E nīnau i ka mea loea: Pehea e aʻoaʻo ai iā ʻoe iho me Endometriosis

Anter

• 1. No ke aha he mea nui e kākoʻo iā ʻoe iho inā ʻoe e noho ana me ka endometriosis?
• 2. He aha kekahi mau manawa kikoʻī āu e pono ai e kākoʻo iā ʻoe iho? Hiki iā ʻoe ke hāʻawi i mau laʻana?
• 3. He aha kekahi mau mākau kī nui i kōkua ʻia a i ʻole nā ​​hoʻolālā no ke kākoʻo ʻana iā ʻoe iho a pehea e hiki ai iaʻu ke hoʻomohala iā lākou?
• 4. He aha ke kuleana o ka noiʻi kūlana i ka hoʻolaha pilikino? He aha kekahi o kāu punahele punahele no ka noiʻi ʻana i ka endometriosis?
• 5. I ka wā e pili ana i ka noho ʻana me ka endometriosis a me ka hoʻoikaika pilikino, i ka manawa hea ʻoe i kū ai i nā pilikia nui loa?
• 6. Ke kōkua nei ka loaʻa ʻana o kahi ʻōnaehana kākoʻo ikaika me ka hoʻolaha pilikino? Pehea e hiki ai iaʻu ke hana i nā hana e ulu ai kaʻu ʻōnaehana kākoʻo?
• 7. Ua pono ʻoe e kākoʻo iā ʻoe iho i nā hanana i pili i kou ʻohana, nā hoaaloha, a i ʻole nā ​​mea aloha ʻē aʻe, a me nā hoʻoholo āu e makemake ai e hoʻoholo e pili ana i ka mālama ʻana i kāu kūlana?
• 8. Inā wau e hoʻāʻo e kākoʻo iā ʻoe iho akā manaʻo wau ʻaʻole wau e hele ma kahi ʻē, he aha kaʻu e hana ai? He aha kaʻu hana hou?

1. No ke aha he mea nui e kākoʻo iā ʻoe iho inā ʻoe e noho ana me ka endometriosis?

Ke kākoʻo nei iā ʻoe iho inā ʻoe e noho nei me ka endometriosis ʻaʻole ia he koho maoli - pili i kou ola. Wahi a EndoWhat, kahi hui hoʻolaha o ka poʻe e noho nei me ka endometriosis a me nā mea lawelawe olakino, hoʻopili ka maʻi i kahi 176 miliona mau wahine ma ka honua holoʻokoʻa, akā hiki ke hala i 10 mau makahiki e loaʻa ai kahi ʻike kūhelu.

No ke aha mai? Ma muli o ka noiʻi nui ʻia ʻana o ka maʻi a, i koʻu manaʻo, ʻaʻole nui nā kauka i hōʻano hou i ko lākou ʻike e pili ana. Hoʻokomo kālā ka National Institutes of Health (NIH) ma mua o ka noiʻi olakino ma nā ʻano ʻano like ʻole - akā i ka makahiki 2018, ua loaʻa he $ 7 miliona wale nō i ka endometriosis.

Ua lawe pilikino wau iaʻu ʻehā mau makahiki e loaʻa kahi hōʻailona, ​​a ua manaʻo ʻia wau ʻo kekahi o nā laki. ʻO kahi hulina Google maʻalahi ma endometriosis e lawe mai paha i kahi pūʻulu o nā ʻatikala me ka ʻike i hala ʻole a kūpono ʻole paha.

ʻAʻole loaʻa i nā hui he nui i ka wehewehe maoli o ka maʻi. I mea e akāka ai, hiki ke endometriosis ke ʻike ʻia nā mea like me ka uhi o ka ʻōpū i nā wahi o ke kino ma waho o ka pūpū. ʻAʻole ia he kiko kiko like, ʻo ia ke kuhi hewa aʻu i ʻike ai i nā ʻano o nā ʻoihana. No laila, pehea e hiki ai iā mākou ke hilinaʻi i kekahi o nā ʻike i hāʻawi ʻia iā mākou e pololei?

ʻO ka pane pōkole: ʻaʻole pono iā mākou. Pono mākou e aʻo. I koʻu manaʻo, hilinaʻi kā mākou ola āpau iā ia.

2. He aha kekahi mau manawa kikoʻī āu e pono ai e kākoʻo iā ʻoe iho? Hiki iā ʻoe ke hāʻawi i mau laʻana?

ʻO ka loaʻa wale ʻana o kahi hōʻailona e pono iā ʻoe iho. Hoʻokuʻu ʻia ka hapa nui o nā wahine no ka mea ua manaʻo ʻia ka ʻeha o ka wā he maʻamau. No laila, ua waiho lākou i ka manaʻoʻiʻo he overreacting a i ʻole i loko o ko lākou poʻo.

