Nā Nīnau 7 e nīnau ai i ka noʻonoʻo ʻana i ka mālama ʻana no IPF

Anter

• 1. Pehea wau e ʻike ai inā e ʻino nei kaʻu IPF?
• 2. He aha nā lāʻau e hoʻōla ai iā IPF?
• 3. Hiki i ka oxygen therapy ke kōkua iaʻu e hanu maikaʻi?
• 4. Aia kekahi mau papahana hoʻoponopono i loaʻa?
• 5. Pono wau i kahi transplant lung?
• 6. Aia kekahi mau lapaʻau ʻē aʻe i loaʻa?
• 7. He aha nā mea maikaʻi a me nā maikaʻi ʻole o ka mālama ʻana iā IPF?

Idiopathic pulmonary fibrosis (IPF) kahi ʻano o ka pulmonary fibrosis i ʻike ʻole ʻia nā kumu. ʻOiai he lohi ka holomua holoʻokoʻa, hiki i ka hopena ke hōʻemi koke i nā ʻōuli ke hoʻonui ʻia.

Hāʻawi ʻia i kēia mau ʻike ʻelua, e noʻonoʻo paha ʻoe inā hiki ke mālama ʻia inā ʻaʻole ʻike kāu kauka i ka mea i hoʻomaka ai kāu IPF. Hiki paha iā ʻoe ke noʻonoʻo inā he pono ke kumu lāʻau.

E hoʻomanaʻo i nā nīnau lapaʻau aʻe e kamaʻilio e pili ana i kāu kau e hiki mai ana me kāu kauka.

1. Pehea wau e ʻike ai inā e ʻino nei kaʻu IPF?

ʻO ka hōʻailona maʻamau o ka IPF ka hanu o ka hanu, i kapa ʻia hoʻi ʻo dyspnea. Puka mai paha ka hanu me ka ʻole a kuhihewa pinepine ʻia no kahi ʻano lung hou. ʻIke paha ʻoe iā ia i nā wā o ka hana, a me ka manawa, i nā wā hoʻomaha. Hele pū kekahi pūhū maloʻo me ka pōkole o ka hanu.

Hoʻokumu pū paha kāu IPF i nā hōʻailona ʻē aʻe, e like me ka pohō kaumaha, ʻehaʻeha o ka ʻū, a me ka luhi. Hoʻomaopopo paha ʻoe i kou mau manamana lima a me nā manamana wāwae e hoʻomaka ana e hoʻopuni i nā ʻōlelo aʻoaʻo, kahi ʻōuli i ʻike ʻia ʻo ka clubbing.

ʻOkoʻa nā ʻōuli o ka IPF mai kēlā me kēia kanaka. Inā ʻoe e ʻike i nā pilikia hanu e hoʻomau i ka ʻino, a me ka hoʻomaka ʻana o nā hōʻailona hou aʻe, he hōʻailona paha kēia e hoʻonui ana kou maʻi. Kūkākūkā i kāu koho lapaʻau me kāu kauka.

2. He aha nā lāʻau e hoʻōla ai iā IPF?

Minamina, ʻaʻohe lāʻau i loaʻa e hoʻōla iā IPF. Akā, hoʻohana ʻia nā lāʻau e hoʻolohi i ka holomua o nā hōʻailona IPF. Ma ka huli ʻana, ʻike paha ʻoe i ke ʻano maikaʻi o ke ola.

ʻElua mau lāʻau i ʻae ʻia e ka US Food and Drug Administration (FDA) no ka mālama ʻana i IPF: nintedanib (Ofev) a me pirfenidone (Esbriet). ʻIke ʻia me nā agena antifibrotic, hoʻemi kēia mau lāʻau i ka helu o ka scarring i loko o kāu mau māmā. Hiki i kēia ke kōkua i ka hoʻolohi i ka holomua o IPF a hoʻomaikaʻi i kāu mau hōʻailona pū kekahi.

Hoʻohui ʻia, hiki i kāu kauka ke kuhikuhi i hoʻokahi a ʻoi paha o nā lāʻau aʻe:

• ʻo nā lāʻau reflux acid, keu hoʻi inā loaʻa ʻoe i ka maʻi reflux gastroesophageal (GERD)
• antibiotics e pale aku i nā maʻi
• nā lāʻau anti-inflammatory, e like me prednisone
• nā mea kūpoki kaika, e like me benzonatate, hydrocodone, a me thalidomide

3. Hiki i ka oxygen therapy ke kōkua iaʻu e hanu maikaʻi?

He koho kūpono ka oxygen therapy no ka hapanui o ka poʻe me IPF. Hiki iā ia ke kōkua iā ʻoe e hanu maikaʻi ʻoiai ʻoe e hele wāwae ana, hale kūʻai, a i ʻole hana i nā hana ʻē aʻe. Ke holo nei ʻo IPF, pono ʻoe i ka oxygen therapy i ka wā hiamoe e kōkua iā ʻoe e hanu maikaʻi.

