Ke kiʻi ʻana i ke kākoʻo ke loaʻa i kāu keiki ka maʻi ʻaʻai

ʻO ka loaʻa ʻana o kahi keiki me ka maʻi ʻaʻai kekahi mea paʻakikī loa āu e hana ai ma ke ʻano he makua. ʻAʻole wale ʻoe e piha i ka hopohopo a me ka hopohopo, pono ʻoe e mālama i nā mālama ʻana o kāu keiki, nā kipa lapaʻau, ka ʻinikua, a pēlā aku.

Hoʻohana ʻia ʻoe a me kāu pakanā e mālama i kou ola ʻohana ma kāu iho, akā hoʻohui ka maʻi ʻaʻai i kahi ukana keu. E aʻo pehea e loaʻa ai ke kōkua a me ke kākoʻo i hiki ai iā ʻoe ke pale maʻalahi. Pēlā ʻoe e loaʻa ai ka manawa a me ka ikaika hou aku e noho ai ma laila no kāu keiki.

Paʻakiki ka maʻi ʻaʻai kamaliʻi i kahi ʻohana, akā paʻakikī pū kekahi i nā ʻohana a me nā hoa aloha o ka ʻohana. E haʻi iā lākou e mālama ʻia kāu keiki no ka maʻi ʻaʻai. E noi i nā ʻohana pili pono a me nā hoaaloha pili no ke kōkua me nā hana o ka hale a i ʻole ka mālama ʻana i nā kaikaina. ʻO ka loaʻa ʻana o kahi keiki me ka maʻi ʻaʻai ka pilikia i kou ʻohana, a hiki i kekahi poʻe ʻē aʻe a makemake e kōkua.

E makemake paha ʻoe e haʻi i ka poʻe i kou kaiāulu, ma ka hana, ke kula, a me ke kaiāulu haipule. Kōkua ia ke maopopo i ka poʻe a puni ʻoe i ka mea āu e hele nei. Eia kekahi, hiki i nā kānaka ke kōkua iā ʻoe i nā ʻano like ʻole. Loaʻa paha iā lākou kahi moʻolelo like a hiki ke hāʻawi i ke kākoʻo, a i ʻole hiki iā lākou ke kōkua iā ʻoe e holo i nā hana a uhi paha i kahi neʻe o ka hana.

Hiki iā ia ke paʻakikī ke mālama i nā mea āpau i nā mea e hana nei. Hiki ke luhi ka hana hou ʻana i nā nūhou. ʻO nā leka uila a i ʻole nā ​​pūnaewele pūnaewele he ala maikaʻi loa e hoʻohou i ka poʻe i kou ola. Hiki iā ʻoe ke loaʻa nā ʻōlelo ʻoluʻolu o ke kākoʻo i kēia ala. E makemake paha ʻoe e noi i kekahi ʻohana ʻē aʻe e lilo i kanaka kuhi e hoʻohou i ka poʻe a hoʻomaopopo iā lākou i ka mea hiki iā lākou ke hana e kōkua. E ʻae kēia iā ʻoe e loaʻa i ke kākoʻo me ka ʻole o ka hoʻokele iā ia.

Ke hōʻike koke ʻoe i ka poʻe, mai makaʻu i ka hoʻonohonoho ʻana i nā palena. E mahalo paha ʻoe i ka makemake o ka poʻe e kōkua. Akā i kekahi manawa hiki ke kōkua i ke kōkua a me ke kākoʻo. ʻO ka mea nui loa iā ʻoe a me kou ʻohana ka nānā ʻana i ka mālama ʻana i kāu keiki a me kekahi i kekahi. Ke kamaʻilio ʻana me nā poʻe ʻē aʻe:

• E hāmama a hoʻopono
• Hōʻike a haʻi i nā poʻe ʻē aʻe pehea ʻoe a me kāu keiki e makemake ai e mālama ʻia
• E ʻike i ka poʻe inā e hāʻawi nui ana iā ʻoe a i ʻole i kāu keiki

Loaʻa nā lawelawe mālama ola a me nā hui e kōkua iā ʻoe e kūpale me kahi keiki me ka maʻi ʻaʻai. Hiki iā ʻoe ke kiʻi i:

• Kou hui mālama ola
• ʻ healthlelo aʻoaʻo olakino noʻonoʻo
• Nā pūʻulu kākoʻo pāpāho pūnaewele a me nā hui kaiaulu
• Nā hui kaiaulu
• Nā papa a me nā pūʻulu haukapila kūloko
• ʻAha hui hoʻomana
• Nā puke kōkua ponoʻī

E kamaʻilio me kahi limahana kaiaulu a i ʻole kahi hoʻokumu kūloko e kiʻi i kōkua me nā lawelawe a i ʻole nā ​​lilo. Hiki i nā ʻoihana pilikino a me nā hui kaiāulu ke kōkua pū me ka faila ʻinikua a me ka loaʻa kālā e uku ai no nā lilo.