ʻAʻole maʻamau ka hoʻonāwaliwali ʻana i ka ʻeha. Inā hoʻāʻo kāu kauka - a i ʻole nā ​​mea lawelawe olakino e hōʻoia iā ʻoe he mea maʻamau, pono ʻoe e nīnau iā ʻoe iho inā ʻo lākou ke kanaka ʻoi loa e hāʻawi i kāu mālama.

3. He aha kekahi mau mākau kī nui i kōkua ʻia a i ʻole nā ​​hoʻolālā no ke kākoʻo ʻana iā ʻoe iho a pehea e hiki ai iaʻu ke hoʻomohala iā lākou?

ʻO ka mea mua, e aʻo e hilinaʻi iā ʻoe iho. ʻO ka lua, ʻike ʻike ʻoe i kou kino ponoʻī ma mua o kekahi.

Ke aʻo nei kekahi mākau ʻē aʻe e hoʻohana i kou leo ​​e hōʻike ai i kāu mau hopohopo a e nīnau i nā nīnau inā ʻaʻole i hoʻohui ʻia nā mea a maopopo ʻole paha. Inā hele a pīhoihoi a makaʻu paha ʻoe i nā kauka, hana i kahi papa inoa o nā nīnau āu e makemake ai e nīnau mua. Kōkua kēia iā ʻoe e hōʻalo i ka sidetracked a poina i kekahi mea.

Lawe i nā memo i kāu wā i koho ai inā ʻaʻole ʻoe e noʻonoʻo e hoʻomanaʻo ʻoe i ka ʻike āpau. Lawe mai i kekahi me ʻoe i kāu wā i koho ai no laila he mau pepeiao ʻē aʻe kāu i loko o ka lumi.

4. He aha ke kuleana o ka noiʻi kūlana i ka hoʻolaha pilikino? He aha kekahi o kāu punahele punahele no ka noiʻi ʻana i ka endometriosis?

He mea nui ka noiʻi ʻana, akā ʻo ke kumuwaiwai kahi o kāu noiʻi i ʻoi aku. Nui a hewahewa nā ʻike e hoʻopuni nei e pili ana i ka endometriosis. Kaha paha he mea nui ke ʻike i ka pololei a me ka ʻole. ʻOiai ma ke ʻano he kahu hānai me ka ʻike noiʻi nui, ua paʻakikī wau i ka ʻike ʻana i nā kumuwaiwai aʻu e hilinaʻi ai.

ʻO kaʻu mau punahele punahele a hilinaʻi nui ʻia no ka endometriosis:

• ʻO Nancy's Nook ma Facebook
• Ke kikowaena no ka mālama Endometriosis
• ʻO Endo

5. I ka wā e pili ana i ka noho ʻana me ka endometriosis a me ka hoʻoikaika pilikino, i ka manawa hea ʻoe i kū ai i nā pilikia nui loa?

ʻO kekahi o kaʻu mau pilikia nui loa i hele mai me ka hoʻāʻo ʻana e loaʻa kahi hōʻailona. Loaʻa iaʻu ka mea i manaʻo ʻia he ʻano endometriosis kakaikahi, kahi i loaʻa ma kaʻu diaphragm, ʻo ia ka mākala e kōkua iā ʻoe e hanu. Ua paʻakikī wau i ka hōʻoia ʻana i kaʻu mau kauka i ka pōkole cyclical o ka hanu a me ka ʻeha o ka umauma aʻu e ʻike ai i pili i koʻu wā. Ua hoʻomau ʻia wau e haʻi ʻia "hiki, akā kākaʻikahi loa."

6. Ke kōkua nei ka loaʻa ʻana o kahi ʻōnaehana kākoʻo ikaika me ka hoʻolaha pilikino? Pehea e hiki ai iaʻu ke hana i nā hana e ulu ai kaʻu ʻōnaehana kākoʻo?

Loaʻa ka ʻōnaehana kākoʻo ikaika no laila mea nui i ke kākoʻo ʻana iā ʻoe iho. Inā ʻo ka poʻe ʻike iā ʻoe ka mea ʻoi loa e hōʻemi i kou ʻeha, me ka hilinaʻi e kaʻana like i kāu mau ʻike me kāu kauka.