ʻAʻole hiki i ka oxygen therapy ke hōʻoki i ka holomua o IPF, akā hiki iā ia:

• hana maʻalahi i ka hoʻoikaika kino
• kōkua iā ʻoe e hiamoe a hiamoe
• hoʻoponopono i kou kaomi koko

4. Aia kekahi mau papahana hoʻoponopono i loaʻa?

Ae. No IPF, e hāʻawi ʻia ʻoe i kahi papahana pulmonary rehabilitation program. Hiki iā ʻoe ke noʻonoʻo i kēia ma ke ʻano he ʻano hana ʻoihana a ʻano hoʻomalule kino paha, koe wale ka nānā ʻana i kāu mau māmā.

Me ka hoʻoponopono pulmonary, e kōkua kāu mea hoʻoponopono iā ʻoe me:

• nā ʻenehana hanu
• kākoʻo manaʻo
• ka hoʻoikaika kino a me ke ahonui
• mea ʻai pono

5. Pono wau i kahi transplant lung?

Inā loaʻa iā ʻoe kahi nui o ka scarring paru, loaʻa iā ʻoe ke pōmaikaʻi mai kahi transplant lung. Inā kūleʻa, hiki i ke ʻoki ke kōkua iā ʻoe e ola lōʻihi. Wahi a ka Pulmonary Fibrosis Foundation, pili ka pulmonary fibrosis i kahi hapalua o nā transplants lung i United States.

Eia nō naʻe, aia kahi pilikia nui e pili ana i kahi transplant lung, no laila ʻaʻole ia no nā mea āpau. ʻO ka hopohopo nui ka hōʻole ʻana i ka lung hou. Hiki pū kekahi nā maʻi ʻino.

E kamaʻilio me kāu kauka inā makemake ʻoe e ʻike hou e pili ana i nā transplant lung a inā kūpono kekahi iā ʻoe.

6. Aia kekahi mau lapaʻau ʻē aʻe i loaʻa?

ʻAʻole i kākoʻo nui ʻia nā ʻano lāʻau ʻē aʻe no ka hoʻokele IPF. Eia nō naʻe, hiki i nā hoʻoponopono home a me nā loli nohona ke kōkua i kāu kūlana holoʻokoʻa.

E kamaʻilio me kāu kauka e pili ana:

• hoʻoikaika kino
• kākoʻo mālama kino
• hoʻōki puhipaka
• ke lawe nei i nā wikamina, inā pono
• ʻōpū

Hiki paha i kāu kauka ke ʻōlelo aku i nā lāʻau lapaʻau over-the-counter (OTC) a me nā lāʻau e mālama ai i kāu mau ʻōuli. ʻO nā laʻana e like me nā kulu ʻūhā, nā mea hōʻoki kahe, a me nā mea ʻeha. E nānā mau me kāu kauka ma mua o ka lawe ʻana i nā lāʻau OTC e pale ai i nā hopena a me nā launa lāʻau hiki.

7. He aha nā mea maikaʻi a me nā maikaʻi ʻole o ka mālama ʻana iā IPF?

ʻOiai ʻaʻohe mea ola no IPF, e nānā paha kāu kauka i ka hoʻokele a me ka mālama ʻana e hoʻolōʻihi ai i kou ola. E kōkua pū kēia i ka hoʻomaikaʻi ʻana i kou ʻano o ke ola a pale i nā pilikia, e like me nā maʻi.

ʻOiai hiki i ka IPF ke lilo i mea nui, he mea nui ʻaʻole e hāʻawi pio. Hiki i ka mālama ʻana iā IPF ke hana i kāu mau hana i kēlā me kēia lā i mea leʻaleʻa. Koi paha kāu kauka iā ʻoe e komo i nā hoʻokolohua hoʻokolohua, i hiki ke hōʻike iā ʻoe i nā lāʻau hou.

ʻO ka maikaʻi ʻole i ka mālama ʻana i ka IPF hiki i nā hopena hopena lāʻau a me ka hōʻole ʻia mai kahi transplant lung.

Ke noʻonoʻo nei i ka maikaʻi a me ka maikaʻi ʻole o ka mālama ʻana, ʻike paha ʻoe ua ʻoi aku ka maikaʻi ma mua o nā pilikia. Hiki iā ʻoe a me kāu kauka ke hoʻoholo i ka mea ʻoi loa no kāu kūlana ponoʻī.