ʻaʻai a ua hala ʻo ia. Ua kākau kāna kāne i kahi pou ma kāna blog me kāna mau huaʻōlelo hope loa.

I ka wā i hoʻomaka ai ka lapaʻau ʻana, ua hoʻomaka wau i kahi blog naʻu ponoʻī - {textend} Akā kauka, Hate Pink wau!

Makemake au i kaʻu blog e lawelawe ma ke ʻano he ipukukui o ka manaʻolana no nā wahine me kaʻu ʻike. Makemake wau e pili ana i ke ola. Ua hoʻomaka wau e palapala i nā mea āpau aʻu i hele ai - {textend} me ka hoʻohana ʻana i nā kikoʻī a me nā hoʻomākeʻaka hiki iaʻu. Makemake au e ʻike nā wahine ʻē aʻe inā hiki iaʻu ke hoʻokele iā ia, pēlā nō lākou.

Ma kekahi ʻano, laha koke ka ʻōlelo e pili ana i kaʻu blog. ʻO ke kākoʻo i loaʻa iaʻu no ka kaʻana like ʻana i kaʻu moʻolelo ma ka pūnaewele he mea nui ia iaʻu. A hiki i kēia lā, paʻa wau i kēlā mau poʻe i koʻu puʻuwai.

Ua loaʻa iaʻu ke kākoʻo mai nā wahine ʻē aʻe ma breastcancer.org. ʻO ka hapa nui o nā wahine i kēlā kaiāulu kahi ʻāpana o kaʻu hui Facebook i kēia manawa.

Nui nā wahine me ka maʻi ʻaʻai umauma i hiki ke ola lōʻihi, i nā ola olakino.

E ʻike i nā poʻe ʻē aʻe e hele nei i loko o ka mea āu e hele nei. Hiki i kēia maʻi ke hoʻopaʻa i kou mau naʻau. ʻO ka hoʻopili ʻana me nā wahine ʻē aʻe i kaʻana like i nā ʻike hiki ke kōkua iā ʻoe e waiho i kekahi mau ʻano makaʻu a me ka mehameha ma hope a neʻe i kou ola.

I ka 2011, ʻelima mau mahina wale nō ma hope o ka pau ʻana o kaʻu lāʻau maʻi ʻaʻai, ua aʻo wau ua metastasize koʻu maʻi ʻaʻai i koʻu ake. A ma hope, koʻu mau māmā.

ʻOiai, ua hele kaʻu blog mai kahi moʻolelo e pili ana i ke ola ʻana o ka maʻi ʻaʻai 2, a e pili ana i ke aʻo ʻana e noho me kahi hōʻailona maʻi. I kēia manawa, ʻāpana wau o kahi kaiāulu ʻokoʻa - {textend} ka kaiāulu metastatic.

ʻO ke kākoʻo pūnaewele i loaʻa iaʻu mai kēia kaiāulu hou i manaʻo ʻia ka honua iaʻu. ʻAʻole kēia mau wahine kaʻu mau hoaaloha wale nō, akā ʻo kaʻu mau alakaʻi. Ua kōkua lākou iaʻu e hoʻokele i ka honua hou i kiola ʻia ai wau i loko. He honua piha i ka chemo a me ka kānalua. ʻO kahi honua o ka ʻike ʻole inā lawe wau i koʻu maʻi ʻaʻai.

ʻO kaʻu mau hoaaloha ʻelua, ʻo Sandy lāua ʻo Vickie, i aʻo mai iaʻu e ola a hiki i ka hiki ʻole iaʻu ke hele hou. Ua hala lāua ʻelua i kēia manawa.

Ua noho ʻo Sandy ʻeiwa mau makahiki me kona maʻi ʻaʻai. ʻO ia koʻu meʻe. E kamaʻilio mākou ma ka pūnaewele ma ka lā āpau e pili ana i kā mākou maʻi a pehea mākou e kaumaha ai e haʻalele i kā mākou mea aloha. E kamaʻilio pū mākou e pili ana i kā mākou poʻe keiki - {textend} like kāna mau keiki me aʻu.

He makuahine ʻo Vicki, ʻoiai he ʻōpio kāna mau keiki ma mua o kaʻu. Ua noho ʻo ia i ʻehā mau makahiki me kona maʻi, akā ua hana ʻo ia i kahi hopena i ko mākou kaiāulu. ʻO kāna ʻuhane ʻole a me ka ikaika i hana i kahi ʻano mau. ʻAʻole hiki iā ia ke poina.

ʻO ke kaiāulu o nā wahine e noho nei me ka maʻi ʻaʻai umauma metastatic nui a hana. He poʻe kākoʻo ka nui o nā wahine i ka maʻi, e like me aʻu.

Ma o kaʻu blog, hiki iaʻu ke hōʻike i nā wahine ʻē aʻe hiki iā ʻoe ke ola i kahi ola piha inā loaʻa iā ʻoe ka maʻi ʻaʻai umauma. He ʻehiku mau makahiki wau i metastatic ai. Ua mālama au i ka maʻi IV no ʻeiwa mau makahiki. Ua kala wau no ʻelua mau makahiki i kēia manawa, a ʻo kaʻu scan hope loa ʻaʻole i hōʻike ʻia kahi hōʻailona o ka maʻi.

Aia kekahi mau manawa luhi wau mai ka mālama ʻana, a maikaʻi ʻole koʻu manaʻo, akā ke kau nei naʻe wau ma kaʻu ʻaoʻao Facebook a i ʻole blog. Hana wau i kēia no ka mea makemake wau i nā wahine e ʻike i ka hiki ke lōʻihi. Ma muli wale nō o kāu loaʻa ʻana i kēia kuhi, ʻaʻole ia he manaʻo kokoke ka make.

Makemake pū kekahi wau i nā wahine e ʻike i ka loaʻa ʻana o ka maʻi ʻaʻai umauma metastatic i mea no ʻoe e mālama ai i ke koena o kou ola. Nānā maikaʻi wau a hoʻi i koʻu lauoho āpau, akā pono wau e kiʻi pinepine i nā infusions e kōkua ai i ka pale ʻana mai ka maʻi ʻaʻai.

ʻOiai ʻo nā kaiāulu pūnaewele kahi ala maikaʻi loa e hoʻopili aku me nā poʻe ʻē aʻe, he manaʻo maikaʻi mau loa ia e hui pū kekahi me ke kanaka. ʻO ke kamaʻilio pū ʻana me Susana kahi hoʻomaikaʻi. He pilina paʻa kā mākou. Noho mākou ʻelua i ka ʻike pehea ka waiwai o ke ola a me ka mea nui o nā mea liʻiliʻi. ʻOiai ma ka ʻili ke nānā aku mākou i nā mea ʻokoʻa, ke hohonu nei i kā mākou like. E aloha mau wau i kā mākou pili, a me ka pilina aʻu me nā wahine kupaianaha ʻē aʻe aʻu i ʻike ai me kēia maʻi.

Mai lawe wale i kāu mea i kēia manawa. A, mai noʻonoʻo pono ʻoe e hele hoʻokahi i kēia huakaʻi. ʻAʻole pono ʻoe. Inā ʻoe e noho ana i ke kūlanakauhale a i ʻole kahi kaona liʻiliʻi, aia nā wahi e loaʻa ai ke kākoʻo.

I kekahi lā e loaʻa iā ʻoe ka manawa kūpono e alakaʻi i kahi mea i ʻike hou ʻia - {textend} a kōkua ʻoe iā lākou me ka nīnau ʻole. ʻO mākou, he kaikuahine maoli.