He mea kōkua ia e hōʻoia i ka maopopo i ka poʻe o kou ola i ka mea āu e hele nei. Hoʻomaka kēlā me ka 100 pākēneka maopopo a me ka pololei me lākou. ʻO ia hoʻi ke kaʻana like ʻana i nā kumuwaiwai me lākou e hiki ke kōkua iā lākou e hoʻomaopopo i ka maʻi.

He pepa pepa kupaianaha ʻo EndoWhat e kōkua me kēia. Ua hoʻouna wau i kope i kaʻu mau hoaaloha a me koʻu ʻohana āpau no ka mea ʻo ka hoʻāʻo ʻana e wehewehe pono i ka luku ʻana o kēia maʻi hiki ke paʻakikī loa e waiho i nā huaʻōlelo.

7. Ua pono ʻoe e kākoʻo iā ʻoe iho i nā hanana i pili i kou ʻohana, nā hoaaloha, a i ʻole nā ​​mea aloha ʻē aʻe, a me nā hoʻoholo āu e makemake ai e hoʻoholo e pili ana i ka mālama ʻana i kāu kūlana?

He mea kupanaha paha ia, akā ʻaʻole. I ka wā aʻu e huakaʻi ai mai Kaleponi a i Atlanta no ka ʻoki ʻana e mālama ai i ka endometriosis, ua hilinaʻi koʻu ʻohana a me koʻu mau hoaaloha i kaʻu hoʻoholo ʻo kēia ka koho maikaʻi loa naʻu.

Ma kekahi ʻaoʻao, ua manaʻo pinepine wau e like me ka mea e pono ai e ʻāpono i ka nui o ka ʻeha aʻu i loko. Lohe pinepine wau, "Ua ʻike nō wau a ʻo wai ka endometriosis a maikaʻi lākou." ʻAʻole ka endometriosis maʻi hoʻokahi-nui-āpau.

8. Inā wau e hoʻāʻo e kākoʻo iā ʻoe iho akā manaʻo wau ʻaʻole wau e hele ma kahi ʻē, he aha kaʻu e hana ai? He aha kaʻu hana hou?

Ke hiki mai i kāu kauka, inā manaʻo ʻoe ʻaʻole ʻoe e lohe ʻia a hāʻawi ʻia ana i nā kōkua kōkua a i ʻole nā ​​pane, e loaʻa i kahi manaʻo ʻelua.

Inā ʻaʻole holo kāu papa hana o kēia manawa, kaʻana like i kēia me kāu kauka ke maopopo koke iā ʻoe kēia. Inā ʻaʻole lākou e makemake e hoʻolohe i kāu mau hopohopo, he hae ʻulaʻula kēlā āu e noʻonoʻo ai e loaʻa i kahi kauka hou.

He mea nui e manaʻo mau ʻoe e like me kahi hoa i kāu mālama ponoʻī, akā hiki iā ʻoe ke lilo i hoa like inā hana ʻoe i kāu haʻawina home a ʻike maikaʻi ʻia. Aia paha kahi pae hilinaʻi i haʻi ʻole ʻia ma waena o ʻoe a me kāu kauka, akā mai hoʻokuʻu i ka hilinaʻi iā ʻoe e komo i kāu kuleana ponoʻī. ʻO kēia kou ola. ʻAʻohe mea e hakakā no ka paʻakikī e like me kou makemake.

Hoʻohui i nā kaiāulu a me nā pūnaewele o nā wahine ʻē aʻe me ka endometriosis. Ma muli o ka palena o ka helu o nā loea endometriosis ʻoiaʻiʻo, ʻo ke kaʻana like ʻana i nā ʻike a me nā kumuwaiwai ka pōhaku kihi o ka loaʻa ʻana o ka mālama maikaʻi.

ʻO Jenneh Bockari, 32, e noho nei ma Los Angeles. He kahu wahine ʻo ia no 10 mau makahiki e hana ana i nā mea like ʻole. Aia ʻo ia i kāna kau hope loa o ke kula puka puka, ke alualu nei i kāna Master in Education Nursing. Ke ʻike nei i ka paʻakikī o ka hoʻokele ʻana o ka "honua endometriosis", ua lawe ʻo Jenneh i Instagram e kaʻana like i kāna ʻike a loaʻa nā kumuwaiwai. Hiki ke loaʻa kāna huakaʻi pilikino @kokokokoko. Ke ʻike nei i ka nele o ka ʻike i loaʻa, ua makemake ʻo Jenneh i ke kākoʻo a me ke aʻo ʻana iā ia e loaʻa ʻO ka Endometriosis Coalition me Natalie Archer. Ka misiona a ʻO Endo Co. e hoʻāla i ka ʻike, paipai i ka ʻike loea, a hoʻonui i ke kālā noiʻi no ka endometriosis.