Tourette maʻi pale
ʻO Tourette Syndrome kahi kumu e hana ai i ke kanaka e hana hou, neʻe wikiwiki a i ʻole kani ʻaʻole hiki iā lākou ke kaohi.
Ua kapa ʻia ʻo Tourette Syndrome no Georges Gilles de la Tourette, nāna i wehewehe mua i kēia maʻi i ka makahiki 1885.
Pili paha ka maʻi maʻi i nā pilikia i kekahi mau wahi o ka lolo. Pili paha ia i nā mea kemika (dopamine, serotonin, a me nā norepinephrine) i kōkua i nā hunaola nerve e hōʻailona kekahi i kekahi.
Hiki ke kaumaha a akahai paha ka maʻi Tourette. ʻAʻole ʻike ka poʻe he nui me nā tics akahai loa iā lākou a mai ʻimi i ke kōkua olakino. ʻOi aku ka nui o ka poʻe i ʻoi aku nā ʻano koʻikoʻi o Tourette Syndrome.
ʻO Tourette syndrome ka manawa 4 e kū i nā keikikāne e like me nā kaikamahine. Aia he 50% manawa e hiki i kahi kanaka me Tourette maʻi ke hoʻoili i ka ʻāpana i kāna mau keiki.
ʻO nā ʻōuli o Tourette Syndrome ua ʻike pinepine ʻia i ka wā kamaliʻi, ma waena o nā makahiki 7 a me 10. ʻO ka hapa nui o nā keiki me Tourette Syndrome kekahi mau pilikia olakino ʻē aʻe. Hiki i kēia ke hoʻopili i ka maʻi hyperactivity deficit attention (ADHD), maʻi hōʻeuʻeu obsessive (OCD), kaohi o ka impulse, a i ʻole ke kaumaha.
ʻO ka hōʻailona mua maʻamau ka tic o ka maka. Hahai paha nā tics ʻē aʻe. ʻO ka tic kahi neʻe koke, wikiwiki, hana hou a kani paha.
Hiki ke kau ʻia nā ʻōuli o Tourette Syndrome mai nā liʻiliʻi liʻiliʻi, neʻe liʻiliʻi (e like me ka ʻōhū, ke ʻoni ʻana, a me ke kaʻe ʻana) i nā neʻe mau a me nā kani i hiki ʻole ke kāohi ʻia.
Hiki i nā ʻano tics like ʻole ke hoʻopili pū:
- Pākuʻi lima
- ʻ .lapa ka maka
- Lele aku ana
- Keehi kik
- ʻO ka hoʻomaʻemaʻe ʻana i ka ʻāʻī a honi paha
- ʻŪhā poʻohiwi
Kū paha nā Tics i nā manawa he nui i ka lā. Hoʻomaikaʻi a hoʻomaikaʻi paha lākou i nā manawa like ʻole. E loli paha nā tics me ka manawa. ʻOi aku ka maikaʻi o nā ʻōuli ma mua o ka makahiki mid-teen.
Kūlike ʻole i ka hilinaʻi nui, nā poʻe liʻiliʻi wale nō e hoʻohana i nā hua ʻōlelo hōʻino a i ʻole nā huaʻōlelo a i ʻole nā huaʻōlelo kūpono ʻole (coprolalia).
ʻOkoʻa ka Tourette maʻi mai ka OCD. Manaʻo ka poʻe me OCD me he mea lā e hana lākou i nā ʻano. I kekahi manawa hiki i ke kanaka ke loaʻa iā Tourette maʻi ʻelua a me ka OCD.
Hiki i nā poʻe he nui me ka maʻi maʻi Tourette ke hoʻōki i ka hana ʻana i nā tic no kekahi mau manawa. Akā ʻike lākou he ʻoi aku ka ikaika o ka tic no kekahi mau minuke ma hope o ka ʻae ʻana e hoʻomaka hou. ʻO ka pinepine, lohi a kū paha ke tic i ka wā hiamoe.
ʻAʻohe hōʻike hoʻokolohua e hōʻoia ai i ka maʻi maʻi Tourette. E hana paha kahi mea mālama ola i kahi hoʻokolokolo e kāpae i nā kumu ʻē aʻe o nā hōʻailona.
E ʻike ʻia me ka maʻi Tourette, pono i ke kanaka ke:
- Ua loaʻa he nui o nāʻaika uila a hoʻokahi a iʻole iʻoi aku ka leo leo, 'aʻole paha i hanaʻia kēia mau tikika i ka manawa like.
