Sclerosis maha - hoʻokuʻu
Ua haʻi aku kāu kauka iā ʻoe he sclerosis (MS) kou. Hoʻopili kēia maʻi i ka lolo a me ka iwi kuamoʻo (kikowaena ʻōnaehana ʻōnaehana).
Ma ka home e hāhai i nā ʻōlelo aʻoaʻo a kāu kahu mālama ola e pili ana iā ʻoe iho. E hoʻohana i ka ʻike ma lalo i mea hoʻomanaʻo.
Hoʻololi nā ʻōuli i kēlā me kēia kanaka. Me ka manawa, loaʻa i kēlā me kēia kanaka nā ʻōuli like ʻole. No kekahi poʻe, hōʻailona nā hōʻailona i kekahi mau lā i mau mahina, a laila hoʻemi a hele aku paha. No nā poʻe ʻē aʻe, ʻaʻole hoʻomaikaʻi a ʻaʻole liʻiliʻi wale nō nā ʻōuli.
I ka hala ʻana o ka manawa, e ʻoi aku paha ka maikaʻi o nā ʻōuli (holomua), a lilo i mea paʻakikī ka mālama ʻana iā ʻoe iho. Liʻiliʻi loa ka holomua o kekahi poʻe. ʻOi aku ka nui a me ka holomua o ka holomua.
E hoʻāʻo e noho i ka hana e like me ka hiki. E nīnau i kāu mea hāʻawi i ke ʻano o ka hana a me ka hoʻoikaika kino kūpono iā ʻoe. E hoʻāʻo e hele wāwae a jogging paha. He hoʻoikaika maikaʻi ka holo kaʻa paikikala paʻa.
Nā pōmaikaʻi o ka hoʻoikaika kino:
- Kōkua i kou mau mākala e noho paʻa
- Kōkua iā ʻoe e mālama i kāu kaulike
- Maikaʻi no kou puʻuwai
- Kōkua iā ʻoe e hiamoe maikaʻi
- Kōkua iā ʻoe i ka neʻe mau o ka ʻōpū
Inā loaʻa iā ʻoe nā pilikia me ka spasticity, e aʻo e pili ana i ka mea e ʻoi ai ka maikaʻi. Hiki iā ʻoe a i kāu mea mālama paha ke aʻo i nā hoʻoikaika kino e wehe ai nā mākala.
Hiki i ka hoʻonui ʻia o ka mahana o ke kino ke hōʻeha i kāu mau ʻōuli. Eia kekahi ʻōlelo aʻoaʻo e pale aku ai i ka wela nui:
- ʻO ka hoʻoikaika kino i ke kakahiaka a me ke ahiahi. E makaʻala i ʻole komo i nā lole he nui loa.
- Ke lawe ʻana i ka ʻauʻau a me nā ʻauʻau nui, pale i ka wai wela loa.
- E akahele i nā paipu wela a i ʻole nā saunas. E hōʻoia inā kokoke kahi mea e kōkua iā ʻoe inā lilo ʻoe i overheated.
- E mālama i kou hale i ke kauwela me ka lewa.
- Hōʻalo i nā mea inu wela inā ʻike ʻoe i nā pilikia me ka ale ʻana, a i ʻole nā hōʻailona ʻē aʻe iʻoi aʻe ka maikaʻi.
E mālama pono i kou home. E ʻike i kāu mea e hiki ai ke pale aku i ka hāʻule a mālama i kou lumipaku e palekana e hoʻohana.
Inā pilikia ʻoe i ka neʻe ʻana i kou hale me ka maʻalahi, e kamaʻilio me kāu mea lawelawe e pili ana i ka loaʻa ʻana o ke kōkua.