Ma ka mālama ʻana iā ʻoe iho, e hōʻike ana ʻoe i kāu keiki i ka leʻaleʻa i ke ola.

• Hoʻomaʻamaʻa pinepine a ʻai i ka papaʻai olakino. Hiki i ka mālama ʻana i kou kino ke hāʻawi iā ʻoe i ka ikaika e hana pū me kāu keiki a me nā mea hāʻawi. E pōmaikaʻi kāu keiki i ka loaʻa ʻana o nā mākua olakino.
• Lawe wale i ka manawa kūikawā me kāu wahine a me nā keiki ʻē aʻe a me nā hoaaloha. E kamaʻilio e pili ana i nā mea ʻē aʻe ma mua o ka maʻi ʻaʻai o kāu keiki.
• E hoʻolālā i ka manawa na ʻoe e hana i nā mea āu e makemake ai e hana ma mua o ka maʻi ʻana o kāu keiki. ʻO ka hana ʻana i nā mea āu e leʻaleʻa ai e kōkua iā ʻoe e kaulike a hoʻemi i ke koʻikoʻi. Inā ʻoluʻolu ʻoe, e hiki nō iā ʻoe ke kāohi i nā mea e hiki mai ana i kou ala.
• E hoʻolōʻihi paha ʻoe i ka manawa ma nā lumi kali. E noʻonoʻo i kahi mea ʻoluʻolu āu e leʻaleʻa ai, e like me ka heluhelu ʻana i nā puke a i ʻole nā ​​makasina, ka ulana ʻana, nā mea noʻeau, a i ʻole ke hana ʻana i kahi nane. Lawe mai i kēia mau mea me ʻoe e leʻaleʻa ke kali ʻoe. Hana paha ʻoe i nā hana hanu a i ʻole yoga e kōkua ai e hōʻemi i ke kaumaha.

Mai manaʻo hewa e pili ana i ka leʻaleʻa i ke ola. He olakino kāu keiki e ʻike iā ʻoe e minoʻaka ana a lohe i kou ʻakaʻaka ʻana. He maikaʻi ia na kāu keiki e manaʻo maikaʻi pū kekahi.

Loaʻa i kēia mau pūnaewele nā ​​pūʻulu kākoʻo pūnaewele, nā puke, nā ʻōlelo aʻoaʻo, a me ka ʻike e pili ana i ka hana ʻana me ka maʻi ʻaʻa kamaliʻi.

• ʻAmelika Hui Pū ʻIa ʻAmelika - www.cancer.org
• Pūʻulu Oncology Children - www.childrensoncologygroup.org
• ʻAmelika Hui Pū ʻIa Kanaka Ma ʻAmelika - www.acco.org
• ʻO CureSearch no ka maʻi ʻaʻa kamaliʻi - curesearch.org
• Ke Keʻena Cancer National - www.cancer.gov

Pūnaewele ʻAmelika Hui Pū ʻIa ʻAmelika. Ke loaʻa ʻana o ke kōkua a me ke kākoʻo ke loaʻa i kāu keiki ka maʻi ʻaʻai. www.cancer.org/content/cancer/en/treatment/ keiki-and-cancer/when-your-child-has-cancer/during-treatment/help-and-support.html. Hoʻohou ʻia Kepakemapa 18, 2017. Loaʻa iā ʻOkakopa 7, 2020.

Liptak C, Zeltzer LM, Recklitis CJ. Mālama psychosocial o ke keiki a me ka ʻohana. I: Orkin SH, Fisher DE, Ginsburg D, Nānā MA, Lux SE, Nathan DG, eds. ʻO Hematology a Nathan a me Oski a me Oncology o ke kamaliʻi a me ke kamaliʻi. 8th ed. Piladelapia, PA: Elsevier Saunders; 2015: chap 73.

Pūnaewele ʻo National Cancer Institute. Nā keiki me ka maʻi ʻaʻai: Kahi alakaʻi no nā mākua. www.cancer.gov/publications/patient-ed edukasyon/ keiki- me-cancer.pdf. Hoʻohou ʻia Kepakemapa 2015. Loaʻa iā ʻOkakopa 7, 2020.

• Kanesa i nā Keiki