ʻO Sclerosis Pūnaewele (Scleroderma)

Anter

• Nā kiʻi o Systemic Sclerosis (Scleroderma)
• Nā ʻōuli o Systemic Sclerosis
• Nā kumu o ka Systemic Sclerosis
• Nā kumu kūpilikiʻi no ka Systemic Sclerosis
• ʻIke o ka Systemic Sclerosis
• Lapaʻau no Systemic Sclerosis
• Nā pilikia kūpono o ka Systemic Sclerosis
• He aha ka manaʻo no ka poʻe me ka Systemic Sclerosis?

ʻO Sclerosis Pūnaewele (SS)

ʻO systemic sclerosis (SS) kahi maʻi autoimmune. ʻO kēia ke ʻano o kahi ʻano e hoʻouka ai ka ʻōnaehana pale kino i ke kino. Hoʻopau ʻia ke kino olakino no ka mea kuhi hewa ka ʻōnaehana paleʻea he waiwai haole a maʻi paha. Nui nā ʻano o nā maʻi autoimmune i hiki ke hoʻopili i nā ʻōnaehana o ke kino.

Hoʻohālikelike ʻia ʻo SS e nā loli i ke ʻano a me ka helehelena o ka ʻili. Loaʻa kēia i ka hoʻonui ʻia o ka hana collagen. ʻO Collagen kahi mahele o nā pūnaewele hoʻopili.

Akā ʻaʻole paʻa ka maʻi i nā loli o ka ʻili. Hiki iā ia ke hoʻololi i kāu:

• ipu koko
• nā mākala
• Puʻuwai
• ʻōnaehana digestive
• māmā
• nā puʻupaʻa

Hiki ke ʻike ʻia nā hiʻohiʻona o ka sclerosis ʻōnaehana i nā maʻi autoimmune ʻē aʻe. Ke hiki mai kēia, ua kapa ʻia ia he ʻano pilina hoʻopili.

ʻIke pinepine ʻia ka maʻi i nā poʻe 30 a 50 mau makahiki, akā hiki ke ʻike ʻia i kēlā me kēia makahiki. ʻOi aku ka wahine ma mua o nā kāne e ʻike ʻia me kēia ʻano. ʻO nā ʻōuli a me ke koʻikoʻi o ke ʻano ʻokoʻa mai kekahi kanaka a i kekahi ʻē aʻe e pili ana i nā ʻōnaehana a me nā meaola i pili.

Kāhea ʻia ka sclerosis ʻōnaehana ʻo scleroderma, sclerosis ʻōnaehana holomua, a i ʻole CREST syndrome. Kū ʻo "CREST" i:

• kalopona
• Ka hanana o Raynaud
• hoʻoweliweli esophageal
• mikanele
• telangiectasia

ʻO CREST Syndrome kahi ʻano palena o ka maʻi.

Nā kiʻi o Systemic Sclerosis (Scleroderma)

Nā ʻōuli o Systemic Sclerosis

Hoʻopili wale paha ʻo SS i ka ʻili i nā wā mua o ka maʻi. ʻIke paha ʻoe i kou ʻili e mānoanoa ana a me nā wahi aniani e ulu ana a puni kou waha, ihu, manamana lima, a me nā wahi iwi ʻē aʻe.

Ke holo nei ke ʻano, hoʻomaka paha ʻoe e hoʻoneʻe i ka neʻe ʻana o nā wahi i hoʻopilikia ʻia. ʻO nā ʻōuli ʻē aʻe e like me:

• poho lauoho
• nā waihona calcium, a i ʻole nā ​​puʻupuʻu keʻokeʻo ma lalo o ka ʻili
• liʻiliʻi, kīnā ʻia nā kīʻaha koko ma lalo o ka ʻili
• ʻeha pū
• pokole o ka hanu
• he puʻu maloo
• pāhoehoe
• kōpaʻa
• paʻakikī i ka ale ʻana
• reflux esophageal
• ʻōpū o ka ʻōpū ma hope o ka ʻai ʻana

E hoʻomaka paha ʻoe e ʻike i nā spasms o nā kīʻaha koko i kou manamana lima a me kou manamana wāwae. A laila, e keʻokeʻo a polū hoʻi kou mau wēlau ke hele ʻoe i ke anuanu a i ʻole ke kaumaha nei i ke kaumaha nui. Kapa ʻia kēia hanana ʻo Raynaud.

Nā kumu o ka Systemic Sclerosis

Kū ʻo SS i ka hoʻomaka ʻana o kou kino e hoʻonui i ka collagen a hōʻiliʻili ia i loko o kāu mau pūnaewele. ʻO Collagen ka protein protein nui e hana i kāu mau āpau.

