ʻO Crohn maʻi - keiki - hoʻokuʻu

Ua mālama ʻia kāu keiki i ka haukapila no ka maʻi Crohn. ʻLelo kēia ʻatikala iā ʻoe pehea e mālama ai i kāu keiki ma ka home ma hope.

Ma ka haukapila kāu keiki no ka maʻi o Crohn. ʻO kēia kahi mumū o ka ʻili a me nā papa hohonu o ka ʻōpū liʻiliʻi, ʻōpū nui, a i ʻole ʻelua.

Māmā a paʻakikī paha ka maʻi. Ua loaʻa paha kāu keiki i nā hoʻokolohua, nā hoʻokolohua lab, a me nā kukuna x. Ua nānā paha ka mea mālama ola i loko o ka rectum a kāu keiki a me ka kolona e hoʻohana ana i ka paipu hikiwawe (kolonoscopy). Ua lawe ʻia paha kahi laʻana kikoʻī (biopsy).

Ua noi ʻia paha kāu keiki ʻaʻole e ʻai a inu paha i kekahi mea a hānai ʻia ma o ka IV wale nō (laina intravenous). Ua loaʻa paha iā lākou nā meaola kūikawā ma o kahi pahu wai hānai.

Ua hoʻomaka paha kāu keiki e lawe i nā lāʻau e mālama ai i ka maʻi Crohn.

Ua makemake paha kāu keiki i kekahi o kēia ʻano ʻoki.

• Hoʻoponopono hou
• Hoʻokiʻi ʻōpū liʻiliʻi
• Ileostomy
• ʻO ka colectomy hapa a hapa paha

Ma hope o ka lapalapa ʻana o ka maʻi Crohn, ua luhi paha kāu keiki a ua liʻiliʻi kona ikaika ma mua. E ʻoi aku ka maikaʻi o kēia. E noi i ka mea hāʻawi i kāu keiki e pili ana i nā hopena ʻē aʻe mai nā lāʻau hou. Pono ʻoe e ʻike i ka mea hāʻawi i kāu keiki ma mau. Pono paha i kāu keiki i nā hoʻokolohua koko pinepine, inā paha aia lākou ma nā lāʻau hou.

Inā hele kāu keiki i ka home me kahi paipu hānai, pono ʻoe e aʻo pehea e hoʻohana a hoʻomaʻemaʻe ai i ka paipu a me kahi e komo ai ka paipu i ke kino o kāu keiki. Inā lawa ka makua o kāu keiki, hiki iā ʻoe ke kōkua iā lākou e aʻo e pili ana i ka maʻi a pehea e mālama ai iā lākou iho.

Ke hoʻi mua kāu keiki i ka hale, hiki paha iā lākou ke inu wai. A i ʻole, pono paha lākou e ʻai i nā meaʻai like ʻole a lākou e ʻai maʻamau ai. E noi i ka mea hāʻawi ke hiki i kāu keiki ke hoʻomaka e ʻai i kā lākou papaʻai maʻamau.

E hāʻawi ʻoe i kāu keiki:

• ʻAi kaulike maikaʻi, olakino olakino. He mea nui e loaʻa i kāu keiki ka nui o nā calories, protein, a me nā meaola mai nā ʻano meaʻai like ʻole.
• ʻO kahi papaʻai haʻahaʻa i nā momona momona a me ke kō.
• Liʻiliʻi, ʻai pinepine a me nā wai he nui.

Hiki i kekahi mau meaʻai a me nā mea inu ke hōʻino i nā hōʻailona o kāu keiki. Hoʻokumu paha kēia mau meaʻai i nā pilikia no lākou i nā manawa āpau a i ʻole i ka wā o kahi uila.

E hoʻāʻo e hōʻalo i nā meaʻai aʻe e hiki ai ke hōʻino i nā hōʻailona o kāu keiki:

• Inā ʻaʻole hiki iā lākou ke ʻeli pono i nā meaʻai waiū, e kaupalena i nā huahana waiū. E hoʻāʻo i nā paʻi waiū lactose haʻahaʻa, e like me Swiss a me cheddar, a i ʻole kahi huahana enzyme, e like me Lactaid, e kōkua ai e wāwahi i ka lactose. Inā pono kāu keiki e ʻai i nā mea hana waiū, e kamaʻilio me kahi kaukaʻai e pili ana i ka lawa pono o ka calcium a me ka huaola D.
• ʻO ka nui o ka fiber e hōʻino ai i nā ʻōuli. Inā hoʻopilikia ka ʻai ʻana i nā hua maka a mea ʻai paha, e hoʻāʻo a kuke ʻana paha iā lākou. Inā ʻaʻole kōkua kēlā i ka lawa, e hāʻawi iā lākou i nā meaʻai momona.
• Hōʻalo i nā meaʻai e ʻike ʻia e hana i ke kinoea, e like me nā pī, nā mea ʻono, kāpī, broccoli, cauliflower, nā wai huaʻai maka, a me nā huaʻai, keu hoʻi nā hua citrus
• Hōʻalo a kau palena paha i ka caffeine. Hiki iā ia ke hana i ka pākī ʻoi aku ka maikaʻi. E hoʻomanaʻo i kekahi mau soda, inu inu ikehu, tī a me kokoleka he caffeine kā lākou.