Hiki i kāu mea hāʻawi ke kuhikuhi iā ʻoe i kahi mea hoʻoponopono kino e kōkua me:
- Nā hoʻoikaika kino no ka ikaika a neʻe a puni
- Pehea e hoʻohana ai i kāu mea hele wāwae, ʻōkuhi, noho huila, a i ʻole nā hāmeʻa ʻē aʻe
- Pehea e hoʻonohonoho ai i kou home e neʻe me ka palekana
Hiki paha iā ʻoe ke loaʻa nā pilikia e hoʻomaka ana i ka mimiki a waiho ʻana paha i kāu ʻōpala ma nā ala āpau. E hakahaka pinepine paha kāu ʻōmole a i ʻole i ka manawa kūpono ʻole. Piha piha paha kāu kīʻaha a kulu paha ʻoe i ka mimi.
I mea e kōkua ai i nā pilikia o ke kīloi, kuhikuhi paha kāu mea hāʻawi i ka lāʻau. Pono kekahi poʻe me MS e hoʻohana i ka catheter urinary. ʻO kēia kahi paipu lahilahi i hoʻokomo ʻia i loko o kāu pēpē e hoʻokahe i ka mimi.
E aʻo aku paha kāu mea hāʻawi iā ʻoe i kekahi mau hoʻomaʻamaʻa e kōkua iā ʻoe e hoʻoikaika i nā mākala pelvic.
Kūleʻa nā maʻi urinary i ka poʻe me MS. E aʻo e ʻike i nā ʻōuli, e like me ka puhi ʻana ke mimi ʻoe, ke kuni, ka ʻehaʻeha o ke kua ma kekahi ʻaoʻao, a me ka pono pinepine e mimi.
Mai paʻa i kou mimi. Ke ʻike ʻoe i ka makemake e mimi, e hele i ka lua. Ke noho ʻole ʻoe ma ka home, e nānā i kahi o ka lua kokoke.
Inā he MS kāu, pilikia paha ʻoe i ka kaohi ʻana i kou ʻōpū. Loaʻa i kahi papa hana. Ke ʻike ʻoe i kahi hana ʻōpū e holo pono, pili me ia:
- E koho i kahi manawa maʻamau, e like me ma hope o ka papa ʻaina a i ʻole ka ʻauʻau mahana, e hoʻāʻo e loaʻa kahi ʻōpū.
- E hoʻomanawanui. 15 a 45 paha minuke ka lōʻihi o ka neʻe ʻana o kou ʻōpū.
- E hoʻāʻo e ʻānai mālie i kou ʻōpū e kōkua i ka neʻe e neʻe ma waena o kou kolone.
Hōʻalo i ka paʻa paʻa:
- E inu hou i nā wai.
- E noho hana a e lilo i mea ʻeleu.
- ʻAi i nā meaʻai me nā puluniu he nui.
E noi i kāu mea hoʻolako e pili ana i nā lāʻau āu e lawe nei i hiki ke kumu i ka constipation. Hoʻopili kēia i kekahi mau lāʻau no ke kaumaha, ʻeha, ka mālama ʻana i ka maʻi ʻaʻa, a me nā spasms muscle.
Inā ʻoe ma kahi noho huila a moe paha i ka hapa nui o ka lā, pono ʻoe e nānā i kou ʻili i kēlā me kēia lā no nā hōʻailona o ka ʻeha puʻe. E nānā pono ma:
- Kahikina
- Nā kuʻekuʻe wāwae
- ʻO nā kuli
- Hip
- ʻO Tailbone
- Kuʻekuʻe lima
- Nā poʻohiwi a me nā poʻohiwi
- Hope o kou poʻo
E aʻo pehea e pale ai i ka ʻeha puʻe.
E hoʻomau i kēia lā me kāu lāʻau āpau. E kiʻi i ka maʻi flu i kēlā me kēia makahiki. E noi i kāu mea nāna e hāʻawi inā pono ʻoe i kahi kīponia.
E noi i kāu mea hoʻolako e pili ana i nā checkups ʻē aʻe āu e pono ai, e like me ka hoʻāʻo ʻana i kāu pae kolesterol, ka pae kō kō, a me ka scan iwi no ka osteoporosis.
ʻAi i nā meaʻai olakino a mālama i ka lilo i ke kaupaona.
