ʻO ka maʻi ʻo Von Hippel-Lindau

Anter

• Hōʻuluʻulu Manaʻo
• He aha ka maʻi ʻo Von Hippel-Lindau (VHL)?
• He aha ke kumu o ka maʻi ʻo Von Hippel-Lindau (VHL)?
• He aha nā hōʻailona o ka maʻi Von Hippel-Lindau (VHL)?
• Pehea ka maʻi ʻo Von Hippel-Lindau (VHL)?
• He aha nā ʻano lāʻau no ka maʻi ʻo Von Hippel-Lindau (VHL)?

Hōʻuluʻulu Manaʻo

He aha ka maʻi ʻo Von Hippel-Lindau (VHL)?

ʻO ka maʻi ʻo Von Hippel-Lindau (VHL) kahi maʻi laha ʻole e ulu ai nā tumors a me nā cist i kou kino. Hiki iā lākou ke ulu i kou lolo a me ka iwi kuamoʻo, nā puʻupaʻa, ka pancreas, nā adrenal glands, a me nā wahi hānau. ʻO nā kūpoko he maʻa mau (non-cancerous). Akā kekahi mau tumors, e like me nā mea ma ka puʻupaʻa a me ka pancreas, hiki ke lilo i maʻi ʻaʻai.

He aha ke kumu o ka maʻi ʻo Von Hippel-Lindau (VHL)?

ʻO ka maʻi ʻo Von Hippel-Lindau (VHL) kahi maʻi maʻi. Hoʻoilina ia, ʻo ia hoʻi ua hoʻoili ʻia mai ka makua a ke keiki.

He aha nā hōʻailona o ka maʻi Von Hippel-Lindau (VHL)?

Pili nā ʻōuli o VHL i ka nui a me kahi o nā tumors. Pākuʻi paha lākou

• Poʻo poʻo poʻo
• Nā pilikia me ke kaulike a me ka hele wāwae
• Puʻupuʻu
• Nāwaliwali o nā lālā
• Nā pilikia ʻike
• Piʻi koko kiʻekiʻe

Pehea ka maʻi ʻo Von Hippel-Lindau (VHL)?

He mea nui ka ʻike ʻana a mālama ʻana iā VHL. Manaʻo paha kāu mea mālama olakino loaʻa iā ʻoe ka VHL inā loaʻa iā ʻoe kekahi ʻano o nā cista a me nā tumors. Aia kahi hōʻike genetika no VHL.Inā loaʻa iā ʻoe, pono ʻoe i nā hoʻokolohua ʻē aʻe, e like me nā hoʻokolohua kiʻi, e nānā no nā tumors a me nā cista.

He aha nā ʻano lāʻau no ka maʻi ʻo Von Hippel-Lindau (VHL)?

Hiki ke loli i ka hoʻomaʻamaʻa, kaukaʻi ʻia i ka wahi a me ka nui o nā tumors a me nā kista. Hoʻohui maʻamau Hiki ke mālama ʻia kekahi mau tumors me ka radiation radiation. ʻO ka pahuhopu ka mālama ʻana i nā mea ulu i ka wā liʻiliʻi a ma mua o ka hana ʻana i nā mea mau loa. Pono ʻoe e nānā pono e ke kauka a me / a i ʻole ka hui olakino i kamaʻāina me ka maʻi.

NIH: National Institute of Neurological Disorder a me ka hahau