ʻAʻole maopopo i nā kauka nā mea e kumu ai ke kino e hoʻohua i nā collagen he nui. ʻAʻole ʻike ʻia ke kumu kūpono o SS.

Nā kumu kūpilikiʻi no ka Systemic Sclerosis

Nā kumu pilikia e hiki ke hoʻonui i kou manawa o ka hoʻomohala ʻana i kēia ʻano me nā:

• he ʻōiwi ʻAmelika
• he ʻAmelika-ʻAmelika
• he wahine
• e hoʻohana nei i kekahi mau lāʻau chemotherapy e like me Bleomycin
• ke hōʻike ʻia i ka lepo silica a me nā mea hoʻoheheʻe maoli

ʻAʻohe ala i ʻike ʻia e pale aku ai iā SS ma mua o ka hōʻemi ʻana i nā kumu pilikia e hiki ai iā ʻoe ke kaohi.

ʻIke o ka Systemic Sclerosis

I ka wā o kahi hoʻokolohua kino, hiki i kāu kauka ke hoʻomaopopo i nā loli o ka ʻili i hōʻailona o SS.

Hiki ke kumu o ke kahe kiʻekiʻe ma o ka loli ʻana o ka hakuʻala mai sclerosis. Hiki i kāu kauka ke kauoha i nā hoʻokolohua koko e like me ka hoʻāʻo ʻana i ka antibody, factor rheumatoid, a me ka helu sedimentation.

Hiki i nā hoʻokolohua diagnostic ʻē aʻe ke:

• kahi pahu kukui X
• he urinalisis
• kahi CT scan o nā akemāmā
• ʻili biopsies

Lapaʻau no Systemic Sclerosis

ʻAʻole hiki i ka lapaʻau ke hōʻola i ke ʻano, akā hiki ke kōkua i ka hōʻemi ʻana i nā hōʻailona a me ka lohi o ka holo ʻana o ka maʻi. Hoʻokumu pinepine ʻia ka lapaʻau ʻana ma nā hōʻailona o ke kanaka a me ka pono e pale i nā pilikia.

ʻO ka mālama ʻana no nā ʻōuli laulā e hoʻopili paha:

• Corticosteroids
• nā immunosuppressants, e like me methotrexate a i ʻole Cytoxan
• lāʻau lapaʻau anti-inflammatory nonsteroidal

Kaukaʻi ʻia i kāu mau ʻōuli, hiki i ka lapaʻau ke hoʻopili pū:

• lāʻau lapaʻau koko
• lāʻau e kōkua ai i ka hanu ʻana
• hoʻōla kino
• light therapy, e like me ultraviolet A1 phototherapy
• ʻo ka hamo nitroglycerin e mālama i nā wahi i hoʻopaʻa ʻia o ka ʻili

Hiki iā ʻoe ke hoʻololi i ka nohona e noho olakino me ka scleroderma, e like me ka hōʻalo ʻana i ka puhipaka ʻana, ka hana ʻana i ke kino, a me ka hōʻalo ʻana i nā meaʻai e hoʻāla ai i ka ʻehaʻeha naʻau.

Nā pilikia kūpono o ka Systemic Sclerosis

ʻIke kekahi poʻe me SS i kahi holomua o kā lākou mau ʻōuli. Hiki i nā pilikia ke hoʻopili:

• puʻuwai puʻuwai
• maʻi ʻaʻai
• hakuʻala ʻole
• kahe koko kiʻekiʻe

He aha ka manaʻo no ka poʻe me ka Systemic Sclerosis?

Ua hoʻomaikaʻi maikaʻi ʻia nā mālama ʻana no SS i nā makahiki 30 i hala. ʻOiai ʻaʻohe lāʻau lapaʻau no SS, nui nā ʻano lapaʻau like ʻole e hiki ke kōkua iā ʻoe e hoʻokele i kāu mau ʻōuli. E kamaʻilio me kāu kauka inā loaʻa kekahi o kāu mau hōʻailona i ke ʻano o kou ola i kēlā me kēia lā. Hiki iā lākou ke hana pū me ʻoe e hoʻoponopono i kāu papa hana hoʻomalu.

Pono ʻoe e noi i kāu kauka e kōkua iā ʻoe e ʻike i nā hui kōkua kūloko no SS. Ke kamaʻilio nei i nā poʻe ʻē aʻe i loaʻa nā ʻike like e like me ka mea e hiki ai iā ʻoe ke hana maʻalahi e kū i ke ʻano maʻi.