E aʻo e hoʻokele i ke koʻikoʻi. Nui ka poʻe me MS kaumaha a kaumaha i kekahi manawa. E kamaʻilio me nā hoaaloha a ʻohana paha e pili ana i kēia. E noi i kāu mea hāʻawi e pili ana i ka ʻike ʻana i kahi ʻoihana e kōkua iā ʻoe me kēia mau manaʻo.
E luhi paha ʻoe ma mua o ka luhi. E hoʻopaʻa iā ʻoe iho ke hana ʻoe i nā hana e luhi a pono paha i ka nui o ka noʻonoʻo.
Loaʻa paha iā ʻoe kāu mea hāʻawi i nā lāʻau like ʻole e mālama ai i kāu MS a me nā pilikia he nui i hiki ke hele pū me ia:
- E mālama pono i nā ʻōkuhi. Mai hōʻoki i ka lawe ʻana i nā lāʻau me ke kamaʻilio mua ʻole ʻana i kāu mea hāʻawi.
- ʻIke i ka mea e hana ai inā ʻike ʻoe i kahi lāʻau.
- E mālama i kāu mau lāʻau i kahi me, a me kahi maloʻo, a mamao aku i nā keiki.
Kāhea i kāu mea hāʻawi inā loaʻa iā ʻoe:
- Nā pilikia i ka lawe ʻana i nā lāʻau no ka spasms muscle
- Nā pilikia e neʻe ana i kou mau ami (hoʻohui kuʻina)
- ʻO nā pilikia e neʻe a puni ana paha i kou wahi moe a noho paha
- ʻEha ʻula a ʻulaʻula paha
- ʻEha e ʻinoʻino ana
- Heleleʻi hou
- ʻO ke kuke a ʻū paha i ka wā e ʻai ana
- Nā hōʻailona o ka maʻi o ka maʻi puhā (fever, burn when you urencing, foul urine, cloudy urine, or pinepine urination)
MS - hoʻokuʻu
ʻO Calabresi PA. ʻO ka sclerosis maha a me nā kūlana demyelinating o ka ʻōnaehana waena. I: Goldman L, Schafer AI, eds. ʻO ka lāʻau lapaʻau Goldman-Cecil. 26th ed. Piladelapia, PA: Elsevier; 2020: chap 383.
Fabian MT, Krieger SC, Lublin FD. ʻO nā sclerosis he nui a me nā maʻi demyelinating maha o ka ʻōnaehana waena. I: Daroff RB, Jankovic J, Mazziotta JC, Pomeroy SL, eds. ʻO Bradley's Neurology i ka hana lapaʻau. ʻEpekema 7 Piladelapia, PA: Elsevier; 2016: chap 80.
Pūnaewele ʻo Multiple Sclerosis Society. Noho maikaʻi me MS. www.nationalmssociety.org/Living-Well-With-MS. Loaʻa iā Nowemapa 5, 2020.
- Sclerosis lehulehu
- Bladder Neurogenic
- Optical neuritis
- Miki ʻole
- Ka palekana i ka lumipaku no nā mākua
- Ke mālama nei i ka spasticity muscle a i ʻole nā spasms
- Ke kamaʻilio nei me kekahi me ka maʻi disarthria
- Constipation - mālama pono iā ʻoe iho
- Constipation - he aha e nīnau aku ai i kāu kauka
- Polokalamu mālama ʻōpū i kēlā me kēia lā
- Tube hānai Gastrostomy - bolus
- Paipu hānai Jejunostomy
- Hoʻomaʻamaʻa Kegel - mālama pono iā ʻoe iho
- ʻO ka ulcer pressure - ka mea e nīnau ai i kāu kauka
- Pāleʻa ka pale ʻana
- Ke pale nei i ka hāʻule - he aha e nīnau aku ai i kāu kauka
- Kāohi ʻana i nā ulia puʻe
- ʻO ka catheterization ponoʻī - wahine
- ʻO ka catheterization ponoʻī - kāne
- Mālama pōpoki Suprapubic
- Pilikia i nā pilikia
- Nā ʻeke hoʻokahe mimi
- Ke loaʻa ʻoe i ka incontinence urinary
- Sclerosis maha