E noi i ka mea hāʻawi i kāu keiki e pili ana i nā huaora a me nā minela keu e pono ai kāu keiki.

• ʻO nā mea hoʻohui hao (inā he anemia lākou)
• Nā mea hoʻopihaʻai pono
• Kalipuna a me ka wikamina D nā mea hoʻopili e kōkua i ka ikaika o ko lākou iwi
• ʻO nā pana Wikamina B-12, e pale aku ai i ka anemia

E kamaʻilio me kahi kaukaʻai e hōʻoia i ka loaʻa ʻana o ka meaʻai kūpono i kāu keiki. E mālama pono inā hana kēia i ka paona o kāu keiki a i ʻole lilo ka palena o kā lākou papaʻai.

E hopohopo paha kāu keiki e pili ana i ka ulia ʻōpala, hilahila, a i ʻole kaumaha a luʻuluʻu paha e pili ana i kēia ʻano. He paʻakikī paha i kāu keiki ke komo i nā hana ma ke kula. Hiki iā ʻoe ke kākoʻo i kāu keiki a kōkua iā lākou e hoʻomaopopo pehea e ola ai me ka maʻi.

Hiki i kēia mau ʻōlelo aʻoaʻo ke kōkua iā ʻoe e hoʻokele i ka maʻi Crohn o kāu keiki:

• E kamaʻilio ākea me kāu keiki a pane i kāna mau nīnau āpau e pili ana i ke ʻano.
• Kōkua i kāu keiki e ʻeleu. E kamaʻilio me kāu mea hāʻawi i kāu keiki e pili ana i nā hana a me nā hoʻoikaika kino i hiki i kāu keiki ke hana.
• ʻO nā mea maʻalahi e like me ka hana yoga a tai chi paha, ka hoʻolohe ʻana i ke mele, ka hoʻolāʻau hoʻomaha, ka noʻonoʻo ʻana, ka heluhelu ʻana, a i ʻole ke kuʻu ʻana i ka wai ʻauʻau mehana hiki ke hoʻomaha i kāu keiki a kōkua i ka hōʻemi ʻana i ke kaumaha.
• E ʻike aku kāu keiki i kahi kākāʻōlelo i hiki ke kōkua iā lākou e loaʻa ka paulele iā ia iho.
• E makaʻala inā e lilo ana kāu keiki i ka hoihoi i ke kula, nā hoaaloha, a me nā hana. Inā manaʻo ʻoe ua kaumaha paha kāu keiki, e kamaʻilio me ke kākā'ōlelo olakino noʻonoʻo.

Makemake paha ʻoe e hui i kahi hui kōkua e kōkua iā ʻoe a me kāu keiki e mālama i ka maʻi. ʻO Crohn's & Colitis Foundation o ʻAmelika (CCFA) kekahi o ia mau hui. Hāʻawi ʻo CCFA i kahi papa inoa o nā kumuwaiwai, kahi waihona o nā kauka i loea i ka mālama ʻana i ka maʻi Crohn, ka ʻike e pili ana i nā hui kākoʻo kūloko, a me kahi pūnaewele no nā ʻōpio - www.crohnscolitisfoundation.org.

Hāʻawi paha ka mea hāʻawi i kāu keiki i kāu lāʻau i mea kōkua e hōʻoluʻolu i nā ʻōuli. Hāʻawi ka mea hāʻawi i hoʻokahi a ʻoi paha o nā lāʻau aʻe e pili ana i ka paʻakikī o ka maʻi Crohn a kāu keiki a me ka pane a kāu keiki i ka lāʻau.

• Hiki i nā lāʻau kūpale kūpale ke kōkua ke loaʻa i kāu keiki ke diarrhea ʻino. Hiki ke kūʻai ʻia ʻo Loperamide (Imodium) me ka ʻole o ka lāʻau. E kamaʻilio mau i ka mea hāʻawi o kāu keiki ma mua o ka hoʻohana ʻana i kēia mau lāʻau.
• Hiki i nā pulupulu pulupulu ke kōkua i nā hōʻailona o kāu keiki. Hiki iā ʻoe ke kūʻai i ka pauka psyllium (Metamucil) a i ʻole methylcellulose (Citrucel) me ka ʻole o ka lāʻau.
• E kamaʻilio mau i ka mea hāʻawi o kāu keiki ma mua o ka hoʻohana ʻana i nā lāʻau laxative.
• Hiki iā ʻoe ke hāʻawi i kāu keiki i ka acetaminophen no ka ʻehaʻeha. ʻO nā lāʻau e like me aspirin, ibuprofen, a naproxen paha e hōʻino i nā ʻōuli. E kamaʻilio me kāu mea hāʻawi i kāu keiki e pili ana i nā lāʻau i hiki iā ʻoe ke hoʻohana. Pono paha ʻoe i kauka no ka lāʻau ʻoi aku ka ikaika o ka ʻeha.