- Loaʻa i nā leka uila i nā manawa he nui i ka lā, kokoke i kēlā me kēia lā a i ʻole a ma waho hoʻi, no kahi manawa i ʻoi aku i ka 1 makahiki.
- Ua hoʻomaka i nā tics ma mua o 18 mau makahiki.
- ʻAʻohe pilikia lolo ʻē aʻe i lilo i kumu o nā ʻōuli.
ʻAʻole mālama ʻia ka poʻe i loaʻa nā ʻōuli mālie. ʻO kēia no ka mea ʻoi aku ka maikaʻi o nā hopena o nā lāʻau ma mua o nā ʻōuli o Tourette Syndrome.
ʻO kahi ʻano o ke kamaʻilio kamaʻilio ʻana (ka noʻonoʻo hoʻomalule ʻano lāʻau) i kapa ʻia ʻo ka hoʻoliʻiliʻi maʻamau hiki ke kōkua e kāohi i nā lekiō.
Loaʻa nā lāʻau ʻokoʻa e mālama iā Tourette Syndrome. ʻO ka lāʻau maoli i hoʻohana ʻia e pili i nā ʻōuli a me nā pilikia olakino ʻē aʻe.
E noi i kāu mea nāna e hāʻawi inā hoʻonāukiuki ka lolo hohonu i kahi koho na ʻoe. Ke loiloi ʻia nei no nā ʻōuli nui o Tourette Syndrome a me nā ʻano obsessive-compulsive. ʻAʻole koi ʻia ka lāʻau lapaʻau ke kū kēia mau ʻōuli i ke kanaka hoʻokahi.
Hiki ke ʻike hou aku i ka ʻike a me ke kākoʻo no ka poʻe me Tourette Syndrome a me ko lākou mau ʻohana ma:
- ʻAhahui Tourette o ʻAmelika - tourette.org/online-support-groups-tourette-syndrome/
ʻOi aku ka maikaʻi o nā ʻōuli ma nā makahiki ʻōpio a laila hoʻomaikaʻi i ka wā makua. I kekahi poʻe, hele a pau nā ʻōuli no kekahi mau makahiki a laila hoʻi. I kekahi mau poʻe, ʻaʻole hoʻi e hoʻi nā ʻōuli.
Nā kūlana i kū i loko o ka poʻe i loaʻa iā Tourette syndrome me:
- Nā pilikia kāohi huhū
- ʻO ka maʻi hyperactivity deficit Attention deficit (ADHD)
- Kaʻano impulsive
- Maʻi ʻaʻano obsessive-compulsive
- Nā mākau pili kaiāulu maikaʻi ʻole
Pono e kuhi a mālama ʻia kēia mau ʻano.
E hana i kahi manawa me kāu mea hāʻawi inā loaʻa iā ʻoe a keiki paha nā ʻikena paʻakikī a paʻa paha, a i ʻole keakea lākou i ke ola o kēlā me kēia lā.
ʻAʻohe pale e ʻike ʻia.
ʻO Gilles de la Tourette maʻi maʻi; Nā maʻi Tic - Tourette Syndrome
ʻO Jankovic J. Parkinson maʻi a me nā ʻano neʻe ʻē aʻe. I: Daroff RB, Jankovic J, Mazziotta JC, Pomeroy SL, eds. ʻO Bradley's Neurology i ka hana lapaʻau. ʻEpekema 7 Piladelapia, PA: Elsevier; 2016: chap 96.
ʻO Martinez-Ramirez D, Jimenez-Shahed J, Leckman JF, et al. Ka maikaʻi a me ka palekana o ka hoʻonāukiuki ʻana o ka lolo i Tourette Syndrome: The International Tourette Syndrome Deep Brain Stimulation Public Database and Registry. JAMA Neurol. 2018; 75 (3): 353-359. PMID: 29340590 pubmed.ncbi.nlm.nih.gov/29340590/.
Ryan CA, Walter HJ, DeMaso DR. Nā pilikia kaʻa a me nā ʻano maʻamau. I: Kliegman RM, St. Geme JW, Blum NJ, Shah SS, Tasker RC, Wilson KM, eds. ʻO Puka Textbook of Pediatrics ʻo Nelson. 21st ed. Piladelapia, PA: Elsevier; 2020: chap 37.