Nui a hewahewa nā ʻano lāʻau e hiki ke kōkua i ka pale ʻana a mālama ʻana paha i nā hōʻeha o kāu maʻi Crohn. Loaʻa paha i kekahi i nā hopena ʻino ʻino. E kuhikuhi ʻia paha kāu keiki i kekahi o kēia mau lāʻau i ka manawa e ola ai lākou mai ke ʻoki kino.

Hiki iā ʻoe ke hana i kēia mau mea e kōkua i kāu keiki:

• E kamaʻilio me kāu keiki e pili ana i ka lāʻau. Kōkua i kāu keiki e hoʻomaopopo i ka hoʻohana ʻana i ka lāʻau a lākou e lawe ai a pehea e kōkua ai iā lākou e ʻoi aku ka maikaʻi. E kōkua ana kēia i kāu keiki e hoʻomaopopo no ke aha he mea nui e lawe i ka lāʻau e like me ke kuhikuhi.
• Inā lawa ka makua o kāu keiki, e aʻo i kāu keiki i ka lawe ʻana i ka lāʻau iā lākou iho.

ʻO nā lāʻau lapaʻau nāna e kaomi i ka ʻōnaehana pale maʻi ka mea e makaʻu i nā pilikia. Inā e lawe ana kāu keiki i kēia mau lāʻau, makemake paha ka mea hāʻawi e ʻike i kāu keiki i kēlā me kēia 3 mahina e nānā ai i nā pilikia e hiki ke hiki.

E kāhea ʻoe i ka mea hāʻawi inā loaʻa i kāu keiki:

• Pākuʻi a ʻeha paha ma kahi o ka ʻōpū o lalo
• ʻO ka diarrhea koko, pinepine me ka mucus a i ʻole ka pā
• ʻAʻole hiki ke kaohi ʻia me ka palahī me nā loliʻai
• Loaʻa nā pilikia i ke kaumaha
• Kahe koko, kahena, a i ʻole nā ​​ʻeha
• ʻO ke kuni e ʻoi aku ana ma mua o 2 a 3 mau lā a i ʻole ke kuni ma mua o 100.4 ° F (38 ° C) me ka ʻole o ka wehewehe
• ʻO Nusea a me ka luaʻi e ʻoi aku ana ma mua o hoʻokahi lā
• ʻO nā ʻeha a me nā ʻili hoʻi e hōʻola ʻole ai
• ʻO kaʻeha hoʻohui e mālama i kāu keiki mai ka hana i nā hana o kēlā me kēia lā
• Nā hopena ʻaoʻao mai nā lāʻau a kāu keiki e lawe nei

ʻO ka maʻi maʻi ʻōpū i nā keiki - maʻi Crohn; IBD i nā keiki - Crohn maʻi; Enteritis āpana - keiki; Ileitis - keiki; ʻO ka ileocolitis Granulomatous - keiki; Colitis i nā keiki; CD - keiki

ʻO Dotson JL, Boyle B. Crohn maʻi. I: Wyllie R, Hyams JS, Kay M, hua pā. Pediatric Gastrointestinal a me ka maʻi maʻi. ʻElua huaʻōlelo Piladelapia, PA: Elsevier; 2021: chap 42.

Nguyen GC, Loftus EV Jr, Hirano I, et al. ʻO ke alakaʻi ʻo ʻAmelika Gastroenterological Association Institute i ka mālama ʻana i ka maʻi o Crohn ma hope o ke kaha ʻana o ka lāʻau. Gastroenterology. 2017; 152 (1): 271-275. PMID: 27840074 pubmed.ncbi.nlm.nih.gov/27840074/.

Stein RE, Baldassano RN. Maʻi maʻi ʻōpū. I: Kliegman RM, St. Geme JW, Blum NJ, Shah SS, Tasker RC, Wilson KM, eds. ʻO Puka Textbook of Pediatrics ʻo Nelson. 21st ed. Piladelapia, PA: Elsevier; 2020: chap 362.

ʻO Stewart C, Kocoshis SA. Nā maʻi a me nā maʻi o ka gastrointestinal tract a me ke ake. I: Fuhrman BP, Zimmerman JJ, eds.Mālama Nui ʻo Pediatric. 5th lā. Piladelapia, PA: Elsevier; 2017: chap 97.

Velazco CS, McMahon L, Ostlie DJ. Maʻi maʻi ʻōpū. I: Holcomb GW, Murphy JP, St. Peter SD, eds.ʻO Holcomb a me Ashcraft's Pediatric Surgery. ʻEpekema 7 Piladelapia, PA: Elsevier; 2020: chap 41.

• ʻO ka maʻi ʻo Crohn